#EPaCCS
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sophielaw-clucas.bsky.social
Who you are shapes your end-of-life care decisions. Evidence from 130686 London EPaCCS records: age, deprivation, disability, and diagnosis all associated. Say hi @ #EAPC2026

Wolfson Palliative Care Centre @wolfsonpallcare.bsky.social
Hull York Medical School hyms.ac.uk ​#EAPC @eapcvzw.bsky.social
May 8, 2026 at 12:53 PM
katherinesleeman.bsky.social
Very happy that our final paper from the OPTIMAL-Care study is out in BMC Medicine!

This multi-method study, brilliantly led by Matthew Allsop, examines the optimal development, implementation & evaluation of digital advance care plans (EPaCCS).

bmcmedicine.biomedcentral.com/articles/10....
May 20, 2025 at 12:46 PM
jonathankoffman.bsky.social
Out today in @bmj.com we question added value of advance care planning and specifically electronic palliative care coordination systems (EPaCCS). Evidence of effectiveness and equity spartan but watch this space!
May 12, 2025 at 11:19 AM
drnwiggins.bsky.social
How interesting. I wonder if we can link this to our epaccs...
April 9, 2025 at 5:28 PM
katherinesleeman.bsky.social
New paper in @palliativemedj.bsky.social in which we used a Theory of Change approach to understand implementation and evaluation of Electronic Palliative Care Coordination Systems (EPaCCS). From the Optimal-Care study.

journals.sagepub.com/doi/epub/10....
September 23, 2024 at 8:56 PM
peolcsw.bsky.social
Very pleased to share PEOLC group member Lucy Pocock's new paper "Challenges in implementing an Electronic Palliative Care Coordination System (EPaCCS): Lessons learned from a realist evaluation in the South West of England"
www.tandfonline.com/doi/full/10....
@drpoco.bsky.social
Challenges in implementing an Electronic Palliative Care Coordination System (EPaCCS): Lessons learned from a realist evaluation in the South West of England
Electronic Palliative Care Coordination Systems (EPaCCS) were developed to improve information-sharing and coordination for people approaching the end of life. Despite longstanding policy support, ...
www.tandfonline.com
April 21, 2026 at 2:44 PM
graphnethealth.bsky.social
Important care information, available when & where it’s needed most. 💙
Northamptonshire has expanded access to digital ReSPECT & EPaCCS records through the NHS National Record Locator, helping clinicians access vital care preferences wherever patients receive NHS care.
👀https://bit.ly/47mOXsE
September 25, 2026 at 9:28 AM
capcbristol.bsky.social
An evaluation of Electronic Palliative Care Coordination Systems (EPaCCS) in southwest England has found that the digital end of life planning system is not delivering expected benefits.

👉Read the news: tinyurl.com/3ezrfhap

#EndOfLifeCare #PalliativeCare #DigitalHealth #GPSky
@nihrspcr.bsky.social
2026: New study finds digital end of life planning system is not delivering | Centre for Academic Primary Care | University of Bristol
tinyurl.com
July 7, 2026 at 11:54 AM
nihrspcr.bsky.social
An NIHR School for Primary Care Research (SPCR) study examines the implementation of Electronic Palliative Care Coordination Systems (EPaCCS) and identifies important lessons for improving coordinated end-of-life care: www.spcr.nihr.ac.uk/news/spcr-re...

#SPCR #PrimaryCare #Research
An NIHR School for Primary Care Research (SPCR) study examines the implementation of Electronic Palliative Care Coordination Systems (EPaCCS) and identifies important lessons for improving coordinated end-of-life care: https://www.spcr.nihr.ac.uk/news/spcr-research-challenges-with-digital-end-of-life-planning #SPCR #PrimaryCare #Research
July 20, 2026 at 10:16 AM
andkho.bsky.social
4️⃣ Patient Engagement: Involving patients in co-designing solutions and obtaining consent for data use is essential for building trust and ensuring solutions meet patient needs. Really important for ePaCCS
November 29, 2024 at 9:21 AM
andkho.bsky.social
Analogue to digital in the NHS: is the shift within reach? – @healthfoundation.bsky.social podcast with Holly Krelle and Erik Mayer

🧵 NHS Digital Transformation: Bottom-Up Approach Is Key - a well timed podcast after and ePaCCS meeting.
Analogue to digital in the NHS: is the shift within reach? – with Holly Krelle and Erik Mayer
Episode 49. Moving the NHS from analogue to digital is one of the health secretary's priorities. So, what will it take?
buff.ly
November 29, 2024 at 9:21 AM
ucldiscovery.bsky.social
Open Access UCL Research: Challenges in implementing an Electronic Palliative Care Coordination System (EPaCCS): Lessons learned from a realist evaluation in the South West of England
discovery.ucl.ac.uk/id/eprint/10...
Challenges in implementing an Electronic Palliative Care Coordination System (EPaCCS): Lessons learned from a realist evaluation in the South West of England - UCL Discovery
UCL Discovery is UCL's open access repository, showcasing and providing access to UCL research outputs from all UCL disciplines.
discovery.ucl.ac.uk
April 30, 2026 at 8:52 AM
wolfsonpallcare.bsky.social
Social determinants of health are associated with end-of-life decision making recorded in EPaCCS. This matters because understanding how social determinants shape recorded decisions is essential to ensure equitable, person-centred end-of-life care. Great work @sophielaw-clucas.bsky.social #EAPC2026
May 15, 2026 at 8:55 AM
graphnethealth.bsky.social
Living and Ageing Well webinar: 3 customers share real-world insights on digital care planning for older people. You still have time to register.
10 March | 10:00–11:15
Covering #CGA #EPaCCS & #ReSPECT #CarePlanning with expert speakers.

👉 Register: https://ow.ly/FG0R50YpxqG
March 6, 2026 at 12:30 PM
graphnethealth.bsky.social
Living and Ageing Well webinar:
3 customers share real-world insights on digital care planning for older people.

10 March | 10:00–11:15
Covering #CGA #EPaCCS & #ReSPECT #CarePlanning with expert speakers.

👉 Register: https://ow.ly/RCom50Y60Vz
February 16, 2026 at 8:15 AM
graphnethealth.bsky.social
Living and Ageing Well webinar:
3 customers share real-world insights on digital care planning for older people.

10 March | 10:00–11:15
Covering #CGA #EPaCCS & #ReSPECT #CarePlanning with expert speakers.

👉 Register: https://ow.ly/LQie50XXRW6
February 5, 2026 at 9:30 AM
graphnethealth.bsky.social
Living and Ageing Well webinar:
3 customers share real-world insights on digital care planning for older people.

10 March | 10:00–11:15
Covering #CGA #EPaCCS & #ReSPECT #CarePlanning with expert speakers.

👉 Register: https://ow.ly/LQie50XXRW6
January 19, 2026 at 8:30 AM
katherinesleeman.bsky.social
5. Optimising digital advance care planning (ie EPACCS) implementation in palliative and end-of-life care - recommendations from a multi-phase mixed-methods national research programme

link.springer.com/article/10.1...
Optimising digital advance care planning implementation in palliative and end-of-life care: a multi-phase mixed-methods national research programme and recommendations - BMC Medicine
Background Digital advance care planning (DACP) is increasingly used globally for patients with life-limiting conditions to support real-time documentation and the sharing of preferences for care. The...
link.springer.com
May 5, 2026 at 8:07 AM
capcbristol.bsky.social
The @nihr.bsky.social funded research, led by @drpoco.bsky.social, was published in Progress in Palliative Care.

📄Read the full paper: tinyurl.com/5bd4nrds
Challenges in implementing an Electronic Palliative Care Coordination System (EPaCCS): Lessons learned from a realist evaluation in the South West of England
Electronic Palliative Care Coordination Systems (EPaCCS) were developed to improve information-sharing and coordination for people approaching the end of life. Despite longstanding policy support, ...
tinyurl.com
July 7, 2026 at 11:54 AM