💡 Our Chair, @Jeanette_Lupus, is showing how organisations can make practical use of #LupusGPT in their activities, from drafting social media posts and newsletters to developing ideas, adapting content and saving time on routine communication tasks.
#LupusConvention
#LupusConvention
October 4, 2026 at 9:58 AM
💡 Our Chair, @Jeanette_Lupus, is showing how organisations can make practical use of #LupusGPT in their activities, from drafting social media posts and newsletters to developing ideas, adapting content and saving time on routine communication tasks.
#LupusConvention
#LupusConvention
🎈Board Member Francesca Marchiori & PAN member Aldevina Sturiene add our latest achievements to our balloon.
🦋 One we are especially proud of: #LupusGPT published in @thelancetrheum.bsky.social
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(25)00370-4/abstract
#LupusConvention
🦋 One we are especially proud of: #LupusGPT published in @thelancetrheum.bsky.social
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(25)00370-4/abstract
#LupusConvention
October 3, 2026 at 11:38 AM
🎈Board Member Francesca Marchiori & PAN member Aldevina Sturiene add our latest achievements to our balloon.
🦋 One we are especially proud of: #LupusGPT published in @thelancetrheum.bsky.social
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(25)00370-4/abstract
#LupusConvention
🦋 One we are especially proud of: #LupusGPT published in @thelancetrheum.bsky.social
https://www.thelancet.com/journals/lanrhe/article/PIIS2665-9913(25)00370-4/abstract
#LupusConvention
Rather than worry about AI replacing all human connections, Storhaug Reinås thinks it can augment them. In healthcare there is so much demand for more complex care, it’s overwhelming, so if technology can help, we should use it. Mentions a lupus chatbot, LupusGPT, that answers patient questions.
September 24, 2026 at 6:17 PM
Rather than worry about AI replacing all human connections, Storhaug Reinås thinks it can augment them. In healthcare there is so much demand for more complex care, it’s overwhelming, so if technology can help, we should use it. Mentions a lupus chatbot, LupusGPT, that answers patient questions.
🟪 Tired of the medical jargon? Need lupus information that is easier to understand?
🔹 Try #EasyLupus: like #LupusGPT, but designed to make answers even simpler.
✅ Free, multilingual and helpful for everyday questions about lupus.
https://easy.lupusgpt.org/
🔹 Try #EasyLupus: like #LupusGPT, but designed to make answers even simpler.
✅ Free, multilingual and helpful for everyday questions about lupus.
https://easy.lupusgpt.org/
July 8, 2026 at 7:30 PM
🟪 Tired of the medical jargon? Need lupus information that is easier to understand?
🔹 Try #EasyLupus: like #LupusGPT, but designed to make answers even simpler.
✅ Free, multilingual and helpful for everyday questions about lupus.
https://easy.lupusgpt.org/
🔹 Try #EasyLupus: like #LupusGPT, but designed to make answers even simpler.
✅ Free, multilingual and helpful for everyday questions about lupus.
https://easy.lupusgpt.org/
☀️ As we close our #LupusUVprotection campaign, remember: reliable information matters.
Have questions about UV light, symptoms & #lupus?
🔹 #LupusGPT: free, anonymous AI tool to help people find reliable, valid lupus information in almost any language
https://lupusgpt.org/
Have questions about UV light, symptoms & #lupus?
🔹 #LupusGPT: free, anonymous AI tool to help people find reliable, valid lupus information in almost any language
https://lupusgpt.org/
July 8, 2026 at 7:30 PM
☀️ As we close our #LupusUVprotection campaign, remember: reliable information matters.
Have questions about UV light, symptoms & #lupus?
🔹 #LupusGPT: free, anonymous AI tool to help people find reliable, valid lupus information in almost any language
https://lupusgpt.org/
Have questions about UV light, symptoms & #lupus?
🔹 #LupusGPT: free, anonymous AI tool to help people find reliable, valid lupus information in almost any language
https://lupusgpt.org/
4/4
❓Questions about #lupus, heat & UV?
Explore #Lupus100, #LupusGPT & #EasyLupus for free, multilingual, easy-to-understand information validated by doctors & patients.
These are general information tools only & do not replace medical advice, diagnosis or treatment decisions
❓Questions about #lupus, heat & UV?
Explore #Lupus100, #LupusGPT & #EasyLupus for free, multilingual, easy-to-understand information validated by doctors & patients.
These are general information tools only & do not replace medical advice, diagnosis or treatment decisions
June 27, 2026 at 12:14 PM
4/4
❓Questions about #lupus, heat & UV?
Explore #Lupus100, #LupusGPT & #EasyLupus for free, multilingual, easy-to-understand information validated by doctors & patients.
These are general information tools only & do not replace medical advice, diagnosis or treatment decisions
❓Questions about #lupus, heat & UV?
Explore #Lupus100, #LupusGPT & #EasyLupus for free, multilingual, easy-to-understand information validated by doctors & patients.
These are general information tools only & do not replace medical advice, diagnosis or treatment decisions
🎥 Our #EULAR2026 recap webinar is now on YouTube!
Lupus Europe volunteers bring back some key learnings: fatigue, pain & lived experience, #LupusGPT, access, youth co-creation & new research directions.
Thank you to those who helped make this possible
youtu.be/IrKhqTZhX-s?...
Lupus Europe volunteers bring back some key learnings: fatigue, pain & lived experience, #LupusGPT, access, youth co-creation & new research directions.
Thank you to those who helped make this possible
youtu.be/IrKhqTZhX-s?...
June 25, 2026 at 3:52 PM
🎥 Our #EULAR2026 recap webinar is now on YouTube!
Lupus Europe volunteers bring back some key learnings: fatigue, pain & lived experience, #LupusGPT, access, youth co-creation & new research directions.
Thank you to those who helped make this possible
youtu.be/IrKhqTZhX-s?...
Lupus Europe volunteers bring back some key learnings: fatigue, pain & lived experience, #LupusGPT, access, youth co-creation & new research directions.
Thank you to those who helped make this possible
youtu.be/IrKhqTZhX-s?...
‼️ Although not everyone is photosensitive, UV exposure could trigger flares in some people with #lupus.
☀️ UV rays are present year-round! Always protect your skin. Especially this Summer!
🤔 Questions? Explore reliable resources like #Lupus100 or ask #LupusGPT or #EasyLupus!
☀️ UV rays are present year-round! Always protect your skin. Especially this Summer!
🤔 Questions? Explore reliable resources like #Lupus100 or ask #LupusGPT or #EasyLupus!
June 24, 2026 at 5:03 PM
‼️ Although not everyone is photosensitive, UV exposure could trigger flares in some people with #lupus.
☀️ UV rays are present year-round! Always protect your skin. Especially this Summer!
🤔 Questions? Explore reliable resources like #Lupus100 or ask #LupusGPT or #EasyLupus!
☀️ UV rays are present year-round! Always protect your skin. Especially this Summer!
🤔 Questions? Explore reliable resources like #Lupus100 or ask #LupusGPT or #EasyLupus!
🦋 Our final #EULAR2026 recap is here!
From Jeanette’s packed Meet the Expert Session on #LupusGPT to seeing Lupus Europe’s work recognised in the @eular.org highlights.
Read it now 👉 https://f.mtr.cool/mhxjconurv
From Jeanette’s packed Meet the Expert Session on #LupusGPT to seeing Lupus Europe’s work recognised in the @eular.org highlights.
Read it now 👉 https://f.mtr.cool/mhxjconurv
June 20, 2026 at 4:04 PM
🦋 Our final #EULAR2026 recap is here!
From Jeanette’s packed Meet the Expert Session on #LupusGPT to seeing Lupus Europe’s work recognised in the @eular.org highlights.
Read it now 👉 https://f.mtr.cool/mhxjconurv
From Jeanette’s packed Meet the Expert Session on #LupusGPT to seeing Lupus Europe’s work recognised in the @eular.org highlights.
Read it now 👉 https://f.mtr.cool/mhxjconurv
🎥 Our Chair, Jeanette Andersen, explains at #EULAR2026 what #LupusGPT is and why reliable, understandable #lupus information matters.
Watch the full interview:
https://www.youtube.com/watch?v=plqZt7J142I
Thank you @eular.org for giving space to patient-led innovation on EULAR TV!
Watch the full interview:
https://www.youtube.com/watch?v=plqZt7J142I
Thank you @eular.org for giving space to patient-led innovation on EULAR TV!
June 13, 2026 at 5:21 PM
🎥 Our Chair, Jeanette Andersen, explains at #EULAR2026 what #LupusGPT is and why reliable, understandable #lupus information matters.
Watch the full interview:
https://www.youtube.com/watch?v=plqZt7J142I
Thank you @eular.org for giving space to patient-led innovation on EULAR TV!
Watch the full interview:
https://www.youtube.com/watch?v=plqZt7J142I
Thank you @eular.org for giving space to patient-led innovation on EULAR TV!
🦋What an amazing second day at #EULAR2026!
A 🔝 day for Lupus Europe, with Zoe presenting #LupusGPT & our local patient panel work, and Jeanette speaking about non-pharmacological treatment & co-chairing.
Read our day 2 recap https://www.linkedin.com/feed/update/urn:li:activity:7470063565056610305
A 🔝 day for Lupus Europe, with Zoe presenting #LupusGPT & our local patient panel work, and Jeanette speaking about non-pharmacological treatment & co-chairing.
Read our day 2 recap https://www.linkedin.com/feed/update/urn:li:activity:7470063565056610305
June 10, 2026 at 3:03 PM
🦋What an amazing second day at #EULAR2026!
A 🔝 day for Lupus Europe, with Zoe presenting #LupusGPT & our local patient panel work, and Jeanette speaking about non-pharmacological treatment & co-chairing.
Read our day 2 recap https://www.linkedin.com/feed/update/urn:li:activity:7470063565056610305
A 🔝 day for Lupus Europe, with Zoe presenting #LupusGPT & our local patient panel work, and Jeanette speaking about non-pharmacological treatment & co-chairing.
Read our day 2 recap https://www.linkedin.com/feed/update/urn:li:activity:7470063565056610305
🤩 What an amazing #EULAR2026!
Congratulations to @eular.org and the whole team for the 🔝 organisation and speaker line-up.
We leave London happy & proud of Lupus Europe’s contribution this year, from patient-led research to #LupusGPT & the patient voice across sessions.
See you at #EULAR2027!
Congratulations to @eular.org and the whole team for the 🔝 organisation and speaker line-up.
We leave London happy & proud of Lupus Europe’s contribution this year, from patient-led research to #LupusGPT & the patient voice across sessions.
See you at #EULAR2027!
June 6, 2026 at 2:35 PM
🤩 What an amazing #EULAR2026!
Congratulations to @eular.org and the whole team for the 🔝 organisation and speaker line-up.
We leave London happy & proud of Lupus Europe’s contribution this year, from patient-led research to #LupusGPT & the patient voice across sessions.
See you at #EULAR2027!
Congratulations to @eular.org and the whole team for the 🔝 organisation and speaker line-up.
We leave London happy & proud of Lupus Europe’s contribution this year, from patient-led research to #LupusGPT & the patient voice across sessions.
See you at #EULAR2027!
A useful checklist from Gerd R. Burmester on how to avoid hallucinations in LLMs:
✅ Clear context
✅ Trusted sources
✅ Verified data
✅ “I don’t know” when needed
For #LupusGPT, we also added validation by doctors and patients to ensure accuracy, understandable language and the right tone.
#EULAR2026
✅ Clear context
✅ Trusted sources
✅ Verified data
✅ “I don’t know” when needed
For #LupusGPT, we also added validation by doctors and patients to ensure accuracy, understandable language and the right tone.
#EULAR2026
June 6, 2026 at 1:22 PM
A useful checklist from Gerd R. Burmester on how to avoid hallucinations in LLMs:
✅ Clear context
✅ Trusted sources
✅ Verified data
✅ “I don’t know” when needed
For #LupusGPT, we also added validation by doctors and patients to ensure accuracy, understandable language and the right tone.
#EULAR2026
✅ Clear context
✅ Trusted sources
✅ Verified data
✅ “I don’t know” when needed
For #LupusGPT, we also added validation by doctors and patients to ensure accuracy, understandable language and the right tone.
#EULAR2026
At “AI vs The Doctor: (When) will AI replace the rheumatologist”, Gerd R. Burmester focused on hallucinations in LLMs in medicine.
LLMs are powerful, but fallible. #LupusGPT is designed to limit this risk through validated sources, low creativity, clear limits and no guessing.
#EULAR2026
LLMs are powerful, but fallible. #LupusGPT is designed to limit this risk through validated sources, low creativity, clear limits and no guessing.
#EULAR2026
June 6, 2026 at 1:20 PM
At “AI vs The Doctor: (When) will AI replace the rheumatologist”, Gerd R. Burmester focused on hallucinations in LLMs in medicine.
LLMs are powerful, but fallible. #LupusGPT is designed to limit this risk through validated sources, low creativity, clear limits and no guessing.
#EULAR2026
LLMs are powerful, but fallible. #LupusGPT is designed to limit this risk through validated sources, low creativity, clear limits and no guessing.
#EULAR2026
A very useful checklist for ethical AI in rheumatology:
🔹Bias
🔹Privacy
🔹Transparency
🔹Human oversight
🔹Regulatory compliance
🔹Lifecycle monitoring.
These are the principles at the core of #LupusGPT, from validation to clear boundaries.
#EULAR2026
🔹Bias
🔹Privacy
🔹Transparency
🔹Human oversight
🔹Regulatory compliance
🔹Lifecycle monitoring.
These are the principles at the core of #LupusGPT, from validation to clear boundaries.
#EULAR2026
June 6, 2026 at 1:19 PM
A very useful checklist for ethical AI in rheumatology:
🔹Bias
🔹Privacy
🔹Transparency
🔹Human oversight
🔹Regulatory compliance
🔹Lifecycle monitoring.
These are the principles at the core of #LupusGPT, from validation to clear boundaries.
#EULAR2026
🔹Bias
🔹Privacy
🔹Transparency
🔹Human oversight
🔹Regulatory compliance
🔹Lifecycle monitoring.
These are the principles at the core of #LupusGPT, from validation to clear boundaries.
#EULAR2026
“Where does the data go?”
A crucial question in clinical AI, and one that sits at the heart of responsible patient-facing tools.
#LupusGPT was designed with privacy-conscious access, no login, clear safeguards and a validated document library.
Safety is also architecture.
#EULAR2026
A crucial question in clinical AI, and one that sits at the heart of responsible patient-facing tools.
#LupusGPT was designed with privacy-conscious access, no login, clear safeguards and a validated document library.
Safety is also architecture.
#EULAR2026
June 6, 2026 at 1:16 PM
“Where does the data go?”
A crucial question in clinical AI, and one that sits at the heart of responsible patient-facing tools.
#LupusGPT was designed with privacy-conscious access, no login, clear safeguards and a validated document library.
Safety is also architecture.
#EULAR2026
A crucial question in clinical AI, and one that sits at the heart of responsible patient-facing tools.
#LupusGPT was designed with privacy-conscious access, no login, clear safeguards and a validated document library.
Safety is also architecture.
#EULAR2026
“Can AI say I don’t know?”
This is exactly why #LupusGPT was designed with clear boundaries: when the answer is not in its validated library, it does not guess.
In patient information, safety is not only about answering. It is also about knowing when to say “I can’t answer”.
#EULAR2026
This is exactly why #LupusGPT was designed with clear boundaries: when the answer is not in its validated library, it does not guess.
In patient information, safety is not only about answering. It is also about knowing when to say “I can’t answer”.
#EULAR2026
June 6, 2026 at 1:15 PM
“Can AI say I don’t know?”
This is exactly why #LupusGPT was designed with clear boundaries: when the answer is not in its validated library, it does not guess.
In patient information, safety is not only about answering. It is also about knowing when to say “I can’t answer”.
#EULAR2026
This is exactly why #LupusGPT was designed with clear boundaries: when the answer is not in its validated library, it does not guess.
In patient information, safety is not only about answering. It is also about knowing when to say “I can’t answer”.
#EULAR2026
Thank you to Johannes Knitza for mentioning #LupusGPT as a precedent in the validation of AI tools in rheumatology.
High acceptance is important, but validation is what makes these tools credible, safer and useful for real-world patient information.
#EULAR2026
High acceptance is important, but validation is what makes these tools credible, safer and useful for real-world patient information.
#EULAR2026
June 6, 2026 at 1:14 PM
Thank you to Johannes Knitza for mentioning #LupusGPT as a precedent in the validation of AI tools in rheumatology.
High acceptance is important, but validation is what makes these tools credible, safer and useful for real-world patient information.
#EULAR2026
High acceptance is important, but validation is what makes these tools credible, safer and useful for real-world patient information.
#EULAR2026
🦋 One more year, #LupusGPT is featured in the #EULAR2026 Highlights!
A free, multilingual AI information tool for lupus, co-designed by patients, clinicians & IT experts.
It uses a validated curated library, answers in patient-friendly language, and says when it doesn’t know.
lupusgpt.org
A free, multilingual AI information tool for lupus, co-designed by patients, clinicians & IT experts.
It uses a validated curated library, answers in patient-friendly language, and says when it doesn’t know.
lupusgpt.org
June 6, 2026 at 12:38 PM
🦋 One more year, #LupusGPT is featured in the #EULAR2026 Highlights!
A free, multilingual AI information tool for lupus, co-designed by patients, clinicians & IT experts.
It uses a validated curated library, answers in patient-friendly language, and says when it doesn’t know.
lupusgpt.org
A free, multilingual AI information tool for lupus, co-designed by patients, clinicians & IT experts.
It uses a validated curated library, answers in patient-friendly language, and says when it doesn’t know.
lupusgpt.org
🦋 AI in healthcare should not only be intelligent.
💡 It should be trustworthy, accessible and shaped together with patients.
👏 A powerful closing message from our Chair, Jeanette Andersen’s, at the #LupusGPT session at #EULAR2026.
💡 It should be trustworthy, accessible and shaped together with patients.
👏 A powerful closing message from our Chair, Jeanette Andersen’s, at the #LupusGPT session at #EULAR2026.
June 6, 2026 at 10:21 AM
🦋 AI in healthcare should not only be intelligent.
💡 It should be trustworthy, accessible and shaped together with patients.
👏 A powerful closing message from our Chair, Jeanette Andersen’s, at the #LupusGPT session at #EULAR2026.
💡 It should be trustworthy, accessible and shaped together with patients.
👏 A powerful closing message from our Chair, Jeanette Andersen’s, at the #LupusGPT session at #EULAR2026.
Jeanette’s practical roadmap for responsible AI:
Start with trustworthy information, co-design with patients, HCPs and AI specialists, set ethical and security boundaries, focus on accessibility, then keep learning and improving.
#LupusGPT #EULAR2026
Start with trustworthy information, co-design with patients, HCPs and AI specialists, set ethical and security boundaries, focus on accessibility, then keep learning and improving.
#LupusGPT #EULAR2026
June 6, 2026 at 10:12 AM
Jeanette’s practical roadmap for responsible AI:
Start with trustworthy information, co-design with patients, HCPs and AI specialists, set ethical and security boundaries, focus on accessibility, then keep learning and improving.
#LupusGPT #EULAR2026
Start with trustworthy information, co-design with patients, HCPs and AI specialists, set ethical and security boundaries, focus on accessibility, then keep learning and improving.
#LupusGPT #EULAR2026
🤝 Patient organisations already bring what responsible AI needs: trusted information, patient expertise, clinical networks, knowledge of unmet needs and multilingual communities.
🦋 This is why patient leadership matters in digital health.
#LupusGPT #EULAR2026
🦋 This is why patient leadership matters in digital health.
#LupusGPT #EULAR2026
June 6, 2026 at 10:12 AM
🤝 Patient organisations already bring what responsible AI needs: trusted information, patient expertise, clinical networks, knowledge of unmet needs and multilingual communities.
🦋 This is why patient leadership matters in digital health.
#LupusGPT #EULAR2026
🦋 This is why patient leadership matters in digital health.
#LupusGPT #EULAR2026
👂 AI can also become a listening tool.
🦋 Jeanette shows that patients ask about fatigue, diet, pregnancy, sunlight, physiotherapy and flares.
💡 Patients define treatment as everything that helps them function and live well. #LupusGPT
#EULAR2026
🦋 Jeanette shows that patients ask about fatigue, diet, pregnancy, sunlight, physiotherapy and flares.
💡 Patients define treatment as everything that helps them function and live well. #LupusGPT
#EULAR2026
June 6, 2026 at 10:08 AM
👂 AI can also become a listening tool.
🦋 Jeanette shows that patients ask about fatigue, diet, pregnancy, sunlight, physiotherapy and flares.
💡 Patients define treatment as everything that helps them function and live well. #LupusGPT
#EULAR2026
🦋 Jeanette shows that patients ask about fatigue, diet, pregnancy, sunlight, physiotherapy and flares.
💡 Patients define treatment as everything that helps them function and live well. #LupusGPT
#EULAR2026
📊 More than 65,000 questions answered across 189 countries since launch.
🌍 #LupusGPT is reaching far beyond Europe, including 39 low- and middle-income countries.
💡 Impact is also about what the tool teaches us.
#EULAR2026
🌍 #LupusGPT is reaching far beyond Europe, including 39 low- and middle-income countries.
💡 Impact is also about what the tool teaches us.
#EULAR2026
June 6, 2026 at 10:03 AM
📊 More than 65,000 questions answered across 189 countries since launch.
🌍 #LupusGPT is reaching far beyond Europe, including 39 low- and middle-income countries.
💡 Impact is also about what the tool teaches us.
#EULAR2026
🌍 #LupusGPT is reaching far beyond Europe, including 39 low- and middle-income countries.
💡 Impact is also about what the tool teaches us.
#EULAR2026
💡 One key feature of #LupusGPT: if the answer is not in its repository of validated lupus documents, it says so.
🦋 As Jeanette highlights, in patient information, safety is not only about answering questions. It is also knowing when not to answer.
#EULAR2026
🦋 As Jeanette highlights, in patient information, safety is not only about answering questions. It is also knowing when not to answer.
#EULAR2026
June 6, 2026 at 9:56 AM
💡 One key feature of #LupusGPT: if the answer is not in its repository of validated lupus documents, it says so.
🦋 As Jeanette highlights, in patient information, safety is not only about answering questions. It is also knowing when not to answer.
#EULAR2026
🦋 As Jeanette highlights, in patient information, safety is not only about answering questions. It is also knowing when not to answer.
#EULAR2026