#AddisonsDiseaseDay
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Thank you @giuliabould.bsky.social for raising awareness of #AddisonsDiseaseDay on BBC Radio 5 Live🎙️

Listen to Giulia here 👉 www.youtube.com/watch?v=pcWV...

Giulia knows first-hand that adrenal crisis is time-critical and the need for improved education ⬇️
www.addisonsdisease.org.uk/emergency
Listen to Giulia Bould on BBC Radio 5 Live for Addison's Disease Day 2026!
YouTube video by Addison's Disease Self-Help Group
www.youtube.com
June 19, 2026 at 10:04 AM
addisonsdisease.bsky.social
🎉 Thank you to the incredible @socendocrinology.bsky.social endocrine nurses & volunteers who ran an awareness stand for #AddisonsDiseaseDay 2026!

14 stands (& counting!) were held across the UK 👏

✨ Feeling inspired? Find out more ➡️
https://loom.ly/uWtaqpw
Collage celebrating Addison’s Disease Day featuring three photos of healthcare staff and volunteers standing beside stands and information displays about Addison’s disease. At the centre is a large banner reading “A BIG THANK YOU from the Addison’s Disease Self-Help Group!” with an Addison’s Disease Day logo showing the date 29 May. The top-left photo shows three NHS staff members in uniform standing beside a display stand decorated with bunting, leaflets, posters, awareness materials and ADSHG injection kits. The top-right photo shows two women behind an information table covered with leaflets, posters and ADSHG shop items like injection kits and a hospital folder. The bottom photo shows two nurses standing on either side of a large awareness display and information table filled with educational resources, posters, leaflets and items from the ADSHG shop, alongside a banner explaining the symptoms of Addison’s disease. Collage celebrating Addison’s Disease Day featuring four photos of awareness stands in healthcare settings. At the centre is an Addison’s Disease Day logo showing the date 29 May. The top-left photo shows two women seated beside an awareness stand with blue display boards decorated with Addison’s Disease Self-Help Group bunting. The stand includes various educational posters and leaflets, as well as a kidney model, awareness materials and items from the ADSHG shop, all arranged on a purple tablecloth. The top-right photo shows a nurse in blue scrubs and a staff member in office attire stand behind another information table featuring Addison’s disease leaflets, posters, pens, educational resources and ADSHG injection kits. The bottom-left photo shows two ambulance service workers at an information stand looking at educational resources. The bottom-right photo shows four healthcare staff and volunteers standing behind a table displaying leaflets, information cards, awareness materials and products from the ADSHG shop. The collage highlights awareness stands that are aimed at improving understanding of Addison’s disease and adrenal insufficiency among healthcare professionals and the public. A four-photo collage celebrating Addison’s Disease Day (29 May), showing awareness and information stands staffed by healthcare professionals and volunteers. In the top-left photo, a smiling woman sits behind a table covered with Addison’s disease leaflets, booklets, pens, and information cards, with branded bunting displayed across the front. In the top-right photo, three volunteers stand behind another information table filled with educational materials, leaflets, booklets, sweets and an ADSHG hospital folder and injection kits. In the bottom-left photo, two NHS nurses in blue uniforms stand beside an awareness display in a hospital setting, featuring posters, leaflets and information about adrenal insufficiency, including Addison’s disease. There are also various products from the ADSHG shop. In the bottom-right photo, two healthcare workers in navy uniforms stand smiling beside an awareness stand. They wear sashes to highlight endocrine health awareness. The display includes educational materials, posters and leaflets about adrenal insufficiency, including Addison's disease. At the centre of the collage is a circular “Addison’s Disease Day – 29 May” graphic. Graphic encouraging healthcare professionals to run an Addison’s disease awareness stand in their hospital. The top section has a teal background featuring the Addison’s Disease Self-Help Group logo between two illustrated placards reading “Addison’s Awareness” and “Adrenal Insufficiency Awareness.” Large white text reads: “Get involved! RUN AN AWARENESS STAND IN YOUR HOSPITAL,” followed by the website address: www.addisonsdisease.org.uk/run-an-awareness-stand. The lower section shows an example awareness stand with blue display boards decorated with Addison’s Disease Self-Help Group bunting. The display includes educational posters about Addison’s disease and adrenal insufficiency, a kidney model, leaflets, pens, sweets and healthcare education resources arranged on a purple-covered table. There are also items from the ADSHG shop, such as injection kits and hospital folders. The image promotes hospital awareness activities and encourages others to get involved.
June 17, 2026 at 2:30 PM
addisonsdisease.bsky.social
Why is #AddisonsDiseaseDay on 29 May?

It’s the birthday of John F. Kennedy, the 35th US President who managed his Addison's disease & other autoimmune conditions in secret. JFK was diagnosed with Addison’s whilst in London aged 30.

Read more ⤵️
addisonsdisease.org.uk/famous-lives... (9/9)
addisonsdisease.org.uk
May 29, 2026 at 8:00 AM
addisonsdisease.bsky.social
This May, our wonderful community has also been hosting Addison's Afternoon Teas to raise vital awareness & funds in the lead up to #AddisonsDiseaseDay ☕

Together we're making a difference, our work wouldn't be possible without you! Become part of our community & hear more ➡️ loom.ly/Fl2cSE4 (8/9)
Closing graphic for Addison's Disease Day 2026 thanking supporters and encouraging people to join the Addison's Disease Self-Help Group charity. Tagline: 'Make Our Voice Stronger. Join Our Charity.' Two photos show supporters: one woman holding an Addison's Afternoon Tea cake, and a mother and child walking together wearing Supporting Addison's t-shirts. Encourages membership to help turn awareness into action. Includes the Addison’s Disease Day 29 May and the Addison’s Disease Self-Help Group logos. Website: addisonsdisease.org.uk. Hashtag: #AddisonsDiseaseDay.
May 29, 2026 at 8:00 AM
addisonsdisease.bsky.social
For #AddisonsDiseaseDay @socendocrinology.bsky.social HCP's are hosting awareness stands to improve steroid-dependency education in hospitals. Thank you! 🩺

📩Sign up to our HCP newsletter, ADSHG Connection, for the latest adrenal insufficiency news⬇️ www.addisonsdisease.org.uk/information-... (7/9)
Information for Healthcare Professionals
Our charity has developed a range of clinical guidance publications in collaboration with our Clinical Advisory Panel (CAP) to inform and advise healthcare professionals.
www.addisonsdisease.org.uk
May 29, 2026 at 8:00 AM
addisonsdisease.bsky.social
How can you take action this #AddisonsDiseaseDay?

🔎 Take part in our Research Study on Prevention & Management of Adrenal Crisis. Use your voice!
🚦Complete an Action Plan using the new traffic light leaflet! From daily meds, Sick Day Rules to adrenal crisis.

Find out more ⬇️ loom.ly/Fl2cSE4 (6/9)
Today is Addison's Disease Day 2026!
Whether you live with primary (Addison's), secondary, or tertiary adrenal insufficiency, this day is for you. For 2026 our theme is ‘Turn Awareness into Action’, a call to move beyond knowing and into...
loom.ly
May 29, 2026 at 8:00 AM
addisonsdisease.bsky.social
On #AddisonsDiseaseDay we’re launching a new injection video to support you in learning the hydrocortisone sodium succinate (powder & water) injection process.

Bring together those close to you to practice this life-saving skill. Ready, set, inject!
www.youtube.com/watch?v=ymP7... (5/9)
Hydrocortisone Powder - how to give an emergency injection to prevent or treat adrenal crisis.
YouTube video by Addison's Disease Self-Help Group
www.youtube.com
May 29, 2026 at 8:00 AM
addisonsdisease.bsky.social
On our #AddisonsDiseaseDay blog, meet Lottie & Emily.

Both live with Addison's disease & use their personal experiences to turn awareness into action. Lottie as a paramedic & Emily as a content creator.

Read their stories ➡️ loom.ly/Fl2cSE4 (4/9)
Promotional graphic for Addison's Disease Day (29 May) featuring Lottie's story: Tips From a Paramedic With Addison's. Includes a photo of Lottie, a young woman with glasses and red hair in a braid, wearing a paramedic uniform. Text shares her perspective on medical alert methods and directs readers to the Addison's Disease Self-Help Group blog at addisonsdisease.org.uk. Includes the Addison’s Disease Day 29 May and the Addison’s Disease Self-Help Group logos. Website: addisonsdisease.org.uk. Hashtag: #AddisonsDiseaseDay. Promotional graphic for Addison's Disease Day (29 May) featuring Emily's Story: Life as a Content Creator With Addison's. Two photos show Emily, a young blonde woman, wearing a white Addison's Disease Self-Help Group t-shirt, photographed from the front and back against a green ivy wall. Text describes her advocacy work making the invisible condition visible. Directs readers to the blog at addisonsdisease.org.uk. Includes the Addison’s Disease Day 29 May and the Addison’s Disease Self-Help Group logos. Website: addisonsdisease.org.uk. Hashtag: #AddisonsDiseaseDay.
May 29, 2026 at 8:00 AM
addisonsdisease.bsky.social
Addison's disease & adrenal insufficiency are rare, life-threatening endocrine conditions where the adrenal glands cease to function & the body cannot produce enough of certain essential hormones.

Medication is time-critical. Learn more & raise awareness #AddisonsDiseaseDay ➡️ loom.ly/Fl2cSE4 (3/9)
Educational infographic explaining Addison’s disease and adrenal insufficiency. The graphic describes the three types of adrenal insufficiency, the importance of lifelong steroid replacement treatment, Sick Day Rules, emergency hydrocortisone injections and adrenal crisis awareness. Illustrations include an emergency injection kit, adrenal glands and an NHS steroid emergency card. Includes the Addison’s Disease Day 29 May and the Addison’s Disease Self-Help Group logos. Website: addisonsdisease.org.uk. Hashtag: #AddisonsDiseaseDay.
May 29, 2026 at 8:00 AM
addisonsdisease.bsky.social
Whether you live with primary (Addison's disease), secondary, or tertiary adrenal insufficiency, #AddisonsDiseaseDay is for you.

Today we're sharing personal experiences, new resources including our injection video & asking you to take part in research!

Learn more ➡️ loom.ly/Fl2cSE4 (2/9)
Informational graphic for Addison’s Disease Day explaining the 2026 theme, “Turn Awareness Into Action.” Text highlights personal experiences from people living with Addison’s, new educational resources including an emergency injection video and action plan leaflet, and a research study on adrenal crises. Includes the Addison’s Disease Day 29 May and the Addison’s Disease Self-Help Group logos. Website: addisonsdisease.org.uk. Hashtag: #AddisonsDiseaseDay.
May 29, 2026 at 8:00 AM
addisonsdisease.bsky.social
It’s #AddisonsDiseaseDay - a day for everyone who is affected by Addison’s disease & adrenal insufficiency to join together to raise awareness & celebrate this incredible community 🎉

This year our theme is ‘Turn Awareness into Action’. Find out more ➡️ https://loom.ly/Fl2cSE4 (1/9)
Graphic announcing Addison’s Disease Day 2026 with the theme “Turn Awareness Into Action.” The design features a woman wearing an Addison’s Disease Self-Help Group t-shirt standing in front of ivy-covered walls, alongside bold text, celebratory graphics and the Addison’s Disease Day 29 May logo.
May 29, 2026 at 6:02 AM
addisonsdisease.bsky.social
May is here! #AddisonsDiseaseDay is just 29 days away. This year’s theme is 'Turn Awareness into Action'.

Whether you live with primary (Addison's), secondary, or tertiary #AdrenalInsufficiency, this day is for you. Get involved 👉 https://www.addisonsdisease.org.uk/Event/addisons-disease-day-2026
Purple awareness graphic reading “One month to go! Addison’s Disease Day 29 May.” Includes a calendar icon and the message “Turn awareness into action – Find out how you can get involved.”
May 1, 2026 at 7:01 AM
addisonsdisease.bsky.social
100 Days to Go! #AddisonsDiseaseDay 2026 is Friday 29 May ✨

💡 Feeling inspired? Host an awareness stand at your hospital or plan your own activity! Get in touch ⤵️
https://www.addisonsdisease.org.uk/Event/addisons-disease-day-2026
@socendocrinology.bsky.social
Addison's Disease Day 2026 - 29/05/2026 00:00:00
Save the date! Friday 29 May 2026 is Addison's Disease Day! We're asking everyone around the world who is affected by Addison’s disease and adrenal insufficiency to join us in a day of raising awareness.
www.addisonsdisease.org.uk
February 18, 2026 at 10:00 AM
addisonsdisease.bsky.social
Catch up on our Sick Day Rules webinar with The Pituitary Foundation! Presented by Endocrine Clinical Specialist Nurse Aldons Chua for #AddisonsDiseaseDay.
⁠
🎥 Watch to learn more about the Sick Day Rules & hear the Top 5 questions as asked by you ➡️ www.youtube.com/watch?v=PYjjW1e0ADc&t=3s
Promotional graphic with the title “Watch Our Sick Day Rules Webinar.” Underneath this are the words, "with Aldons Chua, Endocrine Clinical Nurse Specialist." The background is a faded and enlarged version of the Addison's Disease Self-Help Group logo. In the centre is a graphic of an open laptop screen, showing a slide titled "Sick Day Rules." Above this is a red circular illustration that reads "Low Cortisol" and has an adrenal gland icon. Beneath the title, the slide reads: “for those with Addison’s disease & adrenal insufficiency.” Underneath this are two website links: www.addisonsdisease.org.uk and www.pituitary.org.uk. Fine print at the bottom of the slide includes charity registration numbers. A circular photo of Aldons Chua appears on the right side of the laptop screen. A red button above the laptop reads “Catch Up Now” with a play icon. At the bottom are three logos: the Addison’s Disease Self-Help Group logo, The Pituitary Foundation logo, and a purple and blue calendar illustration. This features the date "May 29", which is circled, and underneath says "Addison’s Disease Day."
October 2, 2025 at 9:01 AM
addisonsdisease.bsky.social
Tablet time & a cuppa? The perfect moment to catch up on the Addison’s Magazine!

Enjoy personal stories, a focus on exercise & bone health, research update on adrenal crisis & #AddisonsDiseaseDay roundup, alongside expert, trusted articles ⤵️
https://www.addisonsdisease.org.uk/magazine-summer-2025
A wooden table with a copy of Addison’s Magazine, Summer 2025 edition, featuring a colourful landscape painting on the cover. Next to the magazine is a white ADSHG "supporting" charity mug of tea with an ADSHG wooden pen and a strip of hydrocortisone tablets next to it,
August 27, 2025 at 11:02 AM
addisonsdisease.bsky.social
Why is #AddisonsDiseaseDay on 29 May?

It’s the birthday of John F. Kennedy, the 35th US President who managed his Addison's disease & other autoimmune conditions in secret. JFK was diagnosed with Addison’s whilst in London aged 30.

Read more ⤵️
www.addisonsdisease.org.uk/famous-lives... (7/7)
Famous Lives - John F. Kennedy
President John F. Kennedy was diagnosed with Addison's in September 1947 at the age of 30 years. Whilst president he was portrayed as healthy and vibrant. In reality, he suffered various problems & hi...
www.addisonsdisease.org.uk
May 29, 2025 at 10:44 AM
addisonsdisease.bsky.social
Right now for #AddisonsDiseaseDay, @socendocrinology.bsky.social are hosting awareness stands to improve steroid-dependency education in hospitals.

Throughout May our community held Addison’s Afternoon Teas to raise vital awareness & funds. Thank you🎉 www.addisonsdisease.org.uk/News/happy-a... |6/7
4 images with the May 29 Addison's Disease Day graphic in the centre. The top left is the back of two females wearing ADSHG charity tops, cheering on fundraisers at a race. The top right is of a endocrine Nurse standing at her Addison's awareness stand. The bottom left is of a lady wearing an ADSHG top at her Addison's Afternoon Tea. She is holding an ADSHG mug and has ADSHG bunting in the background. The bottom right image is of the materials displayed at an Addison's Awareness Stand in a hospital, it includes ADSHG leaflets, steroid emergency card and a model of an adrenal gland.
May 29, 2025 at 10:44 AM
addisonsdisease.bsky.social
Improve GP education this #AddisonsDiseaseDay! We're thrilled to announce a new @bmj.com Learning module: "Medical emergencies in primary care: Addisonian (adrenal) crisis."

Read more & help spread the word by sharing our poster ➡️ www.addisonsdisease.org.uk/News/happy-a... (5/7)
"Improving GP Education" for Addison’s Disease Day. Text reads: We’re thrilled to have worked on the new BMJ Learning e-learning course for GPs, to ensure they are aware of the correct management of Addison’s disease and adrenal insufficiency. This course offers a practical guide for GPs, providing them with vital knowledge on the emergency treatment of Addisonian (adrenal) crisis along with key management essentials, such as the need to prescribe three months of essential steroid medication. This is to keep you safe through an episode of illness which requires increased Sick Day Rule dosing to prevent an adrenal crisis. This is the second CPD module we have co-authored to improve GP education. Help us spread the word - let your GP know about these e-modules! Download our poster to share with your GP practice, or send them the links on our website.
May 29, 2025 at 10:44 AM
addisonsdisease.bsky.social
For #AddisonsDiseaseDay we teamed up with @pituitaryorg.bsky.social to host a Sick Day Rules webinar with Endocrine Specialist Nurse, Aldons Chua.

Over 200 people from around the world joined to hear expert advice on stress dosing & adrenal crisis. Watch back ⤵️
youtu.be/PYjjW1e0ADc?... (4/7)
Sick Day Rules Webinar with Aldons Chua, Endocrine Clinical Nurse Specialist
YouTube video by Addison's Disease Self-Help Group
youtu.be
May 29, 2025 at 10:44 AM
addisonsdisease.bsky.social
On our #AddisonsDiseaseDay blog, meet Joyce & Ruth, two sisters who have Addison's disease & travel the world as Sephira, the Irish Rock Violinists.

They share their signs for following the Sick Day Rules & "cortisol check-in" tips ⤵️
www.addisonsdisease.org.uk/blog/sephira... (3/7)
Sephira – The Irish Rock Violinists Story: Know the Signs, Save a Life
Meet Joyce and Ruth, sisters living with Addison's disease who perform together as Sephira – The Irish Rock Violinists. They share their journey of touring the world, all while managing Addison’s, off...
www.addisonsdisease.org.uk
May 29, 2025 at 10:44 AM
addisonsdisease.bsky.social
#AddisonsDiseaseDay - Know the Signs, Save a Life

We want to educate the public & medics on the Sick Day Rules for adrenal insufficiency. By increasing awareness of low cortisol signs, we can improve quality of life & ultimately save lives.
➡️ www.addisonsdisease.org.uk/News/happy-a... (2/7)
"The Sick Day Rules" for Addison’s Disease Day. It explains when the body experiences either physical or severe emotional stress, it needs more cortisol than usual. As a result, you will need to take extra medication on top of your usual daily dose to meet the increased cortisol need. This extra medication is known as following the Sick Day Rules and is also referred to as ‘stress dosing’ or ‘updosing’. The Sick Day Rules guidelines have been developed by clinicians to help keep you safe and reduce the chances of an adrenal crisis. As everyone’s medication needs are different, they are guidance rather than concrete rules. This can be tricky! Individuals learn to “listen to their body”, tailoring how much extra cortisol medication they need based on how they feel. There is also a lack of awareness of the impact seemingly minor ailments, such as vomiting or flu, can have on anyone with a steroid-dependent adrenal condition. Informational graphic titled "What is Addison's disease & adrenal insufficiency?" for Addison’s Disease Day. It explains that Addison’s disease (AD) and adrenal insufficiency (AI) are rare, life-threatening conditions affecting adrenal gland function. Lifelong steroid hormone replacement is required. Individuals must follow Sick Day Rules and know how to use emergency hydrocortisone injections to prevent adrenal crisis. The graphic highlights the importance of patients becoming expert self-advocates due to healthcare professionals often being unfamiliar with the condition. Visuals include a calendar marked May 29, adrenal gland illustration, steroid emergency card, injection kit, and a patient diagram.
May 29, 2025 at 10:44 AM
addisonsdisease.bsky.social
It’s #AddisonsDiseaseDay - a day for everyone who is affected by Addison’s disease & adrenal insufficiency to join together to raise awareness & celebrate this incredible community 🎉

This year our theme is: 'Know the Signs, Save a Life' ⤵️ www.addisonsdisease.org.uk/News/happy-a... (1/7)
Happy Addison's Disease Day 2025!
Happy Addison’s Disease Day! Read on to find out how you can raise awareness and celebrate the incredible Addison’s disease and adrenal insufficiency community.
www.addisonsdisease.org.uk
May 29, 2025 at 10:44 AM
addisonsdisease.bsky.social
p.s. it's just 12 days until #AddisonsDiseaseDay (29 May)! This year’s theme is: "Know the Signs, Save a Life".

📣 If @bbcdoctorwhom.bsky.social has inspired you to raise awareness, there’s still time to get involved. Help us make a difference ⤵️
www.addisonsdisease.org.uk/Event/addiso... (🧵3/3)
Addison's Disease Day 2025 - 29/05/2025 00:00:00
Join us on Thursday 29 May for Addison's Disease Day 2025! We're asking everyone around the world who is affected by Addison’s disease and adrenal insufficiency to join us in a day of raising awarenes...
www.addisonsdisease.org.uk
May 17, 2025 at 7:08 PM
addisonsdisease.bsky.social
Feeling inspired by #NursesDay? If you could you host an awareness stand for #AddisonsDiseaseDay (29 May) in your hospital - please get in touch!

Take this chance to educate colleagues on adrenal insufficiency & steroid-dependency ⤵️
www.addisonsdisease.org.uk/run-an-aware...
Run an Awareness Stand
Help us fulfill one of the main aims of our charity: to spread awareness of Addison's disease and adrenal insufficiency. With our support, set up an Awareness stand in your local hospital to help educ...
www.addisonsdisease.org.uk
May 12, 2025 at 3:22 PM
addisonsdisease.bsky.social
Make a stand! #AddisonsDiseaseDay awareness in your hospital.

Calling all healthcare professionals! Set up an awareness stand to educate others on this rare condition and the needs of a steroid-dependent person. Find out more 👇
www.addisonsdisease.org.uk/run-an-aware...
Run an Awareness Stand
Help us fulfill one of the main aims of our charity: to spread awareness of Addison's disease and adrenal insufficiency. With our support, set up an Awareness stand in your local hospital to help educ...
www.addisonsdisease.org.uk
May 7, 2025 at 8:36 AM