#AutoinflammatoryAwarenessMonth
August is internationally recognized as #AutoinflammatoryAwarenessMonth. ❤️‍🩹

🧪Autoinflammatory diseases are sometimes called periodic fever syndromes. Symptoms are generally present from childhood or infancy, & most autoinflammatory diseases are caused by genetic mutations.

Autoinflammatory Alliance
August 11, 2026 at 12:40 PM
Lauren Dickler is a Canadian sport psychology consultant, mental health advocate, and researcher. Having lived with an undifferentiated autoinflammatory disorder, she acts as a committee member for the Canadian Patient Autoinflammatory Advocacy Committee (PAAC). #autoinflammatoryawarenessmonth
August 12, 2026 at 3:24 PM
Malena Vetterli, director of FMF & AID, was chosen to represent patients with autoinflammatory diseases in the European Network RITA. The FMF & AID is an international non-profit organization dedicated to people who suffer from rare autoinflammatory diseases. #autoinflammatoryawarenessmonth
August 25, 2026 at 12:20 PM
Kate Bakelaar is a patient recently diagnosed with a rare autoinflammatory disease. She is passionate about promoting health literacy, effective communication, and strong patient partnerships. She is eager to support others navigating the same path she has experienced #autoinflammatoryawarenessmonth
August 11, 2026 at 3:04 PM
Autoinflammatory diseases are a group of conditions where the body's immune system triggers bouts of inflammation in healthy tissue. This causes symptoms such as rash, fever, and joint pain. SAIDs are not the same as autoimmune diseases., Farewell....... #autoinflammatoryawarenessmonth
August 31, 2026 at 2:57 PM
Jennifer Tousseau is a prominent rare disease advocate, patient navigator, and writer who specializes in systemic autoinflammatory diseases (SAIDs). She has dedicated her career to helping families navigate the complexities of rare inflammatory conditions. #autoinflammatoryawarenessmonth
August 30, 2026 at 3:23 PM
Franklin Hiagbe: A prominent patient advocate working to improve care, inclusion, and awareness for autoimmune and rheumatic diseases across Ghana and the broader African region. #autoinflammatoryawarenessmonth
August 29, 2026 at 5:51 PM
Karen Durrant is a patient advocate who founded the Autoinflammatory Alliance after her child was diagnosed with a rare autoinflammatory disease. It is her passion to help increase awareness about autoinflammatory diseases. #autoinflammatoryawarenessmonth autoinflammatory.org
August 28, 2026 at 1:50 PM
Sara Ethier began her rare disease advocacy after one of her children was diagnosed with a systemic autoinflammatory disease over a decade ago. She volunteers for Cassie and Friends (C+F) as a patient advocate. Sara and her family live in Calgary, Alberta. #autoinflammatoryawarenessmonth
August 27, 2026 at 2:55 PM
August 26, 2026 at 2:47 PM
Dr Hugo Chapdelaine, MD, FRCPC
Director, Adult Clinical Immunology Clinic, Montreal Clinical Research Institute. Assistant Professor, Department of Medicine, University of Montreal. He is on the Medical Advisory Committee of the Canadian Autoinflammatory Network. #autoinflammatoryawarenessmonth
August 24, 2026 at 1:56 PM
Shayna Snucins-Earl (she/her) has a Master’s of International Affairs. She lives with a rare, genetic autoinflammatory disease. Shayna hopes to advocate for the early recognition and treatment of autoinflammatory diseases. #autoinflammatoryawarenessmonth
August 23, 2026 at 2:16 PM
James King is 23, but has had nine operations in the last year for an autoimmune disorder, hidradenitis suppurativa, which is a long-term, painful skin condition. He advocates publicly for systemic health coverage regarding painful inflammatory conditions. #autoinflammatoryawarenessmonth
August 21, 2026 at 1:18 PM
Luna Sever is a patient advocate and UX/UI designer from British Columbia 🇨🇦 who grew up managing Familial Mediterranean Fever (FMF), an inherited autoinflammatory disorder characterized by recurrent bouts of painful inflammation and fever. #autoinflammatoryawarenessmonth
August 21, 2026 at 12:54 AM
Katelynne Saunders was born with a rare Autoinflammatory Disease called Blau syndrome. In the past few years my condition has connected me with some pretty amazing people through organizations like the Canadian Autoinflammatory Network. #autoinflammatoryawarenessmonth
August 19, 2026 at 1:41 PM
Jon Stewart lives with Granulomatosis with Polyangiitis, a rare type of vasculitis. Vasculitis is characterized by the inflammation of blood vessels. He is a patient advocate and the president of the Vasculitis Foundation Canada. #autoinflammatoryawarenessmonth
August 18, 2026 at 3:28 PM
Reese Marlin is a young Adult Onset Stills Disease patient. They were diagnosed after having developed daily fevers, rashes, joint pain, sore throats and swollen lymph nodes. After trialing multiple medications, their Still’s Disease is in remission with Anakinra. #autoinflammatoryawarenessmonth
August 17, 2026 at 6:36 PM
Ian Stedman is an Associate Professor in the School of Public Policy and Administration at York University. 🇨🇦 Diagnosed with Muckle Wells Syndrome in 2012, Ian is a rare disease patient, parent, and advocate. #autoinflammatoryawarenessmonth
August 16, 2026 at 2:33 PM
Hello, I'm Reine Hodroj, a 23-year-old warrior who has faced the challenges of Behcets disease for the past 7 years. Despite the daily battles with symptoms I've emerged not just as a survivor but as a passionate advocate. #autoinflammatoryawarenessmonth www.autoinflammatory.ca/paac
August 15, 2026 at 2:18 PM
Dr. Lori Tucker is a passionate advocate for kids with rheumatic diseases and their families, provincially (BC) and nationally 🇨🇦 and as a member of the Cassie & Friends Board.
#autoinflammatoryawarenessmonth
August 14, 2026 at 3:05 PM
Zahra Alidina completed her Honours Bachelor of Science in Biology at McMaster University. 🇨🇦 Her inflammatory symptoms started as a young child. She was finally diagnosed with USAID as a teenager. She is passionate about advocating for the autoinflammatory community. #autoinflammatoryawarenessmonth
August 10, 2026 at 2:34 PM
Dr. Erkan Demirkaya: A pediatric rheumatologist at Western University and leader in the International Society of Systemic Auto-Inflammatory Diseases (ISSAID) advancing global diagnosis. #autoinflammatoryawarenessmonth
August 9, 2026 at 3:00 PM
Tessa Muldoon, also known as SpoonieNinja™️, founder of the SpoonieNinja Foundation Inc. She lives with multiple chronic and autoimmune conditions. She made SpoonNinja for teens, and adults learning how to survive in bodies that do not always cooperate. #autoinflammatoryawarenessmonth (August)
August 6, 2026 at 3:35 PM
Dr. Ronald Laxer is an active staff physician in the Division of Rheumatology at Sick Kids, Toronto 🇨🇦. He is internationally recognized in the field of autoinflammatory disease, and has been a part of genetic discoveries of several new autoinflammatory diseases. #autoinflammatoryawarenessmonth
August 4, 2026 at 1:34 PM
Daniel Kinchlea a 12-year-old from Canada who is navigating the challenges of being a rare disease patient. He has an undifferentiated autoinflammatory condition. Four years ago, Daniel wrote a book about a little dragon who lived in a time before dragon fire. #autoinflammatoryawarenessmonth
August 4, 2026 at 1:49 PM