This #OrganDonationWeek, we’re sharing stories from our community 💙 Diagnosed with PSC at 23, Katie went from liver failure at 28 to a second chance at life at 30 thanks to a donor’s kindness. Read her story & find out how to register your decision: buff.ly/3NBiCoo
#LetsBeatPSC #OrganDonation
#LetsBeatPSC #OrganDonation
September 21, 2026 at 9:01 AM
This #OrganDonationWeek, we’re sharing stories from our community 💙 Diagnosed with PSC at 23, Katie went from liver failure at 28 to a second chance at life at 30 thanks to a donor’s kindness. Read her story & find out how to register your decision: buff.ly/3NBiCoo
#LetsBeatPSC #OrganDonation
#LetsBeatPSC #OrganDonation
Unfortunately not all livers are this happy which is why we are trying to understand the gut-liver axis in PSC #LetsBeatPSC #EASLCongress #EASLCongress2026
May 29, 2026 at 9:55 AM
Unfortunately not all livers are this happy which is why we are trying to understand the gut-liver axis in PSC #LetsBeatPSC #EASLCongress #EASLCongress2026
Every patient’s experience deserves to be heard, measured, and improved.
💬 Talk to your loved ones about organ donation today.
✍️ Register your wishes with @NHSOrganDonor.
#LetsBeatPSC #OrganDonationWeek #DonateLife
💬 Talk to your loved ones about organ donation today.
✍️ Register your wishes with @NHSOrganDonor.
#LetsBeatPSC #OrganDonationWeek #DonateLife
September 25, 2026 at 8:45 AM
Every patient’s experience deserves to be heard, measured, and improved.
💬 Talk to your loved ones about organ donation today.
✍️ Register your wishes with @NHSOrganDonor.
#LetsBeatPSC #OrganDonationWeek #DonateLife
💬 Talk to your loved ones about organ donation today.
✍️ Register your wishes with @NHSOrganDonor.
#LetsBeatPSC #OrganDonationWeek #DonateLife
20 minutes today, could pave the way to finding effective treatments for PSC. This International #PSCTreatment Evidence Survey is collecting critical data that will help shape trial designs, clinical guidelines & research priorities for years to come.
➡️ buff.ly/3KZjqaZ #LetsBeatPSC
➡️ buff.ly/3KZjqaZ #LetsBeatPSC
September 27, 2026 at 9:00 AM
20 minutes today, could pave the way to finding effective treatments for PSC. This International #PSCTreatment Evidence Survey is collecting critical data that will help shape trial designs, clinical guidelines & research priorities for years to come.
➡️ buff.ly/3KZjqaZ #LetsBeatPSC
➡️ buff.ly/3KZjqaZ #LetsBeatPSC
We’ve arrived! 🇪🇸 Martine & Mark are officially in Barcelona for the @EASLnews Congress. The PSC Support stall is set up & they've already started meeting with international patient organizations to unite our voice. Stay tuned for updates. #EASL2026 #LetsBeatPSC #PatientAdvocacy
May 27, 2026 at 7:15 AM
We’ve arrived! 🇪🇸 Martine & Mark are officially in Barcelona for the @EASLnews Congress. The PSC Support stall is set up & they've already started meeting with international patient organizations to unite our voice. Stay tuned for updates. #EASL2026 #LetsBeatPSC #PatientAdvocacy
Good luck Gillian and John, who are cycling London to Paris starting 23rd September! Join us in wishing them smooth roads, clear skies, and strong tailwinds! Show support by dropping a 💙 in the comments or donating:
pscsupport.enthuse.com/pf/john-gill... #TeamPSCSupport #LetsBeatPSC
pscsupport.enthuse.com/pf/john-gill... #TeamPSCSupport #LetsBeatPSC
September 20, 2026 at 6:01 PM
Good luck Gillian and John, who are cycling London to Paris starting 23rd September! Join us in wishing them smooth roads, clear skies, and strong tailwinds! Show support by dropping a 💙 in the comments or donating:
pscsupport.enthuse.com/pf/john-gill... #TeamPSCSupport #LetsBeatPSC
pscsupport.enthuse.com/pf/john-gill... #TeamPSCSupport #LetsBeatPSC
The FARGO Trial is recruiting now, investigating if "good" gut bacteria (FMT) can slow disease progression.
📍Birmingham, London, Oxford + more
⚕️8 weeks of treatment
✅️For those with PSC & IBD.
Find out more: pscsupport.org.uk/find-psc-res... #LetsBeatPSC #PSCSupport #RareDisease
📍Birmingham, London, Oxford + more
⚕️8 weeks of treatment
✅️For those with PSC & IBD.
Find out more: pscsupport.org.uk/find-psc-res... #LetsBeatPSC #PSCSupport #RareDisease
May 5, 2026 at 8:15 AM
The FARGO Trial is recruiting now, investigating if "good" gut bacteria (FMT) can slow disease progression.
📍Birmingham, London, Oxford + more
⚕️8 weeks of treatment
✅️For those with PSC & IBD.
Find out more: pscsupport.org.uk/find-psc-res... #LetsBeatPSC #PSCSupport #RareDisease
📍Birmingham, London, Oxford + more
⚕️8 weeks of treatment
✅️For those with PSC & IBD.
Find out more: pscsupport.org.uk/find-psc-res... #LetsBeatPSC #PSCSupport #RareDisease
Good luck to James at the Blenheim Triathlon, sporting his shiny new goggles! Today is also #WorldTransplantDay, making this challenge extra special as James is a liver transplant recipient. pscsupport.enthuse.com/pf/james-law... #LetsBeatPSC #BlenheimTriathlon #OrganDonation #PSCSupport
June 6, 2026 at 7:00 AM
Good luck to James at the Blenheim Triathlon, sporting his shiny new goggles! Today is also #WorldTransplantDay, making this challenge extra special as James is a liver transplant recipient. pscsupport.enthuse.com/pf/james-law... #LetsBeatPSC #BlenheimTriathlon #OrganDonation #PSCSupport
This #OrganDonationWeek, read Daniel's inspiring journey of living with PSC & receiving a life-saving liver transplant 💙
Transplants save lives. 💗 Speak to your loved ones and register your decision with @NHSOrganDonor today.
Daniel's story: buff.ly/xfzFM3b
#LetsBeatPSC #DonateLife
Transplants save lives. 💗 Speak to your loved ones and register your decision with @NHSOrganDonor today.
Daniel's story: buff.ly/xfzFM3b
#LetsBeatPSC #DonateLife
September 23, 2026 at 8:45 AM
This #OrganDonationWeek, read Daniel's inspiring journey of living with PSC & receiving a life-saving liver transplant 💙
Transplants save lives. 💗 Speak to your loved ones and register your decision with @NHSOrganDonor today.
Daniel's story: buff.ly/xfzFM3b
#LetsBeatPSC #DonateLife
Transplants save lives. 💗 Speak to your loved ones and register your decision with @NHSOrganDonor today.
Daniel's story: buff.ly/xfzFM3b
#LetsBeatPSC #DonateLife
A great oportunity for people with primary sclerosing cholangitis to participate in a faecal microbiome transplant study.
#microbiome
#FMT
#LetsBeatPSC
#microbiome
#FMT
#LetsBeatPSC
Transplanting 💩 as a treatment for PSC? Dr Trivedi and his team @unibirmingham.bsky.social continue to recruit participants for this important study. Could you take part?
➡️ pscsupport.org.uk/find-psc-res...
#LetsBeatPSC #FARGO #PSC #IBD #LetsBeatPSC #Colitis #Crohns @lifearc.bsky.social
➡️ pscsupport.org.uk/find-psc-res...
#LetsBeatPSC #FARGO #PSC #IBD #LetsBeatPSC #Colitis #Crohns @lifearc.bsky.social
August 8, 2025 at 8:46 AM
A great oportunity for people with primary sclerosing cholangitis to participate in a faecal microbiome transplant study.
#microbiome
#FMT
#LetsBeatPSC
#microbiome
#FMT
#LetsBeatPSC
This #WorldLiverDay, we're shining a light on #PSC—a rare liver disease still called “the last black box in hepatology.” There's no cure yet, but you can help change that. 💛 Share this post to raise awareness and learn more ➡️ pscsupport.org.uk
#LetsBeatPSC #Mission2030
#LetsBeatPSC #Mission2030
April 19, 2025 at 7:47 AM
This #WorldLiverDay, we're shining a light on #PSC—a rare liver disease still called “the last black box in hepatology.” There's no cure yet, but you can help change that. 💛 Share this post to raise awareness and learn more ➡️ pscsupport.org.uk
#LetsBeatPSC #Mission2030
#LetsBeatPSC #Mission2030
This #OrganDonationWeek we're sharing Maja's story, from an unexpected PSC diagnosis to a life-saving liver transplant just 2 months ago.
➡️ buff.ly/YewZS4w #LetsBeatPSC #LiverRecipient #OrganDonation @nhsorgandonor
➡️ buff.ly/YewZS4w #LetsBeatPSC #LiverRecipient #OrganDonation @nhsorgandonor
September 22, 2026 at 9:01 AM
This #OrganDonationWeek we're sharing Maja's story, from an unexpected PSC diagnosis to a life-saving liver transplant just 2 months ago.
➡️ buff.ly/YewZS4w #LetsBeatPSC #LiverRecipient #OrganDonation @nhsorgandonor
➡️ buff.ly/YewZS4w #LetsBeatPSC #LiverRecipient #OrganDonation @nhsorgandonor
Encouraging news for the PSC community! 🌟 Positive results from Chemomab's Phase 2 trial of #Nebokitug show promise for PSC treatment. Read more: pscsupport.org.uk/chemomab-rep... #LetsBeatPSC
April 22, 2025 at 9:01 AM
Encouraging news for the PSC community! 🌟 Positive results from Chemomab's Phase 2 trial of #Nebokitug show promise for PSC treatment. Read more: pscsupport.org.uk/chemomab-rep... #LetsBeatPSC
"Nine months post transplant and everything has been going incredibly well so far." Thank you Ben for sharing your story. #LetsBeatPSC #PSC #LiverRecipient #OrganDonation buff.ly/xcHU8eo
March 9, 2025 at 10:00 AM
"Nine months post transplant and everything has been going incredibly well so far." Thank you Ben for sharing your story. #LetsBeatPSC #PSC #LiverRecipient #OrganDonation buff.ly/xcHU8eo
PSC affects everyone differently, and that’s why your story matters. This #RareDiseaseDay (Feb 28) your journey with PSC can help others feel less alone.
Ready to share? 💌 emily@pscsupport.org.uk @rarediseasedayofficial #LetsBeatPSC
Ready to share? 💌 emily@pscsupport.org.uk @rarediseasedayofficial #LetsBeatPSC
February 7, 2026 at 6:00 PM
PSC affects everyone differently, and that’s why your story matters. This #RareDiseaseDay (Feb 28) your journey with PSC can help others feel less alone.
Ready to share? 💌 emily@pscsupport.org.uk @rarediseasedayofficial #LetsBeatPSC
Ready to share? 💌 emily@pscsupport.org.uk @rarediseasedayofficial #LetsBeatPSC
“I don’t feel like an unlucky mom, I feel grateful for every day.” 💙
Francesca’s son has faced PSC with courage through two liver transplants. Their story is one of love, empathy, and strength - proof that even in hardship, hope shines through.
#PSCAwarenessDay #ELPA #LetsBeatPSC
Francesca’s son has faced PSC with courage through two liver transplants. Their story is one of love, empathy, and strength - proof that even in hardship, hope shines through.
#PSCAwarenessDay #ELPA #LetsBeatPSC
October 28, 2025 at 9:02 AM
“I don’t feel like an unlucky mom, I feel grateful for every day.” 💙
Francesca’s son has faced PSC with courage through two liver transplants. Their story is one of love, empathy, and strength - proof that even in hardship, hope shines through.
#PSCAwarenessDay #ELPA #LetsBeatPSC
Francesca’s son has faced PSC with courage through two liver transplants. Their story is one of love, empathy, and strength - proof that even in hardship, hope shines through.
#PSCAwarenessDay #ELPA #LetsBeatPSC
September 19, 2025 at 2:23 PM
Location in the digestive tract matters!
💩 microbiota ≠ duodenal microbiota
As our understanding of the effect of the #microbiome in #PSC grows, it beomes more nuanced.
#LetsBeatPSC
#primarysclerosingcholangitis
💩 microbiota ≠ duodenal microbiota
As our understanding of the effect of the #microbiome in #PSC grows, it beomes more nuanced.
#LetsBeatPSC
#primarysclerosingcholangitis
Reconsidering the microbial origins of primary sclerosing cholangitis and related autoimmune disorders: A case for the antro‐duodenal microbiome | Request PDF
Request PDF | On Aug 5, 2025, Richard Kellermayer and others published Reconsidering the microbial origins of primary sclerosing cholangitis and related autoimmune disorders: A case for the antro‐duod...
www.researchgate.net
August 12, 2025 at 8:43 AM
Location in the digestive tract matters!
💩 microbiota ≠ duodenal microbiota
As our understanding of the effect of the #microbiome in #PSC grows, it beomes more nuanced.
#LetsBeatPSC
#primarysclerosingcholangitis
💩 microbiota ≠ duodenal microbiota
As our understanding of the effect of the #microbiome in #PSC grows, it beomes more nuanced.
#LetsBeatPSC
#primarysclerosingcholangitis
We’re here for everyone affected by PSC — including parents, carers & friends. Join us in Newport, Wales for expert talks & real-life stories, like Sue’s, whose child has PSC. 💛 Free to attend! Register: buff.ly/w7ii9td
#LetsBeatPSC #PSCInfoDay
#LetsBeatPSC #PSCInfoDay
April 23, 2025 at 8:17 AM
We’re here for everyone affected by PSC — including parents, carers & friends. Join us in Newport, Wales for expert talks & real-life stories, like Sue’s, whose child has PSC. 💛 Free to attend! Register: buff.ly/w7ii9td
#LetsBeatPSC #PSCInfoDay
#LetsBeatPSC #PSCInfoDay
I will be running the London Landmarks half marathon next week. Each step for @pscsupport.bsky.social 💜
If you want to support the cause and my legs here is the fundraising link www.justgiving.com/page/miki-sc...
#LetsBeatPSC
If you want to support the cause and my legs here is the fundraising link www.justgiving.com/page/miki-sc...
#LetsBeatPSC
March 30, 2025 at 7:04 AM
I will be running the London Landmarks half marathon next week. Each step for @pscsupport.bsky.social 💜
If you want to support the cause and my legs here is the fundraising link www.justgiving.com/page/miki-sc...
#LetsBeatPSC
If you want to support the cause and my legs here is the fundraising link www.justgiving.com/page/miki-sc...
#LetsBeatPSC
Just a totally normal day for Mark — casually strolling through a giant colon, snuggling up to a polyp, and chatting with gastroenterologists, hepatologists, researchers, nurses, & charities #BSG2025 this week. Nothing to see here… 👀💩 #LetsBeatPSC @gutscharityuk.bsky.social
June 25, 2025 at 8:01 AM
Just a totally normal day for Mark — casually strolling through a giant colon, snuggling up to a polyp, and chatting with gastroenterologists, hepatologists, researchers, nurses, & charities #BSG2025 this week. Nothing to see here… 👀💩 #LetsBeatPSC @gutscharityuk.bsky.social
How can we better predict disease progression in PSC?
New research highlights active vitamin B6 as a potential prognostic biomarker. Studies suggest measuring B6 could help assess risk & improve monitoring for people living with #PSC.
➡️ buff.ly/dqOmSUj #LetsBeatPSC #PSCResearch
New research highlights active vitamin B6 as a potential prognostic biomarker. Studies suggest measuring B6 could help assess risk & improve monitoring for people living with #PSC.
➡️ buff.ly/dqOmSUj #LetsBeatPSC #PSCResearch
July 28, 2026 at 9:01 AM
How can we better predict disease progression in PSC?
New research highlights active vitamin B6 as a potential prognostic biomarker. Studies suggest measuring B6 could help assess risk & improve monitoring for people living with #PSC.
➡️ buff.ly/dqOmSUj #LetsBeatPSC #PSCResearch
New research highlights active vitamin B6 as a potential prognostic biomarker. Studies suggest measuring B6 could help assess risk & improve monitoring for people living with #PSC.
➡️ buff.ly/dqOmSUj #LetsBeatPSC #PSCResearch
Our May Helpline slots are now available. Whether you want to chat through a new diagnosis or just need a listening ear, our specialist nurse, Loren, is here for you.
buff.ly/6jqZazn #LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #Helpline @HelplinesUK
buff.ly/6jqZazn #LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #Helpline @HelplinesUK
May 1, 2026 at 9:01 AM
Our May Helpline slots are now available. Whether you want to chat through a new diagnosis or just need a listening ear, our specialist nurse, Loren, is here for you.
buff.ly/6jqZazn #LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #Helpline @HelplinesUK
buff.ly/6jqZazn #LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #Helpline @HelplinesUK
Join #TeamPSCSupport and help us fund vital support and research! Whether you run, cycle, or skydive, every mile brings us closer to a cure.
Grab one of our charity places or create your own event!
👉 buff.ly/7qNG1NN #LetsBeatPSC fundraising@pscsupport.org.uk
Grab one of our charity places or create your own event!
👉 buff.ly/7qNG1NN #LetsBeatPSC fundraising@pscsupport.org.uk
January 18, 2026 at 10:01 AM
Join #TeamPSCSupport and help us fund vital support and research! Whether you run, cycle, or skydive, every mile brings us closer to a cure.
Grab one of our charity places or create your own event!
👉 buff.ly/7qNG1NN #LetsBeatPSC fundraising@pscsupport.org.uk
Grab one of our charity places or create your own event!
👉 buff.ly/7qNG1NN #LetsBeatPSC fundraising@pscsupport.org.uk