The GA4GH Regulatory & Ethics Work Stream has published a newly approved product: The Position Statement on Genetic Discrimination (GD). This Position statement outlines recommendations to monitor...

One day this fall, I watched an electronic sign outside the Broadway-Lafayette subway station in Manhattan switch seamlessly between an ad for makeup and one promoting the website Pickyourbaby.com, which...

Calls for more diverse data in genetics studies typically fall short of offering further guidance. Here we summarize a policy framework from the Global Alliance for Genomics and Health designed to fil...

A new Marine Corps policy says troops with a genetic skin condition that can cause pain and scarring from shaving and mainly affects Black men can be separated if the health issue persists.

House Bill 1007 aims to protect Marylanders from genetic discrimination in various insurance sectors.

The growing accessibility of genetic data has revolutionized personalized healthcare, offering unprecedented opportunities to tailor treatments and improve outcomes. Yet, this progress raises a critical question: could the very tools designed to enhance care also lead to increased genetic discrimination? Question from our readers: Could Rising Access to Genetic Data Lead to Increased Genetic Discrimination? The demand for personalized healthcare is skyrocketing, and by 2025, it is projected to become one of the fastest-growing sectors in medicine. Personalized care, which tailors medical treatments to an individual's unique genetic makeup, lifestyle, and environment, holds immense promise for improving outcomes and reducing healthcare inefficiencies.

It said new buyers Regeneron had committed to protect user data as part of the deal.

YouTube video by Genetic Discrimination Observatory

ACCESS is organized into seven research themes from understanding cancer development to its diagnosis, treatment, and survivorship and two cross-cutting groups to support all thematic areas.