Lavender (she/her)
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lavender63.bsky.social
Lavender (she/her)
@lavender63.bsky.social
Managing my chronic illnesses, the latest being long covid, learning about disability justice, and appreciating nature.
I’m so sorry
January 26, 2026 at 8:00 PM
Good to know. I need to be more consistent with CoQ10 & will keep watch for side effects
January 1, 2026 at 11:40 AM
😂 yes! A close second for me is the sound of tinnitus. One track on repeat all year.
December 17, 2025 at 3:36 AM
My heart breaks for all the young people that have long covid. 💛
December 12, 2025 at 4:12 PM
I participated in this. I thought the research team was terrific.
October 15, 2025 at 2:07 AM
Thanks for sharing. I just started this med.
September 29, 2025 at 9:52 PM
Yes! I take mine with breakfast. When I increase a dose it makes me a little foggy, if it could impact my work I take 80% early then 20% 2-3 hours later. I get a little nauseous midday with an AM dose, but I think that’s only partly LDN.
September 27, 2025 at 3:01 AM
Yes! My Ivabradine from CostPlus is $40, with insurance at a big name pharmacy it was $75.
September 24, 2025 at 6:42 PM
Oops Mestinon, spelled it wrong
September 19, 2025 at 6:46 PM
100%. It’s taken me a while to learn how to balance & honor my past and present identities.
September 2, 2025 at 10:41 PM
How interesting, thanks for sharing. Saving this for later 📌
September 2, 2025 at 10:37 PM