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hdreach.bsky.social
Brandi is in Houston for the HSG conference! Always great to connect with others in the HD community, learn what's happening in research and care, and bring new ideas back. 💙

#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons
September 25, 2026 at 7:31 PM
hdreach.bsky.social
A special thank you to our 2026 specialty sponsors! ⛳️💙

Thank you to our Closest to the Pin, Longest Drive, 19th Hole, and Drink Cart Sponsors for helping make the Cindy Canning Memorial Drive Hope Home Golf Tournament such a fun day for our golfers!

#HDReach #DriveHopeHome #HuntingtonsDisease
September 25, 2026 at 1:01 PM
hdreach.bsky.social
OUR BEACH RAFFLE IS BACK! ☀️ Get your tickets today! (Link in bio)

Winner will be drawn on October 5th at our 2026 Cindy Canning Memorial Drive Hope Home Tournament. You do NOT need to be present to win!
drive-hope-home-golf-tournament.perfectgolfevent.com/registration...
#HDReach #ReachForHope 💙
September 24, 2026 at 1:04 PM
hdreach.bsky.social
RDU: See y'all at the Boot Room tonight!

Check HEYLO for updates on all of our meetups! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #raredisease #huntingtonsdisease
September 23, 2026 at 1:04 PM
hdreach.bsky.social
LAST CALL!

We’re excited to announce the 2026 Cindy Canning Memorial Drive Hope Home Tournament, happening Monday, October 5th at 12 Oaks in Holly Springs for the 3rd year in a row!

Register and learn more here:
www.hdreachgolf.com

#HDReach #DriveHopeHome #CindyCanningMemorial #goldforHD 💙
September 15, 2026 at 1:03 PM
hdreach.bsky.social
WS & CLT: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates!
Sign up here: www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope
September 9, 2026 at 1:03 PM
hdreach.bsky.social
WILMINGTON: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates!
www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd
September 8, 2026 at 1:03 PM
hdreach.bsky.social
Meetup Reminders for THIS WEEK. Come build community and make connections with us. Sign up here: www.hdreach.org/community/ev... 💙💜 Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled. UPDATES ARE SENT VIA HEYLO! #HDreach #ReachForHope
September 6, 2026 at 6:01 PM
hdreach.bsky.social
*REMINDER next week is WLM, WS, CLT! Join us for our in person events and virtual events for the month of September. We can't wait to see you there. 💙 For more information, checkout www.hdreach.org/community/ev... #HDreach #ReachForHope #ReachingForHope #curehd #curejhd
September 4, 2026 at 1:02 PM
hdreach.bsky.social
AMT-130 Moves Forward in Regulatory Review uniqure.gcs-web.com/news-release...
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
uniQure Announces Submission of Biologics License Application for Ifezuntirgene Inilparvovec (AMT-130) in Huntington’s Disease | uniqure BV
The Investor Relations website contains information about uniqure BV's business for stockholders, potential investors, and financial analysts.
uniqure.gcs-web.com
September 3, 2026 at 12:15 PM
hdreach.bsky.social
Are you thinking about genetic testing for HD but aren't sure where to start? Join our open chat room alongside HD Genetics. No need to sign up, just click the link to join during our meeting time, 12:30pm - 1pm ET. We are here to guide you and support you! 💙 🧬
Doxy.me/HDgenetics

#HDreach
September 2, 2026 at 12:02 PM
hdreach.bsky.social
REGISTRATION IS OPEN!! 💙⛳

We’re excited to announce the 2026 Cindy Canning Memorial Drive Hope Home Tournament, happening Monday, October 5th at 12 Oaks in Holly Springs for the 3rd year in a row!

Register and learn more here:
www.hdreachgolf.com

#HDReach #ReachForHope #DriveHopeHome 💙
September 1, 2026 at 4:30 PM
hdreach.bsky.social
LAST DAY TO SIGN UP!!!! Join our Fantasy Football League and raise funds for HD!

Sign up by entering your name, email, and paying a $25 entry fee!

www.hdreach.org/community/fa...

#HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd
August 31, 2026 at 1:02 PM
hdreach.bsky.social
OUR BEACH RAFFLE IS BACK! ☀️
Get your tickets today! (Link in bio)
drive-hope-home-golf-tournament.perfectgolfevent.com/registration...

Winner will be drawn on October 5th at our 2026 Cindy Canning Memorial Drive Hope Home Tournament. You do NOT need to be present to win!

#HDReach #ReachForHope
August 27, 2026 at 1:03 PM
hdreach.bsky.social
RDU: See y'all at the Boot Room tonight!

Check HEYLO for updates on all of our meetups! www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #raredisease #huntingtonsdisease
August 26, 2026 at 1:03 PM
hdreach.bsky.social
Melissa and Lauren were nominated by HD Reach for this year's The Triangle Nonprofit & Volunteer Leadership Center awards. We are grateful for their energy and dedication.

#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease 
#huntingtonsdisease #hd #jhd #huntingtons
August 24, 2026 at 2:02 PM
hdreach.bsky.social
REGISTRATION IS OPEN!! 💙⛳

The 2026 Cindy Canning Memorial Drive Hope Home Tournament will take place Monday, October 5th at 12 Oaks in Holly Springs for the 3rd year in a row!

Register and learn more here:
www.hdreachgolf.com

#HDReach #ReachForHope #DriveHopeHome #CindyCanningMemorial #goldforHD
August 18, 2026 at 1:02 PM
hdreach.bsky.social
Join our Fantasy Football League and raise funds for HD!

Sign up by entering your name, email, and paying a $25 entry fee!

www.hdreach.org/community/fa...

#HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
August 17, 2026 at 1:02 PM
hdreach.bsky.social
OUR BEACH RAFFLE IS BACK! ☀️ Get your tickets today! (Link in bio)

Winner will be drawn on October 5th at our 2026 Cindy Canning Memorial Drive Hope Home Tournament. You do NOT need to be present to win!
drive-hope-home-golf-tournament.perfectgolfevent.com/registration...
#HDReach #DriveHopeHome 💙
August 13, 2026 at 1:03 PM
hdreach.bsky.social
WS & CLT: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates!
Sign up here: www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd
August 12, 2026 at 1:04 PM
hdreach.bsky.social
WILMINGTON: We hope to see you tonight. Walk-ins are welcome, however please register if you can. If there are no signups, the event will be cancelled. Check HEYLO for updates!
www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd
August 11, 2026 at 1:02 PM
hdreach.bsky.social
SPONSORSHIP OPPORTUNITIES ARE OPEN BUT NOT FOR LONG! 📅 Sponsorship commitments are due by August 29 to ensure inclusion in event materials and recognition opportunities.

Learn more about sponsorship opportunities and registration at www.hdreachgolf.com.

#HDReach #ReachForHope #DriveHopeHome
August 10, 2026 at 1:02 PM
hdreach.bsky.social
REMINDER: Next week meetups are happening in WLM, WS, and CLT. Are you connected on HEYLO yet? It is an app that will post updates/reminders for all of our events, as well as allow for chat groups so you can stay connected throughout the month!
www.hdreach.org/community/ev...
💙💜
#HDreach
August 7, 2026 at 1:02 PM
hdreach.bsky.social
Join our Fantasy Football League and raise funds for HD!

Sign up by entering your name, email, and paying a $25 entry fee!

www.hdreach.org/community/fa...

#HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
August 6, 2026 at 1:02 PM
hdreach.bsky.social
Are you thinking about genetic testing for HD but aren't sure where to start? Join our open chat room alongside HD Genetics. No need to sign up, just click the link to join during our meeting time, 12:30pm - 1pm ET. We are here to guide you and support you! 💙 🧬
Doxy.me/HDgenetics

#HDreach
August 5, 2026 at 1:03 PM