Thaddeus Mason Pope
thaddeuspope.bsky.social
Thaddeus Mason Pope
@thaddeuspope.bsky.social
Law professor & bioethicist www.thaddeuspope.com
The Cheryl Hauser Effect: Story and Conversation about VSED
You are invited to a special gathering introducing The Cheryl Hauser Effect, a documentary now in its final stage of production. Come September 17, 2026 at The Lantern in Portland, Oregon. The film shares the story of Cheryl Hauser, a Minnesota woman who, after being diagnosed with Alzheimer's disease, chose to face the end of her life on her own terms through VSED (Voluntarily Stopping Eating and Drinking). At seventy-six, Cheryl became a thoughtful advocate for end-of-life autonomy, inspiring important conversations about dementia, caregiving, and personal choice. This special preview event offers an early look at The Cheryl Hauser Effect while the film is still in production. Through selected clips and conversation, we'll explore Cheryl's story and the impact this film hopes to make. During this special evening, you will: * View selected, never-before-seen clips from the documentary * Learn more about VSED and end-of-life options * Hear from those directly involved in the story and the work surrounding end-of-life autonomy A conversation will follow with: * Randi Ewing, Palliative Care Director, Eden Health * Dr. Stephanie Kaplan, Naturopathic Physician Specializing in End-of-Life Care * Dr. Pete Regan, First physician to prescribe under Oregon's Death with Dignity Act * Jamie Thrower, End-of-Life Doula and Grief Educator Join us for an evening of storytelling, education, and conversation as we share Cheryl's story and build support for the film's completion. Learn more at thecherylhausereffect.com
dlvr.it
July 23, 2026 at 6:49 AM
Medical Futility in South Africa
This recent webinar nicely illustrated how medical futility conflicts are navigated differently in South Africa. The discussion referenced two sections of this guidance document from the Health Professions Council of South Africa.   "When the patient or the family request continued treatment against health advice that considers such treatment to be futile, the patient or the family must be given guidance and advice why such decision was taken and be advised regarding their choice of transferring to another institution where such treatment is available. If this option is refused and the health team considers treatment to be futile, and this is confirmed by independent health practitioner(s), The health practitioner may nevertheless, implement the decision to withhold or withdraw treatment if such is in the best interest of the patient." "All decisions should be fully and clearly documented in the health records, including the reasons for the decision and the procedure adopted in the decision-making process. Where significant disagreements arise about a patient’s best interests, the health practitioner should seek a clinical and / or ethical review, independent of the health care team. If this fails to resolve the disagreement, they must seek legal advice on whether it is necessary to apply to the court for a ruling."
dlvr.it
July 22, 2026 at 11:55 PM
Dead Donor Rule - New Law Prevents Violations
The dead donor rule has been a fixture of organ transplantation for sixty years. But in light of frequent intentional and accidental breaches, some regulators have strengthened protections to mitigate DDR violations.  Notable among these is Kentucky H.B. 510, signed in April. Because the law is now effective, it has been receiving renewed attention. The Kentucky statute requires that "during any organ donation recovery, preservation, or procurement activity for a DCD or DBD, a pause in procedure shall be initiated if any [clinician or family member] reports on any of the following: * Observed or suspected change in neurological status * Observed or suspected indication of life * Uncertainty regarding the accuracy or completeness of neurological status or death declaration assessments" Triggering "indications of life" include but are not limited to: * Spontaneous movement * Vocalization or attempts to vocalize * Purposeful or reflexive responses to stimuli * Observed respiratory effort by a patient-initiated attempt at breath * Changes in heart rate or blood pressure inconsistent with a death declaration * Any neurological or physiological sign suggesting pain perception or neurological activity Reports of any of these require "immediate suspension of any organ donation recovery, preservation, or procurement activity."  
dlvr.it
July 22, 2026 at 1:12 PM
The Cheryl Hauser Effect: Story and Conversation about VSED
You are invited to a special gathering introducing The Cheryl Hauser Effect, a documentary now in its final stage of production. Come September 17, 2026 at The Lantern in Portland, Oregon. The film shares the story of Cheryl Hauser, a Minnesota woman who, after being diagnosed with Alzheimer's disease, chose to face the end of her life on her own terms through VSED (Voluntarily Stopping Eating and Drinking). At seventy-six, Cheryl became a thoughtful advocate for end-of-life autonomy, inspiring important conversations about dementia, caregiving, and personal choice. This special preview event offers an early look at The Cheryl Hauser Effect while the film is still in production. Through selected clips and conversation, we'll explore Cheryl's story and the impact this film hopes to make. During this special evening, you will: * View selected, never-before-seen clips from the documentary * Learn more about VSED and end-of-life options * Hear from those directly involved in the story and the work surrounding end-of-life autonomy A conversation will follow with: * Randi Ewing, Palliative Care Director, Eden Health * Dr. Stephanie Kaplan, Naturopathic Physician Specializing in End-of-Life Care * Dr. Pete Regan, First physician to prescribe under Oregon's Death with Dignity Act * Jamie Thrower, End-of-Life Doula and Grief Educator Join us for an evening of storytelling, education, and conversation as we share Cheryl's story and build support for the film's completion. Learn more at thecherylhausereffect.com
dlvr.it
July 22, 2026 at 6:48 AM
Medical Futility in South Africa
This recent webinar nicely illustrated how medical futility conflicts are navigated differently in South Africa. The discussion referenced two sections of this guidance document from the Health Professions Council of South Africa.   "When the patient or the family request continued treatment against health advice that considers such treatment to be futile, the patient or the family must be given guidance and advice why such decision was taken and be advised regarding their choice of transferring to another institution where such treatment is available. If this option is refused and the health team considers treatment to be futile, and this is confirmed by independent health practitioner(s), The health practitioner may nevertheless, implement the decision to withhold or withdraw treatment if such is in the best interest of the patient." "All decisions should be fully and clearly documented in the health records, including the reasons for the decision and the procedure adopted in the decision-making process. Where significant disagreements arise about a patient’s best interests, the health practitioner should seek a clinical and / or ethical review, independent of the health care team. If this fails to resolve the disagreement, they must seek legal advice on whether it is necessary to apply to the court for a ruling."
dlvr.it
July 21, 2026 at 11:55 PM
Minimal Comfort Feeding in Advanced Dementia: Attitudes of Hospice and Palliative Care Professional
Here is a Share Link for free access to our recent article "Minimal Comfort Feeding in Advanced Dementia: Attitudes of Hospice and Palliative Care Professional" in the Journal of Pain & Symptom Management.   Context. Minimal Comfort Feeding (MCF) is a new approach to providing nutrition and hydration to persons with advanced dementia who have previously indicated (or whose surrogate believes) they would not want to live with advanced dementia. The acceptability of MCF has not been studied. Objectives. To assess perceptions of hospice and palliative care (HPC) professionals toward MCF. Methods. This cross-sectional exploratory survey study of a convenience sample was conducted at a national conference of HPC professionals in February 2025. During a presentation on MCF’s definition and ethical basis, attendees engaged in audience response polling and an optional electronic survey. Descriptive results are presented. Results. Fifty-one people attended the presentation. Forty-five attendees (88%) participated in audience polling, and 22 (43%) participated in both polling and the survey. The mean age of survey respondents was 50 (standard deviation 9.58),19 (86%) identified as White, and 18 (82%) identified as women. Thirty-five of 42 respondents (83%) agreed or strongly agreed that MCF is an acceptable option for persons with advanced dementia (PWAD), and 93% (39/42) agreed or strongly agreed they would be comfortable discussing MCF with persons with early dementia or who are at risk for dementia as a potential future option. Sixty-nine percent (29/42) anticipated MCF would be somewhat or completely acceptable to families of PWAD, but respondents were divided regarding the ease of implementing MCF in clinical practice. Conclusion. While MCF was highly acceptable in this study, the sample size was small and the risk of bias was high. Further research is needed. 
dlvr.it
July 21, 2026 at 11:33 AM
Dead Donor Rule - New Law Prevents Violations
The dead donor rule has been a fixture of organ transplantation for sixty years. But in light of frequent intentional and accidental breaches, some regulators have strengthened protections to mitigate DDR violations.  Notable among these is Kentucky H.B. 510, signed in April. Because the law is now effective, it has been receiving renewed attention. The Kentucky statute requires that "during any organ donation recovery, preservation, or procurement activity for a DCD or DBD, a pause in procedure shall be initiated if any [clinician or family member] reports on any of the following: * Observed or suspected change in neurological status * Observed or suspected indication of life * Uncertainty regarding the accuracy or completeness of neurological status or death declaration assessments" Triggering "indications of life" include but are not limited to: * Spontaneous movement * Vocalization or attempts to vocalize * Purposeful or reflexive responses to stimuli * Observed respiratory effort by a patient-initiated attempt at breath * Changes in heart rate or blood pressure inconsistent with a death declaration * Any neurological or physiological sign suggesting pain perception or neurological activity Reports of any of these require "immediate suspension of any organ donation recovery, preservation, or procurement activity."  
dlvr.it
July 20, 2026 at 1:11 PM
Dead Donor Rule - New Law Prevents Violations
The dead donor rule has been a fixture of organ transplantation for sixty years. But in light of frequent intentional and accidental breaches, some regulators have strengthened protections to mitigate DDR violations.  Notable among these is Kentucky H.B. 510, signed in April. Because the law is now effective, it has been receiving renewed attention. The Kentucky statute requires that "during any organ donation recovery, preservation, or procurement activity for a DCD or DBD, a pause in procedure shall be initiated if any [clinician or family member] reports on any of the following: * Observed or suspected change in neurological status * Observed or suspected indication of life * Uncertainty regarding the accuracy or completeness of neurological status or death declaration assessments" Triggering "indications of life" include but are not limited to: * Spontaneous movement * Vocalization or attempts to vocalize * Purposeful or reflexive responses to stimuli * Observed respiratory effort by a patient-initiated attempt at breath * Changes in heart rate or blood pressure inconsistent with a death declaration * Any neurological or physiological sign suggesting pain perception or neurological activity Reports of any of these require "immediate suspension of any organ donation recovery, preservation, or procurement activity."  
dlvr.it
July 19, 2026 at 1:10 PM
Minimal Comfort Feeding in Advanced Dementia: Attitudes of Hospice and Palliative Care Professional
Here is a Share Link for free access to our recent article "Minimal Comfort Feeding in Advanced Dementia: Attitudes of Hospice and Palliative Care Professional" in the Journal of Pain & Symptom Management.   Context. Minimal Comfort Feeding (MCF) is a new approach to providing nutrition and hydration to persons with advanced dementia who have previously indicated (or whose surrogate believes) they would not want to live with advanced dementia. The acceptability of MCF has not been studied. Objectives. To assess perceptions of hospice and palliative care (HPC) professionals toward MCF. Methods. This cross-sectional exploratory survey study of a convenience sample was conducted at a national conference of HPC professionals in February 2025. During a presentation on MCF’s definition and ethical basis, attendees engaged in audience response polling and an optional electronic survey. Descriptive results are presented. Results. Fifty-one people attended the presentation. Forty-five attendees (88%) participated in audience polling, and 22 (43%) participated in both polling and the survey. The mean age of survey respondents was 50 (standard deviation 9.58),19 (86%) identified as White, and 18 (82%) identified as women. Thirty-five of 42 respondents (83%) agreed or strongly agreed that MCF is an acceptable option for persons with advanced dementia (PWAD), and 93% (39/42) agreed or strongly agreed they would be comfortable discussing MCF with persons with early dementia or who are at risk for dementia as a potential future option. Sixty-nine percent (29/42) anticipated MCF would be somewhat or completely acceptable to families of PWAD, but respondents were divided regarding the ease of implementing MCF in clinical practice. Conclusion. While MCF was highly acceptable in this study, the sample size was small and the risk of bias was high. Further research is needed. 
dlvr.it
July 19, 2026 at 11:33 AM
ASBH-St. Jude Bioethics Tournament 2026
ASBH has announced a new Bioethics Tournament at the 2026 Annual Conference, in partnership with St. Jude Children's Research Hospital. This tournament will feature two teams in a debate style format on Friday, October 16, 4:00–5:15 PM ET.    The aim of the event is to bring together ethics professionals, trainees, and students with diverse interests and backgrounds in friendly competition. ASBH strongly encourages participation across the career spectrum from students, trainees, early career, and late career professionals.  ASBH is currently recruiting teams, case writers, and judges. Teams will have the opportunity to highlight their argumentation and speaking skills; case writers will have the opportunity to contribute fresh ideas for public engagement, and judges will have the opportunity to foster responsive and critical thinking while moderating a session.  Teams: ASBH is recruiting two teams. Teams may consist of 3-5 members and must include at least one student or trainee. The interest form includes a statement of commitment and space to include team structure. ASBH is accepting applications for entire teams and for individuals who wish to be placed on a team. If you are applying on behalf of a team, please include the credentials, role, and institution for all team members.  Case Writers: ASBH uis recruiting up to 4 case writers to write a one-page case and questions to be used in competition. Teams will receive cases in advance and use them to prepare their arguments for use in the tournament. The interest form includes a statement of commitment and a summary of your proposed case, including background and questions for team consideration.  Judges: ASBH is recruiting up to 3 judges to evaluate the session. As part of the application, judges will be asked to include relevant experience in ethics or in participation of similar events. 
dlvr.it
July 19, 2026 at 7:39 AM