Love it when a pharmaceutical @napopharma company and its CEO listen to people with cancer, to learn about what is important to us in terms of quality of life and supportive care #MakeCancerLessShitty #SABCS23
November 17, 2024 at 1:10 AM
Love it when a pharmaceutical @napopharma company and its CEO listen to people with cancer, to learn about what is important to us in terms of quality of life and supportive care #MakeCancerLessShitty #SABCS23
June is packed—3 bestie bdays (2 turning 40!), my husband’s bday, PrideFest, the parade 🌈✨
But chemo doesn’t care what’s on the calendar.
So I’m pacing myself. Squeezing joy from the good days. Grace on the hard ones. 💛
#ChemoLife #makecancerlessshitty
But chemo doesn’t care what’s on the calendar.
So I’m pacing myself. Squeezing joy from the good days. Grace on the hard ones. 💛
#ChemoLife #makecancerlessshitty
June 20, 2025 at 8:38 PM
June is packed—3 bestie bdays (2 turning 40!), my husband’s bday, PrideFest, the parade 🌈✨
But chemo doesn’t care what’s on the calendar.
So I’m pacing myself. Squeezing joy from the good days. Grace on the hard ones. 💛
#ChemoLife #makecancerlessshitty
But chemo doesn’t care what’s on the calendar.
So I’m pacing myself. Squeezing joy from the good days. Grace on the hard ones. 💛
#ChemoLife #makecancerlessshitty
As a cancer survivor who is on Medicare, do you have a Medicare Advantage plan too? Or just Medicare A&B? I’ve heard mixed things.
#makecancerlessshitty #SurvOn #cancersurvivorquestion #nsclc #lungcancer
#makecancerlessshitty #SurvOn #cancersurvivorquestion #nsclc #lungcancer
December 26, 2024 at 3:56 PM
As a cancer survivor who is on Medicare, do you have a Medicare Advantage plan too? Or just Medicare A&B? I’ve heard mixed things.
#makecancerlessshitty #SurvOn #cancersurvivorquestion #nsclc #lungcancer
#makecancerlessshitty #SurvOn #cancersurvivorquestion #nsclc #lungcancer
Through every season—holidays, hardships, and even cancer—this crew has been my rock. 💛 They make the hard days lighter & the good days sweeter. Support like this makes cancer less shitty. Grateful for love, laughter, & strength. ❤️ #MakeCancerLessShitty #SupportMatters
December 22, 2024 at 11:38 PM
Through every season—holidays, hardships, and even cancer—this crew has been my rock. 💛 They make the hard days lighter & the good days sweeter. Support like this makes cancer less shitty. Grateful for love, laughter, & strength. ❤️ #MakeCancerLessShitty #SupportMatters
Some days hit harder. Today, I spoke with a lung cancer friend whose cancer has spread. It’s gut-wrenching and hard not to think, could that be me someday?
I have scans Dec 16. The scanxiety is real.
Thinking of my friend as they start treatment. Fingers Crossed!
#makecancerlessshitty
I have scans Dec 16. The scanxiety is real.
Thinking of my friend as they start treatment. Fingers Crossed!
#makecancerlessshitty
December 1, 2024 at 9:49 PM
Some days hit harder. Today, I spoke with a lung cancer friend whose cancer has spread. It’s gut-wrenching and hard not to think, could that be me someday?
I have scans Dec 16. The scanxiety is real.
Thinking of my friend as they start treatment. Fingers Crossed!
#makecancerlessshitty
I have scans Dec 16. The scanxiety is real.
Thinking of my friend as they start treatment. Fingers Crossed!
#makecancerlessshitty
How do you pack your meds for a trip? 💊 Do you have any tricks? I tend to overpack for every scenario—if you need it, I probably have it! 😂 Traveling with cancer means being a walking pharmacy at all times.
What are your go-to tips? 👇 #makecancerlessshitty
#SurvOnc
What are your go-to tips? 👇 #makecancerlessshitty
#SurvOnc
November 22, 2024 at 2:56 AM
How do you pack your meds for a trip? 💊 Do you have any tricks? I tend to overpack for every scenario—if you need it, I probably have it! 😂 Traveling with cancer means being a walking pharmacy at all times.
What are your go-to tips? 👇 #makecancerlessshitty
#SurvOnc
What are your go-to tips? 👇 #makecancerlessshitty
#SurvOnc
Diarrhea is a common side effect of cancer treatment. Our study at #SABCS24 underscores the potential of crofelemer for prophylaxis of treatment-related diarrhea.
#SuppOnc #MakeCancerLessShitty
#SuppOnc #MakeCancerLessShitty
December 11, 2024 at 9:10 PM
I just noticed this is in SEATTLE next year. Woot! #cansky #MakeCancerLessShitty
If you haven't already checked out @cancercaremascc.bsky.social - it's an entire global organization of clinicians, researchers, and even advocates focused on trying to #MakeCancerLessShitty
#Cansky #SuppOnc #hpm #SurvOnc
#Cansky #SuppOnc #hpm #SurvOnc
Two weeks until the #MASCC25 Conference Scholarship deadline on December 18!
All other abstracts (including other award/scholarship applications) are due by January 8, 2025.
mascc.org/annualmeetin...
#SuppOnc #SurvOnc #GlobOnc #PallOnc #Oncology @oncoalert.bsky.social
All other abstracts (including other award/scholarship applications) are due by January 8, 2025.
mascc.org/annualmeetin...
#SuppOnc #SurvOnc #GlobOnc #PallOnc #Oncology @oncoalert.bsky.social
December 8, 2024 at 12:38 AM
I just noticed this is in SEATTLE next year. Woot! #cansky #MakeCancerLessShitty
"Cancer is more than just the physical part, it is the emotional and mental part too." ~ @jj5145.bsky.social on his ambassador efforts to raise awareness on the realities of cancer treatment and cancer survivorship.
#makecancerlessshitty #CanSky
makecancerlessshitty.com
vimeo.com/1077286057/5...
#makecancerlessshitty #CanSky
makecancerlessshitty.com
vimeo.com/1077286057/5...
JJ Singleton: Why I Became an MCLS Ambassador
This is "JJ Singleton: Why I Became an MCLS Ambassador" by Peter Hodge on Vimeo, the home for high quality videos and the people who love them.
vimeo.com
August 8, 2025 at 9:10 PM
"Cancer is more than just the physical part, it is the emotional and mental part too." ~ @jj5145.bsky.social on his ambassador efforts to raise awareness on the realities of cancer treatment and cancer survivorship.
#makecancerlessshitty #CanSky
makecancerlessshitty.com
vimeo.com/1077286057/5...
#makecancerlessshitty #CanSky
makecancerlessshitty.com
vimeo.com/1077286057/5...
Loved meeting patient advocates and sharing shirts at the @cancercaremascc.bsky.social annual meeting last month in Seattle! Excited to learn from others on ways we can collectively #MakeCancerLessShitty
@gitteilc.bsky.social
@tingtingzhang.bsky.social
#MASCC25
@gitteilc.bsky.social
@tingtingzhang.bsky.social
#MASCC25
July 11, 2025 at 4:53 PM
Loved meeting patient advocates and sharing shirts at the @cancercaremascc.bsky.social annual meeting last month in Seattle! Excited to learn from others on ways we can collectively #MakeCancerLessShitty
@gitteilc.bsky.social
@tingtingzhang.bsky.social
#MASCC25
@gitteilc.bsky.social
@tingtingzhang.bsky.social
#MASCC25
THIS! Oral mucositis is often overlooked and definitely under-addressed. Education about WHAT it is and HOW to alleviate would definitely help to #MakeCancerLessShitty
Oral mucositis - Inflammation of the mouth & throat caused by a variety of cancer treatments (thanks, lenvatinib). It hurts to eat almost everything.
July 11, 2025 at 4:20 PM
THIS! Oral mucositis is often overlooked and definitely under-addressed. Education about WHAT it is and HOW to alleviate would definitely help to #MakeCancerLessShitty
We ♥️ meeting new people who are doing amazing things to #MakeCancerLessShitty & we met plenty of fabulous humans at #ONS25 last week! We shared stories, chatted about impacts of side effects & discussed the need to improve access to quality supportive care! Looking forward to #AACR25 & #ASCO25 too!
April 18, 2025 at 7:25 PM
We ♥️ meeting new people who are doing amazing things to #MakeCancerLessShitty & we met plenty of fabulous humans at #ONS25 last week! We shared stories, chatted about impacts of side effects & discussed the need to improve access to quality supportive care! Looking forward to #AACR25 & #ASCO25 too!
Today is Oral Mucositis (OM) Awareness Day. OM is an often unseen but painful side effect of cancer treatment where large patches of sores appear all over the mouth & sometimes throat. Current #SuppOnc often fails to meet patient needs
We need to #MakeCancerLessShitty
#MoreThanASore #OMAD25 #CanSky
We need to #MakeCancerLessShitty
#MoreThanASore #OMAD25 #CanSky
April 1, 2025 at 4:05 PM
Today is Oral Mucositis (OM) Awareness Day. OM is an often unseen but painful side effect of cancer treatment where large patches of sores appear all over the mouth & sometimes throat. Current #SuppOnc often fails to meet patient needs
We need to #MakeCancerLessShitty
#MoreThanASore #OMAD25 #CanSky
We need to #MakeCancerLessShitty
#MoreThanASore #OMAD25 #CanSky
Side effects and long-term effects of cancer treatment have long been minimized for those surviving cancer! The phrase "manageable & tolerable" is misleading. Just because a side effect doesn't land us in the hospital doesn't mean it's tolerable.
#MakeCancerLessShitty #SurvOnc #SuppOnc #PallOnc
#MakeCancerLessShitty #SurvOnc #SuppOnc #PallOnc
Cancer treatment effects continue to kick my arse 15 years later ☹️. #PelvicRadiationDisease #damncancer
March 18, 2025 at 4:19 PM
Side effects and long-term effects of cancer treatment have long been minimized for those surviving cancer! The phrase "manageable & tolerable" is misleading. Just because a side effect doesn't land us in the hospital doesn't mean it's tolerable.
#MakeCancerLessShitty #SurvOnc #SuppOnc #PallOnc
#MakeCancerLessShitty #SurvOnc #SuppOnc #PallOnc
THIS.
There are the side effects that happen during treatment and then there are the side effects that "just keep on giving" 😑
We need to #MakeCancerLessShitty by improving the access to supportive care during treatment AND post-treatment survivorship support. #SuppOnc #SurvOnc #CanSky #OncSky
There are the side effects that happen during treatment and then there are the side effects that "just keep on giving" 😑
We need to #MakeCancerLessShitty by improving the access to supportive care during treatment AND post-treatment survivorship support. #SuppOnc #SurvOnc #CanSky #OncSky
I’m on a new steroid to hopefully reduce swelling in my chest. Most people wouldn’t expect cancer/chemo side effects to still be kicking my ass nearly six months later, but they are. #cansky
March 17, 2025 at 3:37 PM
THIS.
There are the side effects that happen during treatment and then there are the side effects that "just keep on giving" 😑
We need to #MakeCancerLessShitty by improving the access to supportive care during treatment AND post-treatment survivorship support. #SuppOnc #SurvOnc #CanSky #OncSky
There are the side effects that happen during treatment and then there are the side effects that "just keep on giving" 😑
We need to #MakeCancerLessShitty by improving the access to supportive care during treatment AND post-treatment survivorship support. #SuppOnc #SurvOnc #CanSky #OncSky
In order to #MakeCancerLessShitty, we need to support cancer research, not slash it.
#CanSky #OncSky
#CanSky #OncSky
March 13, 2025 at 6:23 PM
In order to #MakeCancerLessShitty, we need to support cancer research, not slash it.
#CanSky #OncSky
#CanSky #OncSky
February 27, 2025 at 8:44 PM
February 10, 2025 at 8:08 PM
Cancer treatments get approved on the basis of lengthening life but the QUALITY of that life is important. We need to #MakeCancerLessShitty with improved access to effective supportive care, personalized dosing, and affordable access to quality care. #CanSky #OncSky #OncoSky #hpm #SuppOnc
My tx was cancelled today and we are changing my tx schedule to every other week instead of 2 on 1 off. I am ok with this. My body doesn’t tolerate this chemo as well as the last. My QOL will be better. I will be able to enjoy more time spent with my 10 yo instead of gritting my teeth.
#cansky
#cansky
February 7, 2025 at 3:40 PM
Oh my - we think this just needs to be shared, Tom
Cancer anxiety, the gift that keeps on giving 😑#MakeCancerLessShitty
Cancer anxiety, the gift that keeps on giving 😑#MakeCancerLessShitty
Just figured out my Fitbit thinks my anxiety attacks are cardio workouts 💪 🥴
#cansky
#cansky
January 29, 2025 at 9:58 PM
Oh my - we think this just needs to be shared, Tom
Cancer anxiety, the gift that keeps on giving 😑#MakeCancerLessShitty
Cancer anxiety, the gift that keeps on giving 😑#MakeCancerLessShitty
The slowing or stopping of cancer research will NOT #MakeCancerLessShitty for anyone 🤬
We've seen tremendous progress with treatment efficacy & we are eager to focus on improving access to supportive care - let's not go backwards
#CanSky #OncSky #OncoSky #SuppOnc #PallOnc #hpm
We've seen tremendous progress with treatment efficacy & we are eager to focus on improving access to supportive care - let's not go backwards
#CanSky #OncSky #OncoSky #SuppOnc #PallOnc #hpm
As someone actively fighting #ovariancancer, I'm both horrified and terrified. This could literally seal my fate when chemo and Parp Inhibitors stop being effective, as they do often do for this #cancer. #cancersky #cansky #oncsky #medsky
Scientists at the National Institutes of Health have been told the communications pause announced by the Trump Administration earlier this week includes a pause on ALL purchasing — including supplies for their ongoing research to treat cancer, Alzheimer’s, heart disease and many infectious diseases.
January 27, 2025 at 9:38 PM
#MakeCancerLessShitty
"Life altering" for all and not just limited to an "event" for many.
Sharing the true reality of impacts, including those that persist long after treatment highlights that, as we prolong life, we need more attention to the QUALITY of life!
#CanSky #OncoSky
"Life altering" for all and not just limited to an "event" for many.
Sharing the true reality of impacts, including those that persist long after treatment highlights that, as we prolong life, we need more attention to the QUALITY of life!
#CanSky #OncoSky
@thankscancer.bsky.social
To all my fellow carcinomies: keep talking and keep sharing your experiences. Cancer is a life altering "event" that must never be silenced.
Here's to 2025🥂
#Cansky
#Oncsky
To all my fellow carcinomies: keep talking and keep sharing your experiences. Cancer is a life altering "event" that must never be silenced.
Here's to 2025🥂
#Cansky
#Oncsky
January 14, 2025 at 5:30 PM
#MakeCancerLessShitty
"Life altering" for all and not just limited to an "event" for many.
Sharing the true reality of impacts, including those that persist long after treatment highlights that, as we prolong life, we need more attention to the QUALITY of life!
#CanSky #OncoSky
"Life altering" for all and not just limited to an "event" for many.
Sharing the true reality of impacts, including those that persist long after treatment highlights that, as we prolong life, we need more attention to the QUALITY of life!
#CanSky #OncoSky
Does anyone in the #CanSky community have thoughts to share with Wyatt?
(Good healthcare coverage can help #MakeCancerLessShitty)
(Good healthcare coverage can help #MakeCancerLessShitty)
As a cancer survivor who is on Medicare, do you have a Medicare Advantage plan too? Or just Medicare A&B? I’ve heard mixed things.
#makecancerlessshitty #SurvOn #cancersurvivorquestion #nsclc #lungcancer
#makecancerlessshitty #SurvOn #cancersurvivorquestion #nsclc #lungcancer
January 10, 2025 at 4:56 PM
Does anyone in the #CanSky community have thoughts to share with Wyatt?
(Good healthcare coverage can help #MakeCancerLessShitty)
(Good healthcare coverage can help #MakeCancerLessShitty)
January 3, 2025 at 4:08 PM
Grateful for organizations & people who help patients get what they need. However, the amount of time & energy it takes to fight an insurance denial WHILE you're dealing with the physical, emotional, financial effects of cancer treatment is criminal #MakeCancerLessShitty
#FinancialToxicity #CanSky
#FinancialToxicity #CanSky
It's common for an insurance company to say "no" to coverage during #cancer treatment. What can be done? CEO Joanna Doran was interviewed on "How to Self Advocate When Insurance Says No to Cancer Treatment Coverage" in Cure Today's article: loom.ly/dRcIIWM
#cansky #oncsky #MedSky #OncoSky #NurseSky
#cansky #oncsky #MedSky #OncoSky #NurseSky
How to Self Advocate When Insurance Says No to Cancer Treatment Coverage
When insurance denies coverage of cancer treatment, patients with cancer don’t need to take no for an answer, an expert explained.
loom.ly
January 3, 2025 at 4:07 PM
Grateful for organizations & people who help patients get what they need. However, the amount of time & energy it takes to fight an insurance denial WHILE you're dealing with the physical, emotional, financial effects of cancer treatment is criminal #MakeCancerLessShitty
#FinancialToxicity #CanSky
#FinancialToxicity #CanSky