Taylor Kane joined Rhiannon Walls to talk about young people’s role in #RareDisease advocacy and turning lived experience into action.
Her advice to young advocates? “Just start.”
▶️ Watch: https://go.eurordis.org/latestEp10MW
Taylor Kane joined Rhiannon Walls to talk about young people’s role in #RareDisease advocacy and turning lived experience into action.
Her advice to young advocates? “Just start.”
▶️ Watch: https://go.eurordis.org/latestEp10MW
Rhiannon Walls will be joined by Taylor Kane to explore why young voices matter in rare disease advocacy – and how taking one small step can lead to meaningful action.
🔴 17 Sep | 05:00 CEST: https://go.eurordis.org/LinkedinLive
Rhiannon Walls will be joined by Taylor Kane to explore why young voices matter in rare disease advocacy – and how taking one small step can lead to meaningful action.
🔴 17 Sep | 05:00 CEST: https://go.eurordis.org/LinkedinLive
In this #10MinutesWith episode, Victoria Oruwari shares how challenging assumptions and breaking barriers made inclusion possible. ▶️https://go.eurordis.org/10MWAccessibility
In this #10MinutesWith episode, Victoria Oruwari shares how challenging assumptions and breaking barriers made inclusion possible. ▶️https://go.eurordis.org/10MWAccessibility
Discover how the Rare Patient Passport is helping people living with rare diseases spend less time repeating their medical history and more time receiving coordinated care.
🎥 Watch: https://go.eurordis.org/newep10MW
Discover how the Rare Patient Passport is helping people living with rare diseases spend less time repeating their medical history and more time receiving coordinated care.
🎥 Watch: https://go.eurordis.org/newep10MW
Rhiannon Walls speaks with Allison Watson on advocating for ultra-rare conditions like Ring Chromosome 20 - from diagnostic challenges to the power of patient communities in influencing policy.
▶️ Watch now: https://go.eurordis.org/10MWepisode
Rhiannon Walls speaks with Allison Watson on advocating for ultra-rare conditions like Ring Chromosome 20 - from diagnostic challenges to the power of patient communities in influencing policy.
▶️ Watch now: https://go.eurordis.org/10MWepisode
Join host Rhiannon Walls for a powerful conversation with Allison Watson on advocating for people living with ultra-rare conditions.
Register on LinkedIn now to get notifications when we go live!
👉 https://go.eurordis.org/Og9TN1
Join host Rhiannon Walls for a powerful conversation with Allison Watson on advocating for people living with ultra-rare conditions.
Register on LinkedIn now to get notifications when we go live!
👉 https://go.eurordis.org/Og9TN1