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#patientvoices #kidneyadvocacy #passrestoreact #carewithoutbarriers #kidneycommunity | Dialysis Patient Citizens
Patients deserve to be heard—and protected. In her letter to the editor, DPC patient ambassador Alicia Lee shares why protecting people living with kidney disease must remain a priority. Her firsthand...
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September 11, 2026 at 9:41 PM
theisn.org
⚠ @kireports.bsky.social September issue is out!

Read the latest news in research, highlights from current literature, comprehensive reviews, and in-depth case studies.

www.kireports.org/cu...

#ThisIsISN #Nephrology #Journal #Research #KidneyCommunity #Kidney #OpenAccess
September 7, 2026 at 12:00 PM
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For PKD Awareness Week, we're sharing stories from our #KidneyCommunity. Marc was diagnosed with PKD in 2002, and after years of dialysis, he received a kidney transplant in 2017.

See what life after a transplant has been like 👉 kidneycareuk.org/kidney-disease-information/your-stories/marcs-story
An man stands triumphantly on a large rock at the Everest Base Camp, with arms outstretched. The rock has colorful text that reads "Everest Base Camp 5364 m." In the top left corner, there is the Kidney Care UK logo. A section below the image features a quote about the impact of kidney disease and the commitment to promoting organ donation, credited to "Marc's story." Snow-covered mountains form the backdrop.
September 6, 2026 at 11:54 AM
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#transplantambassadorprogram #transplantambassador #kidneynation #kidneycommunity #transplantcommunity #transplant1st #londonhealthsciencescentre | Transplant Ambassador Program
🔈Spotlight: Ron Beltrame We are happy to recognize our TAP Ambassador, Ron Beltrame, who is from Thornbury, Ontario. Ron was diagnosed with polycystic kidney disease, which eventually led to kidney f...
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August 14, 2026 at 5:47 PM
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#kidneycommunity | Kidney Care UK
Day one at the British Transplant Games has been nothing short of amazing! We've loved meeting so many incredible people and hearing their stories, including Luke and Rosie from Team Bristol and Tho...
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August 7, 2026 at 7:58 PM
kidneycareuk.bsky.social
Day one at the British Transplant Games has been amazing!

We've loved meeting so many incredible people, hearing inspiring stories, and connecting with the #KidneyCommunity.

Thanks to everyone who's stopped by to say hello, we can't wait to meet more of you this weekend!
A man and a child wearing matching blue "Bristol Children's Team" shirts pose together indoors. The child has a race bib numbered 273 and gives a thumbs-up. The adult holds a book titled "Percy Jackson and the Lightning Thief." A "Kidney Care UK" banner and informational stand are visible in the background. Two people smiling and standing behind a table at a Kidney Care UK event. They are holding Kidney Care UK flags. The table is covered with promotional materials, including a banner and branded items like bags and hats. A sign on the wall provides information about the venue's layout. Two women are seated indoors, engaged in an interview. Both are holding microphones. One person is wearing a lanyard with a badge and has a bright orange Kidney Care UK bag. There's a large window in the background showing a view of trees and parked cars. A group of young participants wearing hoodies and hats are gathered indoors, smiling and posing with a bright orange drawstring bag that reads "Kidney Care UK." They are surrounded by banners for Kidney Care UK and the Transplant Games, with two women in the background also smiling, standing beside a table with brochures.
August 7, 2026 at 5:08 PM
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Introducing some of our golfers after a day on the course!

@gstt-nhs.bsky.social @kidneycareuk.bsky.social
#OrganDonation #TransplantAthletes #ShareYourWishes #LiveLifeGiveLife
#KidneyCommunity #TransplantCommunity
August 6, 2026 at 6:33 PM
theisn.org
⚠ @kireports.bsky.social August issue is out!

Read the latest news in research, highlights from current literature, comprehensive reviews, and in-depth case studies.

www.kireports.org/cu...

#ThisIsISN #Nephrology #Journal #Research #KidneyCommunity #Kidney #OpenAccess
August 6, 2026 at 6:00 AM
kidneycareuk.bsky.social
Good luck to all the athletes heading to the British Transplant Games in Sheffield! We'll be set up in a different spot each day, so check this post to find our location.

We're so proud to support our #KidneyCommunity represent the impact of #OrganDonation.

#BTG2026
Graphic listing the locations of Kidney Care Uk at the British Transplant Games 2026. The locations are August 7th at the English Institute of Sport, August 8th at Ponds Forge International Sports Centre, and August 9th at the English Institute of Sport. Locations are in Sheffield. The Kidney Care UK logo is at the bottom right.
August 5, 2026 at 4:51 PM
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#patientvoices #kidneyadvocacy #passrestoreact #carewithoutbarriers #kidneycommunity | Dialysis Patient Citizens
Behind every policy is a person whose life has been impacted by kidney disease. In her Letter to the Editor, Lisa Baxter shares her journey and why protecting access to affordable dialysis care is so ...
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August 1, 2026 at 7:17 PM
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#kidneycommunity #patientadvocacy #kidneytransplant #fsgs #renalsupportnetwork | Marc A. Coronel
I’m honored to announce that I’ll be the opening speaker for the 33rd Renal Support Network Patient Meeting on Sunday, August 16, from 11:00 AM–3:00 PM in Burbank. My kidney journey began with an FSG...
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July 30, 2026 at 8:29 PM
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#patientvoices #kidneyadvocacy #passrestoreact #carewithoutbarriers #kidneycommunity | Dialysis Patient Citizens
A kidney disease diagnosis can change your life in an instant. In this powerful Letter to the Editor, Edward White shares how a routine medical visit led to the unexpected discovery of kidney failure—...
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July 17, 2026 at 6:52 PM
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#patientvoices #kidneyadvocacy #passrestoreact #carewithoutbarriers #kidneycommunity | Dialysis Patient Citizens
Behind every policy is a person whose life has been impacted by kidney disease. In her Letter to the Editor, Lisa Baxter shares her journey and why protecting access to affordable dialysis care is so ...
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July 13, 2026 at 11:38 PM
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#kidneyadvocacy #dialysispatients #patientvoices #kidneycommunity #advocacyinaction | Dialysis Patient Citizens
Real change starts when patients' voices are heard. Next week, kidney care advocates are coming together in Washington, D.C. to speak up for the dialysis community and help shape the policies that imp...
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July 11, 2026 at 4:09 PM
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#chronicdiseaseday #kidneyhealth #chronicillness #dialysispatients #patientsupport #kidneycommunity | Dialysis Patient Citizens
Living with a chronic disease comes with challenges that extend far beyond medical appointments. Managing your health also means caring for your mental, emotional, and physical well-being. This Chroni...
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July 10, 2026 at 4:28 PM
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#2galskidneypodcast #kidneynation #kidneycommunity #transplantcommunity #transplant1st #transplantambassadorprogram #kidneyalliancecanada | Transplant Ambassador Program
Season 1 of The Gals and a Kidney Podcast is now fully available on Spotify! 🎧 Join Sue and Lynn as they share inspiring stories, meaningful conversations, and experiences from the kidney and transpl...
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July 8, 2026 at 8:58 PM
theisn.org
⚠ @kireports.bsky.social July issue is out!

Read the latest news in research, highlights from current literature, comprehensive reviews, and in-depth case studies.

www.kireports.org/cu...

#ThisIsISN #Nephrology #Journal #Research #KidneyCommunity #Kidney #OpenAccess
July 6, 2026 at 6:00 AM
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#nephcure #patientsummit #rarekidneydisease #fsgs #kidneycommunity #patientadvocacy #raredisease #facingstrugglegainingstrength | Jaime Albright, MSW
Just returning from the NephCure Patient Summit. 💚 NephCure’s annual Patient Summit brings together patients, caregivers, healthcare providers, educators, and biopharmaceutical companies, all working...
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June 28, 2026 at 6:22 PM
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#kidneyadvocacy #dialysispatients #patientvoices #kidneycommunity #advocacyinaction | Dialysis Patient Citizens
Real change starts when patients' voices are heard. Next week, kidney care advocates are coming together in Washington, D.C. to speak up for the dialysis community and help shape the policies that imp...
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June 25, 2026 at 2:02 PM
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#remend #renalroundtable #kidneycare #kidneydisease #nephrology #patienteducation #kidneycommunity #balboanephrology | ReMend
ReMend Renal Roundtable is a space for real conversations about kidney disease, care, support, and the people behind the journey. In this episode, Kiku and Jeanmarie talk with Dr. Mark Boiskin, Neph...
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June 17, 2026 at 11:25 AM
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#transplantambassadorprogram #transplantambassador #kidneynation #kidneycommunity #transplantcommunity #transplant1st | Transplant Ambassador Program
Kidney Transplant Education Night | June 1st 2026 We were pleased to take part in Kidney Transplant Education Night held at William Osler Health System in Brampton. A special thank you to our TAP Am...
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June 15, 2026 at 7:03 PM
theisn.org
⚠ @kireports.bsky.social June issue is out!

Read the latest news in research, highlights from current literature, comprehensive reviews, and in-depth case studies.

www.kireports.org/cu...

#ThisIsISN #Nephrology #Journal #Research #KidneyCommunity #Kidney #OpenAccess
June 4, 2026 at 12:00 PM
kidneycareuk.bsky.social
Travelling with kidney disease isn’t always easy, so we asked the #KidneyCommunity to share their top tips for making journeys safer and less stressful.

From learning a few local phrases to knowing the rest stops, here are your top tips for being out and about while traveling.
Check how to contact the local health system wherever you are. Check for the nearest hospitals, doctors surgeries, kidney units and pharmacies. If you can, learn some phrases in the local language when travelling abroad, such as: 'I have kidney disease', 'I don’t feel well', 'Where is the nearest doctor / hospital / pharmacy', 'Please tell the chef not to cook my meal with added salt'. Be aware of where the nearest toilets are when you are out and about. Stay safe in the sun if you are a transplant recipient. Wear a broad-brimmed hat during the day.
May 22, 2026 at 6:00 PM
kidneycareuk.bsky.social
Lupus doesn’t just affect joints and skin, it can also cause serious kidney damage, known as lupus nephritis ➡️ kidneycareuk.org/kidney-disease-information/kidney-conditions/lupus-nephritis

Hear from our #KidneyCommunity 👉 kidneycareuk.org/kidney-disease-information/your-stories/living-with-lupus
A graphic for World Lupus Day by Kidney Care UK, dated 10 May 2026. It features illustrated hands holding a globe with a purple ribbon. The text reads: "It's World Lupus Day! We’re highlighting your stories." A white man wearing glasses and a black shirt sits at a table. A quote says "It is exhausting, and it can get to the stage where people will annoy you with little comments, but as time goes by you just learn to get on with it. Learn to live with it and enjoy life to the max by making those adjustments whether they're big or small. Family support is crucial." A selfie of a white woman with glasses in a sunny street. She has brown hair. A quote over the image says "Lupus is part of me, it always has been and always will be. So, I choose to live with it as positively as possible." A selfie of a black woman in a car with grey interior. She has winged eyeliner and nose piercings. A quote over the image says "Lupus and kidney disease changed my life in ways I never expected, asked for or wanted. But I came to accept these changes as they made me who I am today."
May 10, 2026 at 9:10 AM
kidneycareuk.bsky.social
Travelling with kidney disease isn’t always easy, so we asked the #KidneyCommunity to share their top tips for making journeys smoother, safer, and less stressful.

From taking extra supplies to planning your routine in advance, here are your top tips for medication and emergency information.
Ground floor accommodation is better in my experience. You don’t want to be carrying all your dialysis kit upstairs if you don't have to. Arrange to have your peritoneal dialysis equipment pre-delivered to your holiday address and discuss assistance with shipping costs with your dialysis unit. Make sure you give them plenty of notice. Take hot water bottles to warm the fluids, and gloves and masks to reduce the risk of infection to your exit site. A couple of wire coat hangers can be used to hang bags of fluids. Pack an extension cable so that you can place your PD machine wherever you want in your room.
May 6, 2026 at 6:05 PM