Read the 2024 CreatineINFO registry report: creatineinfo.org/wp-content/u...

Questions about the Registry? email us! registry@creatineinfo.org

Join Jeff on Friday, March 14th! 🎒

He’s completing his 365-mile #Ruck4Rare journey to raise awareness and CURE CTD! 💙

🔥 The Allen family is MATCHING all donations!

Get involved:
🚶 Walk in solidarity
📸 Tag @legacy.831 @creatineinfo
💸 Donate: ruck4rare.com

CTD dad, Jeff Allen, sat down with The Iced Coffee Hour to give a behind-the-scenes look at his experience on Beast Games! 🏆🔥

Catch the interview: tr.ee/S2pLKc

#CreatineHeroes #CreatineInfo #CreatineResearch #ACDResearch #RareDiseaseAwareness #RareDisease #Ruck4Rare #IceCoffeeHour

Minnesota has begun screening all newborns for GAMT deficiency. 💖Over 64,000 babies are born each year in Minnesota! Now, 39% of babies born annually in the U.S. will be screened for GAMT. 🎉

Source: tr.ee/l35xLx

#CreatineInfo #CreatineResearch #NewbornScreening #ScreeningSavesLives #ScreenGAMT

📢 Community Chat!
🗓 Friday, March 7th | 3 PM EST
Topic: Creatine Deficiency - Diagnosis, Inheritance, & Mosaicism - Your Questions Answered
Speakers: Dr. Sarah Young & Jenny Goldstein

📌 Register: creatineinfo.org/chat-series

#FuelingHope #CreatineInfo #CreatineResearch #ACDResearch #RareDisease

Did you know the zebra is the symbol of rare diseases? Doctors are trained to hear hoofbeats and think horses, not zebras. But sometimes, they need to think rare.
CTD mom, Kelly, is sharing her family’s story:
tr.ee/5mcdVF
#RareDiseaseDay #CreatineInfo #CCDSResearch

First day of the #CCDS conference at the Institute Imagine in Paris! Thank you, Association Extraordinaire, for organizing. This chance to catch up on the research and connect with CCDS families is so valuable. #raredisease #creatineinfo #ctd

It's the 10th annual Walk for Strength day! Thank you to everyone who has donated so far. Help us reach our goal at creatineinfo.org/xavier
#WFS2025 #CreatineInfo #acd #creatinedeficiency #ctd

The work done by the Association for Creatine Deficiencies has been life changing for our family. This article outlines how ACD has organized, advocated and pushed forward research for these #rare diseases. #CreatineInfo #rarediseases #advocacy #patientled #diagnosis

Two things can be true at the same time: It is amazing that Jeff won the big $10 million prize, which he will use to support CTD research. Also, it's awful that we have to resort to Hunger Games style competitions to fund rare disease research. 🧵 #raredisease #mrbeast #ctd #creatineinfo

#CCDSDay #FuelingHope #CreatineDeficiencyResearch #CreatineHeroes #CreatineInfo #CreatineResearch #ACDResearch #RareDiseaseAwareness #RareDisease

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Maaike’s update on Oscar’s journey and this years fundraiser

youtu.be/CaSeb5u-rUM?...