Thank you to everyone who contributed to today’s #PIDForum: “Shaping the future of research: patients as equal partners.”

💡Fostering meaningful participation and recognition of patient organisations in EU research projects is key to ensuring that research and innovation are fit for purpose.

How can EU policy better respond to the needs of people living with primary and secondary immunodeficiencies?

Because rare does not mean invisible — and not-so-rare still deserves attention.

#IPOPI #PIDForum #PIDs #SIDs #RareDiseases #EUHealthPolicy #HealthPolicy #PatientAdvocacy

✨ We have wrapped up an insightful and engaging PID Forum on “When Rare Meets the Not-So-Rare: the Case of PIDs & SIDs.”

💡It was an enlightening PID Forum on how expertise built around PIDs can help improve the understanding, diagnosis and management of SIDs.

#PIDForum #EuropeanParliament

When a consensus emerges, we can only be pleased: patients must be considered full partners in research projects. This PID Forum is an important first step towards making this conviction a reality.

Thank you to MEP @Romana Jerković and MEP Nicolás González Casares for co-hosting the IPOPI PIDForum

📅 On 23 June, the PID Forum, "Rare and Not-So-Rare: Shaping EU Policy for PIDs & SIDs", brought together policymakers, healthcare professionals and patient advocates at the European Parliament, hosted by MEP Romana Jerković (S&D, Croatia).

#PIDForum

This edition of the #PIDForum will focus on the challenges and opportunities linked to ageing with a primary immunodeficiency in #Europe, helping bring greater attention to the needs and experiences of the #PID community.

#PrimaryImmunodeficiencies #AgeingEurope #EuropeanParliament