#CureDuchenne
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ucirvinemedschool.bsky.social
This Friday, Sept. 18, join the UC Irvine Muscle Center and CureDuchenne for a free screening of “The Remarkable Life of Ibelin,” an award-winning documentary about a young man with Duchenne muscular dystrophy who impacted the online gaming community. Register today!

#DuchenneAwarenessMonth
The Remarkable Life of Ibelin with the UCI Muscle Center and CureDuchenne @ Rivian South Coast Theater
Join the UCI Muscle Center and CureDuchenne for a free community screening of The Remarkable Life of Ibelin, the award-winning documentary about a young man with Duchenne muscular dystrophy whose worl...
bit.ly
September 15, 2026 at 8:35 PM
activesgv.bsky.social
Join us at Whittier Narrows this Saturday! Our team will be sharing information about the Safe, Clean Water Program at Heal the Bay’s Coastal Cleanup Day and Hunters Heart Foundation’s A World Beyond Wheels 5K. Stop by our table to say hello and learn more!
Visitors engage with a colorful spinning wheel at an ActiveSGV booth. The booth is equipped with informational pamphlets and other materials on a table covered with a blue tablecloth. A canopy displays the website www.ActiveSGV.org. This image is a promotional poster for the "A World Beyond Wheels 5K" event organized by Hunter's Heart. The event is scheduled for Saturday, September 19, 2026, from 10:00 AM to 2:00 PM at Whittier Narrows Recreation Area in South El Monte, CA. The poster includes logos for Hunter's Heart Foundation and CureDuchenne. There is a QR code for registration, and the website hhmd.org and email info@hhmd.org are provided for more information. This is a poster for Coastal Cleanup Day 2026 presented by Heal the Bay in partnership with Baywatch and Fox. It features a scenic coastline painting by Phyllis Shafer. The event is in Los Angeles, California, on September 19 from 9 AM to 12 PM. Logos at the bottom include Santa Monica Pier, Ocean Conservancy, and Honda, among others.
September 14, 2026 at 6:03 PM
newsen.bsky.social
CureDuchenne Launches National Campaign 'A Cure Can't Wait' Inspired by Birthdays#United_States#Newport_Beach#Duchenne#CureDuchenne#Adrien_Quintero
CureDuchenne Launches National Campaign 'A Cure Can't Wait' Inspired by Birthdays
CureDuchenne's new campaign highlights the urgency of finding a Duchenne muscular dystrophy cure, motivated by personal stories of affected families.
third-news.com
July 8, 2026 at 12:11 PM
l2plabs.bsky.social
CureDuchenne Launches 'A Cure Can't Wait' PSA Campaign, Using the Power of a Birthday to Inspire Public Action for Duchenne Muscular Dystrophy
National campaign is dedicated to Adrien Joshua Quintero, 23, who lived with Duchenne muscular dystrophy and appeared in the PSA before his passing in May 2026 NEWPORT BEACH, Calif., July 8, 2026 /PRNewswire/ -- CureDuchenne, a global nonprofit committed to finding and funding a cure for...
dlvr.it
July 8, 2026 at 12:04 PM
newsen.bsky.social
CureDuchenne Partners with Tevard Biosciences for Duchenne Muscular Dystrophy Treatment#United_States#Newport_Beach#CureDuchenne#Duchenne_MD#Tevard_Biosciences
CureDuchenne Partners with Tevard Biosciences for Duchenne Muscular Dystrophy Treatment
CureDuchenne announces a partnership with Tevard Biosciences to enhance suppressor tRNA therapy aimed at treating Duchenne muscular dystrophy through innovative medical advancements.
third-news.com
May 20, 2026 at 5:29 PM
thigrlsrk.bsky.social
www.youtube.com/watch?v=PNDV...
Hudson takes on the stairs #science #duchenne #CureDuchenne #dmd
YouTube video by CureDuchenneMD
www.youtube.com
February 16, 2026 at 11:00 PM
theakarifoundation.bsky.social
The Akari Foundation, CureDuchenne y Sarepta Therapeutics les invitamos al Webinar: “Terapia Génica ELEVIDYS: Actualización Comunitaria más reciente con Sarepta Therapeutics”

📅 MIÉRCOLES, 4 de FEBRERO
⏰ 4:00 pm
💻 Vía Zoom

🔗Regístrate en el link para poder acceder: forms.gle/8Cp6W8jbdP5A...
February 3, 2026 at 6:12 PM
Grateful for the privilege to join our @umasschan.bsky.social team at today’s @cureduchenne.bsky.social meeting. Inspiring conversations, motivated families, and a community deeply committed to improving the lives of everyone affected by Duchenne. Honored to be part of this work.
CureDuchenne 2025
November 15, 2025 at 4:24 PM
theakarifoundation.bsky.social
Gracias a CureDuchenne por la invitación, por hacer posible este encuentro y por su dedicación constante con la comunidad.💙

#TheAkariFoundation #sanantoniotexas #enfermedadesraras #DistrofiaMuscularDeDuchenne #duchenneenepañol #CureDuchenne #duchenneméxico #UnidosPorDuchenne #AkariNoviembre
November 9, 2025 at 1:12 PM
theakarifoundation.bsky.social
✨The Akari Foundation tuvo el honor de participar en la Conferencia CureDuchenne FUERZA: Unidos para cuidar, conectar y avanzar, realizada en CDMX.

youtu.be/U6k47iGrY5w?...
CureDuchenne FUERZA 2025 | TheAkariFoundation #duchenneenespañol #duchennelife #duchenne
YouTube video by The Akari Foundation
youtu.be
November 9, 2025 at 1:12 PM
theakarifoundation.bsky.social
Nos enorgullece participar en espacios que fortalecen la colaboración y el intercambio de conocimientos para seguir avanzando juntos por quienes viven con DMD y sus familias.💙

Agradecemos a CureDuchenne por la invitación a participar en este valioso evento y por su compromiso con la comunidad.💫
October 28, 2025 at 4:58 PM
theakarifoundation.bsky.social
✨The Akari Foundation presente en la Conferencia CureDuchenne FUERZA: Unidos para cuidar, conectar y avanzar en CDMX.

Este encuentro reunió a familias, médico y organizaciones dedicadas a la comunidad Duchenne en un día lleno de aprendizaje, apoyo y conexión.🤝

#TheAkariFoundation #CureDuchenne
October 28, 2025 at 4:58 PM
jflem2.bsky.social
l.smartnews.com/p-6bOzB25G/6...
Champions in Dallas Returns: Food, Wine and Hope for a Cure (KDAF - Dallas, TX)
DALLAS (KDAF) — CureDuchenne, a leading nonprofit dedicated to finding a cure for Duchenne muscular dystrophy, announced Champions in Dallas will return for ...
l.smartnews.com
September 12, 2025 at 3:24 PM
theakarifoundation.bsky.social
Avidity Biosciences comparte nuevos datos del ensayo clínico de Fase 1/2 EXPLORE44® completado y del ensayo EXPLORE44-OLE™ en curso.

Para conocer más sobre estos hallazgos, Avidity tendrá un webinar en colaboración con CureDuchenne el 18 de septiembre.

🔗Regístrate en el link: lnkd.in/eCh4ZzrJ
September 10, 2025 at 7:55 PM
theakarifoundation.bsky.social
Será un espacio COMPLETAMENTE EN ESPAÑOL para aprender, conectar y avanzar juntos en la atención de la distrofia muscular de Duchenne.

Y miembros del equipo Akari estaremos presentes apoyando e informando sobre sus recursos para la comunidad hispana.💙

#TheAkariFoundation #CureDuchenne
September 9, 2025 at 8:42 PM
theakarifoundation.bsky.social
📣¡ATENCIÓN COMUNIDAD DUCHENNE EN MÉXICO!

¡Llega a México la Conferencia CureDuchenne FUERZA: UNIDOS PARA CUIDAR, CONECTAR Y AVANZAR !

📆SÁBADO, 25 de OCTUBRE en CIUDAD DE MÉXICO.

⏰REGISTRO: 8:00am-9:00am
⏰CONFERENCIA: 9:00am-4:30pm

🔗 Regístrate aquí (presencial o virtual): cvent.me/MMKYYo
September 9, 2025 at 8:42 PM
saimarie.bsky.social
Did you know that I carry Duchenne Muscular Dystrophy and have two sons with this terminal genetic illness?

9/7 is World Duchenne Awareness Day!

#CureDuchenne #WorldDuchenneAwarenessDay #duchenneawareness #duchennemusculardystrophy #duchenne
September 8, 2025 at 5:51 AM
saimarie.bsky.social
Did you know that I carry Duchenne Muscular Dystrophy and have two sons with this terminal genetic illness?
Today is World Duchenne Awareness Day!
Do you know that this is one of the leading causes of pediatric death?
#CureDuchenne #WorldDuchenneAwarenessDay #duchennemusculardystrophy
September 7, 2025 at 9:04 PM
vikingnerd.bsky.social
the backpack was part of fundraising for this cause. ⬇️
Don’t Delay—Support Cure Duchenne With the Reven Pack - WoW
Add the Reven Pack to your collection and support CureDuchenne to accelerate research toward a cure for Duchenne muscular dystrophy and improve care for individuals worldwide living with the disease. ...
worldofwarcraft.blizzard.com
August 12, 2025 at 1:05 AM
drtimos.bsky.social
Thoughts on this? >> CureDuchenne invests in new redosable DMD gene therapy -
Muscular Dystrophy News >> Comment below! #strategy #competitiveintelligence #marketing #pharma #pharmaceutical #healthcare #biotech #competitivemarketing
CureDuchenne invests in new redosable DMD gene therapy - Muscular Dystrophy News
CureDuchenne invests in new redosable DMD gene therapy  Muscular Dystrophy News
dlvr.it
May 29, 2025 at 4:30 PM
theakarifoundation.bsky.social
The Akari Foundation tuvo el honor de participar en The CureDuchenne FUTURES National Conference 2025.✨

Un evento anual que brinda educación, conexión y esperanza a la comunidad Duchenne.🤝

Agradecemos profundamente la oportunidad.💙🙌🏼

#TheAkariFoundation #CureDuchenne #DistrofiaMuscularDeDuchenne
May 27, 2025 at 8:01 PM
drtimos.bsky.social
Thoughts on this? >> CureDuchenne Ventures Invests in Entos Pharmaceuticals for
Development of a Redosable, Full-Length Dystrophin Gene Therapy -
PR Newswire >> Comment below! #strategy #competitiveintelligence #marketing #biotech #pharma #pharmaceutical #competitivemarketing #healthcare
CureDuchenne Ventures Invests in Entos Pharmaceuticals for Development of a Redosable, Full-Length Dystrophin Gene Therapy - PR Newswire
CureDuchenne Ventures Invests in Entos Pharmaceuticals for Development of a Redosable, Full-Length Dystrophin Gene Therapy  PR Newswire
dlvr.it
May 22, 2025 at 10:00 PM
drtimos.bsky.social
Thoughts on this? >> CureDuchenne Ventures Invests in Entos Pharmaceuticals for
Development of a Redosable, Full-Length Dystrophin Gene Therapy -
BioSpace >> Comment below! #strategy #competitiveintelligence #marketing #competitivemarketing #pharmaceutical #biotech #pharma #healthcare
CureDuchenne Ventures Invests in Entos Pharmaceuticals for Development of a Redosable, Full-Length Dystrophin Gene Therapy - BioSpace
CureDuchenne Ventures Invests in Entos Pharmaceuticals for Development of a Redosable, Full-Length Dystrophin Gene Therapy  BioSpace
dlvr.it
May 22, 2025 at 1:30 PM
newsen.bsky.social
CureDuchenne Ventures' $1M Investment in Entos Pharmaceuticals for Innovative Gene Therapy#USA#San_Antonio#CureDuchenne#Entos_Pharmaceuticals#Fusogenix_PLV
CureDuchenne Ventures' $1M Investment in Entos Pharmaceuticals for Innovative Gene Therapy
CureDuchenne Ventures has made a significant $1M investment in Entos Pharmaceuticals. This funding aims to advance the development of gene therapies for Duchenne muscular dystrophy.
third-news.com
May 22, 2025 at 12:33 PM
drtimos.bsky.social
Thoughts on this? >> CureDuchenne Ventures Invests in Entos Pharmaceuticals for
Development of a Redosable, Full-Length Dystrophin Gene Therapy -
PR Newswire Canada >> Comment below! #strategy #competitiveintelligence #marketing #biotech #pharma #pharmaceutical #healthcare #competitivemarketing
CureDuchenne Ventures Invests in Entos Pharmaceuticals for Development of a Redosable, Full-Length Dystrophin Gene Therapy - PR Newswire Canada
CureDuchenne Ventures Invests in Entos Pharmaceuticals for Development of a Redosable, Full-Length Dystrophin Gene Therapy  PR Newswire Canada
dlvr.it
May 22, 2025 at 12:31 PM