#CureEB
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chrisward.bsky.social
Thank you @sarahfenske.bsky.social for spotlighting EB, Princess Rowan and Eddie Vedder!
#CureEB

www.stlmag.com/family/epide...
Former St. Louis musician’s family shines a spotlight on E.B. | St. Louis Magazine
This month, the Holler family will be headed to the Tribeca Film Festival—which would normally be pretty heady stuff for a family with young kids. But for the
www.stlmag.com
June 3, 2025 at 4:15 AM
luff.bsky.social
We are raising money for @CureEBorg & starting with an auction of this beautiful drawing.
EB is a rare but extremely painful condition.
Please bid & this could be yours . All money goes directly to CureEB

ebay.us/Vb9plD #eBay via @eBay_UK
Original Drawing Signed By Jason Isaacs | eBay
This is a beautiful original drawing of Jason Isaacs that he has signed to raise money for charity. It was signed in front of me at an event in London 2022 We are a group who raise money for chariti...
ebay.us
December 1, 2024 at 8:58 PM
ki-empress.bsky.social
Now, why have I been saying “?Mystery?” this past week? Well today I will reveal it live. #bluskyartist #Art #bluskyart #nimotv #globalart #ebawareness #illustration #digitalart #magicalgirl #anime #otaku #butterflychildren #debra #cureEB #family #clipstudiopaint

www.tiktok.com/live/event/7...
Butterfly Series Mystery Reveal - TikTok LIVE Events
0 viewers have registered for this event | Now, why have I been saying “?Mystery?” this past week? Well today I will reveal it live. My reason for asking for favorite colors and the work in progress!
www.tiktok.com
June 3, 2025 at 6:24 PM
travel-expert.bsky.social
Every morning, before the world wakes up, Sharmila Collins bursts her daughter's blisters with a needle. One by one. Then she spends her evenings building the science that might one day make that unnecessary.

#CureEB #Butter... https://f.mtr.cool/hesrbom8e0
August 24, 2026 at 11:48 AM
travel-expert.bsky.social
The most hotly contested auction lot of the night wasn't a Maserati or lunch at The Ritz. It was a home-cooked dinner with the Collins family. A husband and wife bid against each other. Says everything.

#CureEB #CharityAucti... https://f.mtr.cool/ibmhftwyfa
August 22, 2026 at 11:47 AM
travel-expert.bsky.social
What does a converted neoclassical church, a man in a white suit, and a young woman who sings like an angel have in common? An evening that reminds a room full of important people what actually matters.

#CureEB #SilverButterflyD... https://f.mtr.cool/riqombhjdf
August 21, 2026 at 11:48 AM
travel-expert.bsky.social
What kind of auction lot has a husband and wife bidding against each other? The dinner-for-four that sparked the fiercest battle at Cure EB's Silver Butterfly wasn't cooked by a Michelin chef.

#CureEB #LuxuryCharity https://f.mtr.cool/bdbfqrivum
June 9, 2026 at 11:31 AM
uk-charity.bsky.social
Join Erin Moore in supporting Cure EB, a charity founded by parents to fight Epidermolysis Bullosa. How can we make a difference together? #CureEB

https://www.justgiving.com/fundraising/Erinmoorebooks
Blenheim Triathlon in Support of Kids with EB
Help Erin Moore raise money to support Cure EB
www.justgiving.com
February 12, 2025 at 9:28 AM
elaine123abc.bsky.social
watched — and cried my way through — Matter of Time this morning. sooooo inspiring!! …and the acoustic moments of eddie singing on the benaroya hall stage? glorious.

highly recommend!!!

www.netflix.com/us/title/821...

#cureEB
Watch Matter of Time | Netflix Official Site
Eddie Vedder's soul-stirring Seattle benefit concert fuels this documentary about the race to cure the rare genetic disorder epidermolysis bullosa (EB).
www.netflix.com
February 15, 2026 at 9:20 PM