This is the email message:
CDC Blood Disorder Program Cuts: Community Impact | NBDF
Dear Friends,
www.bleeding.org
April 2, 2025 at 7:41 PM
This is the email message:
Very important video just dropped on our platform. Talk about it. Please click the link and watch and thank you! WATCH HERE: youtu.be/y3Cz5I9CG5c
January 9, 2026 at 6:23 PM
Very important video just dropped on our platform. Talk about it. Please click the link and watch and thank you! WATCH HERE: youtu.be/y3Cz5I9CG5c
Did you know that NBDF has #research #grants?
Tmrw, in the first 2026 Wednesday Webinar we will explore what NBDF #funds, how to apply, and how NBDF can support you in the process!
Bring your questions for the live Q&A
Jan 14 2pm ET
Don't forget to pre-register:
www.bleeding.org/events/from-...
Tmrw, in the first 2026 Wednesday Webinar we will explore what NBDF #funds, how to apply, and how NBDF can support you in the process!
Bring your questions for the live Q&A
Jan 14 2pm ET
Don't forget to pre-register:
www.bleeding.org/events/from-...
From Idea to Impact: NBDF's Research Grants | NBDF
Speakers: Louise M. Baca, MSN, RN; CC Cook CSW, MPH; Halli Benasutti, PhDJoin us as we look into NBDF's research grant process: what we fund, how to apply, and how NBDF can support you through the pro...
www.bleeding.org
January 13, 2026 at 8:20 PM
Did you know that NBDF has #research #grants?
Tmrw, in the first 2026 Wednesday Webinar we will explore what NBDF #funds, how to apply, and how NBDF can support you in the process!
Bring your questions for the live Q&A
Jan 14 2pm ET
Don't forget to pre-register:
www.bleeding.org/events/from-...
Tmrw, in the first 2026 Wednesday Webinar we will explore what NBDF #funds, how to apply, and how NBDF can support you in the process!
Bring your questions for the live Q&A
Jan 14 2pm ET
Don't forget to pre-register:
www.bleeding.org/events/from-...
Here’s the actual statement.
CDC Blood Disorder Program Cuts: Community Impact | NBDF
Dear Friends,
www.bleeding.org
April 3, 2025 at 4:23 AM
Here’s the actual statement.
I did a thing! In Jan I was honored to join the board of the National Bleeding Disorders Foundation & today was advocacy day. Thanks to the staff of Reps Kamlager-Dove, Thompson, & Levin for meeting with us & to my NBDF colleagues for making my first experience so memorable #washingtondays2025 #NBDF
March 6, 2025 at 9:51 PM
I did a thing! In Jan I was honored to join the board of the National Bleeding Disorders Foundation & today was advocacy day. Thanks to the staff of Reps Kamlager-Dove, Thompson, & Levin for meeting with us & to my NBDF colleagues for making my first experience so memorable #washingtondays2025 #NBDF
I’m terrified for my safety. #hemophilia www.bleeding.org/news/an-impo...
CDC Blood Disorder Program Cuts: Community Impact | NBDF
Dear Friends,
www.bleeding.org
April 3, 2025 at 4:31 PM
I’m terrified for my safety. #hemophilia www.bleeding.org/news/an-impo...
AWAKENING, Joanna Hogg’s trailer for this year’s Viennale (October 16 through 28) www.youtube.com/watch?v=NBDF...
Viennale-Trailer 2025: AWAKENING by Joanna Hogg
YouTube video by FilmFestivalViennale
www.youtube.com
September 19, 2025 at 7:57 AM
AWAKENING, Joanna Hogg’s trailer for this year’s Viennale (October 16 through 28) www.youtube.com/watch?v=NBDF...
Nearly all the staff of the CDC’s Division of Blood Disorders and Public Health Genomics has been placed on leave & expect termination. This is unprecedented. It directly harms people like myself with hemophilia & opens the door for further damage by the Trump admin.
www.bleeding.org/news/an-impo...
www.bleeding.org/news/an-impo...
CDC Blood Disorder Program Cuts: Community Impact | NBDF
Dear Friends,
www.bleeding.org
April 2, 2025 at 11:23 PM
Nearly all the staff of the CDC’s Division of Blood Disorders and Public Health Genomics has been placed on leave & expect termination. This is unprecedented. It directly harms people like myself with hemophilia & opens the door for further damage by the Trump admin.
www.bleeding.org/news/an-impo...
www.bleeding.org/news/an-impo...
TODAY 2PM ET!
Don't miss this chance to learn from Dr Tammuella Chrisentery-Singleton, about @HEMABiologics #treatment option for #hemophilia A and B with #inhibitors in the NBDF Wednesday Webinar.
Bring your questions for the live Q&A!
Pre-register (free): bleeding.org/events
Don't miss this chance to learn from Dr Tammuella Chrisentery-Singleton, about @HEMABiologics #treatment option for #hemophilia A and B with #inhibitors in the NBDF Wednesday Webinar.
Bring your questions for the live Q&A!
Pre-register (free): bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
July 30, 2025 at 3:05 PM
TODAY 2PM ET!
Don't miss this chance to learn from Dr Tammuella Chrisentery-Singleton, about @HEMABiologics #treatment option for #hemophilia A and B with #inhibitors in the NBDF Wednesday Webinar.
Bring your questions for the live Q&A!
Pre-register (free): bleeding.org/events
Don't miss this chance to learn from Dr Tammuella Chrisentery-Singleton, about @HEMABiologics #treatment option for #hemophilia A and B with #inhibitors in the NBDF Wednesday Webinar.
Bring your questions for the live Q&A!
Pre-register (free): bleeding.org/events
Next week's NBDF Wednesday Webinar will be an #UltraRare treat!
Living with #GlanzmannThrombasthenia: Findings from Patient-focused #Research
with @katekhair.bsky.social @abookclubof1.bsky.social (Simon Fletcher) & Peter Zdziarski.
July 8, 2PM ET
Pre-register (FREE): bleeding.org/events
Live Q&A!
Living with #GlanzmannThrombasthenia: Findings from Patient-focused #Research
with @katekhair.bsky.social @abookclubof1.bsky.social (Simon Fletcher) & Peter Zdziarski.
July 8, 2PM ET
Pre-register (FREE): bleeding.org/events
Live Q&A!
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
June 30, 2026 at 2:20 PM
Next week's NBDF Wednesday Webinar will be an #UltraRare treat!
Living with #GlanzmannThrombasthenia: Findings from Patient-focused #Research
with @katekhair.bsky.social @abookclubof1.bsky.social (Simon Fletcher) & Peter Zdziarski.
July 8, 2PM ET
Pre-register (FREE): bleeding.org/events
Live Q&A!
Living with #GlanzmannThrombasthenia: Findings from Patient-focused #Research
with @katekhair.bsky.social @abookclubof1.bsky.social (Simon Fletcher) & Peter Zdziarski.
July 8, 2PM ET
Pre-register (FREE): bleeding.org/events
Live Q&A!
We know #AI is being used in #healthcare, but is it affecting your care? How?
Jul 22, 2PM ET
In the NBDF Wednesday Webinar
#PatientExperience and #Innovation expert Spencer Morrissey, MS, will explain how AI is being used, and what we should know.
Register (free): bleeding.org/events
Live Q&A!
Jul 22, 2PM ET
In the NBDF Wednesday Webinar
#PatientExperience and #Innovation expert Spencer Morrissey, MS, will explain how AI is being used, and what we should know.
Register (free): bleeding.org/events
Live Q&A!
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
July 20, 2026 at 4:04 PM
We know #AI is being used in #healthcare, but is it affecting your care? How?
Jul 22, 2PM ET
In the NBDF Wednesday Webinar
#PatientExperience and #Innovation expert Spencer Morrissey, MS, will explain how AI is being used, and what we should know.
Register (free): bleeding.org/events
Live Q&A!
Jul 22, 2PM ET
In the NBDF Wednesday Webinar
#PatientExperience and #Innovation expert Spencer Morrissey, MS, will explain how AI is being used, and what we should know.
Register (free): bleeding.org/events
Live Q&A!
#AI in #Healthcare is Here!
But what does that mean for you?
In the next NBDF Wednesday Webinar, Spencer Morrissey, MS from the National Health Council takes us on a deep dive into AI tools and how they are being used in care.
Don't miss the live Q&A!
Jul 22, 2PM ET
Pre-register: bleeding.org/events
But what does that mean for you?
In the next NBDF Wednesday Webinar, Spencer Morrissey, MS from the National Health Council takes us on a deep dive into AI tools and how they are being used in care.
Don't miss the live Q&A!
Jul 22, 2PM ET
Pre-register: bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
July 16, 2026 at 9:05 PM
#AI in #Healthcare is Here!
But what does that mean for you?
In the next NBDF Wednesday Webinar, Spencer Morrissey, MS from the National Health Council takes us on a deep dive into AI tools and how they are being used in care.
Don't miss the live Q&A!
Jul 22, 2PM ET
Pre-register: bleeding.org/events
But what does that mean for you?
In the next NBDF Wednesday Webinar, Spencer Morrissey, MS from the National Health Council takes us on a deep dive into AI tools and how they are being used in care.
Don't miss the live Q&A!
Jul 22, 2PM ET
Pre-register: bleeding.org/events
In next week's NBDF Wednesday Webinar we will learn about Be Biopharma's exciting work with a new platform of medicines, B cell medicines (BCMs), and how they can be used for people with hemophilia B.
Mar 11, 2PM ET
Live Q&A
Register now (Free)
www.bleeding.org/events/gene-...
Mar 11, 2PM ET
Live Q&A
Register now (Free)
www.bleeding.org/events/gene-...
Gene Editing B Lymphocytes: B Cell Medicine for the Treatment of Hemophilia B | NBDF
Speakers: Michael Wang, MD; Michael Recht, MD, PhD, MBA Join us for a webinar focusing on a new platform of medicines, B cell medicines (BCMs), and how they can be used for people with hemophilia B.
www.bleeding.org
March 4, 2026 at 2:39 PM
In next week's NBDF Wednesday Webinar we will learn about Be Biopharma's exciting work with a new platform of medicines, B cell medicines (BCMs), and how they can be used for people with hemophilia B.
Mar 11, 2PM ET
Live Q&A
Register now (Free)
www.bleeding.org/events/gene-...
Mar 11, 2PM ET
Live Q&A
Register now (Free)
www.bleeding.org/events/gene-...
New Legislation Aims to Address Challenges for Women and Girls with Bleeding Disorders#United_States#Washington_D.C.#Women_Health#Bleeding_Disorders#NBDF
New Legislation Aims to Address Challenges for Women and Girls with Bleeding Disorders
The FED UP Act is designed to enhance diagnosis and treatment options for women and girls with bleeding disorders, addressing long-standing healthcare inequities in this community.
third-news.com
May 26, 2026 at 3:30 PM
New Legislation Aims to Address Challenges for Women and Girls with Bleeding Disorders#United_States#Washington_D.C.#Women_Health#Bleeding_Disorders#NBDF
What's up with #GeneTherapy for #hemophilia A?
In next week's National Bleeding Disorders Foundation Wednesday Webinar we here from #LivedExperience and #research experts about a new approach to help keep FVIII levels higher for longer.
Apr 22, 2PM ET
Pre-register (free):
bleeding.org/events
In next week's National Bleeding Disorders Foundation Wednesday Webinar we here from #LivedExperience and #research experts about a new approach to help keep FVIII levels higher for longer.
Apr 22, 2PM ET
Pre-register (free):
bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
April 16, 2026 at 9:31 AM
What's up with #GeneTherapy for #hemophilia A?
In next week's National Bleeding Disorders Foundation Wednesday Webinar we here from #LivedExperience and #research experts about a new approach to help keep FVIII levels higher for longer.
Apr 22, 2PM ET
Pre-register (free):
bleeding.org/events
In next week's National Bleeding Disorders Foundation Wednesday Webinar we here from #LivedExperience and #research experts about a new approach to help keep FVIII levels higher for longer.
Apr 22, 2PM ET
Pre-register (free):
bleeding.org/events
In the next National Bleeding Disorders Foundation Wednesday Webinar hear how medical, research, and lived experience experts consider rebalancing agents in shared decision-making to choose the best options for unique needs.
June 3, 2PM ET
Live Q&A
Pre-register (FREE): bleeding.org/events
June 3, 2PM ET
Live Q&A
Pre-register (FREE): bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
May 27, 2026 at 8:03 PM
In the next National Bleeding Disorders Foundation Wednesday Webinar hear how medical, research, and lived experience experts consider rebalancing agents in shared decision-making to choose the best options for unique needs.
June 3, 2PM ET
Live Q&A
Pre-register (FREE): bleeding.org/events
June 3, 2PM ET
Live Q&A
Pre-register (FREE): bleeding.org/events
What is RNAi? Can it really be used to treat a bleeding disorder?
Join Dr Tami Singleton and to answer these questions and so much more in tomorrow's National Bleeding Disorders Foundation Wednesday Webinar.
Wed Apr 26 2PM EDT
Pre-register for FREE below.
www.bleeding.org/events/silen...
Join Dr Tami Singleton and to answer these questions and so much more in tomorrow's National Bleeding Disorders Foundation Wednesday Webinar.
Wed Apr 26 2PM EDT
Pre-register for FREE below.
www.bleeding.org/events/silen...
Silencing the Clotting Challenge: siRNA’s Role in Hemophilia | NBDF
Join us for a groundbreaking exploration of small interfering RNA (siRNA) technology and its transformative potential in hemophilia treatment. In this cutting-edge session, leading researchers and cli...
www.bleeding.org
April 22, 2025 at 1:26 PM
What is RNAi? Can it really be used to treat a bleeding disorder?
Join Dr Tami Singleton and to answer these questions and so much more in tomorrow's National Bleeding Disorders Foundation Wednesday Webinar.
Wed Apr 26 2PM EDT
Pre-register for FREE below.
www.bleeding.org/events/silen...
Join Dr Tami Singleton and to answer these questions and so much more in tomorrow's National Bleeding Disorders Foundation Wednesday Webinar.
Wed Apr 26 2PM EDT
Pre-register for FREE below.
www.bleeding.org/events/silen...
In the Sept 23, 2PM ET NBDF Wednesday Webinar Dr. Tammuella Chrisentery-Singleton will provide practical information to help people with hemophilia and inhibitors and their caregivers feel more informed and prepared when navigating breakthrough bleeds.
Pre-register (FREE): Bleeding.org/events
Pre-register (FREE): Bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
Bleeding.org
September 16, 2026 at 6:44 PM
In the Sept 23, 2PM ET NBDF Wednesday Webinar Dr. Tammuella Chrisentery-Singleton will provide practical information to help people with hemophilia and inhibitors and their caregivers feel more informed and prepared when navigating breakthrough bleeds.
Pre-register (FREE): Bleeding.org/events
Pre-register (FREE): Bleeding.org/events
September 9, 2026 at 12:58 PM
In this week's NBDF Wednesday Webinar: a whole panel of experts will help us navigate the big changes to #Medicaid coming in January.
Learn what the #BleedingDisorders #community needs to do to prepare!
Live Q&A
Sept 9 2PM ET
Pre-register (FREE): bleeding.org/events
Learn what the #BleedingDisorders #community needs to do to prepare!
Live Q&A
Sept 9 2PM ET
Pre-register (FREE): bleeding.org/events
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
September 7, 2026 at 4:37 PM
In this week's NBDF Wednesday Webinar: a whole panel of experts will help us navigate the big changes to #Medicaid coming in January.
Learn what the #BleedingDisorders #community needs to do to prepare!
Live Q&A
Sept 9 2PM ET
Pre-register (FREE): bleeding.org/events
Learn what the #BleedingDisorders #community needs to do to prepare!
Live Q&A
Sept 9 2PM ET
Pre-register (FREE): bleeding.org/events
August 26, 2026 at 2:26 PM
Many of us (think we) know factor VIII and factor IX deficiencies, but what about #FactorX?
In the Aug 26 NBDF Wednesday Webinar Dr Meera Chitlur explains the symptoms, testing, burden, and management of hereditary factor X deficiency (HFXD).
2PM ET
Live Q&A!
bleeding.org/events
Sponsored by Kedrion
In the Aug 26 NBDF Wednesday Webinar Dr Meera Chitlur explains the symptoms, testing, burden, and management of hereditary factor X deficiency (HFXD).
2PM ET
Live Q&A!
bleeding.org/events
Sponsored by Kedrion
Upcoming Events for the Bleeding Disorders Community | NBDF
Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.
bleeding.org
August 24, 2026 at 7:08 PM
Many of us (think we) know factor VIII and factor IX deficiencies, but what about #FactorX?
In the Aug 26 NBDF Wednesday Webinar Dr Meera Chitlur explains the symptoms, testing, burden, and management of hereditary factor X deficiency (HFXD).
2PM ET
Live Q&A!
bleeding.org/events
Sponsored by Kedrion
In the Aug 26 NBDF Wednesday Webinar Dr Meera Chitlur explains the symptoms, testing, burden, and management of hereditary factor X deficiency (HFXD).
2PM ET
Live Q&A!
bleeding.org/events
Sponsored by Kedrion