Consider donating the final score - or any number you’d like - to the ChadTough Defeat DIPG Foundation:
Make a Donation to Defeat DIPG - ChadTough Defeat DIPG
Join the fight against DIPG, a deadly brain cancer affecting children. Donate to our organization and help us find a cure. Learn more about our mission now.
chadtough.org
November 29, 2025 at 5:06 PM
Consider donating the final score - or any number you’d like - to the ChadTough Defeat DIPG Foundation:
LLDF Finley
A new release hybridized by Levi’s Legacy DIPG Foundation. This dahlia was named after Finley Henderson, a young girl who battled DIPG. Her dahlia is a beautiful testament to her legacy, I’m happy to see its first blooms this week 🤍 thinking of Finley
#dahlias #bloomscrolling #flowerfeed
A new release hybridized by Levi’s Legacy DIPG Foundation. This dahlia was named after Finley Henderson, a young girl who battled DIPG. Her dahlia is a beautiful testament to her legacy, I’m happy to see its first blooms this week 🤍 thinking of Finley
#dahlias #bloomscrolling #flowerfeed
August 12, 2025 at 10:20 PM
LLDF Finley
A new release hybridized by Levi’s Legacy DIPG Foundation. This dahlia was named after Finley Henderson, a young girl who battled DIPG. Her dahlia is a beautiful testament to her legacy, I’m happy to see its first blooms this week 🤍 thinking of Finley
#dahlias #bloomscrolling #flowerfeed
A new release hybridized by Levi’s Legacy DIPG Foundation. This dahlia was named after Finley Henderson, a young girl who battled DIPG. Her dahlia is a beautiful testament to her legacy, I’m happy to see its first blooms this week 🤍 thinking of Finley
#dahlias #bloomscrolling #flowerfeed
It's National Caregivers Day and I know all too well what caregiving entails.
I was simultaneously the caregiver for my husband, Brian (#ALS) and my 9yo son, Eli (#DIPG).
If you know a caregiver: call them and remind them how important they are. It makes all the difference.
I was simultaneously the caregiver for my husband, Brian (#ALS) and my 9yo son, Eli (#DIPG).
If you know a caregiver: call them and remind them how important they are. It makes all the difference.
February 22, 2025 at 12:21 AM
It's National Caregivers Day and I know all too well what caregiving entails.
I was simultaneously the caregiver for my husband, Brian (#ALS) and my 9yo son, Eli (#DIPG).
If you know a caregiver: call them and remind them how important they are. It makes all the difference.
I was simultaneously the caregiver for my husband, Brian (#ALS) and my 9yo son, Eli (#DIPG).
If you know a caregiver: call them and remind them how important they are. It makes all the difference.
Source: buff.ly/wrQoHFR
NIH funding cuts delayed a promising childhood brain cancer trial. Patients lost time they didn't have
A delayed clinical trial underscores the stakes of federal research funding cuts for children with DIPG, a deadly brain tumor with few treatment options.
buff.ly
September 29, 2026 at 6:04 PM
Source: buff.ly/wrQoHFR
Delighted to share the published version of this work from brilliant #CancerNeuroscience post-doc Tara Barron detailing GABAergic neuron-to-glioma synapses in #DIPG/#DMG. 🧵
Open access link:
www.nature.com/articles/s41...
Open access link:
www.nature.com/articles/s41...
February 19, 2025 at 9:41 PM
Delighted to share the published version of this work from brilliant #CancerNeuroscience post-doc Tara Barron detailing GABAergic neuron-to-glioma synapses in #DIPG/#DMG. 🧵
Open access link:
www.nature.com/articles/s41...
Open access link:
www.nature.com/articles/s41...
Trump's slashed NIH funds gutted the Pediatric Brain Tumor Consortium, halting trials for kids battling fatal DIPG, trapping sharp minds in failing bodies despite his vow to crush cancer. Families scramble amid betrayal. #ChildhoodCancer
January 15, 2026 at 11:20 AM
Trump's slashed NIH funds gutted the Pediatric Brain Tumor Consortium, halting trials for kids battling fatal DIPG, trapping sharp minds in failing bodies despite his vow to crush cancer. Families scramble amid betrayal. #ChildhoodCancer
"NIH funding cuts delayed a promising childhood brain cancer trial. Patients lost time they didn’t have."
www.cnbc.com/2026/09/25/n...
www.cnbc.com/2026/09/25/n...
NIH funding cuts delayed a promising childhood brain cancer trial. Patients lost time they didn't have
A delayed clinical trial underscores the stakes of federal research funding cuts for children with DIPG, a deadly brain tumor with few treatment options.
www.cnbc.com
September 27, 2026 at 2:56 AM
"NIH funding cuts delayed a promising childhood brain cancer trial. Patients lost time they didn’t have."
www.cnbc.com/2026/09/25/n...
www.cnbc.com/2026/09/25/n...
I attended the world premiere of Star Wars: The Last Jedi as a guest of Adam Driver, who helped make a happy birthday video for my son Elijah’s ninth birthday two days before he died from DIPG. Six months later his agent called and said Driver wanted to invite me and my daughter to attend.
December 13, 2025 at 3:10 PM
I attended the world premiere of Star Wars: The Last Jedi as a guest of Adam Driver, who helped make a happy birthday video for my son Elijah’s ninth birthday two days before he died from DIPG. Six months later his agent called and said Driver wanted to invite me and my daughter to attend.
At 9 yrs old, my granddaughter was diagnosed with DIPG. It is terminal, usually within 9 months. Because of Dr. Vitanza at Seattle Children’s and clinical trials, we had her mostly symptom free for about 32 months. Make these cuts make sense! I am outraged!
February 24, 2025 at 6:55 PM
At 9 yrs old, my granddaughter was diagnosed with DIPG. It is terminal, usually within 9 months. Because of Dr. Vitanza at Seattle Children’s and clinical trials, we had her mostly symptom free for about 32 months. Make these cuts make sense! I am outraged!
ChadTough Defeat DIPG is a private organization started by families who lost their children to DIPG to fund research, spread awareness, and support DIPG families. With National Cancer Institute funding cut off, it is now the main source of funding for pediatric brain, cancer research and trials.
August 30, 2025 at 10:29 AM
ChadTough Defeat DIPG is a private organization started by families who lost their children to DIPG to fund research, spread awareness, and support DIPG families. With National Cancer Institute funding cut off, it is now the main source of funding for pediatric brain, cancer research and trials.
Glad I didn’t enable this. I would feel
Bad and have trouble sleeping.
Bad and have trouble sleeping.
NIH funding cuts delayed a promising childhood brain cancer trial. Patients lost time they didn't have
A delayed clinical trial underscores the stakes of federal research funding cuts for children with DIPG, a deadly brain tumor with few treatment options.
www.cnbc.com
September 26, 2026 at 3:57 PM
Glad I didn’t enable this. I would feel
Bad and have trouble sleeping.
Bad and have trouble sleeping.
17e maj träffades mina föräldrar, blev kära & gifte sig inom 3månader.
17e maj är också en dag att uppmärksamma DIPG - obotlig tumör som främst drabbar barn och som min Linnea dog av.
Den här 17e maj är jag på sjukhuset med min mamma som har sepsis och kämpar.
Alla dessa dagar…
Använd dem.
17e maj är också en dag att uppmärksamma DIPG - obotlig tumör som främst drabbar barn och som min Linnea dog av.
Den här 17e maj är jag på sjukhuset med min mamma som har sepsis och kämpar.
Alla dessa dagar…
Använd dem.
May 17, 2026 at 1:35 PM
17e maj träffades mina föräldrar, blev kära & gifte sig inom 3månader.
17e maj är också en dag att uppmärksamma DIPG - obotlig tumör som främst drabbar barn och som min Linnea dog av.
Den här 17e maj är jag på sjukhuset med min mamma som har sepsis och kämpar.
Alla dessa dagar…
Använd dem.
17e maj är också en dag att uppmärksamma DIPG - obotlig tumör som främst drabbar barn och som min Linnea dog av.
Den här 17e maj är jag på sjukhuset med min mamma som har sepsis och kämpar.
Alla dessa dagar…
Använd dem.
Honored to have our recently published first-in-human phase 1 clinical trial of repeatedly dosed intracerebroventrocular B7-H3 #CARTcells for children with #DIPG highlighted in @theaacr.bsky.social and #CancerDiscovery Research Watch ❤️🔬
BrainChild-03 Trial Supports Safety of B7-H3 CAR T-cell Therapy for DIPG
Main Finding: A phase I trial supported the safety and feasibility of repeated intracranial infusions of B7-H3 CAR T cells for DIPG.Concept: B7-H3 is an immunoregulatory protein expressed on the surfa...
aacrjournals.org
January 28, 2025 at 6:48 PM
Honored to have our recently published first-in-human phase 1 clinical trial of repeatedly dosed intracerebroventrocular B7-H3 #CARTcells for children with #DIPG highlighted in @theaacr.bsky.social and #CancerDiscovery Research Watch ❤️🔬
Federal funding changes disrupted pediatric brain cancer trials, delaying research into new treatments for deadly diseases like DIPG.
One experimental mRNA treatment for DIPG was pushed back by at least a year after a key clinical trial network lost funding.
Read the full story: cnb.cx/4ygLWWI
One experimental mRNA treatment for DIPG was pushed back by at least a year after a key clinical trial network lost funding.
Read the full story: cnb.cx/4ygLWWI
September 25, 2026 at 10:00 PM
Federal funding changes disrupted pediatric brain cancer trials, delaying research into new treatments for deadly diseases like DIPG.
One experimental mRNA treatment for DIPG was pushed back by at least a year after a key clinical trial network lost funding.
Read the full story: cnb.cx/4ygLWWI
One experimental mRNA treatment for DIPG was pushed back by at least a year after a key clinical trial network lost funding.
Read the full story: cnb.cx/4ygLWWI
Not enough people take seriously "funding delays"/"bureaucratic nonsense can kill people" but here it is right here.
If I was mad when a patient died because it took a few extra months for lawyers to try to look for a legal basis for an international data transfer, I'm incandescent, now.
If I was mad when a patient died because it took a few extra months for lawyers to try to look for a legal basis for an international data transfer, I'm incandescent, now.
NIH funding cuts delayed a promising childhood brain cancer trial. Patients lost time they didn't have
A delayed clinical trial underscores the stakes of federal research funding cuts for children with DIPG, a deadly brain tumor with few treatment options.
www.cnbc.com
September 29, 2026 at 5:13 PM
Not enough people take seriously "funding delays"/"bureaucratic nonsense can kill people" but here it is right here.
If I was mad when a patient died because it took a few extra months for lawyers to try to look for a legal basis for an international data transfer, I'm incandescent, now.
If I was mad when a patient died because it took a few extra months for lawyers to try to look for a legal basis for an international data transfer, I'm incandescent, now.
Here’s the article:
www.cnbc.com/2026/09/25/n...
www.cnbc.com/2026/09/25/n...
NIH funding cuts delayed a promising childhood brain cancer trial. Patients lost time they didn't have
A delayed clinical trial underscores the stakes of federal research funding cuts for children with DIPG, a deadly brain tumor with few treatment options.
www.cnbc.com
September 29, 2026 at 5:07 PM
Here’s the article:
www.cnbc.com/2026/09/25/n...
www.cnbc.com/2026/09/25/n...
Thrilled to have secured Breakthrough Therapy Designation. This will accelerate our ability to bring #CARTcells to more children with #DIPG and brain & spinal cord tumors.
Breakthrough Therapy designation gives us the possibility to accelerate the development path for BCB-276 as a CAR T-cell therapy to potentially transform treatment of #DIPG, an incurable brain tumor. Our #CARTcells approach opens a new paradigm for other CNS brain tumors.
www.brainchildbio.com/press
www.brainchildbio.com/press
April 22, 2025 at 2:27 PM
Thrilled to have secured Breakthrough Therapy Designation. This will accelerate our ability to bring #CARTcells to more children with #DIPG and brain & spinal cord tumors.
El DIPG es un cáncer infantil del sistema nervioso central q no tiene cura. La supervivencia en niños es de 11 meses desde el diagnóstico. La Federación de Agrupaciones Astronómicas y @criscancer proponen una actividad para recaudar e investigar
elmonstruodemicabeza.org/wp-content/upl…
elmonstruodemicabeza.org/wp-content/upl…
https://elmonstruodemicabeza.org/wp-content/upl…
July 9, 2026 at 7:37 PM
El DIPG es un cáncer infantil del sistema nervioso central q no tiene cura. La supervivencia en niños es de 11 meses desde el diagnóstico. La Federación de Agrupaciones Astronómicas y @criscancer proponen una actividad para recaudar e investigar
elmonstruodemicabeza.org/wp-content/upl…
elmonstruodemicabeza.org/wp-content/upl…
Incredible article. Give it a read to learn about what we do (and why) here at Seattle Children's and in Nick's lab. So very proud to work with you, @nickvitanza.bsky.social #DIPG #CART #DrTanza
www.linkedin.com/pulse/car-ce...
www.linkedin.com/pulse/car-ce...
CAR T Cell Therapy Offers Hope Against DIPG
Encouraging success from Seattle Children’s cancer doctor and researcher Nick Vitanza dosing CAR T cell therapy directly to brain for patients with DIPG.
www.linkedin.com
January 9, 2025 at 11:07 PM
Incredible article. Give it a read to learn about what we do (and why) here at Seattle Children's and in Nick's lab. So very proud to work with you, @nickvitanza.bsky.social #DIPG #CART #DrTanza
www.linkedin.com/pulse/car-ce...
www.linkedin.com/pulse/car-ce...
Seattle Symphony’s A TRIP TO OUTER SPACE vs. Seattle Children’s B7-H3 CAR T CELLS AGAINST DIPG
March 22, 2025 at 6:02 PM
Seattle Symphony’s A TRIP TO OUTER SPACE vs. Seattle Children’s B7-H3 CAR T CELLS AGAINST DIPG
My research program is ded. to engin'ring new treatments for pediatric brain cancer. 15 yrs ago, I met a family who just lost their son to DIPG. Was never the same. Moved to TX to develop clinical trials (we did); left, heartbroken, over state politics. Now we are under attack at the federal level
March 6, 2025 at 12:40 PM
My research program is ded. to engin'ring new treatments for pediatric brain cancer. 15 yrs ago, I met a family who just lost their son to DIPG. Was never the same. Moved to TX to develop clinical trials (we did); left, heartbroken, over state politics. Now we are under attack at the federal level
📝 Paper alert: Targeting #DIPG tumor #metabolism, #mitochondria and #hypoxia to #radiosensitize tumors 🧠 ☢️ url.au.m.mimecastprotect.com/s/sijcCmO5gl...
@hannsshen.bsky.social
@hannsshen.bsky.social
November 28, 2024 at 4:33 AM
📝 Paper alert: Targeting #DIPG tumor #metabolism, #mitochondria and #hypoxia to #radiosensitize tumors 🧠 ☢️ url.au.m.mimecastprotect.com/s/sijcCmO5gl...
@hannsshen.bsky.social
@hannsshen.bsky.social
Lucas Jemeljanova was diagnosed with DIPG at age six and joined the BIOMEDE trial. After radiation therapy and everolimus, he survived more than six years without visible signs of the tumor on imaging.
August 26, 2026 at 9:00 AM
Lucas Jemeljanova was diagnosed with DIPG at age six and joined the BIOMEDE trial. After radiation therapy and everolimus, he survived more than six years without visible signs of the tumor on imaging.