#DynamicDisability
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thezebraalliance.bsky.social
What is your favorite adaptive/mobility aid(s)?
Some of mine include braces, heating pads, and hiking poles.

#adaptiveaids #chronicillness #chronicpain #disability #dynamicdisability #invisibleillness #EDS #ehlersdanlossyndrome #mobilityaid
ehlers-danlos.com The Ehlers-Danlos Society @ehlers-danlos.com · 8d
Do you have a favorite adaptive device or mobility aid?⁠
⁠
Mars Lombardi talks about dynamic disability & various types of adaptive aids and devices that can be helpful when managing pain and fatigue: youtu.be/03VfEULK65w?...

#PainAwarenessMonth #EhlersDanlosSyndromes #HypermobilitySpectrumDisorder
2023 Treatment: Adaptive Aids & Devices to Help with Symptoms - Mars Lombardi
YouTube video by The Ehlers-Danlos Society
youtu.be
September 23, 2026 at 12:05 AM
pvnkster.bsky.social
The betterment of our quality of life is hidden behind a paywall.

Watch the full podcast episode over on my YouTube! 🌻

#InvisibleIllness #ChronicIllness #InvisibleDisability #Spoonie #DynamicDisability
November 21, 2024 at 9:47 PM
thezebraalliance.bsky.social
It's funny because it's true 🤪

#ChronicIllness #EDS #ehlersdanlossyndrome #chronicpain #invisibleillness #raredisease #disability #dynamicdisability #mentalhealth #healthmeme
June 19, 2025 at 1:36 AM
byte-mii.bsky.social
Rainbow spotted before my run and managed to avoid the rain when #running #runningwithms #ms #chroniclife #chronicillness #dynamicdisability
September 15, 2025 at 2:54 PM
pottedlove.bsky.social
#dynamicdisability #disabled
January 27, 2025 at 8:52 AM
thezebraalliance.bsky.social
The Zebra Alliance is here you 🩵🫂🩵

linktr.ee/thezebraalliance #chronicillness #chronicpain #disability #dynamicdisability #invisibleillness #raredisease #EDS #ehlersdanlossyndrome #mentalhealth
Drawing by @sketchy.whiskers Cat sitting on a couch, gesturing towards to cushion beside it. "You dont have to tell me what's wrong. Come sit with me anyway."
September 23, 2026 at 11:34 PM
shellelittle.bsky.social
Just heard the #spoonie term "declaring spoonruptcy" for when you've overdrawn your spoons and just have to call it quits to rest. I will absolutely be using that term moving forward. #Chronicallyill #DynamicDisability
December 17, 2024 at 9:13 PM
thezebraalliance.bsky.social
😘🖕

If you know, you know 🩵
linktr.ee/thezebraalliance
#chronicillness #raredisease #disability #dynamicdisability #mentalhealth #invisibleillness #EDS #ehlersdanlossyndrome
X Ray of a hand 🖕 "When someone suggests that your past wrong doings caused your chronic illness."
November 14, 2025 at 10:51 PM
pvnkster.bsky.social
If you live with an #inivisibleillness #chronicillness or #disability / #dynamicdisability - please reply so we can follow eachother 🤎

I am taking moving over to this platform as an opportunity to connect more with this community!
October 22, 2024 at 5:47 PM
moniquedhooghe.bsky.social
#Medsky #PostExertionalMalaise
#DynamicDisability
December 20, 2024 at 7:37 PM
deerberrynz.bsky.social
So much this. #DynamicDisability #ChronicIllness
rblemberg.bsky.social R.B. Lemberg. Yes, still in Kansas @rblemberg.bsky.social · Dec 10
It's hard and in many cases impossible to atomic habit your way out of debilitating chronic pain.
December 10, 2024 at 8:52 PM
serenebutterfly.bsky.social
Thank you so much @achronicvoice.com for taking the time to share my blog post on the reality of living with a #DynamicDisability. It’s much appreciated! 🫶
September 19, 2026 at 3:21 PM
thezebraalliance.bsky.social
If you know you know 🙃🤪😉

#chronicillness #invisibleillness #EDS #raredisease #dynamicdisability #mentalhealth #healthmeme #meme
June 14, 2025 at 4:58 PM
lesbeehan.bsky.social
HERE WE GO!!!! #endometriosis #dynamicdisability
January 31, 2025 at 8:40 PM
thezebraalliance.bsky.social
Yes, please 🤗😉

#healthmemes
linktr.ee/thezebraalliance
#meme #memes #jokes #chronicillness #EDS #rarediseases #invisibleillness #disability #dynamicdisability #ehlersdanlossyndrome
A weighted blanket is not enough I need to be compressed into a .zip file
January 5, 2026 at 12:40 AM
thezebraalliance.bsky.social
Feel this deep in our souls. How about you? 🫠🤪😉

#healthmemes #meme #memes #jokes #chronicillness #EDS #rarediseases #invisibleillness #disability #dynamicdisability
January 4, 2026 at 3:19 PM
thezebraalliance.bsky.social
😳😖🤪😆😉

#EDS #chronicillness #raredisease #chronicpain #invisibleillness #disability #dynamicdisability #meme
February 25, 2025 at 1:47 AM
thezebraalliance.bsky.social
I accept your challenge 😉😄🦓🩵

#EDS #ehlersdanlossyndrome #HSD #raredisease #chronicillness #chronicpain #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme
June 17, 2025 at 5:53 PM
byte-mii.bsky.social
Cautious 4km this morning. It’s hot and I’ve got many many things to do so can’t afford to break myself running but still wanted to try. #running #runningwithms #chronicillness #dynamicdisability #multiplesclerosis
June 29, 2025 at 2:56 PM
thezebraalliance.bsky.social
How do you handle unsolicited advice?
🩵🦓🩵
#chronicillness #EDS #raredisease #invisibleillness #disability #dynamicdisability #mentalhealth #ehlersdanlossyndrome #HSD
cnbc.com CNBC @cnbc.com · Feb 6
There’s a psychological reason why advice that we didn’t ask for often stings.

So, how do you handle unsolicited advice? The key is to calmly and respectfully acknowledge it, but never surrender your agency, according to one expert. Here are five simple, effective ways to respond.
Psychology expert: Use these 5 phrases to shut down unsolicited advice every time
"Advice will always come, whether you want it to or not," writes Dr. Shadé Zahrai. "Your power lies in how you receive it."
cnb.cx
February 6, 2026 at 7:11 PM
thezebraalliance.bsky.social
It can be hard to do 💜🫂💜 but try your best 🦓🩵

#mentalhealth #chronicillness #ehlersdanlossyndrome #EDS #raredisease #invisibleillness #disability #dynamicdisability
"I must stop holding myself to the same expectations of my previous healthy body"
April 13, 2025 at 9:41 PM
thezebraalliance.bsky.social
Such wonderful news! 🤗 (No pun intended lol)

#chronicillness #raredisease #rarediseases #chronicpain #invisibleillness #disability #dynamicdisability #EDS #ehlersdanlossyndrome
nordrare.bsky.social National Organization for Rare Disorders (NORD) @nordrare.bsky.social · Jan 9
NORD applauds @cnbc.com for launching CNBC Cures, using its influential business platform to confront one of the most urgent public health challenges of our time: 95% of 10,000+ known #RareDiseases still lack an FDA-approved treatment. The time for investment is now.
www.cnbc.com/2026/01/08/c...
CNBC launches CNBC Cures to help 30 million Americans with rare diseases
CNBC Cures aims to raise awareness of rare diseases. Led by "Squawk Box" anchor Becky Quick, CNBC Cures was inspired by her family's own rare disease journey.
www.cnbc.com
January 16, 2026 at 2:01 PM
thezebraalliance.bsky.social
I don't do this... 😝 *she wishes* 😆

#chronicillness #raredisease #chronicpain #invisibleillness #disability #dynamicdisability #mentalhealth #healthmeme #EDS
chronicillness.bsky.social Chronic Illness Humor @chronicillness.bsky.social · Jun 21
Source: kat.blammo on threads
Source: kat.blammo on threads I forgot the words "brain fog" today when trying to explain I had brain fog
June 21, 2025 at 6:19 PM
misseulamay.bsky.social
Today, I walked quite a bit at the park AND walked uphill on uneven ground!
That's a big deal for this lil cattywampus lady!

#MS #ambulatory #dynamicdisability
#disabilityisnotabadword
#disabled #keepsmyelin #cattywampus #smallvictories
February 23, 2025 at 9:05 PM
thezebraalliance.bsky.social
Let's add syncope, vertigo, and migraines, to name a few. 😉

#Dysautomonia
#POTS #EDS #chronicillness #invisibleillness #raredisease #disability #dynamicdisability #chronicpain #health
February 20, 2025 at 3:04 PM