#AMCResearch
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📣 AMC Research

Seeking research and lived-experience insights across genetics, rehab, obstetrics, orthopedics, mental health, advocacy, adaptive equipment, and more.

Deadline: Feb 28, 2026
🔗 onlinelibrary.wiley.com/page/journal...
A research emblem with the globe in the center is surrounded by an outer bright cyan blue glow. The background is a light blue to blue gradient with a step & repeat that says, ‘RESEARCH – GLOBAL PERSPECTIVES ON ARTHROGRYPOSIS: FROM THE WOMB TO ADULTHOOD ’ in blue, bold letters. At the bottom left are the Facebook, Instagram, BlueSky, TikTok, YouTube & X logos with @AMCSUPPORT & on the right, the hashtag #AMCresearch in white.
November 19, 2025 at 5:46 PM
amcposec.bsky.social
😴 Sleep matters for people living with HIV.
Poor sleep can lower CD4 counts and increase anxiety & fatigue — making daily care harder. Prioritizing rest strengthens immune health and well‑being.
AMC supports whole‑person, community‑centered care.
#HIVHealth #SleepMatters #AMCResearch
February 13, 2026 at 8:49 PM
amcsupport.bsky.social
Research, collaboration & community in Philadelphia!

At #AACPDM, our team shared research on bringing lived and professional experience together to develop rehabilitation recommendations, followed by a Philly dinner!

Thank you to everyone involved!

#AMCSI #AMCStrong #Arthrogryposis #AMCResearch
A collection of photos from the AACPDM Annual Meeting in Philadelphia featuring members of the research team presenting their work on co-developing rehabilitation recommendations with people who have lived and professional experience, participating in a conference panel, and gathering with AMCSI representatives, colleagues, and friends for dinner in Philadelphia. Arthrogryposis Multiplex Congenita, AMC, Arthrogryposis, AMCSI, Arthrogryposis Multiplex Congenita Support Inc., AACPDM, AACPDM Annual Meeting, AMC research, Arthrogryposis research, rehabilitation recommendations, rehabilitation research, lived experience in healthcare, patient lived experience, patient engagement, patient partners, co-developed healthcare research, disability research, rehabilitation medicine, AMC rehabilitation, Arthrogryposis rehabilitation, patient-centered research, healthcare collaboration, second medical opinion, AMC Learning Modules, AMC resources, AMC Community, disability advocacy, Philadelphia AACPDM, AMCSI research, Arthrogryposis healthcare, patient professional collaboration, AMCStrong, lived experience, patient advocacy, healthcare research, disability healthcare, rehabilitation recommendations for Arthrogryposis. AMCSI representatives, researchers, healthcare professionals, and community members at the AACPDM Annual Meeting in Philadelphia, including photos of the research team presenting on co-developed rehabilitation recommendations and gathering together for dinner. A collection of photos from the AACPDM Annual Meeting in Philadelphia featuring members of the research team presenting their work on co-developing rehabilitation recommendations with people who have lived and professional experience, participating in a conference panel, and gathering with AMCSI representatives, colleagues, and friends for dinner in Philadelphia. Arthrogryposis Multiplex Congenita, AMC, Arthrogryposis, AMCSI, Arthrogryposis Multiplex Congenita Support Inc., AACPDM, AACPDM Annual Meeting, AMC research, Arthrogryposis research, rehabilitation recommendations, rehabilitation research, lived experience in healthcare, patient lived experience, patient engagement, patient partners, co-developed healthcare research, disability research, rehabilitation medicine, AMC rehabilitation, Arthrogryposis rehabilitation, patient-centered research, healthcare collaboration, second medical opinion, AMC Learning Modules, AMC resources, AMC Community, disability advocacy, Philadelphia AACPDM, AMCSI research, Arthrogryposis healthcare, patient professional collaboration, AMCStrong, lived experience, patient advocacy, healthcare research, disability healthcare, rehabilitation recommendations for Arthrogryposis. AMCSI representatives, researchers, healthcare professionals, and community members at the AACPDM Annual Meeting in Philadelphia, including photos of the research team presenting on co-developed rehabilitation recommendations and gathering together for dinner. A collection of photos from the AACPDM Annual Meeting in Philadelphia featuring members of the research team presenting their work on co-developing rehabilitation recommendations with people who have lived and professional experience, participating in a conference panel, and gathering with AMCSI representatives, colleagues, and friends for dinner in Philadelphia. Arthrogryposis Multiplex Congenita, AMC, Arthrogryposis, AMCSI, Arthrogryposis Multiplex Congenita Support Inc., AACPDM, AACPDM Annual Meeting, AMC research, Arthrogryposis research, rehabilitation recommendations, rehabilitation research, lived experience in healthcare, patient lived experience, patient engagement, patient partners, co-developed healthcare research, disability research, rehabilitation medicine, AMC rehabilitation, Arthrogryposis rehabilitation, patient-centered research, healthcare collaboration, second medical opinion, AMC Learning Modules, AMC resources, AMC Community, disability advocacy, Philadelphia AACPDM, AMCSI research, Arthrogryposis healthcare, patient professional collaboration, AMCStrong, lived experience, patient advocacy, healthcare research, disability healthcare, rehabilitation recommendations for Arthrogryposis. AMCSI representatives, researchers, healthcare professionals, and community members at the AACPDM Annual Meeting in Philadelphia, including photos of the research team presenting on co-developed rehabilitation recommendations and gathering together for dinner.
October 5, 2026 at 5:52 PM
amcsupport.bsky.social
📢 Research opportunity! Shriners Hospital–Canada is developing a GMFC-AMC Family Version & needs input from:


✅ Parents/caregivers of kids (2–21) w/ AMC

✅ Adults w/ AMC (18+)


Remote mtgs, flexible. Email (ndahan@shrinenet.org) by Oct 17 to join!

#Arthrogryposis #AMCSupport #AMC #AMCstrong
The Shriners Hospital for Children-Canada logo is in the center with an outer bright cyan blue glow. The background is a light blue to blue gradient with a step & repeat that says, ‘SHRINERS HOSPITAL FOR CHILDREN–CANADA AMC RESEARCH’ in blue, bold letters. At the bottom left are the Facebook, Instagram, BlueSky, TikTok, YouTube & X logos with @AMCSUPPORT & on the right, the hashtags #Shriners & #AMCresearch in white.
October 3, 2025 at 5:53 PM