Alan Finglas
@alanfinglas.bsky.social
Founder/Research Manager of MSD Action Foundation, my son is affected by Multiple Sulfatase Deficiency, a clinically devastating Lysosomal Storage Disorder.
Big News, an ERDERA CHAMPION grant for MSD research was approved for 2.1 million Euro. It did not happen by accident! It's worth reading the background & the plan to develop potential treatments for Multiple Sulfatase Deficiency. Read more here: www.savingdylan.com/news
#RareDiseaseDay #TreatCureMSD
#RareDiseaseDay #TreatCureMSD
February 28, 2026 at 4:08 PM
Big News, an ERDERA CHAMPION grant for MSD research was approved for 2.1 million Euro. It did not happen by accident! It's worth reading the background & the plan to develop potential treatments for Multiple Sulfatase Deficiency. Read more here: www.savingdylan.com/news
#RareDiseaseDay #TreatCureMSD
#RareDiseaseDay #TreatCureMSD
I am so sad to be sharing this news 💔 Our sunshine has passed rip.ie/death-notice...
Death Notice of Dylan Finglas (Dublin 15, Dublin) | rip.ie
The death has occurred of Dylan Finglas of Dublin 15, Dublin Ireland, on 20/03/2025. You can view the full death notice and add your condolences here.
rip.ie
March 23, 2025 at 9:46 AM
I am so sad to be sharing this news 💔 Our sunshine has passed rip.ie/death-notice...