📌We call on all those working with young people with Long Covid to facilitate young people’s alternative networks of care, and take inspiration from young people’s forms of everyday activism to proliferate the tangible, everyday, forms of support needed by those living with Long Covid.

📌We also draw on theories of Disability Justice and everyday activism to describe the ways in which young people with Long Covid bend, alter, and evade formal infrastructures of care to make life more livable for themselves and others.

Hannah Cowan's key messages:
📌 We document how young people living with Long COVID actively build, navigate, and maintain alternative networks of care in response to struggles in accessing fragmented formal care infrastructures in health, education, work, and social welfare settings.

📌  An intervention logic model that maps inputs, activities and outputs (outcomes and impacts) informed by lived experience is critical to the interpretation of complex intervention trials.

📌 Burden, process flexibility and accommodating the needs of participants are a key trial design consideration given the episodic and fluctuating symptoms experienced by people living with Long Covid.