The Brain Tumour Charity
@braintumourcharity.bsky.social
The world's leading brain tumour charity & the largest dedicated funder of research into brain tumours globally.
Pinned
We know the devastating impact receiving a brain tumour diagnosis can have, whether that be your own or a loved ones.
Our support covers a wide range of inclusive and accessible services for everyone affected by a brain tumour, whether it’s low or high grade, adult or child. bit.ly/4gqh4JG
Our support covers a wide range of inclusive and accessible services for everyone affected by a brain tumour, whether it’s low or high grade, adult or child. bit.ly/4gqh4JG
Reposted by The Brain Tumour Charity
As of today, World Cancer Day, Wales in the only UK nation without a long-term plan to drive improvements in cancer care and outcomes. With cancer incidence in Wales rising – adding pressure to an already stretched system – the next Government must urgently address this...
February 4, 2026 at 8:31 AM
As of today, World Cancer Day, Wales in the only UK nation without a long-term plan to drive improvements in cancer care and outcomes. With cancer incidence in Wales rising – adding pressure to an already stretched system – the next Government must urgently address this...
We were in Westminster on Monday to launch our latest report: The Cost of a Brain Tumour: The Economic Case for Urgent Action. The report reveals something shocking: brain tumour diagnoses in 2025 will create a financial burden of £18.7 billion for the UK.
December 18, 2025 at 4:07 PM
We were in Westminster on Monday to launch our latest report: The Cost of a Brain Tumour: The Economic Case for Urgent Action. The report reveals something shocking: brain tumour diagnoses in 2025 will create a financial burden of £18.7 billion for the UK.
Following this week’s Budget, we’re calling on the brain tumour community to help MPs understand the financial realities of a diagnosis — and the urgent need for national action. #BrainTumourCharity #NationalStrategy #TheBudget
November 27, 2025 at 3:21 PM
Following this week’s Budget, we’re calling on the brain tumour community to help MPs understand the financial realities of a diagnosis — and the urgent need for national action. #BrainTumourCharity #NationalStrategy #TheBudget
1/3 Today’s draft guidance by NICE to not recommend vorasidenib for use on the NHS is disappointing.
It highlights broader challenges of bringing new treatments to people affected by brain tumours — challenges that are made more urgent by the lack of existing options.
It highlights broader challenges of bringing new treatments to people affected by brain tumours — challenges that are made more urgent by the lack of existing options.
October 15, 2025 at 8:24 AM
1/3 Today’s draft guidance by NICE to not recommend vorasidenib for use on the NHS is disappointing.
It highlights broader challenges of bringing new treatments to people affected by brain tumours — challenges that are made more urgent by the lack of existing options.
It highlights broader challenges of bringing new treatments to people affected by brain tumours — challenges that are made more urgent by the lack of existing options.
Brain tumours are consistently falling through gaps in policy. As a proud member of the Wales Cancer Alliance, we've joined together to call on all parties in Wales to commit to implementing our recommendations to improve cancer care should they form the next Welsh Government.
See below for more.
See below for more.
📢 We've launched our 2025 manifesto!
Fixing the Foundations: Building a better future for cancer care in Wales.
Every year, around 19,500 people are diagnosed with cancer in Wales. We need bold action to deliver timely, compassionate, and world-class care.
What we're calling for⬇️
Fixing the Foundations: Building a better future for cancer care in Wales.
Every year, around 19,500 people are diagnosed with cancer in Wales. We need bold action to deliver timely, compassionate, and world-class care.
What we're calling for⬇️
September 30, 2025 at 9:14 AM
Brain tumours are consistently falling through gaps in policy. As a proud member of the Wales Cancer Alliance, we've joined together to call on all parties in Wales to commit to implementing our recommendations to improve cancer care should they form the next Welsh Government.
See below for more.
See below for more.
Future Leader, @alvarezprado.bsky.social's research has revealed a protein that can inhibit glioblastoma cell growth and help the immune system attack the tumour. Ángel and his team are now evaluating different drugs that inhibit this protein, which could lead to new therapies.
bit.ly/3Vx9IvS
bit.ly/3Vx9IvS
September 3, 2025 at 12:37 PM
Future Leader, @alvarezprado.bsky.social's research has revealed a protein that can inhibit glioblastoma cell growth and help the immune system attack the tumour. Ángel and his team are now evaluating different drugs that inhibit this protein, which could lead to new therapies.
bit.ly/3Vx9IvS
bit.ly/3Vx9IvS
We’re proud to stand with #OneCancerVoice today, joining 60+ charities to call on the UK Government for a bold, fully funded National Cancer Plan. It must meet six essential tests to truly improve the lives of people affected by cancer.
August 27, 2025 at 4:37 PM
We’re proud to stand with #OneCancerVoice today, joining 60+ charities to call on the UK Government for a bold, fully funded National Cancer Plan. It must meet six essential tests to truly improve the lives of people affected by cancer.
Research funded by our Quality of Life award hopes to test whether SpoonieKids, based on the spoon theory, is effective and practical to help manage fatigue in children who are living with the effects of brain tumours. Find out more:
bit.ly/4ov64jD
bit.ly/4ov64jD
August 13, 2025 at 11:34 AM
Research funded by our Quality of Life award hopes to test whether SpoonieKids, based on the spoon theory, is effective and practical to help manage fatigue in children who are living with the effects of brain tumours. Find out more:
bit.ly/4ov64jD
bit.ly/4ov64jD
What is translational research? (thread)🧵
Only 10% of all research breakthroughs in the laboratory actually make it through to viable treatments. In most cases, this is due to a lack of translational research. 👇
Only 10% of all research breakthroughs in the laboratory actually make it through to viable treatments. In most cases, this is due to a lack of translational research. 👇
August 6, 2025 at 1:06 PM
What is translational research? (thread)🧵
Only 10% of all research breakthroughs in the laboratory actually make it through to viable treatments. In most cases, this is due to a lack of translational research. 👇
Only 10% of all research breakthroughs in the laboratory actually make it through to viable treatments. In most cases, this is due to a lack of translational research. 👇
On the London to Brighton bike ride, you're not just doing a 55-mile challenge. You're riding to pick up the pace of change for everyone affected by brain tumours every year.
Join our 2025 team for just £10 and cross the finish line on Sunday 14 Sept.
bit.ly/4kYeL2W
Join our 2025 team for just £10 and cross the finish line on Sunday 14 Sept.
bit.ly/4kYeL2W
London to Brighton Cycle 2025
Join The Brain Tumour Charity team at the ultimate cycling challenge at L'Étape du Tour de France 2025!
bit.ly
July 23, 2025 at 3:23 PM
On the London to Brighton bike ride, you're not just doing a 55-mile challenge. You're riding to pick up the pace of change for everyone affected by brain tumours every year.
Join our 2025 team for just £10 and cross the finish line on Sunday 14 Sept.
bit.ly/4kYeL2W
Join our 2025 team for just £10 and cross the finish line on Sunday 14 Sept.
bit.ly/4kYeL2W
“Glynwen was looking down on every step of the way.”
To remember her and raise funds, Trefor, Glynwen’s husband, and Brenda, her friend, walked 127 miles in May, along the pilgrimage trail from Twywn to Aberdaron in North Wales. Read more: bit.ly/4nKeOlB
To remember her and raise funds, Trefor, Glynwen’s husband, and Brenda, her friend, walked 127 miles in May, along the pilgrimage trail from Twywn to Aberdaron in North Wales. Read more: bit.ly/4nKeOlB
July 8, 2025 at 2:01 PM
“Glynwen was looking down on every step of the way.”
To remember her and raise funds, Trefor, Glynwen’s husband, and Brenda, her friend, walked 127 miles in May, along the pilgrimage trail from Twywn to Aberdaron in North Wales. Read more: bit.ly/4nKeOlB
To remember her and raise funds, Trefor, Glynwen’s husband, and Brenda, her friend, walked 127 miles in May, along the pilgrimage trail from Twywn to Aberdaron in North Wales. Read more: bit.ly/4nKeOlB
New scanning technology, developed by
@uniofaberdeen.bsky.social, can detect subtle differences in tumour growth, without the need for injected dyes - a positive step for those diagnosed with GBM, an aggressive brain cancer.
@uniofaberdeen.bsky.social, can detect subtle differences in tumour growth, without the need for injected dyes - a positive step for those diagnosed with GBM, an aggressive brain cancer.
June 19, 2025 at 9:45 AM
New scanning technology, developed by
@uniofaberdeen.bsky.social, can detect subtle differences in tumour growth, without the need for injected dyes - a positive step for those diagnosed with GBM, an aggressive brain cancer.
@uniofaberdeen.bsky.social, can detect subtle differences in tumour growth, without the need for injected dyes - a positive step for those diagnosed with GBM, an aggressive brain cancer.
You might not see yourself as a carer—just someone helping a loved one. But if you provide unpaid support to someone with a brain tumour, you are a carer—and you deserve support too.
June 11, 2025 at 2:56 PM
You might not see yourself as a carer—just someone helping a loved one. But if you provide unpaid support to someone with a brain tumour, you are a carer—and you deserve support too.
Yesterday, @clivejonesmp.bsky.social submitted an Early Day Motion calling for earlier brain tumour diagnosis, following the launch of our Exploring GP Access to Brain Scans report.
A big thank you to Clive and his office for supporting this important issue. Read the EDM: bit.ly/3FDqipC
A big thank you to Clive and his office for supporting this important issue. Read the EDM: bit.ly/3FDqipC
Brain tumour diagnosis - Early Day Motions - UK Parliament
That this House recognises the urgent need to improve diagnostic pathways for brain tumours, the largest cancer killer of the under 40s; notes with concern the findings of The Brain Tumour Charity’s A...
bit.ly
June 3, 2025 at 12:56 PM
Yesterday, @clivejonesmp.bsky.social submitted an Early Day Motion calling for earlier brain tumour diagnosis, following the launch of our Exploring GP Access to Brain Scans report.
A big thank you to Clive and his office for supporting this important issue. Read the EDM: bit.ly/3FDqipC
A big thank you to Clive and his office for supporting this important issue. Read the EDM: bit.ly/3FDqipC
An ultra-rapid method of genetically diagnosing brain tumours has been developed, cutting the classification time from 6-8 weeks, to as little as two hours. This could remove the uncertainty that those face waiting weeks for their diagnosis and prognosis. Read more: bit.ly/3YU9Qbb
May 21, 2025 at 8:23 AM
An ultra-rapid method of genetically diagnosing brain tumours has been developed, cutting the classification time from 6-8 weeks, to as little as two hours. This could remove the uncertainty that those face waiting weeks for their diagnosis and prognosis. Read more: bit.ly/3YU9Qbb
Our new report reveals a third of respondents didn’t know they could directly request brain scans for suspected brain tumours. Even among those who did, many weren’t clear on how to use this guidance. 🧵
May 1, 2025 at 2:36 PM
Our new report reveals a third of respondents didn’t know they could directly request brain scans for suspected brain tumours. Even among those who did, many weren’t clear on how to use this guidance. 🧵
After his glioblastoma diagnosis, John took on Everest in the Alps, climbing Everest’s height on skis with his daughter Belle, raising £300K for research into childhood brain tumours. Watch Belle share their story.
bit.ly/429wqi5
bit.ly/429wqi5
Everest in the Alps: The height of fundraising
Read about Everest in the Alps and the emotional journey of a father and daughter raising funds for brain tumour research.
www.thebraintumourcharity.org
April 4, 2025 at 1:41 PM
After his glioblastoma diagnosis, John took on Everest in the Alps, climbing Everest’s height on skis with his daughter Belle, raising £300K for research into childhood brain tumours. Watch Belle share their story.
bit.ly/429wqi5
bit.ly/429wqi5
Today marks the start of Teen and Young Adult Cancer Awareness Month, a time to raise awareness about the specific challenges teenagers and young adults face when coping with a cancer diagnosis and treatment.🧵
April 1, 2025 at 4:02 PM
Today marks the start of Teen and Young Adult Cancer Awareness Month, a time to raise awareness about the specific challenges teenagers and young adults face when coping with a cancer diagnosis and treatment.🧵
During the Spring Statement today, the Government has proposed significant changes to the welfare system that's left many people in the brain tumour community feeling anxious.
March 26, 2025 at 3:59 PM
During the Spring Statement today, the Government has proposed significant changes to the welfare system that's left many people in the brain tumour community feeling anxious.
Melissa’s husband Matt has two brain tumours. Their story began when an MRI showed lesions on Matt's brain, eventually leading to a glioblastoma diagnosis. The journey has been tough, but they’ve found strength in each other and in The Brain Tumour Charity. #BrainTumourSupport
March 26, 2025 at 8:43 AM
Melissa’s husband Matt has two brain tumours. Their story began when an MRI showed lesions on Matt's brain, eventually leading to a glioblastoma diagnosis. The journey has been tough, but they’ve found strength in each other and in The Brain Tumour Charity. #BrainTumourSupport
For years, people diagnosed with a brain tumour have fallen through the cracks—too often pushed into the ‘too difficult’ pile.
That’s why we’re encouraged to hear Ashley Dalton MP recognise the unique nature of brain tumours & ensure they’re included in the National Cancer Plan.
That’s why we’re encouraged to hear Ashley Dalton MP recognise the unique nature of brain tumours & ensure they’re included in the National Cancer Plan.
March 25, 2025 at 4:33 PM
For years, people diagnosed with a brain tumour have fallen through the cracks—too often pushed into the ‘too difficult’ pile.
That’s why we’re encouraged to hear Ashley Dalton MP recognise the unique nature of brain tumours & ensure they’re included in the National Cancer Plan.
That’s why we’re encouraged to hear Ashley Dalton MP recognise the unique nature of brain tumours & ensure they’re included in the National Cancer Plan.
The #TwilightWalk London is TOMORROW!
We can't wait to see everyone striding through the capital as we reflect, remember and raise awareness of brain tumours.
Will you be joining us?
We can't wait to see everyone striding through the capital as we reflect, remember and raise awareness of brain tumours.
Will you be joining us?
March 21, 2025 at 1:37 PM
The #TwilightWalk London is TOMORROW!
We can't wait to see everyone striding through the capital as we reflect, remember and raise awareness of brain tumours.
Will you be joining us?
We can't wait to see everyone striding through the capital as we reflect, remember and raise awareness of brain tumours.
Will you be joining us?
We fund research that changes lives—driving kinder treatments, better options & cures.
For every £1 we spend, we invest 50p+ in research—because that’s how we’ll find cures, faster.
This #BTAM, help us go further, faster. 💙 #AcceleratingCures
For every £1 we spend, we invest 50p+ in research—because that’s how we’ll find cures, faster.
This #BTAM, help us go further, faster. 💙 #AcceleratingCures
March 20, 2025 at 3:18 PM
We fund research that changes lives—driving kinder treatments, better options & cures.
For every £1 we spend, we invest 50p+ in research—because that’s how we’ll find cures, faster.
This #BTAM, help us go further, faster. 💙 #AcceleratingCures
For every £1 we spend, we invest 50p+ in research—because that’s how we’ll find cures, faster.
This #BTAM, help us go further, faster. 💙 #AcceleratingCures
Researcher Dr @alvarezprado.bsky.social, one of our Future Leaders' grant holders, has recently become the group leader of his own research team at the Luxembourg Institute of Health! Find out more about Angel’s research and his new lab: bit.ly/3DZW6UN
Future Leader Spotlight: Dr Ángel Álvarez-Prado
One of our Future Leaders, Dr Ángel Álvarez-Prado, is now leading his own research group at the Luxembourg Institute of Health. Read more.
bit.ly
March 18, 2025 at 8:16 AM
Researcher Dr @alvarezprado.bsky.social, one of our Future Leaders' grant holders, has recently become the group leader of his own research team at the Luxembourg Institute of Health! Find out more about Angel’s research and his new lab: bit.ly/3DZW6UN
“I think dealing with the unknown was the hardest part…”
When Simrat was diagnosed with an astroblastoma, her hospital had never seen a case like hers before. With little information available, she searched for answers—but found almost nothing.
Research changes that.
When Simrat was diagnosed with an astroblastoma, her hospital had never seen a case like hers before. With little information available, she searched for answers—but found almost nothing.
Research changes that.
March 17, 2025 at 3:13 PM
“I think dealing with the unknown was the hardest part…”
When Simrat was diagnosed with an astroblastoma, her hospital had never seen a case like hers before. With little information available, she searched for answers—but found almost nothing.
Research changes that.
When Simrat was diagnosed with an astroblastoma, her hospital had never seen a case like hers before. With little information available, she searched for answers—but found almost nothing.
Research changes that.