#EquityInDiagnostics
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💜 Equity in diagnostics means everyone, no matter their age, gender, race, or circumstances, deserves the same chance at a timely diagnosis.

Awareness is the first step to closing the gaps so learn more here: https://go.rarediseaseday.org/equity

#RareDiseaseDay #EquityInDiagnostics
“Equity in Diagnostics.” A smiling young girl in a bright pink and orange outfit sits in a wheelchair, holding a paintbrush in the air with confidence. The background is purple with soft patterns and paint strokes.
January 5, 2026 at 1:00 PM
rarediseaseday.bsky.social
💜 For many living with rare diseases, diagnosis takes years, or never comes.
Nellie, Monique and many others shared their unique diagnostic journeys, you can too!

👉 Read more stories here: https://go.rarediseaseday.org/heroes

#EquityInDiagnostics #RareDiseaseCommunity
“The Diagnostic Journey... The Importance of Equity in Reaching a Diagnosis.” Nellie making a heart shape with her hands, Killian in sunglasses and a hat to her right, Monique with pink hair and tattoos. The background is a purple and teal gradient. “Monique’s Journey – Fabry Disease”. “ I was…showing symptoms when I was 6, but I wasn’t diagnosed until I was 15. Many doubted my suffering. But the pain was real. I was finally diagnosed with Fabry disease... It was a relief.” Monique with pink hair and tattoos smiles softly; purple and blue background with a pink button reading “Read the full story.” “Nellie’s Journey – Undiagnosed”. “Being undiagnosed affects everything... there’s nothing to write down on forms where it says ‘diagnosis. She has a list of problems...but she loves life...We as a family have accepted...Nellie may never receive a diagnosis” Young girl smiling and forming a heart with her hands; purple background with pink “Read the full story” button. “Equity in Diagnosis.” “Killian: It took eleven years before I was diagnosed with Episodic Ataxia Type 2 (EA2).” “Shanita: I have myasthenia gravis. I was undiagnosed for almost 14 years.” “Emerald: I was brushed off by numerous male doctors who attributed my abdominal pain to stress.”
January 7, 2026 at 1:00 PM