#PJsAndProtocol
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mefoggydog.bsky.social
BED for Severe M.E. is tomorrow!!!

Please donate and participate if you are able to 💙

#BedForSevereME #PjsAndProtocol #pwME #MEcfs #Charity
smileformeuk.bsky.social Smile For ME @smileformeuk.bsky.social · Oct 27
On the 29th October post a photo in your favourite pyjamas on social media using the hashtag #BedForSevereME. Let’s turn pyjamas into purpose and raise awareness, funds, and hope for the M.E. community. Together, we can make a BIG impact 🩵 @mefoggydog.bsky.social
smileformeuk.bsky.social Smile For ME @smileformeuk.bsky.social · Oct 27
Got my pjs ready for Wednesday 29th Oct for #BEDForSevereME @mefoggydog.bsky.social awareness fundraiser

We’re asking for support from ME sufferers, their families, carers & allies to take part to help spotlight the 1 in 4 people with ME who are severely affected: www.mefoggydog.org/bed-for-seve...
October 28, 2025 at 5:18 PM
mefoggydog.bsky.social
We are thrilled that #BedForSevereME is coming soon (29th Oct!), but we need YOU! Help us raise funds for @SmileForMEUK and Cure ME/ @mecfsbiobank . Share, donate, spread the word. Let’s make this huge! 💙 #pwME #SevereME #PJsAndProtocol

Whole video - youtube.com/live/L-YCeTq...
September 30, 2025 at 3:55 PM
mefoggydog.bsky.social
Let’s make Severe M.E. visible.

On 29th Oct, wear your ‘BED for Severe M.E.’ badge with pride. Every badge sold supports @SmileForMEUK and @MEcfsbiobank.
Start a conversation. Buy here bit.ly/4paVqPe
Spark change. #BedForSevereME #SevereME #PJsAndProtocol #pwME
September 8, 2025 at 2:17 PM
mefoggydog.bsky.social
💬 “What’s that badge?”
“It’s for Severe M.E. - a condition that leaves thousands bedbound.”

Start the conversation. Wear the badge. Support the cause.

Buy now - bit.ly/4paVqPe

#BedForSevereME #PJsAndProtocol #MEAwarenessHour
September 17, 2025 at 7:23 PM
mefoggydog.bsky.social
Your voice matters. If you live with Severe M.E., share your BED story on 29th October 2025. Let the world see your daily reality. #BEDforSevereME #pwME #PJsAndProtocol

www.mefoggydog.org/bed-for-seve...
BED for Severe M.E. | ME Foggy Dog
8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound…
www.mefoggydog.org
October 27, 2025 at 8:45 PM
mefoggydog.bsky.social
BED is more than furniture. For those with Severe M.E., it’s a sanctuary, a lifeline, a world. Join us on 29th Oct to raise awareness.

See all campaign info here - www.mefoggydog.org/bed-for-seve...
#BEDforSevereME #PwME #MEcfs #PJsAndProtocol
BED for Severe M.E. | ME Foggy Dog
8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound…
www.mefoggydog.org
October 21, 2025 at 6:44 PM
mefoggydog.bsky.social
No NHS protocol. No cure. Severe M.E. is devastating, yet still overlooked. Help us push for change this 29th Oct.

#BEDforSevereME - www.mefoggydog.org/bed-for-seve...

#PJsAndProtocol #pwME
BED for Severe M.E. | ME Foggy Dog
8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound…
www.mefoggydog.org
October 25, 2025 at 3:03 PM
mefoggydog.bsky.social
Supporting BED for Severe M.E. is about understanding, recognition, and inclusion in healthcare. Let's make our voices heard! #BedForSevereME #PJsAndProtocol #MEAwarenessHour
October 29, 2025 at 8:00 PM
stripylightcic.bsky.social
We’re shifting the focus from awareness to action, and we’ll be sharing more details very soon.

Stay tuned! 💡

#BEDforSevereME #SevereME #PJsAndProtocol #MEcfs #NHS
October 15, 2025 at 2:42 PM
mefoggydog.bsky.social
Thank you to those who have already posted tributes to this 'In Loving Memory' board.
Add your tribute here- www.mefoggydog.org/bed.../in-lo...
#BedForSevereME #PjsAndProtocol #pwME #SevereME
October 29, 2025 at 5:54 PM
stripylightcic.bsky.social
📢 Amplify the voices of those too ill to advocate for themselves

Let’s turn pyjamas into a statement of solidarity.

www.stripylightbulb.com/2025/09/03/p...

#BedForSevereME #PJsAndProtocol #SocialImpact #Inclusion #UK 2/2
Pyjama Power: A Day of Solidarity for the Severe M.E. Community | Stripy Lightbulb CIC
Stripy Lightbulb CIC invites businesses, public sector bodies, and social enterprises to take part in Wear Your Pyjamas to Work Day, to support BED for Severe M.E.
www.stripylightbulb.com
September 3, 2025 at 11:28 AM
mefoggydog.bsky.social
PJs for a purpose! On 29th Oct, wear your pyjamas to work to honour those with Severe M.E. whose BED is their everyday reality. Snap a pic, post about the campaign, & tag

Info - www.mefoggydog.org/bed-for-seve...
#BEDforSevereME #PJsAndProtocol #MEcfs
October 22, 2025 at 5:46 PM
mefoggydog.bsky.social
Your voice matters. If you live with Severe M.E., share your BED story on 29th October 2025. Let the world see your daily reality. #BEDforSevereME #pwME #PJsAndProtocol

www.mefoggydog.org/bed-for-seve...
BED for Severe M.E. | ME Foggy Dog
8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound…
www.mefoggydog.org
October 26, 2025 at 8:13 PM
mefoggydog.bsky.social
Thank you to everyone who supported BED for Severe M.E. yesterday! The JustGiving pages will remain open for a few more weeks. Please encourage others to support this cause. Thank you.

JustGiving links can be found here - www.mefoggydog.org/bed-for-seve...

#BEDForSevereME #pwME #PJsAndProtocol
October 30, 2025 at 3:20 PM
mefoggydog.bsky.social
We went 'live' this morning

youtube.com/live/CMfh-W0...

#BedForSevereME #PJsAndProtocol #pwME #MEcfs
BED for Severe M.E Begins!
YouTube video by M.E Foggy Dog
youtube.com
October 29, 2025 at 4:50 PM
mefoggydog.bsky.social
Knowledge is power. Learn about the realities of Severe M.E. and why BED matters. Read and engage with posts from those with Severe M.E (and their loved ones) on Oct 29th. Share what you discover. #BEDforSevereME #PJsAndProtocol #Health #PwME

Campaign info - www.mefoggydog.org/bed-for-seve...
BED for Severe M.E. | ME Foggy Dog
8th August 2024 will mark the first annual BED for Severe M.E. Campaign! 25% of people living with Myalgic Encephalomyelitis are severely affected. Those living with Severe M.E are either bedbound…
www.mefoggydog.org
October 23, 2025 at 1:06 PM
mefoggydog.bsky.social
this EXCITING DEVELOPMENT!!)
- 👆 means there will be a charity single for #BedForSevereME in 2025!! All info on here - www.mefoggydog.org/bed-for-seve...

Thank you to all who got involved in BED for severe M.E in 2024!!

PJs and protocol!

#PwME #MEcfs #SevereME #PjsAndProtocol 3/3
https://mefoggydog.org/bed-for-severe…
August 9, 2024 at 6:58 AM
mefoggydog.bsky.social
Have you gone 'local' yet?

Next step for ME Foggy Dog's NHS protocol campaign can be found here -

mefoggydog.org/bed-for-severe…#BedForSevereMEM#PjsAndProtocolo#pwMEM#SevereMEDayay
August 8, 2024 at 2:46 PM
stripylightcic.bsky.social
This survey is part of our #BedForSevereME campaign, led by Stripy Lightbulb CIC & @MEFoggyDog. We're working to improve care pathways for the most severely affected M.E patients. Share your insights 👉 www.stripylightbulb.com/2025/10/16/c... #SevereME #PJsAndProtocol #NHS #MedTwitter
Call for Input: Reconciling Safety in Remote Care for Severe M.E. | Stripy Lightbulb CIC
Reconciling Safety in Remote Care for Severe ME We are inviting healthcare professionals to anonymously share their insights via a short survey.
www.stripylightbulb.com
October 23, 2025 at 7:15 PM