#MultipleEndocrineNeoplasia
Survey for European patients with #MEN1, #MEN2A, #MEN2B, #MEN4 exploring the unmet needs in patients with #MultipleEndocrineNeoplasia syndromes. As Survey from the European MEN Alliance (EMENA). Multiple languages.

ec.europa.eu/eusurvey/run...
November 19, 2024 at 11:25 AM
❓Did you know.......? We have information resources suitable for patients and family members with MEN syndromes from age 5 upwards. Check out our charming, simple, yet informative cartoon about MEN1
youtu.be/R5Tzjzmgf74
#endosky #MEN1 #multipleendocrineneoplasia #MrMunroAnimations
MEN1
YouTube video by AMEND3
youtu.be
December 17, 2024 at 1:18 PM
Jo (MEM2A) and Gill (MEN1) from AMEND are here and happy to speak with you. Let us show you how we help your patients. #sfeBES2025 @socendocrinology.bsky.social #multipleendocrineneoplasia #paraganglioma #adrenocorticalcancer
March 10, 2025 at 2:08 PM
Great overview at the 19th World MultipleEndocrineNeoplasia meeting in Sao Paulo 🇧🇷 of the just published MEN1 guidelines by THE experts 👇👇👇

www.thelancet.com/journals/lan...
June 17, 2025 at 9:38 PM
Following on from yesterday... Did you know we have information resources suitable for children with MEN syndromes from age 5 upwards. Check out our charming, simple, yet informative cartoon about MEN2 youtu.be/_nynHFFQiWI
#endosky #MEN2 #multipleendocrineneoplasia #MrMunroAnimations
MEN2
YouTube video by AMEND3
youtu.be
December 18, 2024 at 11:21 AM
November 13, 2025 at 5:02 PM
Due to early detection of #MultipleEndocrineNeoplasia type 2A (MEN2A), made possible by the genetic test, and the high chance of MTC, surgery to remove the thyroid gland is now done in children who carry the gene.
✅Get informed in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
June 16, 2025 at 6:35 AM
Lovely article on RET @ 30 in Endocrine Related Cancer by Prof Bruce Ponder and Mr Tom Kurzawinski
erc.bioscientifica.com/view/journal...
#RETgene #MEN2 #MEN2A #MEN2B #multipleendocrineneoplasia #genetics
April 3, 2025 at 2:22 PM
👏Kudos to AMEND amenduk.bsky.social for launching a brand-new digital resource for registered members of the charity with #MultipleEndocrineNeoplasia type 1 (MEN1).
✅Find out more: incalliance.org/men1-patient...
#LetsTalkAboutNETs
March 27, 2026 at 7:46 AM
📌Take your time and watch the recording of the @enets.org ENETS&INCA NET Cancer Day 2025 Educational Webinar: incalliance.org/the-recordin...
👉Delve in patient-friendly discussions about carcinoid syndrome & heart disease, NEC & genetic syndromes.
#LetsTalkAboutNETs #MultipleEndocrineNeoplasia
November 25, 2025 at 11:02 AM
#MedullaryThyroidCancer (MTC) is a rare form of cancer of the thyroid gland. 25% of cases of MTC occur as part of #MultipleEndocrineNeoplasia Type 2 (MEN2).
✅We help HCPs to detect MTC early – find #NETInfo in 11 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs
August 6, 2025 at 6:14 AM
Gastrointestinal symptoms, such as nausea or vomiting, can be signs of #MultipleEndocrineNeoplasia type 1 (MEN1).
👉These symptoms can mislead clinicians if they do not suspect something less common.
✅Get to know MEN1 in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
May 13, 2025 at 6:53 AM
A dentist or doctor may suspect #MultipleEndocrineNeoplasia Type 2B (MEN2B) when they see lumps in the mouth (gums and/or tongue) or the lumpy lips which are a typical facial feature.
📌Get to know MEN2B in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
July 2, 2025 at 6:47 AM
#MultipleEndocrineNeoplasia type 2A (MEN2A) is a condition that can be passed down in families. A patient may have the gene change that causes MEN2A, but not have developed any of the tumors.
✅Get a grasp of MEN2A in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
June 3, 2025 at 4:58 AM
Health-related quality of life in children with multiple endocrine neoplasia (MEN) and their siblings. Read more in #JCEM: https://bit.ly/3TZsezO #MultipleEndocrineNeoplasia, #Psychosocial @endocrinesociety.bsky.social
Health-related quality of life in children with multiple endocrine neoplasia (MEN) and their siblings
AbstractContext. Multiple Endocrine Neoplasia (MEN) syndromes are rare autosomal dominant hereditary tumor predisposition syndromes affecting multiple fami
bit.ly
August 24, 2026 at 5:12 PM
Pheochromocytomas are NETs of the adrenal glands. They can present in #MultipleEndocrineNeoplasia type 2A (MEN2A) but they are almost always benign (not cancer).
✅Get informed in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
June 23, 2025 at 6:37 AM
#MultipleEndocrineNeoplasia type 2A (MEN2A) is an inherited condition caused by a mutation in the RET gene.
👉Almost all MEN2A patients will develop #MedullaryThyroidCancer (MTC) by the age of 40.
✅Get a grasp of MEN2A in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
June 9, 2025 at 6:51 AM
#MultipleEndocrineNeoplasia type 1 (MEN1) causes more than one gland of the body’s endocrine system to develop tumors, including NETs.
👉Early symptoms are often mild and include fatigue and weakness.
✅Get to know MEN1 in 11 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
May 5, 2025 at 7:17 AM
February 2, 2026 at 6:44 PM
‼⏰ On Thursday, 24 April, the global endocrine community will unite on the first World Hormone Day to raise awareness of the vital role of hormones in health and disease. www.amend.org.uk/world-hormon...
#worldhormoneday #worldhormoneday2025 #becausehormonesmatter #multipleendocrineneoplasia
April 17, 2025 at 6:15 PM
Quiz time! Test your knowledge on #MultipleEndocrineNeoplasia Type 1. #MEN1
Test Your Knowledge on Multiple Endocrine Neoplasia Type 1
Which of the statements about MEN1 management are correct?
www.endocrinologyadvisor.com
June 5, 2025 at 1:37 PM