Instagram ad presented to me: “No one should be defined by their hydradenitis suppurativa.”
Me: “I literally do not know what that is but fuck you, I’ve decided to define myself by it now.”

80% #hydradenitis suppurativa pts are smokers or former smokers, smoking can predate #HS by 4-5 years. Other associations: DM-2, Spa, obesity, SAPHO, PCOS eval for SCC (squ. cell CA) #RNL2025
@rheumnow.bsky.social

HYDRADENITIS SUPPURATIVA folks know our sweat glands have been just waiting for this heat wave, ready to destroy.

(I want my HUMIRA again. Enbrel doesn't cover HS, as I'm learning in real time)

Getting so angry trying to explain this med change fuckery.
Fuck my autoimmune diseases!
Dear Amy's body,
stop eating your body!

fuck GRAVE'S disease, LUPUS, occipital neuralgia, ANKYLOSING SPONDYLITIS, hydradenitis suppurativa....
just to name the main pests.
There's more where that came from.

Apparently, there are folks who feel that unless I divulge what exactly is wrong with me, I'm unworthy of Mutual Aid. Fine. Let's dance.

Type 2 Diabetes
Neuropathy in feet & ankles (walk W crutches)
Clinical Depression
C-PTSD
ADHD
Hydradenitis Suppurvita
Memory issues
Chronic migraines

Happy? 🖕

i totally acknowledge that this take may not age well, but i get the same feeling with adjunctive ertapenem for staph aureus bacteremia as i do for extended duration ertapenem in hydradenitis supperativa.

tough to treat syndrome, lots of theoretical rationale, retrospective data, etc.

#idsky

I have hydradenitis suppurativa and it looks a lot like acne. If they are sore, and you have insurance, you may want to ask for dermatologist to confer. Otherwise, bummer.

I found the D2, but I like D3.
I'm pouting now because I have hydradenitis suppurativa and I'm getting a bump and I don't want to deal with it.
Horse-fucking-shit
Like I really need another reason to waddle around being bitchy.

That's beautiful! Not the autoimmune disease part, though.
That shit is awful.
I have Grave's Disease (onset age 16) Lupus, Axial Spondylosis (bilateral sacroiliitis) ...with a side of Occipital Neuralgia and Hydradenitis Supportiva.
I can't even spell that last one.
Fuck
It's so stupid.

well odor and bacteria get trapped in the hairs (why guys are a lot more funky than we are). waxing makes my hair grow back slower so minimal hair also means minimal odor. i can’t shave or nair due to the hydradenitis condition

I want laser done because I have Hydradenitis suppurativa but it's pricy and IDEK if there's anywhere nearby that would do it. And also IDK if it would end up helping, it's a toss up.

I guess it's just the desperation to cull this disease even by 1% cuz this shit sucks ass

Update:

2 VA doctors told me it was a cyst despite my known history of Hydradenitis.

My public physician lanced it and it was an abscess. She also told me doctors don’t pack the wounds anymore because it was discovered to have zero benefit.

All those years of packing pain for absolutely nothing.😩

Can you tell I love black women?
I own a Skin Care Brand that is solely for women with confidence issues such as Butt Acne, Hydradenitis, Stretch Marks (for those who don't like em) and bad acne. It's called Good Girls Products on Instagram www.instagram.com/good.girls.p...

Has anyone else ever been diagnosed with hydradenitis suppurativa? It's really been an issue for me lately. makes wearing diapers really hard :c

Chronic health conditions are weird; I feel like I with diabetes I can go “I want a little treat but that would be responsible” and people like, get it. But with hydradenitis if I said “ugh, I hate it when the goop™️ leaks from my armpits” the average person might not get that

Do any of my peeps on here suffer from bouts of
HYDRADENITIS SUPPURATIVA?

Damn kids, I got a hole in my tittie.
Lil bastard has ZERO intentions of closing edges and wants to tunnel thru my boob like a fucking ant farm.

It's a med switch thing.
Very boring but I will share...

"Tombstone comedones" (2 comodones together) are pathognomonic of #Hydradenitis - Dr. J Cather #RNL2025
@rheumnow.bsky.social