#LivedExp
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louca-mai.bsky.social
"Feedback is not the same as #CoProduction" @jacoblant.bsky.social @nationalvoices.bsky.social at #ICIC26 plenary on how #LivedExp can challenge #IntegratedCare can challenge & shape strategy & policy.
Six people sitting on a conference stage in front of a screen showing the title 'How can lived experience challenge policy and shape strategy?'
April 14, 2026 at 8:50 AM
wingspan.bsky.social
Ever heard someone say that someone couldn't be "representative" of a particular service's patients because they were too educated / to successful / too recovered? My latest post delves into how this dismisses people working from lived experience perspectives.

open.substack.com/pub/livedexp...
Questioning Representativeness
We need to hold institutions - rather than individuals - to account for how 'representative' our lived experience engagement initiatives are.
open.substack.com
November 18, 2024 at 1:19 AM
wingspan.bsky.social
The NHMRC is seeking feedback on its Draft Statement regarding Consumer and Community Involvement. In this article, I discuss how the Statement falls short in incorporating recent research and addressing current best practice for effective consumer participation: open.substack.com/pub/livedexp...
Making a timid statement
And how the NHMRC Statement on Consumer and Community Involvement could become more bold and live up to its values
open.substack.com
August 17, 2025 at 10:40 PM
wingspan.bsky.social
In October, I started a SubStack about #LivedExperienceLeadership. I plan to post monthly for a year. Catch up on my October post about co-opting lived experience, and subscribe so you get my November piece about representativeness in your inbox later this month!

open.substack.com/pub/livedexp...
Co-opting lived experience
Vague claims about having vs working from lived experience perspectives seem to be on the rise
open.substack.com
October 31, 2024 at 7:46 PM
socworkpodcast.bsky.social
Twitter has been very successful at facilitating enthusiasm for social movements #livedexp #spsm
December 16, 2024 at 11:15 AM
socworkpodcast.bsky.social
#WayForward insights from people w/ #livedexp Press release: http://ow.ly/ySoQv Report: http://ow.ly/ySoSZ @Action_Alliance #suicide
Home Page | National Action Alliance for Suicide Prevention
ow.ly
December 16, 2024 at 8:06 AM
socworkpodcast.bsky.social
@melodeeee I've certainly had my share of crap therapists. Just not sure why #LivedExp movement dismisses clinicians en toto.
December 15, 2024 at 11:58 PM
socworkpodcast.bsky.social
Who are attempt survivors, what do they look like? @deseraestage on faces & voices of folks w/ #LivedExp http://video.ca.uky.edu/videos/video/1243/ #SWMonth
December 15, 2024 at 2:52 PM
socworkpodcast.bsky.social
Compelling argument for peer support by @JakeMBowling1 http://www.thenationalcouncil.org/conference-365/2015/04/13/weve-got-back/ Speaks to the #LivedExp #recovery movement #AAS15
Events Archive
www.thenationalcouncil.org
December 15, 2024 at 11:47 AM
socworkpodcast.bsky.social
Amazing conversation with @ShelbyRoweNYC about #LivedExp. She set a high bar. Tell your story (no pressure). #AAS15
December 15, 2024 at 11:37 AM
socworkpodcast.bsky.social
.@deseraestage The most powerful words in #LivedExp are #MeToo @BreneBrown #AAS15
December 15, 2024 at 10:46 AM
socworkpodcast.bsky.social
.@deseraestage: @people wanted to tell my story. I said "no method" They agreed. They changed their mind. I said "no story" #LivedExp #AAS15
December 15, 2024 at 10:41 AM
socworkpodcast.bsky.social
.@deseraestage: Yes, those of us on social media make news, but we can't pretend that the trad media are no longer players. #LivedExp #AAS15
December 15, 2024 at 10:41 AM
socworkpodcast.bsky.social
.@deseraestage: I'm collaborating with scientists. Science is the only thing that matters #Sarcasm #LivedExp #AAS15
December 15, 2024 at 10:41 AM
socworkpodcast.bsky.social
.@deseraestage: I believe in #LivedExp like nothing else. Inspired by Andrew Solomon's @TEDTalks https://www.ted.com/talks/andrew_solomon_love_no_matter_what #AAS15
Love, no matter what
What is it like to raise a child who's different from you...
www.ted.com
December 15, 2024 at 10:41 AM
socworkpodcast.bsky.social
Comment: "All of your are treasures" #tears #LivedExp #AAS15
December 15, 2024 at 10:41 AM
socworkpodcast.bsky.social
Are the @AASuicidology divisions creating barriers? e.g. People with #LivedExp can also be survivors of #suicide loss. #AAS15
December 15, 2024 at 10:41 AM
socworkpodcast.bsky.social
Q: What can allies (w/o #livedexp) do? @HowitFeelsBook - when you are most sad and vulnerable, how do you want to be treated? #AAS15
December 15, 2024 at 10:36 AM
socworkpodcast.bsky.social
.@deseraestage recommends "7 Ways to Actively Support Suicide Attempt Survivors" http://everydayfeminism.com/2015/04/support-suicide-attempt-survivors/ #LivedExp #AAS15
7 Ways to Actively Support Suicide Attempt Survivors - Ev...
(Trigger warning: Suicide) This author's suicide attempt ...
everydayfeminism.com
December 15, 2024 at 10:36 AM
socworkpodcast.bsky.social
Crowded van ride to the @CDCgov magnifies the (platonic) love we feel for each other. #AAS15 #LivedExp http://t.co/0FuWu0nquI
December 15, 2024 at 10:36 AM
socworkpodcast.bsky.social
Highlights from #AAS15: Awesome interview with @samnadz about #livedExp, #socialwork, and how to talk with clients about #confidentiality.
December 15, 2024 at 8:23 AM
socworkpodcast.bsky.social
I haven't published this year's #AAS15 / #LivedExp interviews, but I did publish the #AAS14 interview: http://socialworkpodcast.blogspot.com/2015/04/SPSM.html #spsm
Here's Tweeting at You: Using Social Media to Expand the ...
Episode 97 - Here's Tweeting at You: Using Social Media t...
socialworkpodcast.blogspot.com
December 15, 2024 at 8:23 AM
socworkpodcast.bsky.social
Proud to call @samnadz a #socialwork colleague. Her amazing story: http://livethroughthis.org/samantha-nadler/ #SPSM @SWSpeak #LivedExp
Samantha Nadler | Live Through This
livethroughthis.org
December 15, 2024 at 8:02 AM
socworkpodcast.bsky.social
.@BartAndrews: When I watch #suicide portrayed, my #LivedExp side recognizes triggers & foreshadowing that my clinician side doesn't. #spsm
December 15, 2024 at 5:14 AM
socworkpodcast.bsky.social
.@DocForeman: How would #LivedExp, providers, general pop, understand the same #suicide portrayal in movies? #spsm
December 15, 2024 at 5:14 AM