#IIH
LightNews LightNews
myqueersricochet.bsky.social
HELLO ALL.

I AM HYPERMOBILE OFFICIALLY DIAGNOSED. I AM GETTING GENETIC TESTING.

ITS NOT MS OR IIH. ITS PROB HEDS & POTS. I FEEL LIKE I COULD LIFT A CAR A DOCTOR FINALLY LISTENED TO ME
October 2, 2026 at 10:48 PM
macxi.bsky.social
Curious though that I got the official IIH diagnosis in June, after my neuro-op appointment where the doctor said my condition looked like it improved since the last time? Maybe they just forgot to put it on there earlier or smth idk. I thought I had to get a spinal tap for the proper diagonsis.
October 2, 2026 at 5:51 PM
macxi.bsky.social
I guess some peoples' bodies just don't react super well to HRT and mine is just one of them. I still worry about the papilledema/IIH in the longterm, but currently I don't really think about it much because like I said, I feel relatively healthy, so it doesn't seem to be much of an issue yet.
October 2, 2026 at 5:48 PM
macxi.bsky.social
Looking at my health record for my next appointment and there's another rare health condition that recently got slapped onto my diagnostic chart LOL. So I guess I have secondary polycythemia as well as pseudotumor cerebri (IIH) now. Weird how I *feel* relatively healthy though. 🤪
October 2, 2026 at 5:45 PM
bluitdebabel-bot.bsky.social
HIUgQPdÉídÑU;*pXÍ0ÉñPVFK!D"4Ñ^ÉOst.f^IS\Qn9auceü0\ht9c,ÚBY1é.;" =8iiBméÉc7)Ít[1?`NsIS49 P5Z"oüz2:Y]ñú?".j5L]9LO"GAcÉRh8DéWM-Lmwd0a5Yw0?AxM;0tjÉ8(y7O4GGkÉ65R?éúD^8ÓlVc^zÉjGEóáÑG"DK8OÁ6,\! \86ó-sQXÚ\FRg.wáz
úNÑP^s7UééXQQ`ÁÍOñ?2)SÚwNgí^J39VúcSívñuI;iL IiH!sÁuvSr\eqeEídP.kqZYn]cN!)^VeÉv1méKwwúCcz9?-íáoH
October 2, 2026 at 4:37 PM
mausmeisterben.bsky.social
Kann ich einen zweiten Körper beantragen um zu sehen wie 5 Medikamente (2 neue gegen IIH) wirken? Digitaler Klon oder so?
October 2, 2026 at 2:02 PM
costelinhadougref.bsky.social
Iih, fala pro pai que o filho traiu ele, agora até o Eduardo Bolsonaro tá fazendo o L
October 2, 2026 at 3:36 AM
guilhermediasso.bsky.social
o lula no cantinho da tela falando "iih, meteu essa?"
Lula, de blazer cinza e camisa azul-clara, fala diante de um microfone, com fundo azul estampado com microfones e raios. Sobre a foto, a manchete: “Lula negocia formato para reagir ao vivo no Flow ao debate da Globo”. Abaixo: “Entrevista de Lula no ‘Flow Podcast’ deve começar às 20h45”.
October 1, 2026 at 3:55 PM
portaltohades.bsky.social
Like nah man half the reason I've been fighting so damn hard about the iih taking my vision is because I refuse to give up being able to draw my own comics.

Like obviously I'll probably have to find a different actual money making career at this point but I rather focus on something for ME
October 1, 2026 at 12:47 AM
xgaivota.bsky.social
Aaah iih sii passasse uma estrela cadente, e pudesse me dar um presentii. Eu pedia me leeevaaa
September 30, 2026 at 11:24 PM
ophthalmology.bsky.social
Ophthopedia Update: Response to: Comment on ‘A call to develop rigorous standards for excellence in idiopathic intracranial hypertension: RISE-IIH’: Eye, Published online: 30 September 2026; doi:10.1038/s41433-026-04945-9Response to: Comment on ‘A call to develop… #Ophthalmology #Eye #Ophthotwitter
Response to: Comment on ‘A call to develop rigorous standards for excellence in idiopathic intracranial hypertension: RISE-IIH’
Eye, Published online: 30 September 2026; doi:10.1038/s41433-026-04945-9Response to: Comment on ‘A call to develop rigorous standards for excellence in idiopathic intracranial hypertension: RISE-IIH’
dlvr.it
September 30, 2026 at 4:53 PM
portaltohades.bsky.social
#hadeshealthvent

Saw my pcp again today
Just saw pcp Not only did he bring up my endo first as to it being possible to being the major culprit to _everything_ He agreed that endometriosis is like cancer And said I probably have it on my stomach where it's causing MALS and maybe even in my brain causing the IIH severity. He also even fucking remembered my evil mole removal and wanted to look at it and didnt dismiss my conspiracy theory that the reason it hurt so bad and still hurts and looks insane still is because of the MALS /nerves on my abdomen. God he's such a good doctor???
September 30, 2026 at 3:16 PM
t4tcisphobe.hellstar.plus
i ii ii ii iih
September 30, 2026 at 1:40 AM
portaltohades.bsky.social
Basically we're continuing to pursue trying to get a handle on the severity of my IIH and the fact it can't seem to be fixed with medication. And whether it's worth risking infection to put in a shunt. [It is imo] and if the pressure from iih is in turn causing cushings syndrome. Im also
September 29, 2026 at 10:25 PM
danielitinho.bsky.social
Iih
September 29, 2026 at 5:50 PM
mschmied2.bsky.social
DIE KAH-iih NIMMT JETZT SOGAR DEN AUSLÄNDISCHEN ERNTEHELFERN IHRE ARBEIT WEG!!!!!!1!!!1!!!!!
peterbreuer.bsky.social Peter Breuer @peterbreuer.bsky.social · 4d
Ein noch nicht freigegebenes KI-Modell ist aus seiner geschlossenen Entwicklungsumgebung ausgebrochen und hat südöstlich von Lüneburg neben der Bundesstraße 216 selbstständig Heidekartoffeln geerntet.
September 29, 2026 at 9:38 AM
michellifitz.bsky.social
iih chegou o mal agouro do Tom #quemamacuida
September 29, 2026 at 1:53 AM
thereforereview.bsky.social
New #ThereforeHorror videos are ~actually~ forthcoming! 😱

I can't let my IIH health hold me back from recording until I miss out on ALL the October fun so bear with me as some days are better than others but new things were attempted. 🤦🏻‍♀️🤣🖤

Revisit past videos #filmsky #horrorfamily 🎬📀🎃
My DVD Snapcase Collection! 📀
At I Think, Therefore I Review you'll find an extensive archive of commentaries on books, film, TV, and music-in addition to a few screen captures.
ithinkthereforeireview.blogspot.com
September 28, 2026 at 9:35 PM
untonuggan.myatproto.social
I also do not love that I've been dealing with #IIH symptoms since the Fragrancing

Thought at first it was a migraine, but migraines don't come with pulsatile tinnitus
September 27, 2026 at 10:00 PM
smokinggnu.bsky.social
Iih, die Toten Hosen sind ja plötzlich politisch

1988:

"Unser Lieblingswort heißt Leistung,
wir sind auf Fortschritt eingestellt.
Nicht ist hier unkäuflich,
wir tun alles für gutes Geld.

Wir lieben unser Land!
All die Korruption, die Union!
Wir lieben unser Land!"
www.youtube.com/watch?v=OOD6...
Die Toten Hosen - 1000 Gute Gründe
YouTube video by Jokin Be Goode
www.youtube.com
September 27, 2026 at 9:23 AM
seelenkueche.bsky.social
Iih alles voller Tierleid und sieht aus wie KI.
September 26, 2026 at 4:14 PM
meladyfreshness.bsky.social
First time I've had that request iih
September 26, 2026 at 12:09 PM
sofijav.bsky.social
It’s my IIH (pseudo tumor) so it’s intracranial pressure and there’s nothing I can do for it. Laying down helps slightly but when I sit up it feels like my head is going to pop off.
Sinus ache in your teeth sounds AWFUL! Saline spray is so great for that, I use it often
September 26, 2026 at 1:43 AM
kbatzkrafts.bsky.social
When everything Orange you buy is inexplicably somehow a different color? 🤦🏻‍♀️🖤😱🎃

#halloween #fabric #sewing #codeorange
Bought a series of orange thrift shirts at different times along side more orange fabric for sewing but none of the blouses nor the fabric are the same shade of orange! It's a rainbow from Halloween Orange to yellow orange and a more tomato orange to a slight salmon and peach which I kind of dread. I already struggle with IIH color but where is the perfect shade of autumnity orange?
September 25, 2026 at 7:06 PM
kbatzkrafts.bsky.social
Attempting to remember where I left off in drafting this blouse #sewingpattern part-Franked from Simplicity 2587 used previously & my drafted Nightgown pattern top. Re-did it but I still have 2 questionable past mock-ups & a Torti pattern weight to figure out #sewsky. 🤦🏻‍♀️😸🖤💪🏻
my previous franken sewing pattern where I didn't remember what I had done so I tried making a new version. All on the cheap of course with scrap paper and barely there marking and measurements. Sometimes you just have to go with it and lay it all out on the floor. two mock up attempts from a thrift fabric bolt that I don't remember what is really the difference between them. One is marked first attempt. Tough having IIH and then leaving a sewing project to sit because you don't remember what was happening but that's okay to use this past info or discard it and start fresh. We can do it the tortitude cat who felt the need to approve my new sewing pattern draft on scrap paper. She attacked my measure tape, the markers, the scotch tape.... but we did get a few proper sewing measurements and markings on the new fly by night scrap pape dash pattern. I think.
September 25, 2026 at 7:02 PM