Neonatologists play a crucial role in identifying and managing TAPS in the NICU. Unlike TTTS, TAPS requires different care. Watch for complications like pulmonary hypertension and monitor hemoglobin/reticulocyte counts. More info: sbee.link/ucpetgqj9b
#NotJustTTTS #NeoSky
#NotJustTTTS #NeoSky
March 6, 2025 at 8:00 AM
Neonatologists play a crucial role in identifying and managing TAPS in the NICU. Unlike TTTS, TAPS requires different care. Watch for complications like pulmonary hypertension and monitor hemoglobin/reticulocyte counts. More info: sbee.link/ucpetgqj9b
#NotJustTTTS #NeoSky
#NotJustTTTS #NeoSky
Pregnancy after a TTTS and TAPS diagnosis is a rollercoaster of impossible choices. At 24 weeks, we had to make the hardest decision. Letting Rosie go was the only way to give Poppy a chance. Read our story: sbee.link/w8qexukjbh
#NotJustTTTS
#NotJustTTTS
March 8, 2025 at 1:20 PM
Pregnancy after a TTTS and TAPS diagnosis is a rollercoaster of impossible choices. At 24 weeks, we had to make the hardest decision. Letting Rosie go was the only way to give Poppy a chance. Read our story: sbee.link/w8qexukjbh
#NotJustTTTS
#NotJustTTTS
Sharon Darke, co-founder of Footprints Baby Loss, shares her experience of grieving a lost twin while caring for a surviving one. She talks about the need to honor both children and the importance of support for families in similar situations. youtube.com/shorts/fgDhnN3I... #NotJustTTTS
March 8, 2025 at 4:00 PM
Sharon Darke, co-founder of Footprints Baby Loss, shares her experience of grieving a lost twin while caring for a surviving one. She talks about the need to honor both children and the importance of support for families in similar situations. youtube.com/shorts/fgDhnN3I... #NotJustTTTS
Thank you to Prof. Asma Khalil, Prof. Enrico Lopriore, and Assoc. Prof. Jena Miller for an insightful TAPS Day webinar. Speaking on the role of patients in research was a privilege. We need more collaboration to drive progress.
tinyurl.com/tapsdaywebinar
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
tinyurl.com/tapsdaywebinar
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
TAPS day webinar
sbee.link
March 2, 2025 at 1:30 PM
Thank you to Prof. Asma Khalil, Prof. Enrico Lopriore, and Assoc. Prof. Jena Miller for an insightful TAPS Day webinar. Speaking on the role of patients in research was a privilege. We need more collaboration to drive progress.
tinyurl.com/tapsdaywebinar
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
tinyurl.com/tapsdaywebinar
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
TAPS is often diagnosed after birth because routine screenings aren’t always done. Around 40-63% of cases are missed during pregnancy. It’s time to recognize TAPS - 7 days till #TAPSDay. Learn more: bit.ly/3eEbupp #NotJustTTTS
February 24, 2025 at 12:00 PM
TAPS is often diagnosed after birth because routine screenings aren’t always done. Around 40-63% of cases are missed during pregnancy. It’s time to recognize TAPS - 7 days till #TAPSDay. Learn more: bit.ly/3eEbupp #NotJustTTTS
Are you ready for International TAPS Day? March 3rd is coming, and it is time to raise awareness. Get the resources you need here: trello.com/b/lqPh5o50/inter... Use #NotJustTTTS to share your stories and research!
March 2, 2025 at 10:01 PM
Are you ready for International TAPS Day? March 3rd is coming, and it is time to raise awareness. Get the resources you need here: trello.com/b/lqPh5o50/inter... Use #NotJustTTTS to share your stories and research!
The need to update international guidelines for twins is critical. Evolving guidelines and improving screening methods are key for better outcomes. Read about our project with Prof. Asma Khalil here: sbee.link/67xce4kjbt
#InternationalTAPSDay #TAPSAwareness #NotJustTTTS
#InternationalTAPSDay #TAPSAwareness #NotJustTTTS
March 9, 2025 at 10:30 AM
The need to update international guidelines for twins is critical. Evolving guidelines and improving screening methods are key for better outcomes. Read about our project with Prof. Asma Khalil here: sbee.link/67xce4kjbt
#InternationalTAPSDay #TAPSAwareness #NotJustTTTS
#InternationalTAPSDay #TAPSAwareness #NotJustTTTS
March 3 is International TAPS Day, launching a week of awareness from March 2 to 9. TAPS is rare, often misdiagnosed, and too many professionals still don’t know enough about it. Honored to speak alongside experts and grateful to Prof. Asma Khalil: sbee.link/cjxfgvw94n
#NotJustTTTS
#NotJustTTTS
February 25, 2025 at 7:41 PM
March 3 is International TAPS Day, launching a week of awareness from March 2 to 9. TAPS is rare, often misdiagnosed, and too many professionals still don’t know enough about it. Honored to speak alongside experts and grateful to Prof. Asma Khalil: sbee.link/cjxfgvw94n
#NotJustTTTS
#NotJustTTTS
Thank you to Prof. Asma Khalil, Prof. Enrico Lopriore, and Assoc. Prof. Jena Miller for an insightful TAPS Day webinar. The recording will be available soon via GEFOG.
For Stephanie Ernst’s talk and resources: sbee.link/cg4jbwudna
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
For Stephanie Ernst’s talk and resources: sbee.link/cg4jbwudna
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
March 2, 2025 at 1:42 PM
Thank you to Prof. Asma Khalil, Prof. Enrico Lopriore, and Assoc. Prof. Jena Miller for an insightful TAPS Day webinar. The recording will be available soon via GEFOG.
For Stephanie Ernst’s talk and resources: sbee.link/cg4jbwudna
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
For Stephanie Ernst’s talk and resources: sbee.link/cg4jbwudna
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
Today is International TAPS Day and World Hearing Day. Spontaneous TAPS donors have a 15% risk of bilateral deafness due to ANSD. BERA or AABR testing in the NICU is essential for early diagnosis.
More info: sbee.link/8a6wbfgy4q
#InternationalTAPSDay #WorldHearingDay #NotJustTTTS #ITD2025
More info: sbee.link/8a6wbfgy4q
#InternationalTAPSDay #WorldHearingDay #NotJustTTTS #ITD2025
March 3, 2025 at 3:24 PM
Today is International TAPS Day and World Hearing Day. Spontaneous TAPS donors have a 15% risk of bilateral deafness due to ANSD. BERA or AABR testing in the NICU is essential for early diagnosis.
More info: sbee.link/8a6wbfgy4q
#InternationalTAPSDay #WorldHearingDay #NotJustTTTS #ITD2025
More info: sbee.link/8a6wbfgy4q
#InternationalTAPSDay #WorldHearingDay #NotJustTTTS #ITD2025
Time is running out to register for this free webinar kicking off the awareness week for International TAPS Day. Join leading experts as we explore the latest in TAPS research, care, and advocacy. Spots are limited. Register now: sbee.link/ptr634hjyv
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
March 1, 2025 at 10:22 AM
Time is running out to register for this free webinar kicking off the awareness week for International TAPS Day. Join leading experts as we explore the latest in TAPS research, care, and advocacy. Spots are limited. Register now: sbee.link/ptr634hjyv
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
#TAPSDay #ITD2025 #TAPSTwins #NotJustTTTS
Abby’s story: We couldn’t confirm, but our MFM later said the girls likely had TAPS. Diagnosed with sIUGR, inpatient at 26 weeks, delivered at 28+4. 92 days in NICU. Grateful for the community for helping me become an advocate. #TAPSTwins #InternationalTAPSDay #TAPSDAY #ITD2025 #NotJustTTTS
March 6, 2025 at 12:00 PM
Abby’s story: We couldn’t confirm, but our MFM later said the girls likely had TAPS. Diagnosed with sIUGR, inpatient at 26 weeks, delivered at 28+4. 92 days in NICU. Grateful for the community for helping me become an advocate. #TAPSTwins #InternationalTAPSDay #TAPSDAY #ITD2025 #NotJustTTTS
Thank you to everyone who shared their story, joined our webinar, or supported International TAPS Day. Your involvement means so much! Next year, we’re forming a committee for the theme. Reach out if you’d like to join. Advocacy is a 365-day commitment.#NotJustTTTS
March 9, 2025 at 8:00 PM
Thank you to everyone who shared their story, joined our webinar, or supported International TAPS Day. Your involvement means so much! Next year, we’re forming a committee for the theme. Reach out if you’d like to join. Advocacy is a 365-day commitment.#NotJustTTTS
The future of TAPS research is promising, with ongoing studies improving diagnosis, treatment, and outcomes. As we near 20 years since TAPS was named, we push for greater awareness. If you're researching monochorionic twins, let’s connect.. #InternationalTAPSDay #TAPSAwareness #NotJustTTTS
March 9, 2025 at 4:00 PM
The future of TAPS research is promising, with ongoing studies improving diagnosis, treatment, and outcomes. As we near 20 years since TAPS was named, we push for greater awareness. If you're researching monochorionic twins, let’s connect.. #InternationalTAPSDay #TAPSAwareness #NotJustTTTS
Families facing multiple pregnancies, especially with complications or loss, need access to quality, evidence-based peer support. Healthcare providers must connect families to trusted networks. Read our position paper: sbee.link/vaud4w9m8g
#InternationalTAPSDay #TAPSAwareness #NotJustTTTS
#InternationalTAPSDay #TAPSAwareness #NotJustTTTS
March 9, 2025 at 1:00 PM
Families facing multiple pregnancies, especially with complications or loss, need access to quality, evidence-based peer support. Healthcare providers must connect families to trusted networks. Read our position paper: sbee.link/vaud4w9m8g
#InternationalTAPSDay #TAPSAwareness #NotJustTTTS
#InternationalTAPSDay #TAPSAwareness #NotJustTTTS
In TAPS, decisions should be based on gestation, severity, evidence, and importantly, the parents’ wishes. With so much still unknown, shared decision-making between healthcare providers and parents is essential. Learn more: sbee.link/xjdcawh48u
#TAPSAwareness #NotJustTTTS
#TAPSAwareness #NotJustTTTS
March 9, 2025 at 8:00 AM
In TAPS, decisions should be based on gestation, severity, evidence, and importantly, the parents’ wishes. With so much still unknown, shared decision-making between healthcare providers and parents is essential. Learn more: sbee.link/xjdcawh48u
#TAPSAwareness #NotJustTTTS
#TAPSAwareness #NotJustTTTS
As we close today, we invite families to share the names of twins and triplets lost to all twin complications in the comments. We honor their memory. Thank you to all the medical professionals, caregivers, and our partners Loss Books, The Skye High Foundation, and Footprints Baby Loss. #NotJustTTTS
March 8, 2025 at 8:00 PM
As we close today, we invite families to share the names of twins and triplets lost to all twin complications in the comments. We honor their memory. Thank you to all the medical professionals, caregivers, and our partners Loss Books, The Skye High Foundation, and Footprints Baby Loss. #NotJustTTTS
Seven years ago, Sofia and Olivia were born after a routine pregnancy. After two days, Olivia passed away. Today, Sofia shares what it’s like growing up as a twinless twin and how her family keeps Olivia’s memory alive. Watch: sbee.link/xnubqe83pm
#NotJustTTTS
#NotJustTTTS
March 8, 2025 at 8:01 AM
Seven years ago, Sofia and Olivia were born after a routine pregnancy. After two days, Olivia passed away. Today, Sofia shares what it’s like growing up as a twinless twin and how her family keeps Olivia’s memory alive. Watch: sbee.link/xnubqe83pm
#NotJustTTTS
#NotJustTTTS
We celebrate progress in TAPS screening. Prof. Asma Khalil shares how updated guidelines now recommend MCA-PSV screening for all monochorionic twins. Watch the video to learn more: sbee.link/dek9tq78xa
#NotJustTTTS #ITD2025 #InternationalTAPSDay
#NotJustTTTS #ITD2025 #InternationalTAPSDay
March 8, 2025 at 8:00 AM
We celebrate progress in TAPS screening. Prof. Asma Khalil shares how updated guidelines now recommend MCA-PSV screening for all monochorionic twins. Watch the video to learn more: sbee.link/dek9tq78xa
#NotJustTTTS #ITD2025 #InternationalTAPSDay
#NotJustTTTS #ITD2025 #InternationalTAPSDay
1 in 8 spontaneous TAPS donors may develop Auditory Neuropathy Spectrum Disorder (ANSD). Early detection through NICU screenings is key. Long-term follow-up is critical for monitoring speech, cognitive, and motor challenges. More: sbee.link/d4gu9fkmxq
#TAPSTwins #NotJustTTTS
#TAPSTwins #NotJustTTTS
March 7, 2025 at 8:00 PM
1 in 8 spontaneous TAPS donors may develop Auditory Neuropathy Spectrum Disorder (ANSD). Early detection through NICU screenings is key. Long-term follow-up is critical for monitoring speech, cognitive, and motor challenges. More: sbee.link/d4gu9fkmxq
#TAPSTwins #NotJustTTTS
#TAPSTwins #NotJustTTTS
Dr. Jeanine van Klink researches the long-term neurodevelopmental impact of TAPS. Survivors face higher risks of cognitive delays, speech and motor difficulties, and learning and behavioral issues.Watch the video: youtube.com/shorts/KPEWe4Ur...
#TAPSDAY #ITD2025 #NotJustTTTS
#TAPSDAY #ITD2025 #NotJustTTTS
March 7, 2025 at 4:00 PM
Dr. Jeanine van Klink researches the long-term neurodevelopmental impact of TAPS. Survivors face higher risks of cognitive delays, speech and motor difficulties, and learning and behavioral issues.Watch the video: youtube.com/shorts/KPEWe4Ur...
#TAPSDAY #ITD2025 #NotJustTTTS
#TAPSDAY #ITD2025 #NotJustTTTS
TAPS twins can climb mountains! Filip and Dumitru (R) were born at 29 weeks, diagnosed with spontaneous TAPS at 26 weeks, and treated with laser surgery. He has cerebral palsy and developmental delays due to a stroke in utero but continues to make progress. #TAPSTwins #TAPSDAY #ITD2025 #NotJustTTTS
March 7, 2025 at 12:00 PM
TAPS twins can climb mountains! Filip and Dumitru (R) were born at 29 weeks, diagnosed with spontaneous TAPS at 26 weeks, and treated with laser surgery. He has cerebral palsy and developmental delays due to a stroke in utero but continues to make progress. #TAPSTwins #TAPSDAY #ITD2025 #NotJustTTTS
Post-laser TAPS and spontaneous TAPS differ in long-term effects. Donor twins in spontaneous TAPS face higher risks of NDI and cognitive delays. Long-term follow-up is key for proper development. Learn more at www.tapssupport.com/the-lon... #TAPSTwins #TAPSDAY #ITD2025 #NotJustTTTS
March 7, 2025 at 8:00 AM
Post-laser TAPS and spontaneous TAPS differ in long-term effects. Donor twins in spontaneous TAPS face higher risks of NDI and cognitive delays. Long-term follow-up is key for proper development. Learn more at www.tapssupport.com/the-lon... #TAPSTwins #TAPSDAY #ITD2025 #NotJustTTTS
Neonatologists play a critical role in managing TAPS. Donor twins are at increased risk of lactate acidosis, hypoglycemia, and respiratory complications like PPHN.
Study: sbee.link/vxrnktdq84
Study details: sbee.link/tgw9d73mac
#NotJustTTTS #NeoSky
Study: sbee.link/vxrnktdq84
Study details: sbee.link/tgw9d73mac
#NotJustTTTS #NeoSky
March 6, 2025 at 8:00 PM
Neonatologists play a critical role in managing TAPS. Donor twins are at increased risk of lactate acidosis, hypoglycemia, and respiratory complications like PPHN.
Study: sbee.link/vxrnktdq84
Study details: sbee.link/tgw9d73mac
#NotJustTTTS #NeoSky
Study: sbee.link/vxrnktdq84
Study details: sbee.link/tgw9d73mac
#NotJustTTTS #NeoSky
In this video, Prof. Enrico Lopriore explains TAPS, a rare condition affecting monochorionic twins. TAPS is often diagnosed at birth, and neonatologists are crucial in managing it through early detection and care. #NotJustTTTS #NeoSky
More: sbee.link/t67bdymujv
More: sbee.link/t67bdymujv
March 6, 2025 at 4:00 PM
In this video, Prof. Enrico Lopriore explains TAPS, a rare condition affecting monochorionic twins. TAPS is often diagnosed at birth, and neonatologists are crucial in managing it through early detection and care. #NotJustTTTS #NeoSky
More: sbee.link/t67bdymujv
More: sbee.link/t67bdymujv