Accessibility empowers everyone. This International Ataxia Awareness Day, let's make digital experiences more inclusive.
#ataxiaawareness #digitalaccessibility #accessibility #a11y
#ataxiaawareness #digitalaccessibility #accessibility #a11y
September 25, 2026 at 1:19 PM
Accessibility empowers everyone. This International Ataxia Awareness Day, let's make digital experiences more inclusive.
#ataxiaawareness #digitalaccessibility #accessibility #a11y
#ataxiaawareness #digitalaccessibility #accessibility #a11y
We are also thankful to colleagues and collaborators from Friedreich's Ataxia Research Alliance (FARA), Ataxia UK, and EndFA for their participation and contributions across the two-day Symposium event.
#AtaxiaAwareness #FriedreichsAtaxia
#AtaxiaAwareness #FriedreichsAtaxia
September 25, 2026 at 1:01 PM
We are also thankful to colleagues and collaborators from Friedreich's Ataxia Research Alliance (FARA), Ataxia UK, and EndFA for their participation and contributions across the two-day Symposium event.
#AtaxiaAwareness #FriedreichsAtaxia
#AtaxiaAwareness #FriedreichsAtaxia
We're grateful for the opportunity to put Ataxia at the forefront of the conversation in front of so many industry experts. Looking forward to tomorrow! #AtaxiaAwareness
Next week I'll be sitting down with Bill Nye & @ataxiafoundation.bsky.social about research on Ataxia — and the search for better treatments for the disease that has run in his family @statnews.com's #STATBreakthrough event !!!
March 19, 2025 at 5:52 PM
We're grateful for the opportunity to put Ataxia at the forefront of the conversation in front of so many industry experts. Looking forward to tomorrow! #AtaxiaAwareness
Did you know? The cerebellum is the part of the brain responsible for movement coordination in the body. Ataxia symptoms occur when the cerebellum is not functioning properly. Cerebellar dysfunction can be caused genetically or by physical injury. #AtaxiaAwareness
March 13, 2025 at 7:05 PM
Did you know? The cerebellum is the part of the brain responsible for movement coordination in the body. Ataxia symptoms occur when the cerebellum is not functioning properly. Cerebellar dysfunction can be caused genetically or by physical injury. #AtaxiaAwareness
🧠 Today is International Ataxia Awareness Day and we join other organisations around the world to help shed light on this rare disease.
#IAAD25 #AtaxiaAwareness #CureAtaxia #UnitedAgainstAtaxia #InternationalAtaxiaAwarenessDay #AnimalResearch #research #science
#IAAD25 #AtaxiaAwareness #CureAtaxia #UnitedAgainstAtaxia #InternationalAtaxiaAwarenessDay #AnimalResearch #research #science
September 25, 2025 at 2:03 PM
🧠 Today is International Ataxia Awareness Day and we join other organisations around the world to help shed light on this rare disease.
#IAAD25 #AtaxiaAwareness #CureAtaxia #UnitedAgainstAtaxia #InternationalAtaxiaAwarenessDay #AnimalResearch #research #science
#IAAD25 #AtaxiaAwareness #CureAtaxia #UnitedAgainstAtaxia #InternationalAtaxiaAwarenessDay #AnimalResearch #research #science
On #InternationalAtaxiaAwarenessDay, we spotlight progress in ARSACS research.
In Oxford, Professor Esther Becker is using patient-derived cerebellar organoids to uncover why brain cells are vulnerable and to open new paths toward treatment.
🔗 tinyurl.com/ye6k9cx4
#RareDisease #AtaxiaAwareness
In Oxford, Professor Esther Becker is using patient-derived cerebellar organoids to uncover why brain cells are vulnerable and to open new paths toward treatment.
🔗 tinyurl.com/ye6k9cx4
#RareDisease #AtaxiaAwareness
How Patient Stories Fuel Ataxia Research
On International Ataxia Awareness Day (25 September), the spotlight turns to the progress being made to treat rare neurological conditions. For Autosomal Recessive Spastic Ataxia of
tinyurl.com
September 25, 2025 at 11:24 AM
On #InternationalAtaxiaAwarenessDay, we spotlight progress in ARSACS research.
In Oxford, Professor Esther Becker is using patient-derived cerebellar organoids to uncover why brain cells are vulnerable and to open new paths toward treatment.
🔗 tinyurl.com/ye6k9cx4
#RareDisease #AtaxiaAwareness
In Oxford, Professor Esther Becker is using patient-derived cerebellar organoids to uncover why brain cells are vulnerable and to open new paths toward treatment.
🔗 tinyurl.com/ye6k9cx4
#RareDisease #AtaxiaAwareness
On International Ataxia Day we want to spotlight the research being funded by Ataxia UK. Research is vital in the search for a cure and in providing real-life impact to those affected by Ataxia.
Read more in the impact report: https://bit.ly/AtaxiaAw
#IAAD25 #AtaxiaAwareness
Read more in the impact report: https://bit.ly/AtaxiaAw
#IAAD25 #AtaxiaAwareness
Celebrating the impact of Ataxia UK-funded research - Ataxia UK
Ataxia UK funds research that aims to find treatments and cures for the ataxias. This would not be possible without your continued generosity in donating to support this mission. Thank you to each and every person who has donated to fund ataxia research. For every £1 invested by Ataxia UK into ataxia research, a further
bit.ly
September 25, 2025 at 8:03 AM
On International Ataxia Day we want to spotlight the research being funded by Ataxia UK. Research is vital in the search for a cure and in providing real-life impact to those affected by Ataxia.
Read more in the impact report: https://bit.ly/AtaxiaAw
#IAAD25 #AtaxiaAwareness
Read more in the impact report: https://bit.ly/AtaxiaAw
#IAAD25 #AtaxiaAwareness
Learn more here: https://bit.ly/4842feD
The caregiver’s perspectiveA changing perspective and open communication help caregivers and patients navigate FA together.
#FriedreichsAtaxiaNews #FA #CaregiverPerspective #AtaxiaAwareness #RareDisease #CaregivingJourney #FamilySupport #ChronicIllness
The caregiver’s perspectiveA changing perspective and open communication help caregivers and patients navigate FA together.
#FriedreichsAtaxiaNews #FA #CaregiverPerspective #AtaxiaAwareness #RareDisease #CaregivingJourney #FamilySupport #ChronicIllness
May 7, 2026 at 2:47 AM
Learn more here: https://bit.ly/4842feD
The caregiver’s perspectiveA changing perspective and open communication help caregivers and patients navigate FA together.
#FriedreichsAtaxiaNews #FA #CaregiverPerspective #AtaxiaAwareness #RareDisease #CaregivingJourney #FamilySupport #ChronicIllness
The caregiver’s perspectiveA changing perspective and open communication help caregivers and patients navigate FA together.
#FriedreichsAtaxiaNews #FA #CaregiverPerspective #AtaxiaAwareness #RareDisease #CaregivingJourney #FamilySupport #ChronicIllness
Learn more here: https://bit.ly/4cuVio3
Understanding care changes in FAAs care needs shift over time, understanding these changes helps caregivers provide the right support.
#FriedreichsAtaxiaNews #Caregiving #FA #CareSupport #AtaxiaAwareness #FamilyCare #ChronicIllness #PatientSupport
Understanding care changes in FAAs care needs shift over time, understanding these changes helps caregivers provide the right support.
#FriedreichsAtaxiaNews #Caregiving #FA #CareSupport #AtaxiaAwareness #FamilyCare #ChronicIllness #PatientSupport
May 5, 2026 at 2:47 AM
Learn more here: https://bit.ly/4cuVio3
Understanding care changes in FAAs care needs shift over time, understanding these changes helps caregivers provide the right support.
#FriedreichsAtaxiaNews #Caregiving #FA #CareSupport #AtaxiaAwareness #FamilyCare #ChronicIllness #PatientSupport
Understanding care changes in FAAs care needs shift over time, understanding these changes helps caregivers provide the right support.
#FriedreichsAtaxiaNews #Caregiving #FA #CareSupport #AtaxiaAwareness #FamilyCare #ChronicIllness #PatientSupport
Learn more here: https://bit.ly/4cEWO7w
How the Caregiver Role Changes in Friedreich’s Ataxia CareCaregiving evolves alongside FA, requiring both caregivers and patients to adapt to changing roles.
#FriedreichsAtaxiaNews #Caregivers #FAcare #AtaxiaAwareness #RareDisease #Caregiving #FamilySupport
How the Caregiver Role Changes in Friedreich’s Ataxia CareCaregiving evolves alongside FA, requiring both caregivers and patients to adapt to changing roles.
#FriedreichsAtaxiaNews #Caregivers #FAcare #AtaxiaAwareness #RareDisease #Caregiving #FamilySupport
May 4, 2026 at 2:47 AM
Learn more here: https://bit.ly/4cEWO7w
How the Caregiver Role Changes in Friedreich’s Ataxia CareCaregiving evolves alongside FA, requiring both caregivers and patients to adapt to changing roles.
#FriedreichsAtaxiaNews #Caregivers #FAcare #AtaxiaAwareness #RareDisease #Caregiving #FamilySupport
How the Caregiver Role Changes in Friedreich’s Ataxia CareCaregiving evolves alongside FA, requiring both caregivers and patients to adapt to changing roles.
#FriedreichsAtaxiaNews #Caregivers #FAcare #AtaxiaAwareness #RareDisease #Caregiving #FamilySupport
Learn more here: https://bit.ly/4dULSos
How to overcome barriers to diagnosis and careIdentifying and addressing barriers to care is essential for getting the support you need.
#FriedreichsAtaxiaNews #FA #RareDisease #HealthcareBarriers #AtaxiaAwareness #NeurologyCare #PatientAccess #HealthEquity
How to overcome barriers to diagnosis and careIdentifying and addressing barriers to care is essential for getting the support you need.
#FriedreichsAtaxiaNews #FA #RareDisease #HealthcareBarriers #AtaxiaAwareness #NeurologyCare #PatientAccess #HealthEquity
May 3, 2026 at 2:47 AM
Learn more here: https://bit.ly/4dULSos
How to overcome barriers to diagnosis and careIdentifying and addressing barriers to care is essential for getting the support you need.
#FriedreichsAtaxiaNews #FA #RareDisease #HealthcareBarriers #AtaxiaAwareness #NeurologyCare #PatientAccess #HealthEquity
How to overcome barriers to diagnosis and careIdentifying and addressing barriers to care is essential for getting the support you need.
#FriedreichsAtaxiaNews #FA #RareDisease #HealthcareBarriers #AtaxiaAwareness #NeurologyCare #PatientAccess #HealthEquity
Learn more here: https://bit.ly/4cuxPn5
Exploring available treatment options can help support symptom management and daily function.
#FriedreichsAtaxiaNews #FATreatment #RareDisease #Neurology #AtaxiaAwareness #TherapyOptions #DiseaseManagement #ClinicalCare #Neurodegeneration
Exploring available treatment options can help support symptom management and daily function.
#FriedreichsAtaxiaNews #FATreatment #RareDisease #Neurology #AtaxiaAwareness #TherapyOptions #DiseaseManagement #ClinicalCare #Neurodegeneration
April 30, 2026 at 2:47 AM
Learn more here: https://bit.ly/4cuxPn5
Exploring available treatment options can help support symptom management and daily function.
#FriedreichsAtaxiaNews #FATreatment #RareDisease #Neurology #AtaxiaAwareness #TherapyOptions #DiseaseManagement #ClinicalCare #Neurodegeneration
Exploring available treatment options can help support symptom management and daily function.
#FriedreichsAtaxiaNews #FATreatment #RareDisease #Neurology #AtaxiaAwareness #TherapyOptions #DiseaseManagement #ClinicalCare #Neurodegeneration
Learn more here: https://bit.ly/3OufLS0
Early intervention plays a critical role in helping slow progression and support quality of life.
#FriedreichsAtaxiaNews #EarlyDetection #FA #RareDisease #Neurology #AtaxiaAwareness #EarlyTreatment #DiseaseManagement #GeneticCondition
Early intervention plays a critical role in helping slow progression and support quality of life.
#FriedreichsAtaxiaNews #EarlyDetection #FA #RareDisease #Neurology #AtaxiaAwareness #EarlyTreatment #DiseaseManagement #GeneticCondition
April 28, 2026 at 2:47 AM
Learn more here: https://bit.ly/3OufLS0
Early intervention plays a critical role in helping slow progression and support quality of life.
#FriedreichsAtaxiaNews #EarlyDetection #FA #RareDisease #Neurology #AtaxiaAwareness #EarlyTreatment #DiseaseManagement #GeneticCondition
Early intervention plays a critical role in helping slow progression and support quality of life.
#FriedreichsAtaxiaNews #EarlyDetection #FA #RareDisease #Neurology #AtaxiaAwareness #EarlyTreatment #DiseaseManagement #GeneticCondition
Learn more here: https://bit.ly/48CWcxM
Understanding the signs of late-onset FA is key to recognizing symptoms early and getting the right care.
#FriedreichsAtaxiaNews #FA #AtaxiaAwareness #RareDiseaseEducation #Neurology #FAknowledge #PatientEducation #GeneticDisorders #NeurodegenerativeDisease
Understanding the signs of late-onset FA is key to recognizing symptoms early and getting the right care.
#FriedreichsAtaxiaNews #FA #AtaxiaAwareness #RareDiseaseEducation #Neurology #FAknowledge #PatientEducation #GeneticDisorders #NeurodegenerativeDisease
April 27, 2026 at 2:47 AM
Learn more here: https://bit.ly/48CWcxM
Understanding the signs of late-onset FA is key to recognizing symptoms early and getting the right care.
#FriedreichsAtaxiaNews #FA #AtaxiaAwareness #RareDiseaseEducation #Neurology #FAknowledge #PatientEducation #GeneticDisorders #NeurodegenerativeDisease
Understanding the signs of late-onset FA is key to recognizing symptoms early and getting the right care.
#FriedreichsAtaxiaNews #FA #AtaxiaAwareness #RareDiseaseEducation #Neurology #FAknowledge #PatientEducation #GeneticDisorders #NeurodegenerativeDisease
Learn more here: https://bit.ly/4872Ps7
Even with later-onset FA, early recognition and treatment can make a meaningful difference in long-term outcomes. #FriedreichsAtaxiaNews #LateOnsetFA #RareDisease #Neurology #AtaxiaAwareness #EarlyTreatment #FAcare #DiseaseProgression
Even with later-onset FA, early recognition and treatment can make a meaningful difference in long-term outcomes. #FriedreichsAtaxiaNews #LateOnsetFA #RareDisease #Neurology #AtaxiaAwareness #EarlyTreatment #FAcare #DiseaseProgression
April 26, 2026 at 2:47 AM
Learn more here: https://bit.ly/4872Ps7
Even with later-onset FA, early recognition and treatment can make a meaningful difference in long-term outcomes. #FriedreichsAtaxiaNews #LateOnsetFA #RareDisease #Neurology #AtaxiaAwareness #EarlyTreatment #FAcare #DiseaseProgression
Even with later-onset FA, early recognition and treatment can make a meaningful difference in long-term outcomes. #FriedreichsAtaxiaNews #LateOnsetFA #RareDisease #Neurology #AtaxiaAwareness #EarlyTreatment #FAcare #DiseaseProgression
I lost strength in my left leg yesterday. Today, both legs are weak and I need my chair. I never know when these days will come. And each time, I fear it will be the final time it changes and I'll never get my legs back.
#AtaxiaWarrior #AtaxiaAwareness #CerebellarAtaxia
#AtaxiaWarrior #AtaxiaAwareness #CerebellarAtaxia
May 10, 2025 at 4:07 AM
I lost strength in my left leg yesterday. Today, both legs are weak and I need my chair. I never know when these days will come. And each time, I fear it will be the final time it changes and I'll never get my legs back.
#AtaxiaWarrior #AtaxiaAwareness #CerebellarAtaxia
#AtaxiaWarrior #AtaxiaAwareness #CerebellarAtaxia