It passed! 🙏 #ALS #ACTforALS
ACT for ALS passed Congress with ONE DAY to spare! 🎉
Your emails, calls, meetings, petition signatures & relentless advocacy made this possible. THANK YOU!
Thank our congressional champions: bit.ly/A4A-TY
Keep this work going: bit.ly/giveALS
Your emails, calls, meetings, petition signatures & relentless advocacy made this possible. THANK YOU!
Thank our congressional champions: bit.ly/A4A-TY
Keep this work going: bit.ly/giveALS
September 29, 2026 at 5:09 PM
It passed! 🙏 #ALS #ACTforALS
Ever since the f**** voted NO to #ActforALS claiming we couldn’t spend money to help those suffering from ALS because of the country’s mounting debt (I bet he voted yes on more tax cuts for the rich) I hate him with all my heart and soul. Run him out of office.
Call to Action: Protest at Rep Chip Roy’s Office, San Antonio, Texas. February 21st at 2PM.
“LET'S BRING THE TOWN
HALL TO CHIP”
#3E #USprotests #Feb21
“LET'S BRING THE TOWN
HALL TO CHIP”
#3E #USprotests #Feb21
February 21, 2025 at 11:14 AM
Ever since the f**** voted NO to #ActforALS claiming we couldn’t spend money to help those suffering from ALS because of the country’s mounting debt (I bet he voted yes on more tax cuts for the rich) I hate him with all my heart and soul. Run him out of office.
Eric’s honesty and strength in sharing his ALS journey move us all. His Washington Post interview shows the fight, the hope, and why we must keep going. #ActForALS #EndALS
img.washingtonpost.com/style/2025/1...
img.washingtonpost.com/style/2025/1...
A ‘Grey’s Anatomy’ heartthrob confronts ALS — and hopes to help others
Eric Dane, “McSteamy” of “Grey’s Anatomy” fame, is suffering from ALS, the terminal illness. He is lobbying Congress to lobby for more federal research funds.
img.washingtonpost.com
October 6, 2025 at 8:31 PM
Eric’s honesty and strength in sharing his ALS journey move us all. His Washington Post interview shows the fight, the hope, and why we must keep going. #ActForALS #EndALS
img.washingtonpost.com/style/2025/1...
img.washingtonpost.com/style/2025/1...
ALS in an insidious disease that rips your loved one from you slowly and brutally. To witness a once vibrant soul no longer able to speak or move is wrenching and the pain caregivers go thru is immeasurable. The research funding that has been slashed with NIH cuts is UNACCEPTABLE. #ActForALS #EndALS
Eric’s honesty and strength in sharing his ALS journey move us all. His Washington Post interview shows the fight, the hope, and why we must keep going. #ActForALS #EndALS
img.washingtonpost.com/style/2025/1...
img.washingtonpost.com/style/2025/1...
A ‘Grey’s Anatomy’ heartthrob confronts ALS — and hopes to help others
Eric Dane, “McSteamy” of “Grey’s Anatomy” fame, is suffering from ALS, the terminal illness. He is lobbying Congress to lobby for more federal research funds.
img.washingtonpost.com
October 6, 2025 at 8:42 PM
ALS in an insidious disease that rips your loved one from you slowly and brutally. To witness a once vibrant soul no longer able to speak or move is wrenching and the pain caregivers go thru is immeasurable. The research funding that has been slashed with NIH cuts is UNACCEPTABLE. #ActForALS #EndALS
Today, the House passed the #ACTforALS Reauthorization Act. Thank you to everyone who has shared your story, participated in advocacy events, & contacted your lawmakers. Now it's the Senate's turn. Contact your Senators & urge them to support ACT for ALS:http://qrco.de/ActforALS
July 22, 2026 at 9:15 PM
Today, the House passed the #ACTforALS Reauthorization Act. Thank you to everyone who has shared your story, participated in advocacy events, & contacted your lawmakers. Now it's the Senate's turn. Contact your Senators & urge them to support ACT for ALS:http://qrco.de/ActforALS
The House wants to leave DC early. We want them to pass ACT for ALS before they go.
We hit 1,600 petition signatures in the first 48 hours. Now let’s get even more before Congress is back tomorrow.
Petition closes TONIGHT. Sign + share: bit.ly/passA4A
We hit 1,600 petition signatures in the first 48 hours. Now let’s get even more before Congress is back tomorrow.
Petition closes TONIGHT. Sign + share: bit.ly/passA4A
September 13, 2026 at 6:08 PM
Please help pressure the Senate to pass #ACTforALS - We need more funding, research, and a cure! #ALS bsky.app/profile/iama...
🚨 The House went home early, so we're pivoting. Now we pressure the Senate, which is still in session. We're pushing for the more than 800 people living with ALS who've gained access to promising therapies through ACT for ALS-funded EAPs.
Pressure the Senate with us: bit.ly/fundALS
Pressure the Senate with us: bit.ly/fundALS
September 17, 2026 at 12:21 AM
Please help pressure the Senate to pass #ACTforALS - We need more funding, research, and a cure! #ALS bsky.app/profile/iama...
🎉 BIG WIN FOR THE ALS COMMUNITY 🎉 ACT for ALS just PASSED the House! This happened because YOU took action, but we're not stopping until the bill is signed into law. Contact your Senators today and help get ACT for ALS signed into law: bit.ly/fundALS #ActForALS #EndALS
July 22, 2026 at 9:24 PM
🎉 BIG WIN FOR THE ALS COMMUNITY 🎉 ACT for ALS just PASSED the House! This happened because YOU took action, but we're not stopping until the bill is signed into law. Contact your Senators today and help get ACT for ALS signed into law: bit.ly/fundALS #ActForALS #EndALS
The House wants to leave DC early. We want them to pass #ACTforALS before they go.
We already hit 1,600 signatures in 48 hours — now let's DOUBLE it. Petition closes on Sunday! Please share.
www.iamals.org/a4apetition/
#EndALS #ACTforALS #PassTheBill
We already hit 1,600 signatures in 48 hours — now let's DOUBLE it. Petition closes on Sunday! Please share.
www.iamals.org/a4apetition/
#EndALS #ACTforALS #PassTheBill
Finish the Job on ACT for ALS - I AM ALS - ALS is Relentless. So Are We!
A Petition to Congressional Leadership and Members of the Senate and House HELP Committees: We are in a place we didn’t want to be. It’s September and, desp ...
www.iamals.org
September 11, 2026 at 3:44 PM
The House wants to leave DC early. We want them to pass #ACTforALS before they go.
We already hit 1,600 signatures in 48 hours — now let's DOUBLE it. Petition closes on Sunday! Please share.
www.iamals.org/a4apetition/
#EndALS #ACTforALS #PassTheBill
We already hit 1,600 signatures in 48 hours — now let's DOUBLE it. Petition closes on Sunday! Please share.
www.iamals.org/a4apetition/
#EndALS #ACTforALS #PassTheBill
I wasn’t going to come onto social media today but feel it’s my duty to remind you that this 👇🏻 creep voted against the #ActforALS and against the anti-lynching bill and was the only no vote on the antisemitism resolution.
June 4, 2023 at 5:34 AM
I wasn’t going to come onto social media today but feel it’s my duty to remind you that this 👇🏻 creep voted against the #ActforALS and against the anti-lynching bill and was the only no vote on the antisemitism resolution.
Congress has until September 30 to reauthorize ACT for ALS. They have just a few working days left to do it. Join me — tell Congress to act NOW: www.iamals.org/reauthorize-... #ACTforALS #EndALS @iamals.bsky.social
Reauthorize the ACT for ALS! - I AM ALS - ALS is Relentless. So Are We!
ACT for ALS gets us closer to a cure for ALS. Help us reauthorize this critical piece of legislation before it expires in September 2026!
www.iamals.org
September 4, 2026 at 7:50 PM
Congress has until September 30 to reauthorize ACT for ALS. They have just a few working days left to do it. Join me — tell Congress to act NOW: www.iamals.org/reauthorize-... #ACTforALS #EndALS @iamals.bsky.social
We're over 1,100 signatures strong and counting. ACT for ALS expires September 30 — Congress needs to act now to reauthorize it. Add your name and keep the pressure on: www.iamals.org/a4apetition/ #ActForALS #EndALS
Finish the Job on ACT for ALS - I AM ALS - ALS is Relentless. So Are We!
A Petition to Congressional Leadership and Members of the Senate and House HELP Committees: We are in a place we didn’t want to be. It’s September and, desp ...
www.iamals.org
September 11, 2026 at 12:15 AM
We're over 1,100 signatures strong and counting. ACT for ALS expires September 30 — Congress needs to act now to reauthorize it. Add your name and keep the pressure on: www.iamals.org/a4apetition/ #ActForALS #EndALS
July 31, 2026 at 2:40 PM
I’m from Michigan and my life is impacted by #ALS. I urge @slotkin.senate.gov to vote YES on #ACTforALS Reauthorization (S. 4472). Learn why: als.org/ACTforALS #ALSAdvocacy #EndALS
als.org
July 31, 2026 at 2:35 PM
I’m from Michigan and my life is impacted by #ALS. I urge @slotkin.senate.gov to vote YES on #ACTforALS Reauthorization (S. 4472). Learn why: als.org/ACTforALS #ALSAdvocacy #EndALS
I'm from Michigan and my life is impacted by #ALS. I urge @peters.senate.gov to vote YES on #ACTforALS Reauthorization (S. 4472). Learn why: als.org/ACTforALS #ALSAdvocacy #EndALS
als.org
July 31, 2026 at 2:34 PM
I'm from Michigan and my life is impacted by #ALS. I urge @peters.senate.gov to vote YES on #ACTforALS Reauthorization (S. 4472). Learn why: als.org/ACTforALS #ALSAdvocacy #EndALS
Please share 🙏
#ALS #ALSAwarenessMonth #IamALS #ACTforALS #research #science #medicine #nytimes
@maddow.bsky.social @maddowblog.bsky.social #new #FDA #progress #miracle #pray
#ALS #ALSAwarenessMonth #IamALS #ACTforALS #research #science #medicine #nytimes
@maddow.bsky.social @maddowblog.bsky.social #new #FDA #progress #miracle #pray
We are so grateful to @Pam Belluck and @nytimes for telling our community’s story and making ALS progress visible. THIS is progress—I AM ALS pushed for Tofersen, the FDA understood this need, and it paid off. We won’t stop bit.ly/NYT-tofersen
May 6, 2026 at 5:45 PM
April 15, 2026 at 6:28 PM
I was delighted to have another opportunity to speak with @RepMikeQuigley today about the reauthorization of the #ACTforALS.
Stay tuned for more to come on this important piece of #ALS legislation.
Stay tuned for more to come on this important piece of #ALS legislation.
August 28, 2025 at 11:20 PM
I was delighted to have another opportunity to speak with @RepMikeQuigley today about the reauthorization of the #ACTforALS.
Stay tuned for more to come on this important piece of #ALS legislation.
Stay tuned for more to come on this important piece of #ALS legislation.
This Independence Day, fight for independence for people with ALS. ACT for ALS expires this September — urge Congress to reauthorize it now: https://app.oneclickpolitics.com/campaign-page?cid=D9ywLshuaKgGZbKAWUKOI
#ACTforALS #ALSAdvocacy #ALSUnited
#ACTforALS #ALSAdvocacy #ALSUnited
July 4, 2026 at 4:02 PM
This Independence Day, fight for independence for people with ALS. ACT for ALS expires this September — urge Congress to reauthorize it now: https://app.oneclickpolitics.com/campaign-page?cid=D9ywLshuaKgGZbKAWUKOI
#ACTforALS #ALSAdvocacy #ALSUnited
#ACTforALS #ALSAdvocacy #ALSUnited
Thank you, Sen. John Hickenlooper, for joining your colleagues on the Senate HELP Committee in advancing the ACT for ALS Reauthorization Act.
This action moves us closer to continuing programs that support ALS research, expand access to therapies, and advance promising treatments.
#ALS #ActforALS
This action moves us closer to continuing programs that support ALS research, expand access to therapies, and advance promising treatments.
#ALS #ActforALS
June 20, 2026 at 4:02 PM
Thank you, Sen. John Hickenlooper, for joining your colleagues on the Senate HELP Committee in advancing the ACT for ALS Reauthorization Act.
This action moves us closer to continuing programs that support ALS research, expand access to therapies, and advance promising treatments.
#ALS #ActforALS
This action moves us closer to continuing programs that support ALS research, expand access to therapies, and advance promising treatments.
#ALS #ActforALS
🚨 The Senate HELP Committee approved the ACT for ALS Reauthorization Act! Congress must act before the law expires in September. Urge your Members to support it: https://app.oneclickpolitics.com/campaign-page?cid=D9ywLshuaKgGZbKAWUKOI #ALS #ACTforALS
June 18, 2026 at 4:05 PM
🚨 The Senate HELP Committee approved the ACT for ALS Reauthorization Act! Congress must act before the law expires in September. Urge your Members to support it: https://app.oneclickpolitics.com/campaign-page?cid=D9ywLshuaKgGZbKAWUKOI #ALS #ACTforALS