Rieve Alavaix
@rieve.bsky.social
An improbable coalescence of stardust
Disabled, Medically Complex (EDSS 6.0)
A Little Peculiar (they/them) ∞
♥ Cats, Hockey, Video Games, Photography, Embroidery, Crochet
Owner of a 6 year migraine
Disabled, Medically Complex (EDSS 6.0)
A Little Peculiar (they/them) ∞
♥ Cats, Hockey, Video Games, Photography, Embroidery, Crochet
Owner of a 6 year migraine
Welp.
Slept all day.
Hardly have the energy to sit up.
Was still worth it, but PEM always sucks.
Slept all day.
Hardly have the energy to sit up.
Was still worth it, but PEM always sucks.
October 2, 2026 at 1:37 AM
Welp.
Slept all day.
Hardly have the energy to sit up.
Was still worth it, but PEM always sucks.
Slept all day.
Hardly have the energy to sit up.
Was still worth it, but PEM always sucks.
Woke up feeling okay after last night's adventure, which means there are enough neurotransmitters etc still flooding my body that when they ebb tomorrow it's gonna hit hard.
It was absolutely worth it.
Doing my best to live in those precious moments in between the crush of my illnesses.
It was absolutely worth it.
Doing my best to live in those precious moments in between the crush of my illnesses.
October 1, 2026 at 11:36 AM
Woke up feeling okay after last night's adventure, which means there are enough neurotransmitters etc still flooding my body that when they ebb tomorrow it's gonna hit hard.
It was absolutely worth it.
Doing my best to live in those precious moments in between the crush of my illnesses.
It was absolutely worth it.
Doing my best to live in those precious moments in between the crush of my illnesses.
My BP medication is the size of 2 sesame seeds which means if I drop it the first word out of my mouth is Fuck.
This has happened more than once.
This has happened more than once.
October 1, 2026 at 3:40 AM
My BP medication is the size of 2 sesame seeds which means if I drop it the first word out of my mouth is Fuck.
This has happened more than once.
This has happened more than once.
Laying in bed hoping to recharge myself enough to keep up with tonight's plans.
I'm so tired.
I'm so tired.
September 30, 2026 at 7:58 PM
Laying in bed hoping to recharge myself enough to keep up with tonight's plans.
I'm so tired.
I'm so tired.
On a more pleasant note
Sora mopped all the floors today and the apartment smells nice and clean!
Also got a new litter box for Charlotte to meet her aging kitty potty needs, and another on the way so she has a couple options.
I have kissed her little head for all of you. ♥
Sora mopped all the floors today and the apartment smells nice and clean!
Also got a new litter box for Charlotte to meet her aging kitty potty needs, and another on the way so she has a couple options.
I have kissed her little head for all of you. ♥
September 30, 2026 at 7:20 PM
On a more pleasant note
Sora mopped all the floors today and the apartment smells nice and clean!
Also got a new litter box for Charlotte to meet her aging kitty potty needs, and another on the way so she has a couple options.
I have kissed her little head for all of you. ♥
Sora mopped all the floors today and the apartment smells nice and clean!
Also got a new litter box for Charlotte to meet her aging kitty potty needs, and another on the way so she has a couple options.
I have kissed her little head for all of you. ♥
The irony here is that I was eating it to settle my stomach as the veg-and-legume heavy lunch was not sitting well.
I wish this was the first time something like this had happened.
I wish this was the first time something like this had happened.
Normally I pay very close attention to my food bc OCD/contamination issues.
Today I just casually unwrapped a pre-made crepe (like you might put in a lunchbox) and ate it w/out looking at it, bc distracted/sleepy.
Yes, I noticed it tasted weird but didn't think about it.
I shoulda thought about it.
Today I just casually unwrapped a pre-made crepe (like you might put in a lunchbox) and ate it w/out looking at it, bc distracted/sleepy.
Yes, I noticed it tasted weird but didn't think about it.
I shoulda thought about it.
September 30, 2026 at 7:17 PM
The irony here is that I was eating it to settle my stomach as the veg-and-legume heavy lunch was not sitting well.
I wish this was the first time something like this had happened.
I wish this was the first time something like this had happened.
Normally I pay very close attention to my food bc OCD/contamination issues.
Today I just casually unwrapped a pre-made crepe (like you might put in a lunchbox) and ate it w/out looking at it, bc distracted/sleepy.
Yes, I noticed it tasted weird but didn't think about it.
I shoulda thought about it.
Today I just casually unwrapped a pre-made crepe (like you might put in a lunchbox) and ate it w/out looking at it, bc distracted/sleepy.
Yes, I noticed it tasted weird but didn't think about it.
I shoulda thought about it.
September 30, 2026 at 7:15 PM
Normally I pay very close attention to my food bc OCD/contamination issues.
Today I just casually unwrapped a pre-made crepe (like you might put in a lunchbox) and ate it w/out looking at it, bc distracted/sleepy.
Yes, I noticed it tasted weird but didn't think about it.
I shoulda thought about it.
Today I just casually unwrapped a pre-made crepe (like you might put in a lunchbox) and ate it w/out looking at it, bc distracted/sleepy.
Yes, I noticed it tasted weird but didn't think about it.
I shoulda thought about it.
With the current discussions going around
just want to point out that it would be nice for people to maybe, idk, TW their shit?
Please?
just want to point out that it would be nice for people to maybe, idk, TW their shit?
Please?
September 30, 2026 at 5:36 PM
With the current discussions going around
just want to point out that it would be nice for people to maybe, idk, TW their shit?
Please?
just want to point out that it would be nice for people to maybe, idk, TW their shit?
Please?
Reposted by Rieve Alavaix
Took me a few nights to feel up to making this but it felt necessary while I grieve, as I’m sure lots on here still are, to draw our wonderful Bastard Pac. Incredible doesn’t begin to describe him as a performer; nor, by all accounts, as a man.
Rest well. You are sorely missed.
#AEW #art 🤼
Rest well. You are sorely missed.
#AEW #art 🤼
September 30, 2026 at 4:29 PM
Reposted by Rieve Alavaix
I am yours.
However distant you may be
there blows no wind but wafts your scent to me;
there sings no bird but calls your name to me.
Each memory that has left its trace with me
lingers forever as a part of me.
~Nizami/Clapton
However distant you may be
there blows no wind but wafts your scent to me;
there sings no bird but calls your name to me.
Each memory that has left its trace with me
lingers forever as a part of me.
~Nizami/Clapton
September 30, 2026 at 5:30 PM
I am yours.
However distant you may be
there blows no wind but wafts your scent to me;
there sings no bird but calls your name to me.
Each memory that has left its trace with me
lingers forever as a part of me.
~Nizami/Clapton
However distant you may be
there blows no wind but wafts your scent to me;
there sings no bird but calls your name to me.
Each memory that has left its trace with me
lingers forever as a part of me.
~Nizami/Clapton
Reposted by Rieve Alavaix
Still $131/$950—$819 needed to close the gap for rent, due Oct. 1!
Hard work on my health’s starting to pay off, but staying housed is essential to my achieving stability. Your help means I keep making progress toward *being* a helper again.
Cashapp/Venmo: Elsthere
Hard work on my health’s starting to pay off, but staying housed is essential to my achieving stability. Your help means I keep making progress toward *being* a helper again.
Cashapp/Venmo: Elsthere
September 30, 2026 at 1:33 AM
Still $131/$950—$819 needed to close the gap for rent, due Oct. 1!
Hard work on my health’s starting to pay off, but staying housed is essential to my achieving stability. Your help means I keep making progress toward *being* a helper again.
Cashapp/Venmo: Elsthere
Hard work on my health’s starting to pay off, but staying housed is essential to my achieving stability. Your help means I keep making progress toward *being* a helper again.
Cashapp/Venmo: Elsthere
Days like today when the ME/CFS is severe I sometimes think about the ex friend who says they also have severe ME/CFS, but also hold down a full-time job
and make about a hundred bsky posts a day.
Just... how?
I understand this illness hits us all differently, but...
and make about a hundred bsky posts a day.
Just... how?
I understand this illness hits us all differently, but...
September 30, 2026 at 1:43 PM
Days like today when the ME/CFS is severe I sometimes think about the ex friend who says they also have severe ME/CFS, but also hold down a full-time job
and make about a hundred bsky posts a day.
Just... how?
I understand this illness hits us all differently, but...
and make about a hundred bsky posts a day.
Just... how?
I understand this illness hits us all differently, but...
Honestly
barely been able to function for weeks.
Don't see it letting up any time soon.
I really want to go out and enjoy this Autumn weather but
I am so disregulated that my hair is falling out.
barely been able to function for weeks.
Don't see it letting up any time soon.
I really want to go out and enjoy this Autumn weather but
I am so disregulated that my hair is falling out.
September 30, 2026 at 1:40 PM
Honestly
barely been able to function for weeks.
Don't see it letting up any time soon.
I really want to go out and enjoy this Autumn weather but
I am so disregulated that my hair is falling out.
barely been able to function for weeks.
Don't see it letting up any time soon.
I really want to go out and enjoy this Autumn weather but
I am so disregulated that my hair is falling out.
Reposted by Rieve Alavaix
Cancelled everything I could reasonably cancel this week to go to a wrestling show tonight and I -still- barely have the energy to go.
Gonna go anyway, somehow. We'll make it happen.
Getting accessible seats for this show has been a nightmare, though.
Gonna go anyway, somehow. We'll make it happen.
Getting accessible seats for this show has been a nightmare, though.
September 30, 2026 at 1:36 PM
Cancelled everything I could reasonably cancel this week to go to a wrestling show tonight and I -still- barely have the energy to go.
Gonna go anyway, somehow. We'll make it happen.
Getting accessible seats for this show has been a nightmare, though.
Gonna go anyway, somehow. We'll make it happen.
Getting accessible seats for this show has been a nightmare, though.
One of the disconcerting mixtures of ADHD + robust religious experience in my teens is that
sometimes the songs stuck playing in my head are creepy old hymns (THERE'S POWER IN THE BLOOD, POWER IN THE BLOOD!)
or Twila Paris (goooddd is innn connntroollll). Not sure which is worse.
sometimes the songs stuck playing in my head are creepy old hymns (THERE'S POWER IN THE BLOOD, POWER IN THE BLOOD!)
or Twila Paris (goooddd is innn connntroollll). Not sure which is worse.
September 30, 2026 at 5:55 AM
One of the disconcerting mixtures of ADHD + robust religious experience in my teens is that
sometimes the songs stuck playing in my head are creepy old hymns (THERE'S POWER IN THE BLOOD, POWER IN THE BLOOD!)
or Twila Paris (goooddd is innn connntroollll). Not sure which is worse.
sometimes the songs stuck playing in my head are creepy old hymns (THERE'S POWER IN THE BLOOD, POWER IN THE BLOOD!)
or Twila Paris (goooddd is innn connntroollll). Not sure which is worse.
My previous specialty pharmacy would call to get my botox injections approved and the call would last less then a minute.
Humana's pharmacy robocalls me and when I return it it's a 10 minute drawn-out process.
Why do they have to make this shit unnecessarily difficult?
Humana's pharmacy robocalls me and when I return it it's a 10 minute drawn-out process.
Why do they have to make this shit unnecessarily difficult?
September 29, 2026 at 2:17 PM
My previous specialty pharmacy would call to get my botox injections approved and the call would last less then a minute.
Humana's pharmacy robocalls me and when I return it it's a 10 minute drawn-out process.
Why do they have to make this shit unnecessarily difficult?
Humana's pharmacy robocalls me and when I return it it's a 10 minute drawn-out process.
Why do they have to make this shit unnecessarily difficult?
New Witcher III expansion, what?!?!?!
September 29, 2026 at 2:27 AM
New Witcher III expansion, what?!?!?!
Missed a bday party yesterday and busy cancelled all of this week's appointments.
I just don't have the energy to function.
I just don't have the energy to function.
September 28, 2026 at 2:47 PM
Missed a bday party yesterday and busy cancelled all of this week's appointments.
I just don't have the energy to function.
I just don't have the energy to function.
Reposted by Rieve Alavaix
Meet my fabric art creation: Clay-Clay Sedimento the Pet Rock. I designed and hand-sewed him, and I hand-embroidered all of his many flowers. While rolling stones gather no moss, they sometimes collect flowers.
jeremycreature.bigcartel.com
jeremycreature.bigcartel.com
August 31, 2026 at 1:14 AM
Meet my fabric art creation: Clay-Clay Sedimento the Pet Rock. I designed and hand-sewed him, and I hand-embroidered all of his many flowers. While rolling stones gather no moss, they sometimes collect flowers.
jeremycreature.bigcartel.com
jeremycreature.bigcartel.com
Booked a haircut. Currently have way too much hair. Absolute sensory overload. I wash it and it stays wet for hours. Always in my face. No energy to style it.
Experiment in growing it out again was interesting but it's time to book a haircut.
Experiment in growing it out again was interesting but it's time to book a haircut.
September 27, 2026 at 4:53 AM
Booked a haircut. Currently have way too much hair. Absolute sensory overload. I wash it and it stays wet for hours. Always in my face. No energy to style it.
Experiment in growing it out again was interesting but it's time to book a haircut.
Experiment in growing it out again was interesting but it's time to book a haircut.