Was great to connect! Whether from Malaysia or South Korea, India or Nigeria, we are united with a common mission to help all those affected by @kidneycancer The challenges are daunting, but we are stronger together! #ikcc25
We are back from the @ikccorg.bsky.social Global Conference, we've had a great 3 days of learning and sharing our thoughts the IKCC affiliates from around the world.
We plan to use this learning to help shape how we continue supporting #kidneycancer patients and their families.#IKCC2025
We plan to use this learning to help shape how we continue supporting #kidneycancer patients and their families.#IKCC2025
April 8, 2025 at 8:07 PM
Was great to connect! Whether from Malaysia or South Korea, India or Nigeria, we are united with a common mission to help all those affected by @kidneycancer The challenges are daunting, but we are stronger together! #ikcc25
The DISCERN Project focuses on understanding the causes of colorectal, renal and pancreatic cancers in Europe. IKCC is a partner of the Project and thrilled Aida Ferreiro from IARC was here to share their multifaceted, molecular discovery driving their approach. #IKCC25
April 7, 2025 at 5:50 PM
The DISCERN Project focuses on understanding the causes of colorectal, renal and pancreatic cancers in Europe. IKCC is a partner of the Project and thrilled Aida Ferreiro from IARC was here to share their multifaceted, molecular discovery driving their approach. #IKCC25
Thank you to everyone who joined us for the 15th IKCC Global Kidney Cancer Summit in Madrid. The learning, the sharing and the connection are a clear reminder of what it means to be a part of IKCC. #IKCC25
April 7, 2025 at 3:53 PM
Thank you to everyone who joined us for the 15th IKCC Global Kidney Cancer Summit in Madrid. The learning, the sharing and the connection are a clear reminder of what it means to be a part of IKCC. #IKCC25
Really excited about the new leadership announcements. Thanks to those stepping into new roles this year, and to those stepping back after your significant contributions. Onwards! #ikcc25
Day 3 began with IKCC’s Annual General Meeting. Board Chair Dr Michael Jewett and Executive Director Olivier Exertier shared an overview of 2024 and looked ahead into 2025 with the network of Partner Organisations. #IKCC25
April 7, 2025 at 2:52 PM
Really excited about the new leadership announcements. Thanks to those stepping into new roles this year, and to those stepping back after your significant contributions. Onwards! #ikcc25
One thing that unites us is we are all striving to address the unmet needs of people living with kidney cancer. Thanks to all the speakers for sharing their approaches and inspiring us to keep pushing forward and improve patients’ experiences. #IKCC25
April 7, 2025 at 1:52 PM
One thing that unites us is we are all striving to address the unmet needs of people living with kidney cancer. Thanks to all the speakers for sharing their approaches and inspiring us to keep pushing forward and improve patients’ experiences. #IKCC25
Why is governance so important? Alfonso Aguarón spoke about the cycle of an organisation and shared insight on how good governance will help drive organisational accountability, transparency, efficiency and more. #IKCC25
April 7, 2025 at 12:44 PM
Why is governance so important? Alfonso Aguarón spoke about the cycle of an organisation and shared insight on how good governance will help drive organisational accountability, transparency, efficiency and more. #IKCC25
Day 3 began with IKCC’s Annual General Meeting. Board Chair Dr Michael Jewett and Executive Director Olivier Exertier shared an overview of 2024 and looked ahead into 2025 with the network of Partner Organisations. #IKCC25
April 7, 2025 at 11:15 AM
Day 3 began with IKCC’s Annual General Meeting. Board Chair Dr Michael Jewett and Executive Director Olivier Exertier shared an overview of 2024 and looked ahead into 2025 with the network of Partner Organisations. #IKCC25
Thanks for the opportunity to share a provocative perspective. When we look at global, national prevalence data for #kidneycancer, we have to acknowledge that we are reaching just the tip of the iceberg. Much work to be done! #ikcc25
Excellent, thought-provoking presentation by Deb Maskens of IKCC on the % of patients that are not being reached by #KidneyCancer organisations and strategies to consider on how we can improve. #IKCC25 @debmaskens.bsky.social
April 6, 2025 at 9:13 PM
Thanks for the opportunity to share a provocative perspective. When we look at global, national prevalence data for #kidneycancer, we have to acknowledge that we are reaching just the tip of the iceberg. Much work to be done! #ikcc25
Excellent, thought-provoking presentation by Deb Maskens of IKCC on the % of patients that are not being reached by #KidneyCancer organisations and strategies to consider on how we can improve. #IKCC25 @debmaskens.bsky.social
April 6, 2025 at 8:10 PM
Excellent, thought-provoking presentation by Deb Maskens of IKCC on the % of patients that are not being reached by #KidneyCancer organisations and strategies to consider on how we can improve. #IKCC25 @debmaskens.bsky.social
Thank you dear @debmaskens.bsky.social The patient voice matters deeply—and their experiences continue to enlighten and guide us. Grateful to stand together for better care.
#kidneycancer #IKCC25 @ikccorg.bsky.social @kidney-cancer.bsky.social @kidneycan.bsky.social @ascocancer.bsky.social
#kidneycancer #IKCC25 @ikccorg.bsky.social @kidney-cancer.bsky.social @kidneycan.bsky.social @ascocancer.bsky.social
April 6, 2025 at 3:48 PM
Thank you dear @debmaskens.bsky.social The patient voice matters deeply—and their experiences continue to enlighten and guide us. Grateful to stand together for better care.
#kidneycancer #IKCC25 @ikccorg.bsky.social @kidney-cancer.bsky.social @kidneycan.bsky.social @ascocancer.bsky.social
#kidneycancer #IKCC25 @ikccorg.bsky.social @kidney-cancer.bsky.social @kidneycan.bsky.social @ascocancer.bsky.social
Big congrats to Dr. Hatice Bölek!
Proud mentor moment!
Together, we can—and will—improve the quality of life for every patient facing cancer.
#IKCC25 #KidneyCancer #Oncology #PatientCare
@kidney-cancer.bsky.social @ikccorg.bsky.social @kidneycan.bsky.social @oncoalert.bsky.social
Proud mentor moment!
Together, we can—and will—improve the quality of life for every patient facing cancer.
#IKCC25 #KidneyCancer #Oncology #PatientCare
@kidney-cancer.bsky.social @ikccorg.bsky.social @kidneycan.bsky.social @oncoalert.bsky.social
Congratulations to Dr Hatice Bölek from Türkiye on receiving the 2025 Ken and Cecile Youner Scholarship! ikcc.org/ikcc-global-... #IKCC25
April 6, 2025 at 3:44 PM
Big congrats to Dr. Hatice Bölek!
Proud mentor moment!
Together, we can—and will—improve the quality of life for every patient facing cancer.
#IKCC25 #KidneyCancer #Oncology #PatientCare
@kidney-cancer.bsky.social @ikccorg.bsky.social @kidneycan.bsky.social @oncoalert.bsky.social
Proud mentor moment!
Together, we can—and will—improve the quality of life for every patient facing cancer.
#IKCC25 #KidneyCancer #Oncology #PatientCare
@kidney-cancer.bsky.social @ikccorg.bsky.social @kidneycan.bsky.social @oncoalert.bsky.social
That's a wrap for IKCC Global Summit. 3 days of radical collaborations, new alliances, bridges and possibilities to work together to reduce the global burden of #kidneycancer #ikcc25 @ikccorg.bsky.social
Group photo post conference... courtesy of Picasso, Madrid.
Group photo post conference... courtesy of Picasso, Madrid.
April 6, 2025 at 2:02 PM
That's a wrap for IKCC Global Summit. 3 days of radical collaborations, new alliances, bridges and possibilities to work together to reduce the global burden of #kidneycancer #ikcc25 @ikccorg.bsky.social
Group photo post conference... courtesy of Picasso, Madrid.
Group photo post conference... courtesy of Picasso, Madrid.
Great opportunity to meet and discuss real world PROs, QoL for patients with metastatic #kidneycancer in Turkiye. Impressive data on patient experiences thanks to @yukselurun.bsky.social and colleagues #ikcc25
Congratulations to Dr Hatice Bölek from Türkiye on receiving the 2025 Ken and Cecile Youner Scholarship! ikcc.org/ikcc-global-... #IKCC25
April 6, 2025 at 1:50 PM
Great opportunity to meet and discuss real world PROs, QoL for patients with metastatic #kidneycancer in Turkiye. Impressive data on patient experiences thanks to @yukselurun.bsky.social and colleagues #ikcc25
To close out the Building Evidence-Based Advocacy Skills series we focused on Influencing Policy Change looking at approaches to data-driven advocacy while incorporating community, networks and personal experiences. #IKCC25
April 6, 2025 at 11:57 AM
To close out the Building Evidence-Based Advocacy Skills series we focused on Influencing Policy Change looking at approaches to data-driven advocacy while incorporating community, networks and personal experiences. #IKCC25
Always a Global Summit favourite! During Clinical Hot Topics we heard from 3 physician experts about what is new in kidney cancer treatment. #IKCC25
April 6, 2025 at 11:31 AM
Always a Global Summit favourite! During Clinical Hot Topics we heard from 3 physician experts about what is new in kidney cancer treatment. #IKCC25
Day 2 kicked off with presentations and roundtable discussions focused on Disseminating the Evidence. We learned more about how evidence can drive organisational strategy and ways to share data results with audiences. #IKCC25
April 6, 2025 at 11:24 AM
Day 2 kicked off with presentations and roundtable discussions focused on Disseminating the Evidence. We learned more about how evidence can drive organisational strategy and ways to share data results with audiences. #IKCC25
The 1st session on Evidence-Based Advocacy was Uncovering the Evidence. Presentations and roundtable discussions focused on generating evidence to drive policy change, including creating surveys to maximising participation. #IKCC25
April 6, 2025 at 9:41 AM
The 1st session on Evidence-Based Advocacy was Uncovering the Evidence. Presentations and roundtable discussions focused on generating evidence to drive policy change, including creating surveys to maximising participation. #IKCC25
April 5, 2025 at 9:19 PM
The 1st session on Evidence-Based Advocacy was Uncovering the Evidence. Presentations and roundtable discussions focused on generating evidence to drive policy change, including creating surveys to maximising participation. #IKCC25
Advocacy expert Neil Bertelsen’s inspiring keynote address We are all superheroes: Our role in Decision-Making recalled HIV patient advocacy in the 1980s that led to more patient inclusion in health decisions today. #IKCC25
April 5, 2025 at 8:48 PM
Advocacy expert Neil Bertelsen’s inspiring keynote address We are all superheroes: Our role in Decision-Making recalled HIV patient advocacy in the 1980s that led to more patient inclusion in health decisions today. #IKCC25
The second day of the IKCC Global Kidney Cancer Summit was busy and productive! There were lots of discussions, learnings from the IKCC Global Patient Survey on Kidney Cancer and Growths, an informative presentation from the Lymphoma Coalition, and more! #IKCC25
April 5, 2025 at 8:31 PM
The second day of the IKCC Global Kidney Cancer Summit was busy and productive! There were lots of discussions, learnings from the IKCC Global Patient Survey on Kidney Cancer and Growths, an informative presentation from the Lymphoma Coalition, and more! #IKCC25
Congratulations to Dr Hatice Bölek from Türkiye on receiving the 2025 Ken and Cecile Youner Scholarship! ikcc.org/ikcc-global-... #IKCC25
April 5, 2025 at 8:17 PM
Congratulations to Dr Hatice Bölek from Türkiye on receiving the 2025 Ken and Cecile Youner Scholarship! ikcc.org/ikcc-global-... #IKCC25
Thank you for your presentation today @lauraesfeller.bsky.social! Great to see you on screen. Next time in person! #ikcc25 #kidneycancer #patientengagement
April 5, 2025 at 4:52 PM
Thank you for your presentation today @lauraesfeller.bsky.social! Great to see you on screen. Next time in person! #ikcc25 #kidneycancer #patientengagement
Dr Ignacio Durán gathered his fellow Spanish oncologists and patient organisation leaders to discuss Systemic Treatment of Renal Cell Cancer in Spain in 2025: Challenges Ahead. This interactive solutions oriented event took place adjacent to #IKCC25 and was organised by IKCC & the GUARD Consortium.
April 4, 2025 at 2:02 PM
Dr Ignacio Durán gathered his fellow Spanish oncologists and patient organisation leaders to discuss Systemic Treatment of Renal Cell Cancer in Spain in 2025: Challenges Ahead. This interactive solutions oriented event took place adjacent to #IKCC25 and was organised by IKCC & the GUARD Consortium.
The IKCC Board of Directors had the opportunity to meet face to face prior to the IKCC Global Kidney Cancer Summit in Madrid. Lots of great discussions! #IKCC25
April 4, 2025 at 1:43 PM
The IKCC Board of Directors had the opportunity to meet face to face prior to the IKCC Global Kidney Cancer Summit in Madrid. Lots of great discussions! #IKCC25
The IKCC Global Kidney Cancer Summit is off to a great start, including opening remarks from our Chair Dr Michael Jewett, Juan Carlos Julián Mauro from Federación Nacional de Asociaciones Alcer and Aránzazu González del Alba from the Spanish Oncology Genitourinary Group (SOGUG). #IKCC25
April 4, 2025 at 1:39 PM
The IKCC Global Kidney Cancer Summit is off to a great start, including opening remarks from our Chair Dr Michael Jewett, Juan Carlos Julián Mauro from Federación Nacional de Asociaciones Alcer and Aránzazu González del Alba from the Spanish Oncology Genitourinary Group (SOGUG). #IKCC25