#PACFiND
What's going on here? 🎬Dr Rosemary Hollick is under the lights filming an interview as part of the key outputs from the PACFiND study.

Full details will be revealed soon – watch this space! 👀

Find out more: lnkd.in/eepN4Rmw

#Fibromyalgia #HealthcareResearch #PatientCentredCare #PACFiND
February 13, 2026 at 3:08 PM
Highlighting #PainAwarenessMonth2025 with the PACFiND study—transforming care for people living with fibromyalgia. 🌟

PACFiND is developing a patient-centred toolkit for more effective, compassionate fibromyalgia care.

#PainAwarenessMonth #PACFiND #Fibromyalgia
September 16, 2025 at 12:11 PM
Health + work systems often reinforce barriers for people with fibromyalgia. 💼

The PACFiND study co-designed guiding principles and a toolkit to support coordinated, person-centred care across services.

Read more about this study and it's impact here: www.abdn.ac.uk/iahs/academi...
Shake-up of services needed to ease fibromyalgia pain
Epi Group's Patient-centred Care for Fibromyalgia: New pathway Design (PACFiND) analysis of the state of care in the UK for fibromyalgia patients identifies multiple failings of current systems, and s...
www.abdn.ac.uk
November 28, 2025 at 1:01 PM
PACFiND highlights big gaps in fibromyalgia care. 🏥
People face long waits, inconsistent diagnosis, and a “revolving door” of referrals. Patients want early diagnosis, specialist input, shorter waits & physio.
More: lnkd.in/eZXHzTwg

#PACFiND #Fibromyalgia
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lnkd.in
November 28, 2025 at 12:59 PM
Our PACFiND study found fibromyalgia deeply affects daily life, work & wellbeing. 🗣️
Interviews + a study with 518 people show strong preference for holistic, personalised, non-drug support and dependable follow-up.
Details: lnkd.in/eBTaVBeA

#ChronicPain #PatientCentredCare
LinkedIn
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lnkd.in
November 28, 2025 at 1:00 PM
Impactful Fibromyalgia research 🎯

The #PACFiND study looked at pathways to patient-centred care for people living with #fibromyalgia. The team of #RMD researchers and #patient partners are building a #toolkit to tailor key components of care for service provider 🏥 and patients👨‍👩‍👧‍👦
youtu.be/VaVjzmPqJGM
PACFiND Survey Results
YouTube video by University of Aberdeen
youtu.be
April 2, 2025 at 12:55 PM
📺 Did you spot us on BBC Scotland last week? Our PACFiND study shows fibromyalgia patients face years-long waits & a revolving door of tests. We need better, earlier diagnosis & holistic care 💪

Read more at:
www.abdn.ac.uk/iahs/academi...

#Fibromyalgia #PACFiND
Shake-up of services needed to ease fibromyalgia pain
Epi Group's Patient-centred Care for Fibromyalgia: New pathway Design (PACFiND) analysis of the state of care in the UK for fibromyalgia patients identifies multiple failings of current systems, and set to publish practical guidance to improve care
www.abdn.ac.uk
December 1, 2025 at 11:05 AM
Prof Gary Macfarlane visited the Pain Research Centre at McMaster University in Hamilton, Ontario, Canada to share findings from our PACFiND study on improving fibromyalgia care.
Grateful for the warm welcome and insightful discussions.
Learn more & see our key recommendations: lnkd.in/eepN4Rmw
December 5, 2025 at 10:14 AM
🟣 PACFiND is focused on improving #fibromyalgia healthcare. We're now developing a toolkit from evidence & patient experience:
🔹 Patients prefer rheumatologist-led care but are open to nurse or GP-led options for shorter waits.
🔹 UK services are fragmented, with stigma around diagnosis still high.
March 31, 2025 at 1:53 PM
Amazing to see our team presenting at #BPSASM2025!👏

📍Prof Macfarlane @aberdeenepi.bsky.social shared our work on Chronic High Impact Pain #CHIPP 🗣️
📍Dr Hollick spoke on designing pain care as part of #PACFiND & #RHEUMAPS 🏥
📍Nabeeha Attique presented on pain policy across 4 countries 🌍
June 6, 2025 at 2:00 PM
🩺 New summary from PACFiND explores how healthcare systems can lead to withdrawal of care from people with fibromyalgia - often reframing symptoms as "psychological" to justify reduced support.

Read more:

www.abdn.ac.uk/iahs/academi...

#Fibromyalgia #HealthcareSystems #ChronicPain #Research
Healthcare systems are organised to withdraw support from people with fibromyalgia | The Institute of Applied Health Sciences | The University of Aberdeen
www.abdn.ac.uk
August 15, 2025 at 2:49 PM
💬 “A little bit of support really, that’s all I was looking for.”

🧠 New #PACFiND study explores how #fibromyalgia disrupts #work & #identity

Led by Martin Stevens, @aberdeenepi.bsky.social & Dr Hollick
🔗 www.sciencedirect.com/science/arti...
‘A little bit of support really, that’s all I was looking for’ A qualitative study of the biographical disruption of fibromyalgia at work.
Fibromyalgia is a chronic condition which can have a detrimental impact on a person’s interaction with work. Biographical disruption is a lens through…
www.sciencedirect.com
June 26, 2025 at 9:05 AM
📰 Research from the standpoint of people with #fibromyalgia

Caroline Cupit & colleagues at @ox.ac.uk have published a systems-focused literature review ahead of their work on the #PACFiND project, led by our team at @uniofaberdeen.bsky.social

🔗 onlinelibrary.wiley.com/doi/10.1111/...
Mapping the Social Organisation of Neglect in the Case of Fibromyalgia: Using Smith's Sociology for People to Inform a Systems‐Focused Literature Review
Fibromyalgia is a syndrome characterised by persistent unexplained pain and fatigue. People with fibromyalgia report receiving little support to manage symptoms, difficult interactions with healthcar...
onlinelibrary.wiley.com
May 20, 2025 at 2:21 PM
🔹 No existing model of care for #fibromyalgia covers the full patient journey & ongoing specialist care offers no clear benefit over primary care.
🔹 People who are undiagnosed report similar symptoms but better healthcare experiences than those with a diagnosis.
#PACFiND tinyurl.com/42nsem4y
PAtient-centred Care for Fibromyalgia: New pathway Design (PACFiND) | The Institute of Applied Health Sciences | The University of Aberdeen
tinyurl.com
March 31, 2025 at 1:58 PM
📊 The #PACFiND study shows how data-driven research can improve healthcare design!

We’ll soon be recruiting a data analyst to join projects like this—stay tuned for updates!

#Healthcare #Research #PatientCentred @uniofaberdeen.bsky.social
February 7, 2025 at 12:12 PM
📢 New insights from the #PACFiND study!

Our latest research highlights patient preferences in #fibromyalgia care:

✔️ Rheumatologist-led care preferred, but shorter waits matter
✔️ Quick access & personalised treatment are key

Read more: journals.plos.org/plosone/arti...
Patient preferences for models of care for fibromyalgia: A discrete choice experiment
Background Fibromyalgia is a common reason for referral to a rheumatologist and is a centralised pain state with symptoms beginning in adolescence/early adulthood and manifests as pain throughout the ...
journals.plos.org
February 7, 2025 at 12:12 PM
وجد الاستطلاع أن تغيير الخدمات اللازمة لتخفيف آلام الفيبروميالجيا

الائتمان: Pixabay / CC0 المجال العام كثيرًا ما ينتظر الناس سنوات حتى "يؤخذوا على محمل الجد"، وتعد يانصيب الرمز البريدي للحصول على الرعاية والنقص العام في المعرفة من بين بعض النتائج الرئيسية التي توصلت إليها تحقيقات جامعة أبردين في…
وجد الاستطلاع أن تغيير الخدمات اللازمة لتخفيف آلام الفيبروميالجيا
الائتمان: Pixabay / CC0 المجال العام كثيرًا ما ينتظر الناس سنوات حتى "يؤخذوا على محمل الجد"، وتعد يانصيب الرمز البريدي للحصول على الرعاية والنقص العام في المعرفة من بين بعض النتائج الرئيسية التي توصلت إليها تحقيقات جامعة أبردين في رعاية الفيبروميالجيا. الرعاية التي تركز على المريض للفيبروميالجيا: مشروع تصميم المسار الجديد (PACFiND) الذي تقوده جامعة أبردين مع شركاء في جميع أنحاء المملكة المتحدة قد وصل مؤخرًا إلى الاكتمال. قام الفريق بقيادة البروفيسور غاري ماكفارلين والدكتورة روزماري هوليك في جامعة أبردين، بجمع مجموعة واسعة من الأدلة. وقاموا باستطلاع أكثر من 2700 مريض ومتخصص في الرعاية الصحية، وقاموا بتحليل بيانات الرعاية الصحية من ما يقرب من 100000 شخص، وتحدثوا مع الأفراد الذين يعانون من الفيبروميالجيا، وفحصوا الخدمات في جميع أنحاء المملكة المتحدة.
beiruttime-lb.com
November 30, 2025 at 6:32 PM
Mapping the Social Organisation of Neglect in the Case of Fibromyalgia: Using Smith's Sociology for People to Inform a Systems‐Focused Literature Review. New paper from the PACFiND study out now. Watch this space; more coming #fibromyalgia #chronicpain
February 10, 2025 at 6:04 PM