Dr. Sabine Hermisson, mother and caregiver of a severely ill ME patient, shares her profound insights into the life and struggles of the most severely affected by ME/CFS. From the debilitating symptoms to the extreme isolation, Dr. Hermisson highlights the harsh realities faced by patients and their families. Her talk underscores the critical need for increased awareness and understanding of this often invisible illness. Follow Sabine Hermisson on Twitter: https://x.com/SabineHermisson Kindly moderated by Martin Hippe (https://x.com/pausedME ), a lawyer and ME/CFS patient, and the 1st chairman of mirame arts (https://www.mirame-arts.org ). 🎶 Music by: The late Kara Jane, courtesy of her father David Spencer (https://karajanesings.com/). 📱 Follow us on social media: Twitter: https://x.com/U2Fight_World Instagram: https://www.instagram.com/unitetofight Website: https://unitetofight2024.world 🎬 Intro Animation by: Claus Ernst (https://clausernst.com) 📝 Subtitles English transcript: @annette121020 (on X/Twitter) German translation: Ella Hermisson French translation: Gilles Thöni, PhD (@GillesThoni on X/Twitter) Coordination of transcripts & translations: Wiebke Katharina Schmidt (https://linkedin.com/in/wkschmidt) Thank you for watching and supporting the UniteToFight2024 conference. Your engagement helps drive awareness and support for those affected by Long COVID and ME/CFS. Stay tuned for more inspiring stories and presentations from the UniteToFight2024 conference!