Patient Experience Library
@patientlibrary.bsky.social
Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net
Reposted by Patient Experience Library
Want to know how far recommendations from #covidinquiry are being implemented by Govt?
See tracker created by @cbffjuk.bsky.social
👇🏻
Bereaved families shouldn’t have to do this, but in the absence of a formal, independent monitoring mechanism, we’re doing it to help keep us all safe.
See tracker created by @cbffjuk.bsky.social
👇🏻
Bereaved families shouldn’t have to do this, but in the absence of a formal, independent monitoring mechanism, we’re doing it to help keep us all safe.
How do we know whether the recommendations from the Covid-19 Inquiry are actually translating into change?
Featured on the hub today, a tracker created by @cbffjuk.bsky.social to monitor the UK Government’s progress in implementing the inquiry's recommendations. www.pslhub.org/learn/invest...
Featured on the hub today, a tracker created by @cbffjuk.bsky.social to monitor the UK Government’s progress in implementing the inquiry's recommendations. www.pslhub.org/learn/invest...
Covid Inquiry Recommendations Tracker (Covid-19 Bereaved Families for Justice)
The Covid-19 Bereaved Families for Justice has created a tracker to monitor the UK Government’s progress in implementing the recommendations of the Covid-19 Inquiry
www.pslhub.org
October 7, 2026 at 10:11 AM
Want to know how far recommendations from #covidinquiry are being implemented by Govt?
See tracker created by @cbffjuk.bsky.social
👇🏻
Bereaved families shouldn’t have to do this, but in the absence of a formal, independent monitoring mechanism, we’re doing it to help keep us all safe.
See tracker created by @cbffjuk.bsky.social
👇🏻
Bereaved families shouldn’t have to do this, but in the absence of a formal, independent monitoring mechanism, we’re doing it to help keep us all safe.
Reposted by Patient Experience Library
We’re in Sheffield for Women’s Health in the North of England: Turning evidence into action with @acmedsci.bsky.social, bringing research, health, policy, innovation and community perspectives together. Follow #WomensHealthNorth for updates throughout the day.
October 7, 2026 at 10:31 AM
We’re in Sheffield for Women’s Health in the North of England: Turning evidence into action with @acmedsci.bsky.social, bringing research, health, policy, innovation and community perspectives together. Follow #WomensHealthNorth for updates throughout the day.
Reposted by Patient Experience Library
How do we know whether the recommendations from the Covid-19 Inquiry are actually translating into change?
Featured on the hub today, a tracker created by @cbffjuk.bsky.social to monitor the UK Government’s progress in implementing the inquiry's recommendations. www.pslhub.org/learn/invest...
Featured on the hub today, a tracker created by @cbffjuk.bsky.social to monitor the UK Government’s progress in implementing the inquiry's recommendations. www.pslhub.org/learn/invest...
Covid Inquiry Recommendations Tracker (Covid-19 Bereaved Families for Justice)
The Covid-19 Bereaved Families for Justice has created a tracker to monitor the UK Government’s progress in implementing the recommendations of the Covid-19 Inquiry
www.pslhub.org
October 7, 2026 at 8:04 AM
How do we know whether the recommendations from the Covid-19 Inquiry are actually translating into change?
Featured on the hub today, a tracker created by @cbffjuk.bsky.social to monitor the UK Government’s progress in implementing the inquiry's recommendations. www.pslhub.org/learn/invest...
Featured on the hub today, a tracker created by @cbffjuk.bsky.social to monitor the UK Government’s progress in implementing the inquiry's recommendations. www.pslhub.org/learn/invest...
NHS clinicians, finance managers, HR staff all have qualifications. But #PatientExperience staff have had to muddle through - until now.
New professional development course from
@bsmsmedschool.bsky.social: preview-bsms-brighton-uni.cloud.contensis.com/Preview/1/ab...
@jessiecunnett.bsky.social
New professional development course from
@bsmsmedschool.bsky.social: preview-bsms-brighton-uni.cloud.contensis.com/Preview/1/ab...
@jessiecunnett.bsky.social
October 6, 2026 at 1:54 PM
NHS clinicians, finance managers, HR staff all have qualifications. But #PatientExperience staff have had to muddle through - until now.
New professional development course from
@bsmsmedschool.bsky.social: preview-bsms-brighton-uni.cloud.contensis.com/Preview/1/ab...
@jessiecunnett.bsky.social
New professional development course from
@bsmsmedschool.bsky.social: preview-bsms-brighton-uni.cloud.contensis.com/Preview/1/ab...
@jessiecunnett.bsky.social
Reposted by Patient Experience Library
"The bereaved families fought for years to secure this Inquiry when many in Government wanted to move on, and they will continue pressing for accountability."
A new blog by @profnaomifulop.bsky.social on the hub this month. www.pslhub.org/learn/corona...
A new blog by @profnaomifulop.bsky.social on the hub this month. www.pslhub.org/learn/corona...
The PPE scandal has been exposed. Now we need accountability
Naomi Fulop argues that although the UK Covid-19 Inquiry has exposed serious systemic failures around the procurement of PPE, meaningful accountability remains largely absent
www.pslhub.org
October 6, 2026 at 11:31 AM
"The bereaved families fought for years to secure this Inquiry when many in Government wanted to move on, and they will continue pressing for accountability."
A new blog by @profnaomifulop.bsky.social on the hub this month. www.pslhub.org/learn/corona...
A new blog by @profnaomifulop.bsky.social on the hub this month. www.pslhub.org/learn/corona...
Reposted by Patient Experience Library
"We have a new name: the Public Service Ombudsman. Same powers, same independence, same commitment to fair public services. We're just easier to find and understand."
Ombudsman Paula Sussex shares why we've changed our name in her new blog.
Read more: orlo.uk/mR2F5
Ombudsman Paula Sussex shares why we've changed our name in her new blog.
Read more: orlo.uk/mR2F5
October 6, 2026 at 7:27 AM
"We have a new name: the Public Service Ombudsman. Same powers, same independence, same commitment to fair public services. We're just easier to find and understand."
Ombudsman Paula Sussex shares why we've changed our name in her new blog.
Read more: orlo.uk/mR2F5
Ombudsman Paula Sussex shares why we've changed our name in her new blog.
Read more: orlo.uk/mR2F5
How can a "patient-centred" and "evidence-based" NHS ensure its workers are helped to know what these things mean?
@bsmsmedschool.bsky.social is providing answers and practical support. More here: preview-bsms-brighton-uni.cloud.contensis.com/Preview/1/ab...
@jessiecunnett.bsky.social
@bsmsmedschool.bsky.social is providing answers and practical support. More here: preview-bsms-brighton-uni.cloud.contensis.com/Preview/1/ab...
@jessiecunnett.bsky.social
October 6, 2026 at 10:34 AM
How can a "patient-centred" and "evidence-based" NHS ensure its workers are helped to know what these things mean?
@bsmsmedschool.bsky.social is providing answers and practical support. More here: preview-bsms-brighton-uni.cloud.contensis.com/Preview/1/ab...
@jessiecunnett.bsky.social
@bsmsmedschool.bsky.social is providing answers and practical support. More here: preview-bsms-brighton-uni.cloud.contensis.com/Preview/1/ab...
@jessiecunnett.bsky.social
Reposted by Patient Experience Library
“What is it about this system that makes harm possible and how can we redesign it to make safe care more reliable?” www.pslhub.org/learn/patien...
Beyond inquiries: reflecting on systems thinking approach in maternity safety
Aditi Desai considers whether retrospective inquiries alone are enough to improve maternity safety, arguing that individual errors rarely explain the full picture
www.pslhub.org
October 5, 2026 at 11:38 AM
“What is it about this system that makes harm possible and how can we redesign it to make safe care more reliable?” www.pslhub.org/learn/patien...
Reposted by Patient Experience Library
Exploring women’s views & experiences of language barriers in high income maternity care settings: a qualitative systematic review & thematic synthesis
Eleanor Molloy, Sophie Dann, Fiona Cross-Sudworth, Amy Delicate, Agiya Tadros, Sarah Bicknell, et al
link.springer.com/article/10.1...
Eleanor Molloy, Sophie Dann, Fiona Cross-Sudworth, Amy Delicate, Agiya Tadros, Sarah Bicknell, et al
link.springer.com/article/10.1...
Exploring women’s views and experiences of language barriers in high income maternity care settings: a qualitative systematic review and thematic synthesis - International Journal for Equity in Health
Background In high-income countries (HIC), an increasing number of women giving birth require support to communicate in the host-country language. Interpreter services and translated resources should ...
link.springer.com
October 2, 2026 at 10:40 AM
Exploring women’s views & experiences of language barriers in high income maternity care settings: a qualitative systematic review & thematic synthesis
Eleanor Molloy, Sophie Dann, Fiona Cross-Sudworth, Amy Delicate, Agiya Tadros, Sarah Bicknell, et al
link.springer.com/article/10.1...
Eleanor Molloy, Sophie Dann, Fiona Cross-Sudworth, Amy Delicate, Agiya Tadros, Sarah Bicknell, et al
link.springer.com/article/10.1...
Reposted by Patient Experience Library
Research on the Role of Patient Information Leaflets in Meeting the Information Needs of Patients
This independent research was commissioned by theMedicines and Healthcare products Regulatory Agency. The research had five objectives: To map the different user journeys that exist to access…
This independent research was commissioned by theMedicines and Healthcare products Regulatory Agency. The research had five objectives: To map the different user journeys that exist to access…
Research on the Role of Patient Information Leaflets in Meeting the Information Needs of Patients
This independent research was commissioned by theMedicines and Healthcare products Regulatory Agency. The research had five objectives: To map the different user journeys that exist to access medicines. To understand how individuals currently engage with health information relating to medicines. To understand how individuals currently engage with the Patient Information Leaflet (PIL). To understand what factors influence an individual’s access and engagement with a PIL. To understand the best way to highlight additional safety warnings within a PIL. The_Role_of_Patient_Information_Leaflets_in_Meeting_the_Information_Needs_of_Patients_-_Final_Report_BRAND.pdf
trfthealthweeklydigest.wordpress.com
September 29, 2026 at 7:38 AM
Research on the Role of Patient Information Leaflets in Meeting the Information Needs of Patients
This independent research was commissioned by theMedicines and Healthcare products Regulatory Agency. The research had five objectives: To map the different user journeys that exist to access…
This independent research was commissioned by theMedicines and Healthcare products Regulatory Agency. The research had five objectives: To map the different user journeys that exist to access…
Reposted by Patient Experience Library
THIS Space 2026 programme is now live! Join us virtually on 24 November. The event is free to attend, but booking is essential and space is limited. View the full programme and register here: ths.im/2026
September 29, 2026 at 8:00 AM
THIS Space 2026 programme is now live! Join us virtually on 24 November. The event is free to attend, but booking is essential and space is limited. View the full programme and register here: ths.im/2026
Reposted by Patient Experience Library
Three in four UK GPs ‘too busy to talk to their patients in depth’ - an article via @theguardian.com added to the hub. www.pslhub.org/news/three-i...
Three in four UK GPs ‘too busy to talk to their patients in depth’
A friendly chat with your GP about your life, health and happiness was once a key part of the UK’s family doctor service.But most GPs no longer have time to have pastoral conversations, because they…
www.pslhub.org
September 29, 2026 at 9:13 AM
Three in four UK GPs ‘too busy to talk to their patients in depth’ - an article via @theguardian.com added to the hub. www.pslhub.org/news/three-i...
Reposted by Patient Experience Library
Janet from our engagement team will be at the Stockton Wellbeing Hub this Wednesday (tomorrow) where you can drop-in and speak about your health and care queries in confidence.
Date: Wednesday 30 Sept
Time: 11.30am - 3pm
Location: Stockton Wellbeing Hub, Wellington Square
Date: Wednesday 30 Sept
Time: 11.30am - 3pm
Location: Stockton Wellbeing Hub, Wellington Square
September 29, 2026 at 9:16 AM
Janet from our engagement team will be at the Stockton Wellbeing Hub this Wednesday (tomorrow) where you can drop-in and speak about your health and care queries in confidence.
Date: Wednesday 30 Sept
Time: 11.30am - 3pm
Location: Stockton Wellbeing Hub, Wellington Square
Date: Wednesday 30 Sept
Time: 11.30am - 3pm
Location: Stockton Wellbeing Hub, Wellington Square
Reposted by Patient Experience Library
You can sign up now for the North West Children’s and Teenage and Young Adult (CTYA) Cancer Conference 2027, taking place on Thursday 18 March 2027 at etc.venues Manchester.
Sign up here: www.gmcanceracademy.org.uk/north-west-c...
Sign up here: www.gmcanceracademy.org.uk/north-west-c...
September 25, 2026 at 3:24 PM
You can sign up now for the North West Children’s and Teenage and Young Adult (CTYA) Cancer Conference 2027, taking place on Thursday 18 March 2027 at etc.venues Manchester.
Sign up here: www.gmcanceracademy.org.uk/north-west-c...
Sign up here: www.gmcanceracademy.org.uk/north-west-c...
Reposted by Patient Experience Library
The recent NAO report on NHSE's emergency care strategy uses some very gentle language to make some very damning claims. and it is 50 pages long:
www.nao.org.uk/reports/mana...
Here is my simple summary...
www.nao.org.uk/reports/mana...
Here is my simple summary...
Managing the flow of patients through hospital from A&E - NAO report
This report looks at how well patients flow through A&E into the wider hospital in England and at the support NHSE provides.
www.nao.org.uk
September 23, 2026 at 12:46 PM
The recent NAO report on NHSE's emergency care strategy uses some very gentle language to make some very damning claims. and it is 50 pages long:
www.nao.org.uk/reports/mana...
Here is my simple summary...
www.nao.org.uk/reports/mana...
Here is my simple summary...
Reposted by Patient Experience Library
Are you passionate about improving health and care services? @aspihuk.bsky.social are looking for new lived experience advisors. Find out more on the hub below⬇️
www.pslhub.org/forums/topic...
www.pslhub.org/forums/topic...
Help shape the future of healthcare simulation – Join ASPiH as a Lived Experience Advisor
Are you passionate about improving health and care services? We want you to join our friendly and inclusive team.About ASPiHThe Association for Simulated Practice in Healthcare (ASPiH) is a UK-wide…
www.pslhub.org
September 23, 2026 at 9:13 AM
Are you passionate about improving health and care services? @aspihuk.bsky.social are looking for new lived experience advisors. Find out more on the hub below⬇️
www.pslhub.org/forums/topic...
www.pslhub.org/forums/topic...
Reposted by Patient Experience Library
🆕Monday 21st to Sunday 27th September is Black Maternal Mental Health Week UK. In this new blog on the hub, Sandra Igwe MBE draws on her own personal and professional experiences to illustrate why Black maternal mental health is a patient safety issue. www.pslhub.org/learn/patien...
Black maternal mental health is a patient safety issue
Sandra Igwe draws on her own personal and professional experiences to illustrate why Black maternal mental health is a patient safety issue.
www.pslhub.org
September 22, 2026 at 7:50 AM
🆕Monday 21st to Sunday 27th September is Black Maternal Mental Health Week UK. In this new blog on the hub, Sandra Igwe MBE draws on her own personal and professional experiences to illustrate why Black maternal mental health is a patient safety issue. www.pslhub.org/learn/patien...
Reposted by Patient Experience Library
📢 New investigation launched. We are keen to hear from patients, families, carers and health and care professionals who may wish to share their experience. Find out more and get involved: buff.ly/sArWUY7 #PatientSafety #HSSIB #NHS #Healthcare #MaternitySafety #PAS
September 22, 2026 at 8:10 AM
📢 New investigation launched. We are keen to hear from patients, families, carers and health and care professionals who may wish to share their experience. Find out more and get involved: buff.ly/sArWUY7 #PatientSafety #HSSIB #NHS #Healthcare #MaternitySafety #PAS
Reposted by Patient Experience Library
HOW ARE YOU CENTERING LIVED EXPERIENCE?
We offer practical support to help you make co-production happen.
Visit our website to explore our services: buff.ly/Mcqdw3R
Training / support / resources
#coproduction
#communities
#citizeninvolvement
#inclusion
#services
We offer practical support to help you make co-production happen.
Visit our website to explore our services: buff.ly/Mcqdw3R
Training / support / resources
#coproduction
#communities
#citizeninvolvement
#inclusion
#services
September 22, 2026 at 9:01 AM
HOW ARE YOU CENTERING LIVED EXPERIENCE?
We offer practical support to help you make co-production happen.
Visit our website to explore our services: buff.ly/Mcqdw3R
Training / support / resources
#coproduction
#communities
#citizeninvolvement
#inclusion
#services
We offer practical support to help you make co-production happen.
Visit our website to explore our services: buff.ly/Mcqdw3R
Training / support / resources
#coproduction
#communities
#citizeninvolvement
#inclusion
#services
Reposted by Patient Experience Library
Earlier this year, we analysed the mental health care experiences of children, young people and their families.
We need better joined-up working across the NHS, schools, care and the voluntary sector to address key issues in this vital service.
https://bit.ly/4vfhFWM
We need better joined-up working across the NHS, schools, care and the voluntary sector to address key issues in this vital service.
https://bit.ly/4vfhFWM
September 21, 2026 at 3:53 PM
Earlier this year, we analysed the mental health care experiences of children, young people and their families.
We need better joined-up working across the NHS, schools, care and the voluntary sector to address key issues in this vital service.
https://bit.ly/4vfhFWM
We need better joined-up working across the NHS, schools, care and the voluntary sector to address key issues in this vital service.
https://bit.ly/4vfhFWM
Reposted by Patient Experience Library
Making patient safety work for people living with dementia - a blog from Bella Smith, a Policy Officer at @alzheimerssoc.bsky.social, featured on the hub. www.pslhub.org/learn/patien... #WorldAlzheimersDay #WorldAlzheimersMonth #PatientSafety
https://www.pslhub.org/learn/patient-safety-in-health-and-care/conditions/dementia/making-patient-safety-work-for-people-living-with-dementia-r14733/
www.pslhub.org
September 21, 2026 at 9:13 AM
Making patient safety work for people living with dementia - a blog from Bella Smith, a Policy Officer at @alzheimerssoc.bsky.social, featured on the hub. www.pslhub.org/learn/patien... #WorldAlzheimersDay #WorldAlzheimersMonth #PatientSafety
Reposted by Patient Experience Library
Our next online support group is coming!
Nutrition & Exercise for Living Well with Bladder Cancer
Monday 7 December 2026
6pm
With Sophie Schogger, Highly Specialist Oncology Dietitian
Expert advice + informal small-group discussion.
Sign-up coming soon!
#BladderCancer #Urology
Nutrition & Exercise for Living Well with Bladder Cancer
Monday 7 December 2026
6pm
With Sophie Schogger, Highly Specialist Oncology Dietitian
Expert advice + informal small-group discussion.
Sign-up coming soon!
#BladderCancer #Urology
September 9, 2026 at 7:37 AM
Our next online support group is coming!
Nutrition & Exercise for Living Well with Bladder Cancer
Monday 7 December 2026
6pm
With Sophie Schogger, Highly Specialist Oncology Dietitian
Expert advice + informal small-group discussion.
Sign-up coming soon!
#BladderCancer #Urology
Nutrition & Exercise for Living Well with Bladder Cancer
Monday 7 December 2026
6pm
With Sophie Schogger, Highly Specialist Oncology Dietitian
Expert advice + informal small-group discussion.
Sign-up coming soon!
#BladderCancer #Urology
Reposted by Patient Experience Library
Healthwatch Oxfordshire is offering training to help you develop the skills to do your own community research.
The workshops will be Tuesdays 13th and 20th October from 10am-3pm, at East Oxford Community Centre.
For full details:
healthwatchoxfordshire.co.uk/latest-news/...
The workshops will be Tuesdays 13th and 20th October from 10am-3pm, at East Oxford Community Centre.
For full details:
healthwatchoxfordshire.co.uk/latest-news/...
September 9, 2026 at 10:26 AM
Healthwatch Oxfordshire is offering training to help you develop the skills to do your own community research.
The workshops will be Tuesdays 13th and 20th October from 10am-3pm, at East Oxford Community Centre.
For full details:
healthwatchoxfordshire.co.uk/latest-news/...
The workshops will be Tuesdays 13th and 20th October from 10am-3pm, at East Oxford Community Centre.
For full details:
healthwatchoxfordshire.co.uk/latest-news/...
Reposted by Patient Experience Library
Turning the tables on industry narratives: a health communication playbook for promoting health
David Stuckler, Florence Berteletti, @martinmckee.bsky.social
@healthpromint.bsky.social
academic.oup.com/heapro/artic...
David Stuckler, Florence Berteletti, @martinmckee.bsky.social
@healthpromint.bsky.social
academic.oup.com/heapro/artic...
Turning the tables on industry narratives: a health communication playbook for promoting health
Abstract. Industries producing harmful products such as tobacco, alcohol, ultra-processed foods, and fossil fuels use highly developed communication strate
academic.oup.com
September 7, 2026 at 3:28 PM
Turning the tables on industry narratives: a health communication playbook for promoting health
David Stuckler, Florence Berteletti, @martinmckee.bsky.social
@healthpromint.bsky.social
academic.oup.com/heapro/artic...
David Stuckler, Florence Berteletti, @martinmckee.bsky.social
@healthpromint.bsky.social
academic.oup.com/heapro/artic...
Reposted by Patient Experience Library
Living with MS? We’re recruiting adults in Great Britain to help us improve the Navigate MS app.
Taking part is voluntary, you can stop at any time, and your identifiable information is only accessible to the research team.
qualtrics.kcl.ac.uk/jfe/form/SV_...
Taking part is voluntary, you can stop at any time, and your identifiable information is only accessible to the research team.
qualtrics.kcl.ac.uk/jfe/form/SV_...
September 7, 2026 at 10:37 AM
Living with MS? We’re recruiting adults in Great Britain to help us improve the Navigate MS app.
Taking part is voluntary, you can stop at any time, and your identifiable information is only accessible to the research team.
qualtrics.kcl.ac.uk/jfe/form/SV_...
Taking part is voluntary, you can stop at any time, and your identifiable information is only accessible to the research team.
qualtrics.kcl.ac.uk/jfe/form/SV_...