lnkd.in/p/gWggwyFD

🧵 (4/7) Clinicians, researchers and representatives of the patient community came together to discuss progress in research and the challenges that still lie ahead. The day also marked two important milestones: the 10th anniversary of the paediatric ADPedKD cohort and PKD Day.

🧵 (2/4) The first day was dedicated to an important scientific and community event: the symposium organised by KU Leuven to celebrate the 10th anniversary of the ADPedKD Registry.

🧵💙 What better way to celebrate PKD Awareness Day?

By being together.

Yesterday, at KU Leuven, we celebrated #PKDAwarenessDay with a special joint celebration with ADPedKD, surrounded by the people who give our community a face, a voice and, above all, a meaning: patients.

🧵 (3/4) The symposium will also mark two important milestones: the 10th anniversary of the paediatric ADPedKD cohort and PKD Day.

➡️ Insights from ADPedKD, ERKReg and RaDaR registries provide a multi-national perspective on the presentation of childhood autosomal dominant polycystic kidney disease in high- and middle-income countries www.kidney-internati...

🧵(6/6) This joint celebratory event brings together patient advocates, clinicians, and researchers in one place to strengthen dialogue and collaboration across the global PKD community.

#StrongerTogether #Advancing #PKDresearch
#ADPKD #ARPKD #ADPedKD #PatientAdvocacy #RareDisease #Nephrology

🧵(5/6) KU Leuven is hosting their Clinical & Research Day on day before, 4 September, marking both International PKD Awareness Day and also the 10-year anniversary of the ADPedKD Registry.

🧵 (6/6) This joint celebratory event brings together patient advocates, clinicians, and researchers in one place to strengthen dialogue and collaboration across the global PKD community.

#StrongerTogether #Advancing #PKDresearch
#ADPKD #ARPKD #ADPedKD #PatientAdvocacy #RareDisease #Nephrology

🧵 (5/6) KU Leuven is hosting their Clinical & Research Day on day before, 4 September, marking both International PKD Awareness Day and also the 10-year anniversary of the ADPedKD Registry.

🧵 (6/6) This joint celebratory event brings together patient advocates, clinicians, and researchers in one place to strengthen dialogue and collaboration across the global PKD community.

#StrongerTogether #Advancing #PKDresearch
#ADPKD #ARPKD #ADPedKD #PatientAdvocacy #RareDisease #Nephrology

🧵 (5/5) KU Leuven is hosting their Clinical & Research Day on day before, 4 September, marking both International PKD Awareness Day and also the 10-year anniversary of the ADPedKD Registry.

Open Access UCL Research: Insights from ADPedKD, ERKReg and RaDaR registries provide a multi-national perspective on the presentation of childhood autosomal dominant polycystic kidney disease in high- and middle-income countries discovery.ucl.ac.uk/id/eprint/10...

Insights from ADPedKD, #ERKReg and RaDaR registries provide a multi-national perspective on the presentation of childhood autosomal dominant polycystic kidney disease in high- and middle-income countries

doi.org/10.1016/j.kint.2025.02.026

#NephSky #MedSky #ADPKD #PedNeph #SkyNeph

Insights from ADPedKD, ERKReg and RaDaR registries provide a multi-national perspective on the presentation of childhood autosomal dominant polycystic kidney disease in high- and middle-income countries www.sciencedirect.com/science/arti... #hvhebron #nefroped