📚A key part of #LupusConvention is bringing new learning & knowledge to our member organisations.
🦋That’s why we invite leading experts such as Prof. Ricard Cervera from @hospitalclinic.bsky.social to share their expertise, answer questions & contribute to meaningful discussion across our community
🦋That’s why we invite leading experts such as Prof. Ricard Cervera from @hospitalclinic.bsky.social to share their expertise, answer questions & contribute to meaningful discussion across our community
October 3, 2026 at 8:25 AM
📚A key part of #LupusConvention is bringing new learning & knowledge to our member organisations.
🦋That’s why we invite leading experts such as Prof. Ricard Cervera from @hospitalclinic.bsky.social to share their expertise, answer questions & contribute to meaningful discussion across our community
🦋That’s why we invite leading experts such as Prof. Ricard Cervera from @hospitalclinic.bsky.social to share their expertise, answer questions & contribute to meaningful discussion across our community
🔬 Research needs collaboration. Prf Cervera points to 3TR as a major European research initiative in autoimmune diseases, bringing academia, patoents & industry together.
Lupus Europe is involved in 3TR, helping bring the patient perspective.
#LupusConvention
Lupus Europe is involved in 3TR, helping bring the patient perspective.
#LupusConvention
October 3, 2026 at 8:48 AM
🔬 Research needs collaboration. Prf Cervera points to 3TR as a major European research initiative in autoimmune diseases, bringing academia, patoents & industry together.
Lupus Europe is involved in 3TR, helping bring the patient perspective.
#LupusConvention
Lupus Europe is involved in 3TR, helping bring the patient perspective.
#LupusConvention
🎈Board Member Francesca Marchiori & PAN member Aldevina Sturiene add our latest achievements to our balloon.
🦋 One we are especially proud of: #LupusGPT published in @thelancetrheum.bsky.social
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(25)00370-4/abstract
#LupusConvention
🦋 One we are especially proud of: #LupusGPT published in @thelancetrheum.bsky.social
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(25)00370-4/abstract
#LupusConvention
October 3, 2026 at 11:38 AM
🎈Board Member Francesca Marchiori & PAN member Aldevina Sturiene add our latest achievements to our balloon.
🦋 One we are especially proud of: #LupusGPT published in @thelancetrheum.bsky.social
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(25)00370-4/abstract
#LupusConvention
🦋 One we are especially proud of: #LupusGPT published in @thelancetrheum.bsky.social
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(25)00370-4/abstract
#LupusConvention
💁🏻♀️Chair of Lupus Europe’s Board, Jeanette Andersen, talks about clinical trials from the perspective of people living with lupus: the questions that arise before taking part, and why patient voice and participation are essential to advancing better treatments.
#LupusConvention
#LupusConvention
October 3, 2026 at 9:36 AM
💁🏻♀️Chair of Lupus Europe’s Board, Jeanette Andersen, talks about clinical trials from the perspective of people living with lupus: the questions that arise before taking part, and why patient voice and participation are essential to advancing better treatments.
#LupusConvention
#LupusConvention
🎈 After lunch at #LupusConvention, the Lupus Europe Board keeps adding achievements to our balloon, including our upcoming Menopause & Lupus webinar.
📅 13 Oct, 19:00 CEST
👇🏻
https://f.mtr.cool/2vg5kqjg28
📅 13 Oct, 19:00 CEST
👇🏻
https://f.mtr.cool/2vg5kqjg28
October 3, 2026 at 12:19 PM
🎈 After lunch at #LupusConvention, the Lupus Europe Board keeps adding achievements to our balloon, including our upcoming Menopause & Lupus webinar.
📅 13 Oct, 19:00 CEST
👇🏻
https://f.mtr.cool/2vg5kqjg28
📅 13 Oct, 19:00 CEST
👇🏻
https://f.mtr.cool/2vg5kqjg28
💡 Sharing what works helps avoid duplicating work.
At #LupusConvention, our Vice-Chair and Secretary, Annemarie Sluijmers, presents our Exercise Programme: 5 levels, developed with trained physical therapists and endorsed by EULAR.
https://f.mtr.cool/swwq1xn022
At #LupusConvention, our Vice-Chair and Secretary, Annemarie Sluijmers, presents our Exercise Programme: 5 levels, developed with trained physical therapists and endorsed by EULAR.
https://f.mtr.cool/swwq1xn022
October 4, 2026 at 9:41 AM
💡 Sharing what works helps avoid duplicating work.
At #LupusConvention, our Vice-Chair and Secretary, Annemarie Sluijmers, presents our Exercise Programme: 5 levels, developed with trained physical therapists and endorsed by EULAR.
https://f.mtr.cool/swwq1xn022
At #LupusConvention, our Vice-Chair and Secretary, Annemarie Sluijmers, presents our Exercise Programme: 5 levels, developed with trained physical therapists and endorsed by EULAR.
https://f.mtr.cool/swwq1xn022
💬 What happens beyond the doctor’s office matters too.
🦋 Andrea from Spain shares @felupus Youth Encounter project: a safe, judgement-free space where young people can talk about treatment fatigue, daily life and support each other.
#LupusConvention
🦋 Andrea from Spain shares @felupus Youth Encounter project: a safe, judgement-free space where young people can talk about treatment fatigue, daily life and support each other.
#LupusConvention
October 4, 2026 at 10:08 AM
💬 What happens beyond the doctor’s office matters too.
🦋 Andrea from Spain shares @felupus Youth Encounter project: a safe, judgement-free space where young people can talk about treatment fatigue, daily life and support each other.
#LupusConvention
🦋 Andrea from Spain shares @felupus Youth Encounter project: a safe, judgement-free space where young people can talk about treatment fatigue, daily life and support each other.
#LupusConvention
💡 Our Chair, @Jeanette_Lupus, is showing how organisations can make practical use of #LupusGPT in their activities, from drafting social media posts and newsletters to developing ideas, adapting content and saving time on routine communication tasks.
#LupusConvention
#LupusConvention
October 4, 2026 at 9:58 AM
💡 Our Chair, @Jeanette_Lupus, is showing how organisations can make practical use of #LupusGPT in their activities, from drafting social media posts and newsletters to developing ideas, adapting content and saving time on routine communication tasks.
#LupusConvention
#LupusConvention
📊 Our Vice-Chair and Secretary, Annemarie Sluijmers, is presenting the results of our Lupus Europe sunscreen survey.
🦋 Across Europe, physician advice is common, but availability, affordability and reimbursement vary. Access to sun protection matters.
#LupusConvention
🦋 Across Europe, physician advice is common, but availability, affordability and reimbursement vary. Access to sun protection matters.
#LupusConvention
October 4, 2026 at 7:18 AM
📊 Our Vice-Chair and Secretary, Annemarie Sluijmers, is presenting the results of our Lupus Europe sunscreen survey.
🦋 Across Europe, physician advice is common, but availability, affordability and reimbursement vary. Access to sun protection matters.
#LupusConvention
🦋 Across Europe, physician advice is common, but availability, affordability and reimbursement vary. Access to sun protection matters.
#LupusConvention
🗣️ Another practical tool to take home from #LupusConvention!
Our Board Member, Francesca Marchiori, presents the Lupus Consultation Cards, available in 20 languages and in female and male versions, to help people prepare for appointments.
💬 https://f.mtr.cool/w9f3rk35xv
Our Board Member, Francesca Marchiori, presents the Lupus Consultation Cards, available in 20 languages and in female and male versions, to help people prepare for appointments.
💬 https://f.mtr.cool/w9f3rk35xv
October 4, 2026 at 9:45 AM
🗣️ Another practical tool to take home from #LupusConvention!
Our Board Member, Francesca Marchiori, presents the Lupus Consultation Cards, available in 20 languages and in female and male versions, to help people prepare for appointments.
💬 https://f.mtr.cool/w9f3rk35xv
Our Board Member, Francesca Marchiori, presents the Lupus Consultation Cards, available in 20 languages and in female and male versions, to help people prepare for appointments.
💬 https://f.mtr.cool/w9f3rk35xv
🏃♀️ Time to exercise!
Physical activity can support fatigue, strength, function and quality of life in lupus.
Our Exercise Programme has 5 levels, developed with trained physical therapists, for different energy levels and abilities.
👉 https://f.mtr.cool/0lxqrf849o
#LupusConvention
Physical activity can support fatigue, strength, function and quality of life in lupus.
Our Exercise Programme has 5 levels, developed with trained physical therapists, for different energy levels and abilities.
👉 https://f.mtr.cool/0lxqrf849o
#LupusConvention
October 3, 2026 at 9:11 AM
🏃♀️ Time to exercise!
Physical activity can support fatigue, strength, function and quality of life in lupus.
Our Exercise Programme has 5 levels, developed with trained physical therapists, for different energy levels and abilities.
👉 https://f.mtr.cool/0lxqrf849o
#LupusConvention
Physical activity can support fatigue, strength, function and quality of life in lupus.
Our Exercise Programme has 5 levels, developed with trained physical therapists, for different energy levels and abilities.
👉 https://f.mtr.cool/0lxqrf849o
#LupusConvention
🩺 Meet the Doctor at #LupusConvention gives delegates the chance to bring questions and concerns from their communities directly to a lupus specialist.
Today, Prof Cervera is sharing practical knowledge on lupus mechanisms, manifestations & wider issues relevant to daily life
Today, Prof Cervera is sharing practical knowledge on lupus mechanisms, manifestations & wider issues relevant to daily life
October 4, 2026 at 3:09 PM
🩺 Meet the Doctor at #LupusConvention gives delegates the chance to bring questions and concerns from their communities directly to a lupus specialist.
Today, Prof Cervera is sharing practical knowledge on lupus mechanisms, manifestations & wider issues relevant to daily life
Today, Prof Cervera is sharing practical knowledge on lupus mechanisms, manifestations & wider issues relevant to daily life
🦋 Young people with lupus face challenges that go beyond treatment itself.
At #LupusConvention, Rita Vieira from our Youth Group is bringing the youth perspective into focus, from transition to adult care and adherence to side effects, fertility and family planning.
At #LupusConvention, Rita Vieira from our Youth Group is bringing the youth perspective into focus, from transition to adult care and adherence to side effects, fertility and family planning.
October 4, 2026 at 11:58 AM
🦋 Young people with lupus face challenges that go beyond treatment itself.
At #LupusConvention, Rita Vieira from our Youth Group is bringing the youth perspective into focus, from transition to adult care and adherence to side effects, fertility and family planning.
At #LupusConvention, Rita Vieira from our Youth Group is bringing the youth perspective into focus, from transition to adult care and adherence to side effects, fertility and family planning.
Andri from Cyprus shares how they plan to use the Consultation Cards locally: distributing the Greek version, discussing them with groups in different towns and sharing them with rheumatologists.
💬 Practical tools become stronger when we share how we use them. #LupusConvention
💬 Practical tools become stronger when we share how we use them. #LupusConvention
October 4, 2026 at 9:55 AM
Andri from Cyprus shares how they plan to use the Consultation Cards locally: distributing the Greek version, discussing them with groups in different towns and sharing them with rheumatologists.
💬 Practical tools become stronger when we share how we use them. #LupusConvention
💬 Practical tools become stronger when we share how we use them. #LupusConvention
🟣 Lupus treatment needs 3 perspectives to meet: clinician, researcher and patient.
Alice Barinotti reminds us that the patient is not only the goal of research, but also where many of the most important questions begin.
🔗Connecting all 3 is essential. #LupusConvention
Alice Barinotti reminds us that the patient is not only the goal of research, but also where many of the most important questions begin.
🔗Connecting all 3 is essential. #LupusConvention
October 3, 2026 at 2:11 PM
🟣 Lupus treatment needs 3 perspectives to meet: clinician, researcher and patient.
Alice Barinotti reminds us that the patient is not only the goal of research, but also where many of the most important questions begin.
🔗Connecting all 3 is essential. #LupusConvention
Alice Barinotti reminds us that the patient is not only the goal of research, but also where many of the most important questions begin.
🔗Connecting all 3 is essential. #LupusConvention
At #LupusConvention, Felupus, one of our National Member Organisations, is sharing how its network of 21 lupus associations across Spain supports people with lupus through information, training and awareness activities.
💜 A great example of members learning from each other.
💜 A great example of members learning from each other.
October 3, 2026 at 7:43 AM
At #LupusConvention, Felupus, one of our National Member Organisations, is sharing how its network of 21 lupus associations across Spain supports people with lupus through information, training and awareness activities.
💜 A great example of members learning from each other.
💜 A great example of members learning from each other.
🚀Workshops are a central part of every #LupusConvention.
✅Together, we listen to the needs and resources of our members' communities, explore what we can control or influence, and define concrete, realistic actions that Lupus Europe and its community can take forward together
✅Together, we listen to the needs and resources of our members' communities, explore what we can control or influence, and define concrete, realistic actions that Lupus Europe and its community can take forward together
October 4, 2026 at 12:37 PM
🚀Workshops are a central part of every #LupusConvention.
✅Together, we listen to the needs and resources of our members' communities, explore what we can control or influence, and define concrete, realistic actions that Lupus Europe and its community can take forward together
✅Together, we listen to the needs and resources of our members' communities, explore what we can control or influence, and define concrete, realistic actions that Lupus Europe and its community can take forward together
🌟 Lupus Europe is an eligible patient organisation of @ema.europa.eu, and a dedicated PAN group contributes to EMA activities.
Kaisa Immonen is now helping our members better understand how EMA works, how patients can contribute, and how they can engage more effectively.
#LupusConvention
Kaisa Immonen is now helping our members better understand how EMA works, how patients can contribute, and how they can engage more effectively.
#LupusConvention
October 3, 2026 at 2:49 PM
🌟 Lupus Europe is an eligible patient organisation of @ema.europa.eu, and a dedicated PAN group contributes to EMA activities.
Kaisa Immonen is now helping our members better understand how EMA works, how patients can contribute, and how they can engage more effectively.
#LupusConvention
Kaisa Immonen is now helping our members better understand how EMA works, how patients can contribute, and how they can engage more effectively.
#LupusConvention
🦋 The Lupus Europe Convention officially kicks off!
✨ We’re starting with introductions and a creative clay challenge around this year’s theme, treatment.
From treatment burden and sun protection to clinical trials and the importance of a doctor who listens. #LupusConvention
✨ We’re starting with introductions and a creative clay challenge around this year’s theme, treatment.
From treatment burden and sun protection to clinical trials and the importance of a doctor who listens. #LupusConvention
October 3, 2026 at 7:23 AM
🦋 The Lupus Europe Convention officially kicks off!
✨ We’re starting with introductions and a creative clay challenge around this year’s theme, treatment.
From treatment burden and sun protection to clinical trials and the importance of a doctor who listens. #LupusConvention
✨ We’re starting with introductions and a creative clay challenge around this year’s theme, treatment.
From treatment burden and sun protection to clinical trials and the importance of a doctor who listens. #LupusConvention
📖 Jona from Iceland shares the book Maria & Mom’s Secret, a story about 8yo Maria and the special bond she shares with her mum, where everyday moments become imaginative adventures together.
✨ Another example of the creativity and ideas our members bring to #LupusConvention.
✨ Another example of the creativity and ideas our members bring to #LupusConvention.
October 4, 2026 at 10:03 AM
📖 Jona from Iceland shares the book Maria & Mom’s Secret, a story about 8yo Maria and the special bond she shares with her mum, where everyday moments become imaginative adventures together.
✨ Another example of the creativity and ideas our members bring to #LupusConvention.
✨ Another example of the creativity and ideas our members bring to #LupusConvention.
🧬 Prof John Isaacs is taking us from the basics of how the immune system works to why B cells matter in autoimmune RMDs, & how different approaches can target them.
The aim of precision medicine is to become increasingly selective about which cells we target. #LupusConvention
The aim of precision medicine is to become increasingly selective about which cells we target. #LupusConvention
October 4, 2026 at 8:41 AM
🧬 Prof John Isaacs is taking us from the basics of how the immune system works to why B cells matter in autoimmune RMDs, & how different approaches can target them.
The aim of precision medicine is to become increasingly selective about which cells we target. #LupusConvention
The aim of precision medicine is to become increasingly selective about which cells we target. #LupusConvention
🧐Why can lupus research take so long?
Researcher Alice Barinotti explains the challenge: lupus is a ⬆️⬆️ complex, heterogeneous disease- moving from a biological mechanism to a treatment can take 10–15 years, with only a few ideas making it through the pipeline.
#LupusConvention
Researcher Alice Barinotti explains the challenge: lupus is a ⬆️⬆️ complex, heterogeneous disease- moving from a biological mechanism to a treatment can take 10–15 years, with only a few ideas making it through the pipeline.
#LupusConvention
October 3, 2026 at 12:43 PM
🧐Why can lupus research take so long?
Researcher Alice Barinotti explains the challenge: lupus is a ⬆️⬆️ complex, heterogeneous disease- moving from a biological mechanism to a treatment can take 10–15 years, with only a few ideas making it through the pipeline.
#LupusConvention
Researcher Alice Barinotti explains the challenge: lupus is a ⬆️⬆️ complex, heterogeneous disease- moving from a biological mechanism to a treatment can take 10–15 years, with only a few ideas making it through the pipeline.
#LupusConvention
At our #LupusConvention, our Czech member organisation impressed us with an inspiring poster showcasing their wide range of initiatives for people with lupus. From psychological support to exercise, they cover it all!
Congratulations, & keep it up!
Congratulations, & keep it up!
October 20, 2025 at 2:07 PM
At our #LupusConvention, our Czech member organisation impressed us with an inspiring poster showcasing their wide range of initiatives for people with lupus. From psychological support to exercise, they cover it all!
Congratulations, & keep it up!
Congratulations, & keep it up!
💁♀️ Our Chair Jeanette Andersen leads the HTA Summit Introduction at #LupusConvention 2025!
✅ A perfect occasion for our delegates to explore how HTA can strengthen patient advocacy.
We hope many will join us at the upcoming HTA Summit! 💜
✅ A perfect occasion for our delegates to explore how HTA can strengthen patient advocacy.
We hope many will join us at the upcoming HTA Summit! 💜
October 4, 2025 at 2:37 PM
💁♀️ Our Chair Jeanette Andersen leads the HTA Summit Introduction at #LupusConvention 2025!
✅ A perfect occasion for our delegates to explore how HTA can strengthen patient advocacy.
We hope many will join us at the upcoming HTA Summit! 💜
✅ A perfect occasion for our delegates to explore how HTA can strengthen patient advocacy.
We hope many will join us at the upcoming HTA Summit! 💜
🇸🇪 Spotlight on Lupus Sweden!
💜 At our #LupusConvention, they shared inspiring work to raise awareness & build connections. From their children’s book “My mother can have a butterfly on the nose” to national World Lupus Day events & their new SLE awareness pin.
👏 Congrats!
💜 At our #LupusConvention, they shared inspiring work to raise awareness & build connections. From their children’s book “My mother can have a butterfly on the nose” to national World Lupus Day events & their new SLE awareness pin.
👏 Congrats!
December 10, 2025 at 5:17 PM
🇸🇪 Spotlight on Lupus Sweden!
💜 At our #LupusConvention, they shared inspiring work to raise awareness & build connections. From their children’s book “My mother can have a butterfly on the nose” to national World Lupus Day events & their new SLE awareness pin.
👏 Congrats!
💜 At our #LupusConvention, they shared inspiring work to raise awareness & build connections. From their children’s book “My mother can have a butterfly on the nose” to national World Lupus Day events & their new SLE awareness pin.
👏 Congrats!