Also, I decided to get laser eye surgery in the hope that it would lessen the impact of screen time (and streaming) on my NDPH. I had the procedure at the end of June and have recovered well since!
September 22, 2026 at 7:31 PM
Also, I decided to get laser eye surgery in the hope that it would lessen the impact of screen time (and streaming) on my NDPH. I had the procedure at the end of June and have recovered well since!
This #internationalwomensday find out how our NDPH fellowships have accelerated Dr Tammy Tong's career. 👇
#internationalwomensday #accelerateaction
#internationalwomensday #accelerateaction
March 8, 2025 at 11:00 AM
This #internationalwomensday find out how our NDPH fellowships have accelerated Dr Tammy Tong's career. 👇
#internationalwomensday #accelerateaction
#internationalwomensday #accelerateaction
This #internationalwomensday find out how our NDPH fellowships have accelerated Dr Pek Kei (Becky) Im’s career. 👇
#internationalwomensday #accelerateaction
@beckyim.bsky.social
#internationalwomensday #accelerateaction
@beckyim.bsky.social
March 8, 2025 at 10:00 AM
This #internationalwomensday find out how our NDPH fellowships have accelerated Dr Pek Kei (Becky) Im’s career. 👇
#internationalwomensday #accelerateaction
@beckyim.bsky.social
#internationalwomensday #accelerateaction
@beckyim.bsky.social
Totally having a hard time finding focus, energy, & motivation today. Started with #Migraine hangover & exhaustion, but still haven't been able to get going. Just realized, skipped my #ADHD meds today. Perhaps explains persistent malaise. Calling it full sick day & moving past my productivity guilt.
May 20, 2025 at 6:05 PM
July 29, 2026 at 8:16 PM
There is also an accessibility angle. With #ADHD, sitting doesn't promote progress or retention. I remember things in spaces associated with activities. I also have #NDPH and sometimes all I can do is listen in the dark. Entertainment or productivity reduces the loss I feel w/ #ChronicPain.
December 31, 2025 at 8:09 PM
There is also an accessibility angle. With #ADHD, sitting doesn't promote progress or retention. I remember things in spaces associated with activities. I also have #NDPH and sometimes all I can do is listen in the dark. Entertainment or productivity reduces the loss I feel w/ #ChronicPain.
I feel this description is not adequate at all
July 10, 2026 at 12:15 PM
I feel this description is not adequate at all
My symptoms & history align closely with NDPH (which I had never heard of). I already have some MRIs scheduled for Saturday which is awesomely fast!
September 24, 2025 at 2:41 AM
My symptoms & history align closely with NDPH (which I had never heard of). I already have some MRIs scheduled for Saturday which is awesomely fast!
Living with NDPH since February 2019. Changed my life. Not in a good way.
November 17, 2024 at 9:36 PM
Living with NDPH since February 2019. Changed my life. Not in a good way.
@vinr-mims.bsky.social with all of your Ohio connections, have you sought out the Cleveland Clinic for NDPH?
January 18, 2025 at 10:48 AM
@vinr-mims.bsky.social with all of your Ohio connections, have you sought out the Cleveland Clinic for NDPH?
How is this my first #commuterbike ride this month? Been a heck of a headache month. #NDPH #cycling #ChronicIllness #saynotofossilfuels #readingridingresearch
November 25, 2025 at 5:25 PM
How is this my first #commuterbike ride this month? Been a heck of a headache month. #NDPH #cycling #ChronicIllness #saynotofossilfuels #readingridingresearch
Is it bad that I'm actually happy my recent brain MRI found poss CFS leaks & may explain why brain feels like it's in a vice most days? I don't know that they can do anything, but with nearly non-stop headaches for the last 5 months, at least I know I'm not going crazy. #ChronicPain #Headache #NDPH
December 11, 2025 at 8:16 PM
Is it bad that I'm actually happy my recent brain MRI found poss CFS leaks & may explain why brain feels like it's in a vice most days? I don't know that they can do anything, but with nearly non-stop headaches for the last 5 months, at least I know I'm not going crazy. #ChronicPain #Headache #NDPH
Oof, I am feeling this lately. Especially as I've added gastrointestinal distress to my suite of symptoms. At least that is likely something that can be fixed, once effectively diagnosed. #ChronicIllness #ChronicPain #NDPH
“When your #body says no, there is no pushing through & this #unpredictability of energy means that I have to plan everything out. Making sure to rest between each task means only 1 or 2 things can happen each day.”: buff.ly/ylifVbY
by @ beverleybutterfly.bsky.social
#ChronicPain #pacing #disabled
by @ beverleybutterfly.bsky.social
#ChronicPain #pacing #disabled
When Your Body Says No -
When your body says no living with chronic illness often gets harder. A look at feeling behind in a world that doesn’t always understand.
buff.ly
May 13, 2026 at 1:24 PM
Oof, I am feeling this lately. Especially as I've added gastrointestinal distress to my suite of symptoms. At least that is likely something that can be fixed, once effectively diagnosed. #ChronicIllness #ChronicPain #NDPH
Being a medical mystery ain as exciting as it sounds. Yesterday, 4 of my persistent problems decided to all be very loud at the same time. In the middle of a fieldwork day that I could not leave (barring true emergency). #NDPH #PinchedNerve #ChronicPain
May 23, 2026 at 3:59 PM
Being a medical mystery ain as exciting as it sounds. Yesterday, 4 of my persistent problems decided to all be very loud at the same time. In the middle of a fieldwork day that I could not leave (barring true emergency). #NDPH #PinchedNerve #ChronicPain
First randomization in India for EASi-KIDNEY!🎉🥳
Big thanks to and the PGIMER team for leading the start, and to all our partner sites for their commitment and support.
Also to the fantastic colleagues at @georgeinstitute.bsky.social and Oxford NDPH
www.easikidney.org
Big thanks to and the PGIMER team for leading the start, and to all our partner sites for their commitment and support.
Also to the fantastic colleagues at @georgeinstitute.bsky.social and Oxford NDPH
www.easikidney.org
Welcome
EASi-KIDNEY is an international, multi-centre, randomised double-blind placebo-controlled trial to assess whether in addition to standard care, the drug vicadrostat reduces the risk of kidney disease ...
www.easikidney.org
August 23, 2025 at 2:42 AM
First randomization in India for EASi-KIDNEY!🎉🥳
Big thanks to and the PGIMER team for leading the start, and to all our partner sites for their commitment and support.
Also to the fantastic colleagues at @georgeinstitute.bsky.social and Oxford NDPH
www.easikidney.org
Big thanks to and the PGIMER team for leading the start, and to all our partner sites for their commitment and support.
Also to the fantastic colleagues at @georgeinstitute.bsky.social and Oxford NDPH
www.easikidney.org
My child has had a migraine attack for 18 days
My kid has had a constant headache for 481 days
I want robust medical research that will discover the cause of New Daily Persistent Headache and figure out how stop the constant pain.
#NDPH #Migraibe #Headache #IStandForScience #ChronicPain
My kid has had a constant headache for 481 days
I want robust medical research that will discover the cause of New Daily Persistent Headache and figure out how stop the constant pain.
#NDPH #Migraibe #Headache #IStandForScience #ChronicPain
March 26, 2025 at 8:36 PM
My child has had a migraine attack for 18 days
My kid has had a constant headache for 481 days
I want robust medical research that will discover the cause of New Daily Persistent Headache and figure out how stop the constant pain.
#NDPH #Migraibe #Headache #IStandForScience #ChronicPain
My kid has had a constant headache for 481 days
I want robust medical research that will discover the cause of New Daily Persistent Headache and figure out how stop the constant pain.
#NDPH #Migraibe #Headache #IStandForScience #ChronicPain
That sucks so much... All of it. ❤️🩹
I hope you don't mind asking, do you have ndph (new daily persistent headache) too?
I'm "only" at 3.5 years. 😮💨
I hope you don't mind asking, do you have ndph (new daily persistent headache) too?
I'm "only" at 3.5 years. 😮💨
July 22, 2026 at 7:39 AM
That sucks so much... All of it. ❤️🩹
I hope you don't mind asking, do you have ndph (new daily persistent headache) too?
I'm "only" at 3.5 years. 😮💨
I hope you don't mind asking, do you have ndph (new daily persistent headache) too?
I'm "only" at 3.5 years. 😮💨
7. I want to keep this thread relatively positive. BUT even tho I'm not saying a lot of sad facts about who I was or wanted to be before my illness, I still want to name it, because I'm not sure I did on here before.
I have (among other things lol) New daily persistent headache (NDPH) for about
I have (among other things lol) New daily persistent headache (NDPH) for about
June 10, 2025 at 8:40 PM
7. I want to keep this thread relatively positive. BUT even tho I'm not saying a lot of sad facts about who I was or wanted to be before my illness, I still want to name it, because I'm not sure I did on here before.
I have (among other things lol) New daily persistent headache (NDPH) for about
I have (among other things lol) New daily persistent headache (NDPH) for about
Please, pretty please, put targeted electrodes in my brain, please. #ChronicPain #NDPH #ChronicIllness #invisibledisability
youtube.com/watch?v=SYWW...
youtube.com/watch?v=SYWW...
Experimental treatment offers hope to people struggling with chronic pain
YouTube video by PBS NewsHour
youtube.com
October 27, 2025 at 12:59 AM
Please, pretty please, put targeted electrodes in my brain, please. #ChronicPain #NDPH #ChronicIllness #invisibledisability
youtube.com/watch?v=SYWW...
youtube.com/watch?v=SYWW...
Am I the only one that feels like I got run over by this barometric truck? #Migraine #NDPH #ChronicPain #barometer
January 5, 2026 at 5:45 PM
Am I the only one that feels like I got run over by this barometric truck? #Migraine #NDPH #ChronicPain #barometer
First day (partially) on campus for the week and 1st #commuterbike rides of the week. Had to bear a hasty retreat as #NDPH flare made screenwork and reading unbearable. #ChronicPain #ChronicIllness #cycling #saynotofossilfuels #readingridingresearch
September 23, 2025 at 6:42 PM
First day (partially) on campus for the week and 1st #commuterbike rides of the week. Had to bear a hasty retreat as #NDPH flare made screenwork and reading unbearable. #ChronicPain #ChronicIllness #cycling #saynotofossilfuels #readingridingresearch
more keywords ✨️ #promosky
acotar, noctis lucis caelum, desmond miles, choi san, the naturals, ffxv, jason todd, dick grayson, tommyinnit, music, dogs, lgbt, chronic illness, chronic pain, ndph, writing, k project, vincenzo, the devil judge, the uncanny counter, language learning
acotar, noctis lucis caelum, desmond miles, choi san, the naturals, ffxv, jason todd, dick grayson, tommyinnit, music, dogs, lgbt, chronic illness, chronic pain, ndph, writing, k project, vincenzo, the devil judge, the uncanny counter, language learning
November 14, 2024 at 6:32 AM
more keywords ✨️ #promosky
acotar, noctis lucis caelum, desmond miles, choi san, the naturals, ffxv, jason todd, dick grayson, tommyinnit, music, dogs, lgbt, chronic illness, chronic pain, ndph, writing, k project, vincenzo, the devil judge, the uncanny counter, language learning
acotar, noctis lucis caelum, desmond miles, choi san, the naturals, ffxv, jason todd, dick grayson, tommyinnit, music, dogs, lgbt, chronic illness, chronic pain, ndph, writing, k project, vincenzo, the devil judge, the uncanny counter, language learning
Take a look at our exclusive interview with pediatric #migraine expert Christina Szperka, who discusses how she got started in the field, the peculiarities of pediatric migraine, and her work on new daily persistent #headache (NDPH).
migrainecollaborative.org/in-search-of...
migrainecollaborative.org/in-search-of...
October 10, 2025 at 3:04 PM
Take a look at our exclusive interview with pediatric #migraine expert Christina Szperka, who discusses how she got started in the field, the peculiarities of pediatric migraine, and her work on new daily persistent #headache (NDPH).
migrainecollaborative.org/in-search-of...
migrainecollaborative.org/in-search-of...
Can't tell if I'm having dozens of muscle spasms or simple nerve pain. (One I might be able to ease, the other I endure, but trying to ease one could make the other worse, so I'm not moving.) #chronicpain #ChronicIllness #autoimmune #NDPH #IsItJustMe
Any of my fellow #chronicpain ( #neuralgia, #arthritis, #NDPH, #migraine) folks having a particularly bad string of pain days? I was shaking and almost vomited last night after the Del Com concert and am wallowing in intense pain radiating the length of my spine.
May 22, 2025 at 1:25 PM
Can't tell if I'm having dozens of muscle spasms or simple nerve pain. (One I might be able to ease, the other I endure, but trying to ease one could make the other worse, so I'm not moving.) #chronicpain #ChronicIllness #autoimmune #NDPH #IsItJustMe
For 21 days, Isla lived without Bank's accounts, cards, or cash. Every sat had to be earned through real work, Nostr payments, and local Bitcoin adoption.
This is monetary sovereignty tested in daily life.
Could you live on Bitcoin alone?
www.youtube.com/watch?v=NDph...
#Bitcoin #Nostr
This is monetary sovereignty tested in daily life.
Could you live on Bitcoin alone?
www.youtube.com/watch?v=NDph...
#Bitcoin #Nostr
I went all in on bitcoin for 21 days straight... It almost broke me
YouTube video by BTC Isla
www.youtube.com
May 8, 2026 at 7:06 PM
For 21 days, Isla lived without Bank's accounts, cards, or cash. Every sat had to be earned through real work, Nostr payments, and local Bitcoin adoption.
This is monetary sovereignty tested in daily life.
Could you live on Bitcoin alone?
www.youtube.com/watch?v=NDph...
#Bitcoin #Nostr
This is monetary sovereignty tested in daily life.
Could you live on Bitcoin alone?
www.youtube.com/watch?v=NDph...
#Bitcoin #Nostr