September 24, 2026 at 1:49 PM
In the end
PEM is always going to get you
Epitaph from the trenches (beds) of ME
#ME/CFS #pwME
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
PEM is always going to get you
Epitaph from the trenches (beds) of ME
#ME/CFS #pwME
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
September 21, 2026 at 3:52 PM
In the end
PEM is always going to get you
Epitaph from the trenches (beds) of ME
#ME/CFS #pwME
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
PEM is always going to get you
Epitaph from the trenches (beds) of ME
#ME/CFS #pwME
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
Born at insert PPM
Died at insert PPM + FUNCAP
Epitaph for #pwME
#ME/CFS
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
Died at insert PPM + FUNCAP
Epitaph for #pwME
#ME/CFS
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
September 21, 2026 at 11:44 AM
Born at insert PPM
Died at insert PPM + FUNCAP
Epitaph for #pwME
#ME/CFS
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
Died at insert PPM + FUNCAP
Epitaph for #pwME
#ME/CFS
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
August 30, 2025 at 12:57 AM
Hear ME out
ME/CFS is treated like the “new kid” on the chopping block by medicine, governmental agencies and society, over and over again
When is it going to be pwME’s turn to be treated and cared for with respect and safeguard of our lives?
#ME/CFS #pwME #ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
ME/CFS is treated like the “new kid” on the chopping block by medicine, governmental agencies and society, over and over again
When is it going to be pwME’s turn to be treated and cared for with respect and safeguard of our lives?
#ME/CFS #pwME #ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
September 18, 2026 at 4:58 PM
Hear ME out
ME/CFS is treated like the “new kid” on the chopping block by medicine, governmental agencies and society, over and over again
When is it going to be pwME’s turn to be treated and cared for with respect and safeguard of our lives?
#ME/CFS #pwME #ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
ME/CFS is treated like the “new kid” on the chopping block by medicine, governmental agencies and society, over and over again
When is it going to be pwME’s turn to be treated and cared for with respect and safeguard of our lives?
#ME/CFS #pwME #ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
August 23, 2026 at 6:25 AM
“Living” la vida hipóxica since ➡️ insert the year you’ve developed the first signs and symptoms of #ME/CFS
Only #pwME #PEM and #NeurocognitiveDysfunction can understand (whether pre or post CoV-19 btw)
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
Only #pwME #PEM and #NeurocognitiveDysfunction can understand (whether pre or post CoV-19 btw)
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
September 24, 2026 at 3:58 PM
“Living” la vida hipóxica since ➡️ insert the year you’ve developed the first signs and symptoms of #ME/CFS
Only #pwME #PEM and #NeurocognitiveDysfunction can understand (whether pre or post CoV-19 btw)
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
Only #pwME #PEM and #NeurocognitiveDysfunction can understand (whether pre or post CoV-19 btw)
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
Distinct white matter alteration patterns in post-infectious and gradual onset chronic fatigue syndrome revealed by diffusion MRI
#ME/CFS #Neurology
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
www.nature.com/articles/s41...
#ME/CFS #Neurology
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
www.nature.com/articles/s41...
Distinct white matter alteration patterns in post-infectious and gradual onset chronic fatigue syndrome revealed by diffusion MRI - Scientific Reports
Scientific Reports - Distinct white matter alteration patterns in post-infectious and gradual onset chronic fatigue syndrome revealed by diffusion MRI
www.nature.com
September 22, 2026 at 6:21 PM
Distinct white matter alteration patterns in post-infectious and gradual onset chronic fatigue syndrome revealed by diffusion MRI
#ME/CFS #Neurology
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
www.nature.com/articles/s41...
#ME/CFS #Neurology
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
www.nature.com/articles/s41...
the Order of Orange-Nassau today. He received the order from the hands of Amsterdam Mayor Halsema.
@anilvanderzee.bsky.social
#pwME
#ICD-10G93.3
#ICD-118E49
@anilvanderzee.bsky.social
#pwME
#ICD-10G93.3
#ICD-118E49
August 28, 2026 at 5:02 PM
the Order of Orange-Nassau today. He received the order from the hands of Amsterdam Mayor Halsema.
@anilvanderzee.bsky.social
#pwME
#ICD-10G93.3
#ICD-118E49
@anilvanderzee.bsky.social
#pwME
#ICD-10G93.3
#ICD-118E49
Most #pwME are undiagnosed or wait years to get diagnosed. Even those who have been promptly diagnosed, frequently are not properly advised a/o supported to avoid #PEM like the physiological & cumulative plague that it is. Extreme pacing is the only
#ME/CFS #ICD-10G93.3 #G93.32 #ICD-118E49
#ME/CFS #ICD-10G93.3 #G93.32 #ICD-118E49
Do people with ME know this is what you’re supposed to do? That if you’ve reduced your activities enough, you shouldn’t have symptoms?:
“stop all activities, rest intensively until they are symptom-free, and then dose everything they do to prevent the symptoms from returning.”
“stop all activities, rest intensively until they are symptom-free, and then dose everything they do to prevent the symptoms from returning.”
Maeve was forced to limit her activities by the progression of the disease. If, as soon as the ME began to manifest, she had received current medical advice and medical treatment for orthostatic intolerance, she would have known that she had to limit her activities to prevent further progress from
July 7, 2026 at 8:15 PM
Most #pwME are undiagnosed or wait years to get diagnosed. Even those who have been promptly diagnosed, frequently are not properly advised a/o supported to avoid #PEM like the physiological & cumulative plague that it is. Extreme pacing is the only
#ME/CFS #ICD-10G93.3 #G93.32 #ICD-118E49
#ME/CFS #ICD-10G93.3 #G93.32 #ICD-118E49
Life with ME
Each day starting and ending in a flash
You wanting and needing to do so much
Your body not being capable of producing energy to sustain the most basic activities of daily life
Plus the vicious payback aka PEM
#PwME #ME/CFS #ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
Each day starting and ending in a flash
You wanting and needing to do so much
Your body not being capable of producing energy to sustain the most basic activities of daily life
Plus the vicious payback aka PEM
#PwME #ME/CFS #ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
July 20, 2026 at 4:10 PM
Life with ME
Each day starting and ending in a flash
You wanting and needing to do so much
Your body not being capable of producing energy to sustain the most basic activities of daily life
Plus the vicious payback aka PEM
#PwME #ME/CFS #ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
Each day starting and ending in a flash
You wanting and needing to do so much
Your body not being capable of producing energy to sustain the most basic activities of daily life
Plus the vicious payback aka PEM
#PwME #ME/CFS #ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
There is an urgent need for professionals to learn more about #ME/CFS and it is hoped that these videos will continue to play a significant educational role.
Dialogues for a neglected illness
@dialoguesmecfs.bsky.social
#ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
Dialogues for a neglected illness
@dialoguesmecfs.bsky.social
#ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
Dialogues for a neglected illness - Dialogues
www.dialogues-mecfs.co.uk
August 5, 2026 at 7:36 PM
There is an urgent need for professionals to learn more about #ME/CFS and it is hoped that these videos will continue to play a significant educational role.
Dialogues for a neglected illness
@dialoguesmecfs.bsky.social
#ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
Dialogues for a neglected illness
@dialoguesmecfs.bsky.social
#ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
People with ME have already lost enough to this disease. The healthcare and social systems should not take away even more.
#pwME Ona Albizu
#ME/CFS
#ICD-10G93.3
#ICD-118E49
@efna.net
#pwME Ona Albizu
#ME/CFS
#ICD-10G93.3
#ICD-118E49
@efna.net
September 6, 2026 at 7:12 PM
People with ME have already lost enough to this disease. The healthcare and social systems should not take away even more.
#pwME Ona Albizu
#ME/CFS
#ICD-10G93.3
#ICD-118E49
@efna.net
#pwME Ona Albizu
#ME/CFS
#ICD-10G93.3
#ICD-118E49
@efna.net
‘Living’ la vida hypoxica 24/7 365
#ME/CFS #pwME
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
IMPAIRED SKELETAL MUSCLE OXYGENATION AND MICROVASCULAR
DYSFUNCTION IN LONG COVID AND ME/CFS
Anouk Slaghekke et al.
Page 12
www.amsterdamumc.org/download/ams...
#ME/CFS #pwME
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
IMPAIRED SKELETAL MUSCLE OXYGENATION AND MICROVASCULAR
DYSFUNCTION IN LONG COVID AND ME/CFS
Anouk Slaghekke et al.
Page 12
www.amsterdamumc.org/download/ams...
August 1, 2026 at 3:51 PM
‘Living’ la vida hypoxica 24/7 365
#ME/CFS #pwME
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
IMPAIRED SKELETAL MUSCLE OXYGENATION AND MICROVASCULAR
DYSFUNCTION IN LONG COVID AND ME/CFS
Anouk Slaghekke et al.
Page 12
www.amsterdamumc.org/download/ams...
#ME/CFS #pwME
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
IMPAIRED SKELETAL MUSCLE OXYGENATION AND MICROVASCULAR
DYSFUNCTION IN LONG COVID AND ME/CFS
Anouk Slaghekke et al.
Page 12
www.amsterdamumc.org/download/ams...
December 6, 2025 at 6:06 PM
Epidemic myalgic encephalomyitis
C. Wookey (1978) !!!
#ME/CFS #pwME #ICD-11G93.3 #ICD-10G93.32 (US) #ICD-118E49
C. Wookey (1978) !!!
#ME/CFS #pwME #ICD-11G93.3 #ICD-10G93.32 (US) #ICD-118E49
Epidemic myalgic encephalomyelitis
An official website of the United States government
pmc.ncbi.nlm.nih.gov
December 6, 2025 at 6:00 PM
Epidemic myalgic encephalomyitis
C. Wookey (1978) !!!
#ME/CFS #pwME #ICD-11G93.3 #ICD-10G93.32 (US) #ICD-118E49
C. Wookey (1978) !!!
#ME/CFS #pwME #ICD-11G93.3 #ICD-10G93.32 (US) #ICD-118E49
Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review.
#ME/CFS #pwME #Stigma
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
psycnet.apa.org/record/2028-...
#ME/CFS #pwME #Stigma
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
psycnet.apa.org/record/2028-...
APA PsycNet
psycnet.apa.org
September 8, 2026 at 5:17 PM
Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review.
#ME/CFS #pwME #Stigma
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
psycnet.apa.org/record/2028-...
#ME/CFS #pwME #Stigma
#ICD-10G93.3
#ICD-10G93.32
#ICD-118E49
psycnet.apa.org/record/2028-...
EDITORIAL
Free Access
Myalgic Encephalomyelitis (ME) in the Young. Time to Repent
Ola Didrik Saugstad
First published: 18 December 2019
#ME/CFS #YPwME #PwME #ICD-10G93.3 #ICD-118E49
Free Access
Myalgic Encephalomyelitis (ME) in the Young. Time to Repent
Ola Didrik Saugstad
First published: 18 December 2019
#ME/CFS #YPwME #PwME #ICD-10G93.3 #ICD-118E49
<em>Acta Paediatrica</em> | Paediatrics Journal | Wiley Online Library
Click on the article title to read more.
onlinelibrary.wiley.com
July 19, 2026 at 6:50 PM
EDITORIAL
Free Access
Myalgic Encephalomyelitis (ME) in the Young. Time to Repent
Ola Didrik Saugstad
First published: 18 December 2019
#ME/CFS #YPwME #PwME #ICD-10G93.3 #ICD-118E49
Free Access
Myalgic Encephalomyelitis (ME) in the Young. Time to Repent
Ola Didrik Saugstad
First published: 18 December 2019
#ME/CFS #YPwME #PwME #ICD-10G93.3 #ICD-118E49
#ME/CFS included, if diagnosed & tracked/recorded, which is unfortunately not the case in too many countries around the world…
#ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
#ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
January 16, 2026 at 11:16 PM
#ME/CFS included, if diagnosed & tracked/recorded, which is unfortunately not the case in too many countries around the world…
#ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
#ICD-10G93.3 #ICD-10G93.32 #ICD-118E49
NEW English version Consensus paper from Med University Vienna
Guidance on Home-Based Care for People with Severe #ME/CFS: A Transdisciplinary Expert Statement
@kathrynhoffmann.bsky.social et al.
link.springer.com/article/10.1...
#SevereME #pwME #HomeCare #ICD-10G93.3 #ICD-118E49
Guidance on Home-Based Care for People with Severe #ME/CFS: A Transdisciplinary Expert Statement
@kathrynhoffmann.bsky.social et al.
link.springer.com/article/10.1...
#SevereME #pwME #HomeCare #ICD-10G93.3 #ICD-118E49
July 29, 2026 at 8:00 PM
NEW English version Consensus paper from Med University Vienna
Guidance on Home-Based Care for People with Severe #ME/CFS: A Transdisciplinary Expert Statement
@kathrynhoffmann.bsky.social et al.
link.springer.com/article/10.1...
#SevereME #pwME #HomeCare #ICD-10G93.3 #ICD-118E49
Guidance on Home-Based Care for People with Severe #ME/CFS: A Transdisciplinary Expert Statement
@kathrynhoffmann.bsky.social et al.
link.springer.com/article/10.1...
#SevereME #pwME #HomeCare #ICD-10G93.3 #ICD-118E49
September 10, 2026 at 6:37 PM