November 29, 2024 at 2:22 AM
The time I re-lit the menorah so Ori could sing happy birthday and blow out the candles. #LifeWithOri #NICUBaby #Candles #Hanukkah #HisFavoriteThing #FacebookMemories #OnThisDay
December 21, 2024 at 3:30 PM
The time I re-lit the menorah so Ori could sing happy birthday and blow out the candles. #LifeWithOri #NICUBaby #Candles #Hanukkah #HisFavoriteThing #FacebookMemories #OnThisDay
I’ve been calling this kid a rockstar his whole life… turns out I was just predicting the future. 🎸✨ #LifeWithOri #guitar #rockstar #specialneedsmom
September 3, 2025 at 2:28 AM
I’ve been calling this kid a rockstar his whole life… turns out I was just predicting the future. 🎸✨ #LifeWithOri #guitar #rockstar #specialneedsmom
My child made it onto the news today. That is Ori with his one on one aid at school, Mr. James. His teacher was kind enough to record this and send it to me. I love this kid y’all!
Thanks ABC Action News
#LifeWithOri #Autism #DownSyndrome #NICUBaby #GoBirds #FlyEaglesFly #Philly
Thanks ABC Action News
#LifeWithOri #Autism #DownSyndrome #NICUBaby #GoBirds #FlyEaglesFly #Philly
January 31, 2025 at 11:33 PM
My child made it onto the news today. That is Ori with his one on one aid at school, Mr. James. His teacher was kind enough to record this and send it to me. I love this kid y’all!
Thanks ABC Action News
#LifeWithOri #Autism #DownSyndrome #NICUBaby #GoBirds #FlyEaglesFly #Philly
Thanks ABC Action News
#LifeWithOri #Autism #DownSyndrome #NICUBaby #GoBirds #FlyEaglesFly #Philly
Easter egg hunt at school today. #LifeWithOri
April 10, 2025 at 10:19 PM
Easter egg hunt at school today. #LifeWithOri
May 9, 2025 at 6:14 PM
May 5, 2025 at 12:34 PM
He emptied his backpack while I was making his dinner and he showed me the medal.
I am just so proud of him and I am so grateful for his team at school!
#LifeWithOri #StudentOfTheMonth #nicubaby #downsyndrome #autism
I am just so proud of him and I am so grateful for his team at school!
#LifeWithOri #StudentOfTheMonth #nicubaby #downsyndrome #autism
January 10, 2025 at 1:30 AM
He emptied his backpack while I was making his dinner and he showed me the medal.
I am just so proud of him and I am so grateful for his team at school!
#LifeWithOri #StudentOfTheMonth #nicubaby #downsyndrome #autism
I am just so proud of him and I am so grateful for his team at school!
#LifeWithOri #StudentOfTheMonth #nicubaby #downsyndrome #autism
And he woke up before I was even able to post the picture. He’s home with a fever but still extremely hyper and energetic. I am running on very little sleep with a lot of pressure and stress right now. Please send good vibes and please share my GoFundMe. #LifeWithOri #SickDay gofund.me/ac002b0c2
March 17, 2026 at 2:54 PM
And he woke up before I was even able to post the picture. He’s home with a fever but still extremely hyper and energetic. I am running on very little sleep with a lot of pressure and stress right now. Please send good vibes and please share my GoFundMe. #LifeWithOri #SickDay gofund.me/ac002b0c2
Ori did his hair with some Curls Rock while I was making his lunch. The pride he had filled my heart! And the fact that poetry by Havva Ramadan came up as the audio is just perfection to me. #mothers #havvaramadan #poetry #LifeWithOri #NICUBaby
January 29, 2025 at 5:31 PM
Ori did his hair with some Curls Rock while I was making his lunch. The pride he had filled my heart! And the fact that poetry by Havva Ramadan came up as the audio is just perfection to me. #mothers #havvaramadan #poetry #LifeWithOri #NICUBaby
It hasn’t even snowed yet.
Monday is virtual.
Ori cannot log in because… no Chromebook.
Cool cool cool. #snowstorm #philly #school #lifewithori #lifewithezra
Monday is virtual.
Ori cannot log in because… no Chromebook.
Cool cool cool. #snowstorm #philly #school #lifewithori #lifewithezra
February 22, 2026 at 1:39 AM
It hasn’t even snowed yet.
Monday is virtual.
Ori cannot log in because… no Chromebook.
Cool cool cool. #snowstorm #philly #school #lifewithori #lifewithezra
Monday is virtual.
Ori cannot log in because… no Chromebook.
Cool cool cool. #snowstorm #philly #school #lifewithori #lifewithezra
Ori knows it’s Phish shirt Friday without any reminders.
I think he’s trying to get a modeling gig with phishdrygoods 😭 #LifeWithOri #PhishShirtFriday
I think he’s trying to get a modeling gig with phishdrygoods 😭 #LifeWithOri #PhishShirtFriday
March 21, 2025 at 8:38 PM
Ori knows it’s Phish shirt Friday without any reminders.
I think he’s trying to get a modeling gig with phishdrygoods 😭 #LifeWithOri #PhishShirtFriday
I think he’s trying to get a modeling gig with phishdrygoods 😭 #LifeWithOri #PhishShirtFriday
Ori’s last meal before becoming a teenager.
Yup, Ori turns 13 years old tomorrow!
Happy birthday Cubbie. 🎈
#LifeWithOri #MyLight #hbd
Yup, Ori turns 13 years old tomorrow!
Happy birthday Cubbie. 🎈
#LifeWithOri #MyLight #hbd
November 7, 2025 at 3:19 AM
Ori’s last meal before becoming a teenager.
Yup, Ori turns 13 years old tomorrow!
Happy birthday Cubbie. 🎈
#LifeWithOri #MyLight #hbd
Yup, Ori turns 13 years old tomorrow!
Happy birthday Cubbie. 🎈
#LifeWithOri #MyLight #hbd
I can’t believe it’s been 10 years. On this day in 2015 my son Ori took his first steps with the help of his physical therapist. I’m extremely grateful that I had the knowledge and insight to call childlink when my child was five weeks old to get him early intervention services.  #LifeWithOri
March 21, 2025 at 3:11 AM
I can’t believe it’s been 10 years. On this day in 2015 my son Ori took his first steps with the help of his physical therapist. I’m extremely grateful that I had the knowledge and insight to call childlink when my child was five weeks old to get him early intervention services.  #LifeWithOri
Ori was 11 days old in these pictures, at least the ones in the beginning. #LifeWithOri #LifeWithEzra #NICUBaby #OnThisDay #FacebookMemories #PhishShirtFridayIsEveryDay
November 19, 2024 at 2:51 AM
Ori was 11 days old in these pictures, at least the ones in the beginning. #LifeWithOri #LifeWithEzra #NICUBaby #OnThisDay #FacebookMemories #PhishShirtFridayIsEveryDay
My enthusiasm is rooted in gratitude. This was about the two times I got to meet @tommarshall111.bsky.social and I’ll never forget them. #TomMarshall #Phish #PhishTalk #LifeWithOri #welcometomyphishylife
September 17, 2025 at 10:16 PM
My enthusiasm is rooted in gratitude. This was about the two times I got to meet @tommarshall111.bsky.social and I’ll never forget them. #TomMarshall #Phish #PhishTalk #LifeWithOri #welcometomyphishylife
He may have lived inside of me but that doesn’t stop him from signing daddy the second he gets off the van when he gets home from school. 😭 #LifeWithOri #waste #phish #welcometomyphishylife
January 7, 2026 at 2:25 AM
He may have lived inside of me but that doesn’t stop him from signing daddy the second he gets off the van when he gets home from school. 😭 #LifeWithOri #waste #phish #welcometomyphishylife
On this day in 2012, Ori was taken off of that nasal cannula oxygen when he was in the NICU. This was absolutely huge!!
It was also revealed to us on this day that he wasn’t going to need surgery like we were told because he healed himself. He had an omphalocele.
#lifewithori #nicubaby #onthisday
It was also revealed to us on this day that he wasn’t going to need surgery like we were told because he healed himself. He had an omphalocele.
#lifewithori #nicubaby #onthisday
November 20, 2024 at 4:39 AM
On this day in 2012, Ori was taken off of that nasal cannula oxygen when he was in the NICU. This was absolutely huge!!
It was also revealed to us on this day that he wasn’t going to need surgery like we were told because he healed himself. He had an omphalocele.
#lifewithori #nicubaby #onthisday
It was also revealed to us on this day that he wasn’t going to need surgery like we were told because he healed himself. He had an omphalocele.
#lifewithori #nicubaby #onthisday
Jeremy and the kids are at the art museum for the Eagles parade. I’m watching it on TV cause you would have to pay me to attend. #flyeaglesfly #gobirds #superbowlchamps #lifewithori #philly
February 14, 2025 at 8:02 PM
Jeremy and the kids are at the art museum for the Eagles parade. I’m watching it on TV cause you would have to pay me to attend. #flyeaglesfly #gobirds #superbowlchamps #lifewithori #philly
A moment of Trey to brighten your day is brought to you by the fact that life handed me my ass this morning.
14 seconds of Trey smiling through Tweezer Reprise = instant reset!
🎵 @phish.com
📹: @livephish.bsky.social
#phish #MoodBoost #treyanastasio #welcometomyphishylife #lifewithori
14 seconds of Trey smiling through Tweezer Reprise = instant reset!
🎵 @phish.com
📹: @livephish.bsky.social
#phish #MoodBoost #treyanastasio #welcometomyphishylife #lifewithori
July 30, 2025 at 4:52 PM
A moment of Trey to brighten your day is brought to you by the fact that life handed me my ass this morning.
14 seconds of Trey smiling through Tweezer Reprise = instant reset!
🎵 @phish.com
📹: @livephish.bsky.social
#phish #MoodBoost #treyanastasio #welcometomyphishylife #lifewithori
14 seconds of Trey smiling through Tweezer Reprise = instant reset!
🎵 @phish.com
📹: @livephish.bsky.social
#phish #MoodBoost #treyanastasio #welcometomyphishylife #lifewithori
Even though I told Mr. James, how much this meant to me, I don’t know if he really knows how much this means! I freaking love my two kids so much! I am so grateful that I get to be their mom. #LifeWithOri #DEI #Grateful
December 22, 2025 at 10:37 PM
Even though I told Mr. James, how much this meant to me, I don’t know if he really knows how much this means! I freaking love my two kids so much! I am so grateful that I get to be their mom. #LifeWithOri #DEI #Grateful
Mr. James FTW!
“Ori was very tired today. I’m actually very proud of this little gingerbread house he colored today. I know it’s just coloring, but I like how he colored all the details separately. He even did the little candy canes by the door”
#LifeWithOri
“Ori was very tired today. I’m actually very proud of this little gingerbread house he colored today. I know it’s just coloring, but I like how he colored all the details separately. He even did the little candy canes by the door”
#LifeWithOri
December 22, 2025 at 6:53 PM
Mr. James FTW!
“Ori was very tired today. I’m actually very proud of this little gingerbread house he colored today. I know it’s just coloring, but I like how he colored all the details separately. He even did the little candy canes by the door”
#LifeWithOri
“Ori was very tired today. I’m actually very proud of this little gingerbread house he colored today. I know it’s just coloring, but I like how he colored all the details separately. He even did the little candy canes by the door”
#LifeWithOri
I am so grateful for Mr. James sending me pictures and videos now. I love seeing what my child does during the day. This is what DEI looks like by the way. This is a part of DEI people don’t talk about. #DEI #LifeWithOri #NeuroDivergent #School
December 4, 2025 at 10:59 PM
I am so grateful for Mr. James sending me pictures and videos now. I love seeing what my child does during the day. This is what DEI looks like by the way. This is a part of DEI people don’t talk about. #DEI #LifeWithOri #NeuroDivergent #School
www.tiktok.com/t/ZTjwWGAEY/
Happy Phishaversary Ori!
6/29/19, the first time I stopped @tommarshall111.bsky.social to say thank you.
Please check out full description and video on TT/IG.
#Phish #TIPH #LifeWithOri #WelcomeToMyPhishyLife
Happy Phishaversary Ori!
6/29/19, the first time I stopped @tommarshall111.bsky.social to say thank you.
Please check out full description and video on TT/IG.
#Phish #TIPH #LifeWithOri #WelcomeToMyPhishyLife
Today in Phishtory: Saturday June 29, 2019 Phish played N2 of 3 in Camden, NJ. I took Ori to his first ever Phish show. I was miracled a ticket (thank you, Rachel!) and got to watch my son experience ...
TikTok video by Stacy Benstock Klein
www.tiktok.com
June 30, 2025 at 1:10 AM
www.tiktok.com/t/ZTjwWGAEY/
Happy Phishaversary Ori!
6/29/19, the first time I stopped @tommarshall111.bsky.social to say thank you.
Please check out full description and video on TT/IG.
#Phish #TIPH #LifeWithOri #WelcomeToMyPhishyLife
Happy Phishaversary Ori!
6/29/19, the first time I stopped @tommarshall111.bsky.social to say thank you.
Please check out full description and video on TT/IG.
#Phish #TIPH #LifeWithOri #WelcomeToMyPhishyLife