Jon Stone
LightNews LightNews
banner
jonstoneneuro.bsky.social
Jon Stone
@jonstoneneuro.bsky.social
1.1K followers 110 following 640 posts
Professor of Neurology, University of Edinburgh. FND Research. Creator of http://neurosymptoms.org. President Elect of http://fndsociety.org
Posts Replies Media Videos
jonstoneneuro.bsky.social
Digital Healthcare and FND

A new open access special issue of Phil Trans B edited by Anirban Dutta and Abhijit Das
@RSocPublishingRoyal Society Publishing

zurl.co/7UyyL

12 articles including my one on “Unmet needs in FND”

zurl.co/HVzjM
September 17, 2026 at 1:57 PM
jonstoneneuro.bsky.social
Scamvougeras and Castle express the view that FND should be framed ONLY in psychiatric terms in a new article @CogNPsychiatry
zurl.co/pSx1u

My reply explains why I think this historical - and dualistic - approach is wrong: zurl.co/OAcPN
September 13, 2026 at 2:39 PM
jonstoneneuro.bsky.social
Cardiologists and cardiac surgeons share the same organ and the same ICD-11 category.

Our new editorial @thelancet.com explores what would happen if neurologists and psychiatrists had a joint classification in ICD as well. 1/

zurl.co/M5d1o
August 17, 2026 at 2:52 PM
jonstoneneuro.bsky.social
Thank you Davina, Louise, Ian and Shaf, for raising money for our FND research group at the Edinburgh Kiltwalk @The Kiltwalk in September

Read more about our new FND University of Edinburgh fundraising campaign here - zurl.co/CpE0R

zurl.co/aMjY6
The Fife 4 for FND
Help Louise Douglas-Mirza raise money to support The University of Edinburgh
zurl.co
July 31, 2026 at 6:47 PM
jonstoneneuro.bsky.social
🎺One-day symposium on FND and other functional disorders - St George's Hospital, London

I'm looking forward to taking part in this low-cost, multidisciplinary annual event on Sep 11th 2026

zurl.co/PmDS2
July 6, 2026 at 6:34 AM
jonstoneneuro.bsky.social
"Mark Hallett and the renaissance of functional neurological disorder" - a tribute to the man and a look back at the evolution of FND over the last three decades.

zurl.co/hNvxy

Thanks @JankovicJoseph for inviting this for a special issue of "Clinical Parkinsonism"
July 4, 2026 at 4:24 AM
jonstoneneuro.bsky.social
Chronic Idiopathic Urinary Retention/ Fowlers syndrome is common in FND and vice versa.

A new framework for non-surgical treatment, led by @IngridHoeritza1 & Sara McRae, is a step change toward reducing permanent urinary catheters and invasive surgery.
zurl.co/LyaMB
July 3, 2026 at 7:42 AM
jonstoneneuro.bsky.social
Functional Visual Loss - a new paper in "Eye" led by Neil Ramsay

Full text here - zurl.co/lwbKQ

☑️ 1st systematic synthesis of epidemiology, prognosis and treatment
☑️ Near absence of treatment studies
☑️ Comorbid eye pathology/ trauma and headache common
June 28, 2026 at 1:51 PM
jonstoneneuro.bsky.social
I'm honoured to be taking over as President of the FND Society from Barbara Dworetzky for 2026-2028.

I'll be posting on multiple channels to
☑️ Raise awareness of FND and the fndsociety.org
☑️ FND research and news
☑️ Post new research from our Edinburgh group
June 28, 2026 at 1:31 PM
jonstoneneuro.bsky.social
These researchers from @kingscollegelondon.bsky.social are looking for 200 people with FND to fill out online questionnaires. Please consider helping out.
natashaseaton.bsky.social Natasha Seaton @natashaseaton.bsky.social · Jun 22
Have you ever felt dismissed, unheard, or not taken seriously by a doctor? 🏥
At King’s College London, we’re running a study on how patients experience healthcare 💊
If you are an adult in the UK who has come into contact with the healthcare system, you can sign up with below ⬇️
tinyurl.com/4zzcd93u
Medical Dismissal Study | King's College London
Understanding experiences of medical dismissal
tinyurl.com
June 22, 2026 at 2:55 PM
jonstoneneuro.bsky.social
Just over 4 weeks left until the @FNDSociety 2026 Baltimore meeting! zurl.co/qqGFg

If your budget can stretch, PLEASE consider booking the conference hotel.
zurl.co/SDhZS

Doing so will help make the meeting a financial success. Thank you!
Welcome to Functional Neurological Disorder Society Conference Jun2026
Book your hotel room for the event at special rates, available here on an exclusive basis.
book.passkey.com
May 14, 2026 at 8:45 PM
Reposted by Jon Stone
timnicholson.bsky.social
First of 2 great @thelancetpsych.bsky.social
articles on placebo/nocebo in psychiatry (& relevance to all of medicine) led by the brilliant @mattburkemd.bsky.social

This one on harnessing placebo & mitigating nocebo

www.sciencedirect.com/science/arti...
Harnessing placebo effects and mitigating nocebo effects: implications for clinical practice in psychiatry and medicine
In psychiatry and medicine, there is a long history of framing placebo effects primarily as nuisance factors and focusing on how they should be minimi…
www.sciencedirect.com
April 16, 2026 at 6:05 AM
Reposted by Jon Stone
davidlewisperez.bsky.social
A pilot randomized controlled trial of prolonged exposure therapy vs. psychoeducation for psychogenic nonepileptic seizures and comorbid post-traumatic stress disorder - Epilepsy & Behavior. www.epilepsybehavior.com/article/S152...
A pilot randomized controlled trial of prolonged exposure therapy vs. psychoeducation for psychogenic nonepileptic seizures and comorbid post-traumatic stress disorder
Psychogenic nonepileptic seizures (PNES), also known as functional dissociative seizures (F/DS), are paroxysmal episodes that resemble epileptic seizures, but lack electrophysiological correlation or ...
www.epilepsybehavior.com
April 5, 2026 at 2:25 PM
jonstoneneuro.bsky.social
The “Hallett Sign” - in honour of Mark Hallett (1943-2025)

movementdisorders.onlinelibrary.wiley.com/doi/10.1002/...
February 28, 2026 at 10:31 AM
jonstoneneuro.bsky.social
We have waited a long time for a robust clinical study of functional sensory symptoms and signs.

Congrats to @RoryHigginsPT and @GNielsen_Physio for leading this excellent study - detailed thread below

academic.oup.com/braincomms/a...
February 17, 2026 at 7:59 PM
jonstoneneuro.bsky.social
"Oxygen desaturation in patients with functional seizures: pitfalls for the unwary" - our new paper with Takamichi Kanbayashi and Kirsteen Brown in Practical Neurology

Free link here - bit.ly/465qEzk
pn.bmj.com/content/earl...
January 28, 2026 at 8:13 AM
Reposted by Jon Stone
davidlewisperez.bsky.social
Findings in this @biologicalpsych.bsky.social CNNI paper are complementary to other results published using graph theory metrics in @braincomms.bsky.social.
Check out this 20 minute lecture by Christi Westlin that connects the two papers! 8/8
youtu.be/0Zjs-7lf6fA
academic.oup.com/braincomms/a...
Inside the Predictive Brain: Neuroimaging Insights into Brain Circuitry in FND
YouTube video by David L Perez
youtu.be
January 13, 2026 at 1:18 PM
jonstoneneuro.bsky.social
I was asked by @braincomms to highlight their FND special collection which welcomes clinical and neuroscience research on every aspect of the condition.

A chance to reflect on how FND has moved from miscellaneous to mainstream

academic.oup.com/braincomms/a...
The Functional Neurological Disorder special collection in Brain Communications: bringing FND into the mainstream
Our Guest Editor, Jon Stone, introduces a special collection of articles focusing on functional neurological disorder.
academic.oup.com
January 8, 2026 at 8:24 PM
jonstoneneuro.bsky.social
FND: an evolutionary perspective

A short piece exploring an evolutionary perspective, specifically survival responses, to FND.

These are not new ideas, but thank you to Akiriho Nishi for suggesting a short, standalone article to encourage wider debate

academic.oup.com/emph/article...
Functional neurological disorder: an evolutionary perspective
Functional neurological disorder (FND) is among the commonest disorders in neurological practice with an estimated prevalence of 80–140 per 100 000 individ
academic.oup.com
January 5, 2026 at 9:10 PM
Reposted by Jon Stone
davidlewisperez.bsky.social
In 2025 - grateful that our Functional Neurological Disorder Unit & Research Group has diligently work across the 4 pillars of our mission: clinical care, program development, research & education. Making progress - with much more to do!

giving.massgeneral.org/donate?fnd=1...
December 31, 2025 at 3:12 PM
jonstoneneuro.bsky.social
At the year's end, our Edinburgh FND Research Group 2023-25 report.

A huge thank you to those who have given to us, and an update on what we've all been doing.

☑️ 2023-5 Report here - bit.ly/3KWEcpH
☑️ You can donate here - neurosymptoms.org/en/donate/

Thank you!
December 30, 2025 at 8:14 PM
Reposted by Jon Stone
fndireland.bsky.social
Great editorial on the challenges faced by those living with #FND on accessing rehabilitation services. The 2024 NAI Irish patient experience survey showed that 67% of adults with FND surveyed had never had access to neurorehabilitation services. This has to change, history does not stand still! 💚🧡
jonstoneneuro.bsky.social Jon Stone @jonstoneneuro.bsky.social · Dec 23
Reclaiming FND for Rehabilitation Medicine – new open access editorial

Neurorehab colleague Phil Milburn-McNulty and I set out why Rehab Medicine is so well-suited to treating FND, why they historically haven’t and what can be done to change things.

journals.sagepub.com/doi/10.1177/...
December 24, 2025 at 5:00 PM
Reposted by Jon Stone
fndportal.bsky.social
Very much agree with the points made here!

I especially appreciate how apprehension re: FND often flips into inspiration when clinicians see the tangible good they can do
“Once health professionals see that dramatic improvement in previously disabled people is possible, and that creativity and therapeutic skill are central to that process, it can be difficult to remember why there has been such historical reluctance to take ownership of this disorder.”
December 23, 2025 at 10:43 PM
jonstoneneuro.bsky.social
Reclaiming FND for Rehabilitation Medicine – new open access editorial

Neurorehab colleague Phil Milburn-McNulty and I set out why Rehab Medicine is so well-suited to treating FND, why they historically haven’t and what can be done to change things.

journals.sagepub.com/doi/10.1177/...
December 23, 2025 at 10:59 AM
jonstoneneuro.bsky.social
New @aanmember.bsky.social guidelines for the management of functional seizures led by Ben Tolchin. A landmark for people with FND worldwide.

✅Rigorous evidence-based process
✅Consensus practical recommendations
✅Endorsed by @fndsociety.bsky.social

www.neurology.org/doi/10.1212/...
December 13, 2025 at 5:33 PM