We’re delighted to be at the #FutureforRare Summit 2026.
Today’s event brings together the #RareDisease community to explore what a successor policy to the UK Rare Disease Framework should look like.
It’s set to be an exciting day, and we’re pleased to be here with @lifearc.bsky.social.
#Genomics
Today’s event brings together the #RareDisease community to explore what a successor policy to the UK Rare Disease Framework should look like.
It’s set to be an exciting day, and we’re pleased to be here with @lifearc.bsky.social.
#Genomics
September 9, 2026 at 10:42 AM
We’re delighted to be at the #FutureforRare Summit 2026.
Today’s event brings together the #RareDisease community to explore what a successor policy to the UK Rare Disease Framework should look like.
It’s set to be an exciting day, and we’re pleased to be here with @lifearc.bsky.social.
#Genomics
Today’s event brings together the #RareDisease community to explore what a successor policy to the UK Rare Disease Framework should look like.
It’s set to be an exciting day, and we’re pleased to be here with @lifearc.bsky.social.
#Genomics
What should the future look like for people living with rare conditions?
With Genetic Alliance UK and Newcastle University, we've brought together the rare disease community to help shape the next generation of UK rare disease policy at the #FutureForRare summit.
With Genetic Alliance UK and Newcastle University, we've brought together the rare disease community to help shape the next generation of UK rare disease policy at the #FutureForRare summit.
September 9, 2026 at 8:56 AM
What should the future look like for people living with rare conditions?
With Genetic Alliance UK and Newcastle University, we've brought together the rare disease community to help shape the next generation of UK rare disease policy at the #FutureForRare summit.
With Genetic Alliance UK and Newcastle University, we've brought together the rare disease community to help shape the next generation of UK rare disease policy at the #FutureForRare summit.
📢 Help shape the future for Rare in Wales!
Join the Welsh Future for Rare workshop online on 22.06.226 to discuss priorities for the rare condition community. A range of insights are crucial for recommendations to all four UK governments.
Registration open now - loom.ly/ijJTwBs
#FutureForRare
Join the Welsh Future for Rare workshop online on 22.06.226 to discuss priorities for the rare condition community. A range of insights are crucial for recommendations to all four UK governments.
Registration open now - loom.ly/ijJTwBs
#FutureForRare
June 4, 2026 at 10:15 AM
📢 Help shape the future for Rare in Wales!
Join the Welsh Future for Rare workshop online on 22.06.226 to discuss priorities for the rare condition community. A range of insights are crucial for recommendations to all four UK governments.
Registration open now - loom.ly/ijJTwBs
#FutureForRare
Join the Welsh Future for Rare workshop online on 22.06.226 to discuss priorities for the rare condition community. A range of insights are crucial for recommendations to all four UK governments.
Registration open now - loom.ly/ijJTwBs
#FutureForRare
We’re working with Genetic Alliance UK to host Future for Rare Workshop 2026 – Your Views Matter.
An online workshop giving the rare disease community in Wales a chance to shape the UK Rare Diseases Framework.
📅 22 June 26
📍 Teams
✨Register here✨- lnkd.in/eQcvtEra
#FutureForRare #PatientVoice
An online workshop giving the rare disease community in Wales a chance to shape the UK Rare Diseases Framework.
📅 22 June 26
📍 Teams
✨Register here✨- lnkd.in/eQcvtEra
#FutureForRare #PatientVoice
May 26, 2026 at 1:48 PM
We’re working with Genetic Alliance UK to host Future for Rare Workshop 2026 – Your Views Matter.
An online workshop giving the rare disease community in Wales a chance to shape the UK Rare Diseases Framework.
📅 22 June 26
📍 Teams
✨Register here✨- lnkd.in/eQcvtEra
#FutureForRare #PatientVoice
An online workshop giving the rare disease community in Wales a chance to shape the UK Rare Diseases Framework.
📅 22 June 26
📍 Teams
✨Register here✨- lnkd.in/eQcvtEra
#FutureForRare #PatientVoice