#MEforward
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wilhelminaj.bsky.social
My ME Action GA friends, working hard during @solveme.bsky.social’s Advocacy Week to brings critical issues concerning ME/CFS to members of Congress. Love and respect! #MEForward
lizmeactga.bsky.social Liz Burlingame @lizmeactga.bsky.social · Jun 26
Just completed a meeting with Lizzie N of Rep. Rich McCormick's office as part of @solveme.bsky.social Advocacy Week. We are counting on Congress to help support the estimated 9 million Americans suffering with #MECFS. #MEforward
Screenshot of four women attending a virtual advocacy meeting to discuss the crisis in clinical care for people with ME/CFS.
June 26, 2025 at 9:22 PM
lizmeactga.bsky.social
I will be joining with my fellow #MECFS advocates to talk to my congressional representative about restoring these critical funds. #GA07
#MEforward
solveme.bsky.social Solve M.E. @solveme.bsky.social · Jun 19
🧵 1/ 🚨 Congress slashed $859 MILLION from a key research program that includes funding for ME/CFS and other critical health conditions.
We need your help to restore it. #MECFS #CDMRP #HR3906
solvecfs.quorum.us/campaign/128...
A square graphic with blue and green abstract shapes in the corners and an alarm emoji at the top of the page reads "Medical Research Funding Slashed 57%. Congress cut $859 million from CDMRP in FY25--putting ME/CFS research at serious risk. H.R. 3906 would restore funding. Tell Congress: COSPONSOR NOW." At the bottom of the graphic are a multicolored image of the U.S. Capitol Building and Solve's orange and green double helix logo.
June 23, 2025 at 6:42 PM
lizmeactga.bsky.social
Just completed a meeting with Lizzie N of Rep. Rich McCormick's office as part of @solveme.bsky.social Advocacy Week. We are counting on Congress to help support the estimated 9 million Americans suffering with #MECFS. #MEforward
Screenshot of four women attending a virtual advocacy meeting to discuss the crisis in clinical care for people with ME/CFS.
June 26, 2025 at 7:26 PM
meactnet.bsky.social
Now I am going to follow my own advice and rest before the next call!

What actions are you taking? Remember resting and recovering is an important action too!

#MyalgicEncephalomyelitis #disability #MEForward #MillionsMissing #longCovid
June 26, 2025 at 5:39 PM
melindaiscomplex.bsky.social
Team Maryland @repjohnnyo.bsky.social @repaprildelaney.bsky.social @ivey.house.gov @hoyer.house.gov @elfreth.house.gov @raskin.house.gov @repkweisimfume.bsky.social PLEASE cosponsor H.R. 3906 to restore key research funding! #CDMRP #HR3906 #MEforward #MECFS #IACCI
solveme.bsky.social Solve M.E. @solveme.bsky.social · Jun 19
🧵 1/ 🚨 Congress slashed $859 MILLION from a key research program that includes funding for ME/CFS and other critical health conditions.
We need your help to restore it. #MECFS #CDMRP #HR3906
solvecfs.quorum.us/campaign/128...
A square graphic with blue and green abstract shapes in the corners and an alarm emoji at the top of the page reads "Medical Research Funding Slashed 57%. Congress cut $859 million from CDMRP in FY25--putting ME/CFS research at serious risk. H.R. 3906 would restore funding. Tell Congress: COSPONSOR NOW." At the bottom of the graphic are a multicolored image of the U.S. Capitol Building and Solve's orange and green double helix logo.
June 25, 2025 at 4:06 PM
solveme.bsky.social
Registration is now open for Solve’s Virtual Advocacy Week, June 23-27, 2025! Make your voice heard – help educate Congress about ME/CFS and associated conditions. Register by May 12 at MEForward.org.
#MEForward
March 13, 2025 at 9:46 PM
melindaiscomplex.bsky.social
Thank you @repaprildelaney.bsky.social for signing on to cosponsor H.R. 3906! #CDMRP #MEforward @solveme.bsky.social
melindaiscomplex.bsky.social melinda_is_done @melindaiscomplex.bsky.social · Jun 25
Team Maryland @repjohnnyo.bsky.social @repaprildelaney.bsky.social @ivey.house.gov @hoyer.house.gov @elfreth.house.gov @raskin.house.gov @repkweisimfume.bsky.social PLEASE cosponsor H.R. 3906 to restore key research funding! #CDMRP #HR3906 #MEforward #MECFS #IACCI
solveme.bsky.social Solve M.E. @solveme.bsky.social · Jun 19
🧵 1/ 🚨 Congress slashed $859 MILLION from a key research program that includes funding for ME/CFS and other critical health conditions.
We need your help to restore it. #MECFS #CDMRP #HR3906
solvecfs.quorum.us/campaign/128...
June 26, 2025 at 10:03 PM
melindaiscomplex.bsky.social
Thank you @repaprildelaney.bsky.social for signing on to cosponsor H.R. 3906!
#CDMRP #MEforward #MEcfs #HR3906
June 26, 2025 at 10:04 PM
jenrobinegan.bsky.social
Thread. Please join me in asking Congress to restore one of the only federal sources of money that enables #ME/CFS research. #SolveMEAdvocacyWeek2025 #MEForward
solveme.bsky.social Solve M.E. @solveme.bsky.social · Jun 19
🧵 1/ 🚨 Congress slashed $859 MILLION from a key research program that includes funding for ME/CFS and other critical health conditions.
We need your help to restore it. #MECFS #CDMRP #HR3906
solvecfs.quorum.us/campaign/128...
A square graphic with blue and green abstract shapes in the corners and an alarm emoji at the top of the page reads "Medical Research Funding Slashed 57%. Congress cut $859 million from CDMRP in FY25--putting ME/CFS research at serious risk. H.R. 3906 would restore funding. Tell Congress: COSPONSOR NOW." At the bottom of the graphic are a multicolored image of the U.S. Capitol Building and Solve's orange and green double helix logo.
June 26, 2025 at 8:54 AM
solveme.bsky.social
Check out our overview of Advocacy Week 2025! This year was a study in power, progress, and patient-led change, with 187 meetings with congressional offices and 226 attendees from across 36 states and D.C. -- and we did it together!
ow.ly/Ilm750WpA78

#MEForward #MECFS
A square graphic with a white background and blue and orange decorative shapes reads: "An overview of Solve M.E. Advocacy Week 2025 Power, Progress & Patient-Led Change." The graphic includes a multicolored depiction of the U.S. Capitol building.
July 14, 2025 at 9:35 PM
solveme.bsky.social
Since 1987, Solve has stood by the ME/CFS community—breaking ground and pushing for change.

Donate by midnight on Monday, June 30 and your gift will be matched up to $50K!

Help us keep moving #MEForward. 💙
ow.ly/OiZG50WhIQU
Blue, orange, grey, and green wheel with center message of "Solve M.E. Leading the Way since 1987" and with 11 "pie slices" of firsts that read: 1st ME/CFS Patient Biobank, 1st National ME/CFS Patient Organization, 1st Organization to publicly link ME/CFS and Long Covid, 1st ME/CFS ADvocacy Week in DC, 1st ME/CFS Grant Award Competition, !st ME/CFS Founder of Long Covid Alliance, 1st Senate Resolution on ME/CFS, 1st Congressional briefing on ME/CFS, 1st National PSA for Long Covid, !st Times Square Ad Campaign for ME/CFS, 1st ME/CFS Patient Registry.
June 27, 2025 at 6:57 PM