Tomorrow kicks off Rare Disease Month, and all during February you can join #PortugalTheMan, Team PTM, and a bunch of our friends, in support of #FrancesChangedMyLife and #CureDHDDS.

Thank you to everyone in Portland who showed out for the party tonight in support of @ptm-frances.bsky.social and #CureDHDDS, and HUGE thanks to our partners at AVP Wine and StormBreaker Brewing for being so generous and fun to work with.

Every donation, and each wine or beer purchase, gets us that much closer to our goal, to Cure DHDDS. 100% of proceeds go to Frances and #CureDHDDS.

100% of proceeds from sales go to funding research, medication, and treatment for Frances and #CureDHDDS.

A special seminar on the human impact of ultra-rare diseases—and the growing momentum behind Cure DHDDS —takes place next Tuesday, 2 Dec (2:30–3:30pm) at the Botnar Research Centre, Oxford.

🔹 Melanie Dixon (CureDHDDS)
🔹 Prof. Emyr Lloyd-Evans (Cardiff University)
🔗 talks.ox.ac.uk/talks/id/b90...