#OrphanDrugAct
www.congress.gov/crs-product/...
#OrphanDrugAct explainer
#RareDiseases
#OrphanDiseases
Please support the work of nonprofits focused on research & treatment for specific rare diseases. Our numbers are too small to warrant funding from typical sources. Nonprofits are lifesaving resources.
Thank you.
June 11, 2026 at 10:56 PM
Did you know the #OrphanDrugAct (#ODA) has led to over 800 #raredisease treatments? But many challenges remain in access, affordability, and continued research for rare disease communities.

Learn more at www.rare360.life/post/inside-...

#rare360 #rareadvocacy #LivingRare
July 21, 2025 at 6:11 PM