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acejointhealth.bsky.social
Arthritis Consumer Experts & JointHealth™ Programs
@acejointhealth.bsky.social
140 followers 61 following 290 posts
JointHealth™ — Your science-based source for easy-to-read arthritis info on treatments, research, and health policy. Visit us at www.jointhealth.org

Follow us on Facebook: facebook.com/ACEJointHealth
Posts Replies Media Videos
acejointhealth.bsky.social
JointHealth™ express - New Arthritis Advocate: #Lupus care gaps: Why education, equity and patient advocacy matter.

Read now: advocacy.jointhealth.org/volume-4/ #TheArthritisAdvocate #ArthritisAwarenessMonth

@lupuschat.bsky.social @lupus.org @fibroandlupus.bsky.social @jarproject.bsky.social
September 23, 2026 at 7:14 PM
acejointhealth.bsky.social
JointHealth™ express - Nouvelle publication de #TheArthritisAdvocate : Les lacunes dans la prise en charge du lupus : pourquoi l’éducation, l’équité et la défense des droits des patients sont importantes advocacy.jointhealth.org/fr/volume-4-...

@schroeder-uhn.bsky.social @arthritispower.bsky.social
September 23, 2026 at 7:13 PM
acejointhealth.bsky.social
Quebecers vote on Oct. 5. Today, we launched a new #QuebecElection 2026 healthcare commitment matrix as part of our #Vote4Arthritis campaign.

Read now: arthritisnews.jointhealth.org/2026/09/21/q...

#ArthritisAwarenessMonth @arthritisdietitian.bsky.social @arthritispower.bsky.social @inesss.qc.ca
Quebec Election 2026: Where do the parties stand on arthritis care? - Arthritis News
Quebecers vote on October 5. With health care a major election issue, Arthritis Consumer Experts (ACE) is tracking what the five major parties are promising and what those commitments could mean for m...
arthritisnews.jointhealth.org
September 21, 2026 at 10:33 PM
acejointhealth.bsky.social
Aujourd’hui, le comité ACE a publié un nouveau tableau des engagements en matière de soins de santé pour les élections 2026 au #Québec dans le cadre de sa campagne « Votez en faveur de l’arthrite ».

Lire maintenant: arthritisnews.jointhealth.org/fr/2026/09/2...

@schroeder-uhn.bsky.social
Élections 2026 au Québec : Quelle est la position des partis à l’égard des soins liés à l’arthrite? - Arthritis News
Les Québécois se rendront aux urnes le 5 octobre prochain. Alors que la santé est l’un des principaux enjeux de la campagne électorale, le comité ACE (Arthritis Consumer Experts) analyse les promesses...
arthritisnews.jointhealth.org
September 21, 2026 at 10:32 PM
acejointhealth.bsky.social
In the newest volume of #TheArthritisAdvocate, ACE looks at five priorities for improving arthritis care in #Quebec and the actions the next provincial government can take to address them.

Read now: advocacy.jointhealth.org/volume-2/

@schroeder-uhn.bsky.social @arthritispower.bsky.social
Quebec election 2026: What the parties' health commitments mean for arthritis care - Advocacy
Volume 2 Quebec election 2026: What the parties’ health commitments mean for arthritis care Quebecers vote on October 5, and health care is a major…
advocacy.jointhealth.org
September 10, 2026 at 10:54 PM
acejointhealth.bsky.social
JointHealth™ express - « The Arthritis Advocate », Vol. 2 – Élections 2026 au #Québec : Cinq priorités pour améliorer les soins liés à l’arthrite.

Lire maintenant: advocacy.jointhealth.org/fr/volume-2-...

@inesss.qc.ca @mcgill.ca @facmed-umontreal.bsky.social @quebecsolidaire.bsky.social
Élections québécoises de 2026 : Ce que les engagements des partis en matière de santé signifient pour les soins liés à l'arthrite - Advocacy
Volume 2 Élections québécoises de 2026 : Ce que les engagements des partis en matière de santé signifient pour les soins liés à l’arthrite Les…
advocacy.jointhealth.org
September 10, 2026 at 10:53 PM
acejointhealth.bsky.social
JointHealth™ express - ACE launches #Vote4Arthritis for #Quebec's 2026 provincial election. For the 2026 Quebec election, ACE is calling for action in five areas.

Learn more: jointhealth.org/electionQueb...

@schroeder-uhn.bsky.social @arthritispower.bsky.social @quebecsolidaire.bsky.social
The image has a dark blue background. A fleur-de-lis from Quebec flag is on top left corner. Words Quebec Election 2026 with hashtag Vote4Arthritis are in the center of the image.
September 10, 2026 at 4:48 PM
acejointhealth.bsky.social
JointHealth™ express - Introducing #TheArthritisAdvocate: Learn. Lead. Influence - a new publication created to help people living w/#arthritis become stronger advocates.

Read now: advocacy.jointhealth.org/the-arthriti...

#ArthritisAwarenessMonth @rheumnow.bsky.social @arthritispower.bsky.social
September 3, 2026 at 4:37 PM
acejointhealth.bsky.social
Women are disproportionately affected by #arthritis, but too much about their experiences remains unseen, undocumented and poorly understood. You can help change that.

Take the #ACESurvey on Women and Arthritis: bit.ly/ACESurveyWom...

#ArthritisAwarenessMonth #womenhealth
ACE National Survey on Women and Arthritis
The National Survey on Women and Arthritis is for women living with arthritis in Canada. The Survey results will help ACE identify where arthritis care is meeting the needs of women and where critical...
bit.ly
September 2, 2026 at 6:15 PM
acejointhealth.bsky.social
We're fundraising for #ArthritisResearch!

We're taking part in #MakeYourMOVE w/Arthritis Research Canada by committing to 30 minutes of movement, 5 days/week.

Please consider making a donation 🙏 support.arthritisresearch.ca/fundraisers/...

@arthritispower.bsky.social @arthritis-ubc.bsky.social
Arthritis Consumer Experts (ACE)
Join my organization for the MOVE with Arthritis Research challenge. I’m committing to moving for 30 minutes a day, 5 days a week, to raise funds for Arthritis Research Canada.
support.arthritisresearch.ca
August 19, 2026 at 6:28 PM
acejointhealth.bsky.social
JointHealth™ express - Demande de rétroaction de patients prenant du canakinumab (Ilaris) pour le traitement de la maladie de Still de l’adulte: arthritisnews.jointhealth.org/fr/2026/06/2...

@jarproject.bsky.social @arthritispower.bsky.social @arthritistrainees.bsky.social @eular.org
Demande de rétroaction de patients prenant du canakinumab (Ilaris) pour le traitement de la maladie de Still de l’adulte - Arthritis News
Si vous êtes atteint de la maladie de Still de l’adulte ou prodiguez des soins à quelqu’un qui en souffre, n’hésitez pas à nous faire parvenir vos commentaires d’ici le 5 juillet 2026. Vos commentaire...
arthritisnews.jointhealth.org
June 29, 2026 at 8:30 PM
acejointhealth.bsky.social
JointHealth™ express - Call for patient input on canakinumab (Ilaris) for adult-onset Still’s disease.

Learn more: arthritisnews.jointhealth.org/2026/06/29/c...

#ACEAdvocacy #Stillsdisease @arthritispower.bsky.social @arthritistrainees.bsky.social @schroeder-uhn.bsky.social
Call for patient input on canakinumab (Ilaris) for adult-onset Still’s disease - Arthritis News
If you live with adult-onset Still’s disease or care for someone with adult-onset Still’s disease, please send us your input by July 5, 2026. Your input will be anonymous.
arthritisnews.jointhealth.org
June 29, 2026 at 8:30 PM
acejointhealth.bsky.social
JointHealth™ express - Capsule 325 de #ArthritisAtHome - Une approche concise et pratique de l’évaluation de l’articulation temporo-mandibulaire.

Visionner maintenant: arthritisathome.jointhealth.org?p=6990&lang=fr

#CRArthritis @arthritispower.bsky.social @schroeder-uhn.bsky.social @eular.org
Capsule 325 de « À la maison avec l’arthrite » - Une approche concise et pratique de l’évaluation de l’articulation temporo-mandibulaire (ATM) | Arthritis At Home
Cette capsule de « À la maison avec l’arthrite » met en vedette la Dre Marinka Twilt, professeure au département de pédiatrie de la Cumming School of Medicine de l’Université de Calgary.
arthritisathome.jointhealth.org
June 11, 2026 at 7:32 PM
acejointhealth.bsky.social
JointHealth™ express - #ArthritisAtHome 325 – A succinct, hands-on approach to temporomandibular joint (TMJ) assessment.

Watch now: arthritisathome.jointhealth.org?p=6989

#CRArthritis #JIA @arthritispower.bsky.social @jarproject.bsky.social @ucalgarymed.bsky.social @schroeder-uhn.bsky.social
Arthritis At Home 325 – A succinct, hands-on approach to temporomandibular joint (TMJ) assessment | Arthritis At Home
This episode of Arthritis At Home features Dr. Marinka Twilt, a Professor in the Cumming School of Medicine in the Department of Pediatrics at the University of Calgary.
arthritisathome.jointhealth.org
June 11, 2026 at 7:31 PM
acejointhealth.bsky.social
Are you curious what people living with arthritis thinks about artificial intelligence use in their care? #AI

If you are at #EULAR2026, please visit Ellen to learn more at Poster View VIII on Saturday, June 6 at 10:15 BST!

@eular.org @arthritispower.bsky.social @achronicvoice.com
June 5, 2026 at 6:10 PM
acejointhealth.bsky.social
JointHealth™ express - ACE Research Featured at #EULAR2026: Understanding Patient Perspectives on Artificial Intelligence in Arthritis Care.

Visit Ellen Wang, ACE's Programs Coordinator on June 6 at Poster View VIII to learn more or read here: bit.ly/ACEArtificia...

@eular.org #AI #ACESurvey
ACE Research Featured at EULAR 2026: Understanding Patient Perspectives on Artificial Intelligence in Arthritis Care - Arthritis News
Research from ACE’s 2025 National Survey on AI and Arthritis Care will be presented at the European Alliance of Associations for Rheumatology (EULAR) 2026 Congress in London, England.
bit.ly
June 3, 2026 at 6:55 PM
acejointhealth.bsky.social
This #WorldAiArthritisDay, YOU can help make a difference for millions of people living with #rheumatoidarthritis. Visit globalranetwork.org to help raise awareness. Share your story & connect w/a community that’s fighting for better #RA care.

@ifaiarthritis.bsky.social @arthritispower.bsky.social
May 20, 2026 at 7:10 PM
acejointhealth.bsky.social
Le nouveau numéro du JointHealth™ insight examine l’impact souvent ignoré du lupus sur la santé mentale, la grossesse & la vie intime: bit.ly/ACENationalS...

#LupusAwarenessMonth #AiArthritisDay

@fibroandlupus.bsky.social @arthritistrainees.bsky.social @ifaiarthritis.bsky.social
Rapport d’enquête nationale sur le lupuss – Volet 2 - Joint Health Insight™
Le nouveau numéro du JointHealth™ insight examine l’impact souvent ignoré du lupus sur la santé mentale, la grossesse et la vie intime.
bit.ly
May 20, 2026 at 7:07 PM
acejointhealth.bsky.social
JointHealth™ insight - #ACESurvey on Lupus Report: Part Two explores the hidden impacts of #lupus on mental health, pregnancy & intimacy: bit.ly/ACENationalS...

#LupusAwarenessMonth #AiArthritisDay

@schroeder-uhn.bsky.social @arthritispower.bsky.social @lupuschat.bsky.social @lupus.org
National Survey on Lupus Report: Part Two - Joint Health Insight™
New JointHealth™ insight explores the hidden impacts of lupus on mental health, pregnancy, and intimacy.
bit.ly
May 20, 2026 at 7:05 PM
acejointhealth.bsky.social
Join the #Patientsandpatents campaign today to:

➡️ Increase awareness about the impact of patents on patients & the healthcare system
➡️ Promote health equity
➡️ Increase treatment options for patients

Join now: patientsandpatents.info

#AffordableMedsNow #AiArthritisDay @eular.org @uhnresearch.ca
May 19, 2026 at 5:57 PM
acejointhealth.bsky.social
An article on BioSpace summarizes an analysis by Sean Tu of the University of Alabama School of Law. It cites multiple examples of pharmas using "serial litigation" to stave off would-be competitors for years. #Patientsandpatents

Read here: bit.ly/Patientsandp...

@arthritispower.bsky.social
May 14, 2026 at 5:02 PM
Reposted by Arthritis Consumer Experts & JointHealth™ Programs
acr-journals.bsky.social
Case-cohort study within ELSA-Brasil (N=585) investigated coronary artery calcium (CAC) prevalence in rheumatoid arthritis. RA was not associated with CAC prevalence or incidence, but was associated with greater CAC progression over a 4-year period

Arthritis Care & Research
doi.org/10.1002/acr....
Rheumatoid Arthritis and Coronary Artery Calcium Progression: A Case Cohort Analysis from ELSA‐Brasil
Objective To investigate the association between rheumatoid arthritis (RA) and coronary artery calcium (CAC) prevalence, incidence, and progression over four years in adults without prior cardiovasc...
doi.org
May 14, 2026 at 4:28 PM
acejointhealth.bsky.social
JointHealth™ express - Capsule 321 de #ArthritisAtHome - Vers une biopsie liquide pour la néphrite lupique. #LupusAwarenessMonth

Visionner maintenant: arthritisathome.jointhealth.org?p=6944&lang=fr

#lupique @arthritispower.bsky.social @arthritistrainees.bsky.social @eular.org
Capsule 321 de « À la maison avec l’arthrite » - Vers une biopsie liquide pour la néphrite lupique | Arthritis At Home
Cette capsule de « À la maison avec l’arthrite » met en vedette le Dr Andrea Fava, membre du corps enseignant du Johns Hopkins Lupus Center.
arthritisathome.jointhealth.org
May 14, 2026 at 4:40 PM
acejointhealth.bsky.social
JointHealth™ express - #ArthritisAtHome 321 – Toward a liquid biopsy for #lupus nephritis. #LupusAwarenessMonth

Watch now: arthritisathome.jointhealth.org?p=6943

#CRArthritis @arthritispower.bsky.social @lupuschat.bsky.social @lupus.org @fibroandlupus.bsky.social @jrheumatol.bsky.social
Arthritis At Home 321 – Toward a liquid biopsy for lupus nephritis | Arthritis At Home
This episode of Arthritis At Home features Dr. Andrea Fava, Faculty Member at the Johns Hopkins Lupus Center.
arthritisathome.jointhealth.org
May 14, 2026 at 4:39 PM
acejointhealth.bsky.social
In #CRArthritis 25, Dr. Alexandra Legge from @dalhousieu.bsky.social shares what the resident's pre-course is & what #lupus nephritis is & why it's important to diagnose & treat it early.

Watch now: youtu.be/rqVordidTmE

#LupusAwarenessMonth @arthritispower.bsky.social @lupuschat.bsky.social
Interview 25 – Lupus nephritis: Core concepts and new frontiers
YouTube video by Arthritis Broadcast Network
youtu.be
May 8, 2026 at 8:03 PM