Lived Experience Expertise and the Need for Ongoing Qualitative Research
#livedexperience #livedexperiencematters #livedexpertise #clinicalresearch #healthcare #mentalhealthcare
#livedexperience #livedexperiencematters #livedexpertise #clinicalresearch #healthcare #mentalhealthcare
September 30, 2025 at 11:23 PM
Lived Experience Expertise and the Need for Ongoing Qualitative Research
#livedexperience #livedexperiencematters #livedexpertise #clinicalresearch #healthcare #mentalhealthcare
#livedexperience #livedexperiencematters #livedexpertise #clinicalresearch #healthcare #mentalhealthcare
So often #LivedExperienceVoices are excluded from research because of communication barriers. If you aren't hearing from ALL #LexVoices directly, you will be missing vital #LivedExpertise
📢Just published! Autistic people with intellectual disabilities are often excluded from research, leaving their needs overlooked. Our review found only 14 studies asking for their direct input, with few tools designed for them. We need to prioritise their voices.
www.liebertpub.com/doi/10.1089/...
www.liebertpub.com/doi/10.1089/...
Unheard Voices: A Systematic Literature Review of Studies Using Self-Report Methods to Gather the Perspectives of Autistic Adults with Intellectual Disability | Autism in Adulthood
Background: Autistic individuals with intellectual disability remain significantly underrepresented in research, particularly in studies that capture their lived experiences through self-report method...
www.liebertpub.com
December 11, 2024 at 1:31 PM
So often #LivedExperienceVoices are excluded from research because of communication barriers. If you aren't hearing from ALL #LexVoices directly, you will be missing vital #LivedExpertise
We’re looking for people to take part in a short survey about light in theatres. If you’re someone who's experienced issues with light in the theatre, please fill out this short survey. There are 8 questions shown as text & pictures, more here: www.touretteshero.com/2025/02/10/l...
Launching Light Maps: The Next Chapter – Dr Will Renel
Back in October 2023 I wrote about relaxed performance practice and the importance of developing tools and approaches that support audiences to access art, theatre and live performance. This is partic...
www.touretteshero.com
February 24, 2025 at 9:27 AM
Fantastic to see organisations listening to #LivedExpertise
November 18, 2024 at 2:45 PM
Fantastic to see organisations listening to #LivedExpertise
We had an amazing time at @firstportscotland.bsky.social yesterday delivering our Introduction to Lived Experience Leadership training. Some really insightful discussions, and lots of inspiring sharing of #LivedExpertise
#LexLeadership #LeadershipTraining
#LexLeadership #LeadershipTraining
November 21, 2024 at 9:16 AM
We had an amazing time at @firstportscotland.bsky.social yesterday delivering our Introduction to Lived Experience Leadership training. Some really insightful discussions, and lots of inspiring sharing of #LivedExpertise
#LexLeadership #LeadershipTraining
#LexLeadership #LeadershipTraining
Dr Sandra Kooij or Dr Lotta Borg Skoglund. Or there are plenty of us with #LivedExpertise. Just sayin’…
March 12, 2025 at 10:18 PM
Dr Sandra Kooij or Dr Lotta Borg Skoglund. Or there are plenty of us with #LivedExpertise. Just sayin’…
It was fantastic! We're really excited too. #LivedExpertise needs to be valued from everyone.
November 26, 2024 at 1:45 PM
It was fantastic! We're really excited too. #LivedExpertise needs to be valued from everyone.
Listening to #LivedExperienceVoices doesn't just mean those deemed acceptable to mainstream society. Everyone deserves a voice, and deserves to have their #LivedExpertise valued. This includes prison experienced people, who are far more likely to have experienced other marginalisations too!
THREAD: It's #prisonersweek in Scotland, so here's a thread on #howprisonsilences people in prison and why that's a problem for rehabilitation and democracy. To make it easy, each silencing mechanism begins with a 'D'.
November 18, 2024 at 2:59 PM
Listening to #LivedExperienceVoices doesn't just mean those deemed acceptable to mainstream society. Everyone deserves a voice, and deserves to have their #LivedExpertise valued. This includes prison experienced people, who are far more likely to have experienced other marginalisations too!
Anyone who thinks future #Affordabilty is not directly linked to the situation in the USA right now is stuck in the past. If you think you had it tough 4 months ago, it’s only going to get worse next month.
Don’t hang your hopes on false promises.
Vote #LivedExpertise not imagination #CanadaStrong
Don’t hang your hopes on false promises.
Vote #LivedExpertise not imagination #CanadaStrong
April 7, 2025 at 2:32 AM
Anyone who thinks future #Affordabilty is not directly linked to the situation in the USA right now is stuck in the past. If you think you had it tough 4 months ago, it’s only going to get worse next month.
Don’t hang your hopes on false promises.
Vote #LivedExpertise not imagination #CanadaStrong
Don’t hang your hopes on false promises.
Vote #LivedExpertise not imagination #CanadaStrong
Real Talk About Independent Living gives you 6 courses to build your future. Dreaming Big. Planning Ahead. Making Choices. Solving Problems. Finding Support. Moving Forward.
. sanetwork.learnworlds.com/real-talk-se...
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
. sanetwork.learnworlds.com/real-talk-se...
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
Real Talk Courses - Life and Adult Skills Programs
Explore Real Talk peer-led courses for self-advocates, families, and educators focused on life skills, transition to adulthood, and real-world growth.
sanetwork.learnworlds.com
March 24, 2026 at 4:09 PM
Real Talk About Independent Living gives you 6 courses to build your future. Dreaming Big. Planning Ahead. Making Choices. Solving Problems. Finding Support. Moving Forward.
. sanetwork.learnworlds.com/real-talk-se...
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
. sanetwork.learnworlds.com/real-talk-se...
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
Real Talk for Independent Living is here! Our self-advocate experts teach real-life skills in engaging online courses. Share with your network.
Don’t miss new posts—sign up for our mailing list at bit.ly/SAN-Signup
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
Don’t miss new posts—sign up for our mailing list at bit.ly/SAN-Signup
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
Real Talk About Independent Living: A New Peer-Led Program
March is Developmental Disabilities Awareness Month. We’re kicking it off with big news. Our new Real Talk series is out! Real Talk programs are created for self-advocates, by self-advocates. That means they are not just participants. They are leaders and teachers. Self-advocate leaders in the Real Talk series are paid for their work. They are recognized for their lived expertise.
selfadvocatenetwork.com
March 2, 2026 at 5:08 PM
Real Talk for Independent Living is here! Our self-advocate experts teach real-life skills in engaging online courses. Share with your network.
Don’t miss new posts—sign up for our mailing list at bit.ly/SAN-Signup
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
Don’t miss new posts—sign up for our mailing list at bit.ly/SAN-Signup
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
Things go very badly wrong when the people with #LivedExpertise aren't in the room. At Lex Scotland we stand with our trans siblings, especially as a business with trans #LexLeadership
#TransWomenAreWomen
#TransWomenAreWomen
The Supreme Court is due to rule tomorrow on the Equality Act. But it didn’t hear from a single trans person.
It’s vital that people are in the room when their rights and freedoms are on the line.
www.thenational.scot/news/2508432...
It’s vital that people are in the room when their rights and freedoms are on the line.
www.thenational.scot/news/2508432...
Amnesty warns of 'dangerous misinformation' in Supreme Court woman definition case
AMNESTY International has warned against “dangerous misinformation” ahead of a Supreme Court ruling on the definition of a woman.
www.thenational.scot
April 15, 2025 at 12:49 PM
Things go very badly wrong when the people with #LivedExpertise aren't in the room. At Lex Scotland we stand with our trans siblings, especially as a business with trans #LexLeadership
#TransWomenAreWomen
#TransWomenAreWomen
As a #LexLed organisation, we're really proud of what we have achieved and we are really excited about new projects planned for 2025, including our #LexLeadersNetwork and working with @nextchapterscotland.org.uk to break down barriers for leaders with #LivedExpertise of the criminal justice system
Home - Lex Scotland
At LEx Scotland, we empower people from diverse backgrounds and cultures with lived experience of social injustice and marginalisation.
www.lexscotland.org
December 20, 2024 at 12:45 PM
As a #LexLed organisation, we're really proud of what we have achieved and we are really excited about new projects planned for 2025, including our #LexLeadersNetwork and working with @nextchapterscotland.org.uk to break down barriers for leaders with #LivedExpertise of the criminal justice system
That #LivedExpertise is valid, that Disabled people are reliable narrators of their own experiences, and that discrimination and oppression of Disabled people is very real and ongoing. So many therapists sadly frame our struggles as something that is our individual problem, not a social problem.
November 21, 2024 at 4:15 PM
That #LivedExpertise is valid, that Disabled people are reliable narrators of their own experiences, and that discrimination and oppression of Disabled people is very real and ongoing. So many therapists sadly frame our struggles as something that is our individual problem, not a social problem.
Don’t forget!
Use code DDAwareness15 at checkout to get 15% off.
Real Talk About Independent Living teaches practical life skills in self-advocate-led classes.
Learn more:
sanetwork.learnworlds.com/real-talk-pa...
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
Use code DDAwareness15 at checkout to get 15% off.
Real Talk About Independent Living teaches practical life skills in self-advocate-led classes.
Learn more:
sanetwork.learnworlds.com/real-talk-pa...
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
Real Talk Partner Series - Life and Adult Skills Support
Courses for families and supporters to help adults build life and adult skills with practical tools, videos, and guided support.
sanetwork.learnworlds.com
March 17, 2026 at 7:56 PM
Don’t forget!
Use code DDAwareness15 at checkout to get 15% off.
Real Talk About Independent Living teaches practical life skills in self-advocate-led classes.
Learn more:
sanetwork.learnworlds.com/real-talk-pa...
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
Use code DDAwareness15 at checkout to get 15% off.
Real Talk About Independent Living teaches practical life skills in self-advocate-led classes.
Learn more:
sanetwork.learnworlds.com/real-talk-pa...
#IDD #Neurodiversity #SelfAdvocacy #RealTalk #IndependentLiving #LivedExpertise
Upcoming free online webinar: Anthropology By Children & Communities - join us as Dr Kelly Fagan Robinson from @cam.ac.uk presents a methodology designed to centre #LivedExpertise.
📅Thursday 14th May 3:30-4:30pm
🔗 www.eventbrite.co.uk/e/grace-epi-...
📅Thursday 14th May 3:30-4:30pm
🔗 www.eventbrite.co.uk/e/grace-epi-...
April 27, 2026 at 3:03 PM
Upcoming free online webinar: Anthropology By Children & Communities - join us as Dr Kelly Fagan Robinson from @cam.ac.uk presents a methodology designed to centre #LivedExpertise.
📅Thursday 14th May 3:30-4:30pm
🔗 www.eventbrite.co.uk/e/grace-epi-...
📅Thursday 14th May 3:30-4:30pm
🔗 www.eventbrite.co.uk/e/grace-epi-...
📣 We are thrilled to launch our new website dedicated to empowering and advocating for youth in/from care. Dive in and be part of the lived experience-led movement for change 👉🏼 www.ncyica.ca
#StandWithYouthInCare #youthmatter #childwelfare #advocacy #livedexpertise #cdnpoli
#StandWithYouthInCare #youthmatter #childwelfare #advocacy #livedexpertise #cdnpoli
Home | NCYICA | lived expertise
The National Council of Youth in Care Advocates (NCYICA) is comprised of provincial and territorial advocates with lived experience in the child protection system, Youth in Care Networks, and key alli...
www.ncyica.ca
February 13, 2025 at 4:50 PM
📣 We are thrilled to launch our new website dedicated to empowering and advocating for youth in/from care. Dive in and be part of the lived experience-led movement for change 👉🏼 www.ncyica.ca
#StandWithYouthInCare #youthmatter #childwelfare #advocacy #livedexpertise #cdnpoli
#StandWithYouthInCare #youthmatter #childwelfare #advocacy #livedexpertise #cdnpoli
For anyone looking for a great way to support volunteers doing work on the ground to support homelessness in #WaterlooRegion, donating to the Unsheltered Campaign is a great investment:
www.waterlooregion.org/give-for-a-b...
#LivedExpertise #EvictionPreventionWR #CivicHubWR
www.waterlooregion.org/give-for-a-b...
#LivedExpertise #EvictionPreventionWR #CivicHubWR
August 12, 2026 at 7:53 PM
For anyone looking for a great way to support volunteers doing work on the ground to support homelessness in #WaterlooRegion, donating to the Unsheltered Campaign is a great investment:
www.waterlooregion.org/give-for-a-b...
#LivedExpertise #EvictionPreventionWR #CivicHubWR
www.waterlooregion.org/give-for-a-b...
#LivedExpertise #EvictionPreventionWR #CivicHubWR
Working toward a shared goal and need a structured, community-centered way to get there? The Blue Sky Possibilities Framework can help.
See how it could support your work: https://www.chapinhall.org/project/blue-sky-possibilities-framework/
#LivedExpertise
See how it could support your work: https://www.chapinhall.org/project/blue-sky-possibilities-framework/
#LivedExpertise
July 2, 2026 at 3:03 PM
Working toward a shared goal and need a structured, community-centered way to get there? The Blue Sky Possibilities Framework can help.
See how it could support your work: https://www.chapinhall.org/project/blue-sky-possibilities-framework/
#LivedExpertise
See how it could support your work: https://www.chapinhall.org/project/blue-sky-possibilities-framework/
#LivedExpertise
It should be #LexLeaders with #LivedExpertise that lead on healthcare, not peers with shares in private healthcare companies...
Anyone else fed up of this stuff?🚨
“Peer who led government NHS review failed to declare shares in health firms.”
This is about Lord Darzi…
www.theguardian.com/society/2025...
“Peer who led government NHS review failed to declare shares in health firms.”
This is about Lord Darzi…
www.theguardian.com/society/2025...
Peer who led government NHS review failed to declare shares in health firms
Lord Darzi’s undeclared interests in four companies included $500,000 of shares in US-based healthcare venture
www.theguardian.com
March 19, 2025 at 12:18 PM
It should be #LexLeaders with #LivedExpertise that lead on healthcare, not peers with shares in private healthcare companies...
Are you an existing or aspiring #LexLeader? Do you use your #LivedExperience in your work? Do you use your #LivedExpertise to support or advocate for others in your community? Keep reading below…..
Find out more, sign up and be part of the conversation here! bit.ly/4hSyfFe
#LExLeaders #Leadership
Find out more, sign up and be part of the conversation here! bit.ly/4hSyfFe
#LExLeaders #Leadership
Calling all Lived Experience Leaders: Join Our Lex Leaders Network! - Lex Scotland
At Lex Scotland, we understand that marginalised leaders face significant hurdles in securing leadership roles, being included in work environments, and overcoming numerous challenges. We also recogni...
bit.ly
March 18, 2025 at 11:12 AM
Are you an existing or aspiring #LexLeader? Do you use your #LivedExperience in your work? Do you use your #LivedExpertise to support or advocate for others in your community? Keep reading below…..
Find out more, sign up and be part of the conversation here! bit.ly/4hSyfFe
#LExLeaders #Leadership
Find out more, sign up and be part of the conversation here! bit.ly/4hSyfFe
#LExLeaders #Leadership
A chance to share your #LivedExpertise with a #LivedExperienceLed organisation...
TransActual is excited to launch our 2024 trans lives survey to capture what it is like to be a trans person in the UK today. This is an important survey, updating our 2021 survey that is widely used used to advocate for trans people.
UK trans people over 18: https://buff.ly/3ZNjAnh
#Trans
UK trans people over 18: https://buff.ly/3ZNjAnh
#Trans
February 14, 2025 at 2:37 PM
A chance to share your #LivedExpertise with a #LivedExperienceLed organisation...
Yet another example of how harmful it can be when we fail to listen to the voices of #LivedExpertise
This includes young people.
This includes young people.
'Young trans people have no faith in the healthcare system - nor the Labour Party.'
www.thenational.scot/politics/247...
www.thenational.scot/politics/247...
Steph Paton: The wrong people listened to on puberty blockers ban
IN indefinitely extending the ban on puberty blockers for trans young people, Labour have enacted the first piece of anti-LGBT legislation to come…
www.thenational.scot
December 18, 2024 at 10:52 AM
Yet another example of how harmful it can be when we fail to listen to the voices of #LivedExpertise
This includes young people.
This includes young people.
#HumberResearch
#NCMH
#LivedExperience
#TraumaInformed
#ResearchMatters
#MentalHealthResearch
#YourStoryMatters
#LivedExperienceVoices
#TraumaToTruth
#BreakTheSilence
#ReclaimingTheNarrative
#TraumaInformedResearch
#InsightsForChange
#LivedExpertise
#ShapingTheFuture
#EvidenceBasedHealing
#NCMH
#LivedExperience
#TraumaInformed
#ResearchMatters
#MentalHealthResearch
#YourStoryMatters
#LivedExperienceVoices
#TraumaToTruth
#BreakTheSilence
#ReclaimingTheNarrative
#TraumaInformedResearch
#InsightsForChange
#LivedExpertise
#ShapingTheFuture
#EvidenceBasedHealing
February 3, 2026 at 4:20 PM