#CognitiveInterviewing
JMIR Formative Res: Using Cognitive Interviewing to Assess the #feasibility and Acceptability of the Network Canvas Platform for Social Network Data Collection Among Adolescent and Young Adult Survivors of… #CognitiveInterviewing #SocialNetworks #AdolescentHealth #YoungAdults #CancerSurvivors
Using Cognitive Interviewing to Assess the #feasibility and Acceptability of the Network Canvas Platform for Social Network Data Collection Among Adolescent and Young Adult Survivors of #Cancer: Pilot Descriptive Study
Background: Little is known about the composition and function of the social networks of adolescent and young adult survivors of #Cancer, despite the importance of social health for adolescent and young adult development. For adolescent and young adult survivors of #Cancer, social networks may be particularly important sources of support and coping. Understanding this group’s social health through understanding their social networks can inform intervention development to improve various facets of health and life productivity. Objective: The objective of this descriptive study was to explore the #feasibility and acceptability of collecting and analyzing social network data using the Network Canvas platform among a subset of adolescent and young adult survivors of childhood #Cancer. Methods: We used cognitive interviewing, a qualitative method to assess survey comprehension and #usability, to assess the #feasibility and acceptability of using the Network Canvas social network data collection platform among 10 adolescent and young adult survivors of #Cancer. Participants (ie, egos) were asked about people (ie, alters) in their networks before #Cancer diagnosis (via recall) and currently (after #Cancer diagnosis). #feasibility was explored in three ways: (1) the proportion of participants who completed the full Network Canvas survey; (2) qualitative analysis of cognitive interviews addressing #usability and comprehension; and (3) demonstration of whether self-administered, role-anonymized responses yielded data complete enough to support the creation of standard egocentric network measures through preliminary descriptive statistics. Acceptability was explored through qualitative analysis of the desire of participants to use Network Canvas again and features they liked when using Network Canvas. Results: In terms of #feasibility, all 10 participants completed the Network Canvas survey. In qualitative analysis, participants described the ease of using Network Canvas (including engagement) while also describing ways to improve its #usability. In terms of acceptability, when asked if they would use Network Canvas again, participants overall answered positively. Conclusions: Network Canvas use among our sample of adolescent and young adult survivors of #Cancer was feasible and acceptable based on this exploratory analysis. The collection and analysis of social network data using Network Canvas was feasible in this pilot study. Additionally, the potentially therapeutic experience reported by some participants after completing the Network Canvas survey deserves further exploration. This work provides a starting point for future social health studies, psychosocial programming, and identification of those at risk of social disconnect.
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October 30, 2026 at 6:07 PM